Re: CHAT: Olivia's Dental Surgery and other Great News!!

[Guest guest]

WOW - I am so glad that everything turned out so well, and the

connection you have made with this doctor!

>

> Olivia's procedure went great! The Dr's were very open to RSS

and

> only needed a bit of coaxing with admitting her the night before

for

> an IV. In order to admit her she needed a Ped. Dr to do it so

they

> found one that they really liked. One nurse came in and raved

about

> him (her son goes to this Dr.). One of the nurses said that he

had

> dealt with RSS before so I was excited to meet him. He inserted

her

> IV with lightening speed and Olivia was just starting to cry when

> she realized he was done, so it was not a bad experience for her!

> He has one RSS patient in northern Alberta and has done a consult

on

> a case in British Columbia. He's also the Osteogenesis Imperfecta

> (OI) specialist in western Canada and told us that there is now IV

> treatment for kids with OI. He currently has 40 OI patients right

> now. To top it all off he asked us if we would see him at his

> office!!! I asked if he was willing to take us on, RSS, OI and

all

> the issues of the two combined and he said he would LOVE to!!! He

> said he loveslearning and especially likes rare cases. Did we

luck

> out or what!!!!!!!! I was floored!!! So he pulled some strings

for

> us and we'll see him in his office on the 31st of May! We're

> excited to learn more about the PAM IV treatments that can make

> Olivia's bones stronger.

> Back to the surgery, although she didn't go under very well the

> Dentist got her teeth fixed and she didn't need as much work as we

> first thought. Only 2 crowns and 4 cavities filled. Olivia is

VERY

> proud of her " teeth painted silver " . Her recovery was uneventful

> and she ate a little bit 4 hours after so we were glad to be

> discharged. Although her lips are terribly swollen she's in

pretty

> good spirits. The worst part is from the tape they used on her

face

> to hold the tubes in place. When they took it off they tore 4

> patches of her cheeks off. The monitoring patches on her chest

also

> tore 3 circles of skin off. Theses will heal in a while and the

> don't seem to be too sore, the just look nasty!

> I've rambled on long enough, we're just so excited with finding

> this Dr!!!!!!

>

> Have a great day, (((hugs))) to all.

>

> Leah, mom to Ash 9 and Olivia 4.5, RSS, OI, 19 lbs(SHE'S GAINED A

> POUND) 33 " , lactulose, senokot, zantac, cyproheptadine (periactin)