Trouble in school

[Guest guest]

Hi everyone,

I need a little advice.

First an update. My son has RSS. He is 6 3/4. He is on growth

hormone and periactin. No feeding tube. Last May his growth hormone

was increased again and he was put back on periactin. The results

have bee dramatic.

Since then he has grown almost 3 inches and put on almost 6 pounds.

In the 2 years before May, his weight was 29 +/- .5 pounds and his he

grew barely an inch.

Now we are having some trouble in school. It seems is tired

quite a bit and often rests in school. He sleeps almost 14 hours a

night. He is in bed and asleep by 6 pm and doesn't get up until

almost 8 am. Around 6 pm he oftens asks to go to sleep because he is

too tired. While in school the teachers are complaining that he

cannot get his work done. He takes forever to make decisions and

complete assignments. Specifically, when asked to write 2 sentences,

he takes almost 1/2 hour to think of 2 things to write. In math,

however, he is ahead of his classmates.

He is also having some reading trouble and is getting extra help

there but he is only slightly below grade level.

So, we are wondering what is up. Why does he seem so tired, why can't

he think of things to write? Why is decesion making such a hard

thing? Could this be something medical.

In the meantime, we have asked for another IEP meeting to possible

get him an aid and to discuss some other issues like not being

allowed in the school to observe our son. DON'T ask !. I'm likely to

start throwing my computer around ( again ).

While all this is going on, I recently started a new job in land.

The problem is, I live in New Hampshire. So I am only home on

weekends. It is being very hard on my wife and me. By the way, anyone

in land want to rent me a room?

Any suugestions or advice would be appreciated.

Thanks

Ken M