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Our son, has had increased difficulty eating.

He had slowed down in his eating over the last several

months. In the last week, he's been unable to eat much

at all. He's lost 10-20 pounds in the last week. His

weight can vary by as much as five pounds from day to

day. I think that dehydration has much to do with his

weight issues. But, he's actually looking thinner

now. He had gained about 80 pounds in the last year,

even gaining a small amount as he had difficulty

eating.

He's vomited most meals recently. He's been unable to

keep down anything more than clear liquids.

Today they did a wbc scan and found something in the

small intestine. Not sure what because they didn't

say. Tomorrow they are doing a small bowel follow

through.

Our has lost four pounds over the last two

months. The GI suggested giving her duocal and/or

scandishake but I told him that we simply can't afford

it. I have been thinking that the g-tube needs to be

replaced. He thinks there is a fistula in the old

stoma.

I am SO frustrated.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

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