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Olivia's Dental Surgery and other Great News!!

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Olivia's procedure went great! The Dr's were very open to RSS and

only needed a bit of coaxing with admitting her the night before for

an IV. In order to admit her she needed a Ped. Dr to do it so they

found one that they really liked. One nurse came in and raved about

him (her son goes to this Dr.). One of the nurses said that he had

dealt with RSS before so I was excited to meet him. He inserted her

IV with lightening speed and Olivia was just starting to cry when

she realized he was done, so it was not a bad experience for her!

He has one RSS patient in northern Alberta and has done a consult on

a case in British Columbia. He's also the Osteogenesis Imperfecta

(OI) specialist in western Canada and told us that there is now IV

treatment for kids with OI. He currently has 40 OI patients right

now. To top it all off he asked us if we would see him at his

office!!! I asked if he was willing to take us on, RSS, OI and all

the issues of the two combined and he said he would LOVE to!!! He

said he loveslearning and especially likes rare cases. Did we luck

out or what!!!!!!!! I was floored!!! So he pulled some strings for

us and we'll see him in his office on the 31st of May! We're

excited to learn more about the PAM IV treatments that can make

Olivia's bones stronger.

Back to the surgery, although she didn't go under very well the

Dentist got her teeth fixed and she didn't need as much work as we

first thought. Only 2 crowns and 4 cavities filled. Olivia is VERY

proud of her " teeth painted silver " . Her recovery was uneventful

and she ate a little bit 4 hours after so we were glad to be

discharged. Although her lips are terribly swollen she's in pretty

good spirits. The worst part is from the tape they used on her face

to hold the tubes in place. When they took it off they tore 4

patches of her cheeks off. The monitoring patches on her chest also

tore 3 circles of skin off. Theses will heal in a while and the

don't seem to be too sore, the just look nasty!

I've rambled on long enough, we're just so excited with finding

this Dr!!!!!!

Have a great day, (((hugs))) to all.

Leah, mom to Ash 9 and Olivia 4.5, RSS, OI, 19 lbs(SHE'S GAINED A

POUND) 33 " , lactulose, senokot, zantac, cyproheptadine (periactin)

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