Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Ann, I'm glad that you had a good appointment with your new int met dr. It sounds like he is going to be proactive fore you, which is very important. I am glad he will be drawing up a protocol letter for you. Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Hi Ann, I'm sorry if this is a stupid question, but what are " all the strokelike symptoms " ? I have stroke-like and seizure-like episodes, not as frequently as before changing supplements, but once in a while. Most of mine do not have loss of speech, but some do. What might be the significance of a " full " versus " partial " strokelike episode, I haven't heard that terminology. For seizures, I've heard of partial and complex, but I'm not sure if I know what they mean exactly. Take care, RH > Evening Roomies- > > My appt with my new int med dr went well. Dr B was very thorough and understood my needs per pain management. He takes a pro-active approach, rather than a wait and see method like some drs I have seen. > > We discussed symptoms that are happening per this crash and he will be drawing up a protocol letter for me to carry at all times. Whenever I go back to the ER, there will be specific instructions for my care. > > ---- > Around 7:30 I had my first full strokelike episode per this crash: " full " meaning all the strokelike symptoms were present. Usually strokelike episodes are common with my crashes, but somehow its entrance was delayed. I find this odd. > > I guess that's it for right now. I am going to go back and rest. > > Hope everybody is hanging in there. > > Hugs- > > Ann > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Hi RH- I use the term " full " (not a technical term I don't think) to refer to all my normal symptoms associated with SLE. For me, A normal SLE consists of: slurred speech state of confusion loss of memory instant fatigue tremors in my head-feels like my brain is sloshing around. stinging on the brain loss of coordination weakness may also have numbness or tingling too I didn't mean to confuse any of you. And I by no means think there is anything " normal " about having a SLE. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 > Hi RH- > I use the term " full " (not a technical term I don't think) to refer > to all my normal symptoms associated with SLE. Okay, so you are like me in that you have one or more symptoms with SLEs, but only infrequently have " all " of the symptoms? Thanks, RH Quote Link to comment Share on other sites More sharing options...
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