J-tube and now what???????

May 25, 2004

Hello everyone

I know I don't keep you all updated on Brady very often. I'm going

to try a little harder to do so after the last couple of weeks we

have had.

Brady has had a G-tube in since October 2002 and really had no

problems with it. For the last six months or so Brady has been

going through a lot of gagging. About every 2 months he begins to

gag and it lasts for about 2 weeks. In those 2 weeks we are lucky

to get half of what he need in a day into him every day. Last week

was really bad for us. He was gagging so bad I contacted his doctor

and told him we needed to have a j-tube placed. Two months ago I

was totally opposed to the idea of a j-tube. We had the j-tube

placed 2 weeks ago on a Friday. Brady did wonderful on his feedings

on Friday, Saturday, and Sunday. Monday morning at around 5:00am he

woke up gagging and has been since.

We had a GI appointment today and they are going to do an endoscope

to see if they can find anything different than what they have found

on two upper GI's, a milk scan, and belly x-rays. We already know

that he has a paraesophogial hiatal hernia What we don't know is, is

that hernia causing him all of this pain and discomfort and is it

what is causing him to gag. We are all stumped here and all these

doctors are doing is guessing.

Brady is also losing weight again. He has lost about 6 ounces in

the past month. I am scared for Brady. They have to put him under

for the endoscope and he has never done well with anisteisa. I am

about to go insane. I don't know what I can do to make him more

comfortable. When he does have these gagging spells he doesn't want

any one to touch him or comfort him. Please help me what should I

do????

(mom of Brady RSS j-tube zantac reglan fundoplication 20

months 14lbs 9oz and Kiersten non Rss 13lbs 4 months)

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