Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 According to Dr. H., while RSS is spoken of as " primordial dwarfism, " she does not like to use the term dwarf for our RSS kids. All of our doctors agree on this one. And I'm talking about doctors who have researched this for at least the 15 years we have worked with them. Plus, think about your children and others and how they would react to being called a dwarf. Telling people that your child has a growth disorder is a much better and more positive spin to the whole situation. By the way, according to LPA, Little People of America, my definition of a dwarf and midget are correct. And they were confirmed by Dr. at the DuPont Institute in Delaware. Dr. is the main medical advisor for LPA. We used to belong to that organization. Max, however, is now too tall to belong. He is 5 feet. Their " cut-off " is 4'11 " . A change in wording can make all the difference in how a child perceives him/herself. Jodi Z. Quote Link to comment Share on other sites More sharing options...
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