Re: Re: Pamela - dysmenorrhea, tumours etc (long)

[Guest guest]

Sometimes endo can be in strange spots of the body - may or may not

cause pain or other problems. When I had my first C-section, they

found the top of my bladder covered. I had none in the usual places.

They had no explanation for how it got there, but hey, we have weird

bodies. :-)

laurie

> Hi Pamela,

> I took the liberty of running your daughter's history by my friend,

> (maintaining your anonymity, of course). I wondered if she could tell

> whether the doctor was doing a good job in evaluating whether the

> lesions were truly endo or not. She said it was impossible to tell

> from the data. Sometimes there is scar tissue that is not endo. On the

> other hand, sometimes doctors who are not as experienced as they think

> they are look only for cysts and certain types of tissue--I think she

> said usually larger and darker--but endo scar tissue can also come in

> small spots and in lighter colors. It can even be clear. (I hope I've

> quoted her correctly.) In any case, the doctor could have been really

> good or not, according to her. She thought the fact that the

> histopathologist confirmed the doctors opinion might be a good sign

> that 2 people viewed it similarly.

>

> Then, she actually recommended acupuncture and chinese herbs. (Not

> medical doctors who practice acupuncture; in the states, they just get

> a few weekends of training compared with real acupuncturists who train

> for years). She said that younger women are more responsive to

> acupuncture for gynecological issues. And, the way Chinese medicine

> diagnoses things, they don't need the precise Western diagnosis in

> order to help. I don't know what your feeling about acupuncture and

> alternative medicine is, but that's her personal opinion. She is both

> a nurse-practitioner and a fully trained acupuncturist.

>

> (Personally, I've had some very good and some non-productive

> experiences with acupuncture. It helped some symptoms and not others.)

>

> Good luck!

> Shayna

>

>

> > >

> > > >,

> > > >Thanks for checking up on the name of it. I haven't had any

> > > >ultrasounds recently but I suspect I'll be getting one in

> February

> > > >after my gyn appt. Last time I had an ultrasound was 2000. It

> > showed

> > > >nothing. But, believing that I had endo, they did diagnostic

> > surgery.

> > > > No endo was found, but I had two benign pelvic tumors stuck in a

> > > >tight place. Perhaps they were infected, too, because I had had

> > a low

> > > >grade fever for months that went away as soon as the tumors were

> > removed.

> > > >

> > > >The tumors and dysmenorrhea were separate, but exacerbating,

> issues I

> > > >believe. I've had dysmenorrhea since my first period (by

> then I had

> > > >neuromuscular symptoms for 4 years). I didn't have tumors

> then. But

> > > >the dysmenorrhea became much more extreme in the late '90's due

> > to the

> > > >tumors that developed then.

> > > >

> > > >Since then, I've been on continual dose BC (so I only get my

> period 4

> > > >times/year). This greatly reduced the cramps so that they were

> > > >bearable. However, in the last year, the cramps have radically

> > > >increased--which I've heard is not supposed to happen on

> continuous

> > > >dose. Also, I get a lot more intermittent spotting. So I see

> > the gyn

> > > >again in early February. It's possible I have another tumor; but

> > then

> > > >again, there are many other possibilities, too, which is why I'm

> > > >curious what your muscle thing was.

> > > >

> > > >Another factor is that I recently saw a list of meds that

> people with

> > > >mito shouldn't take--and the hormones (BC) I'm on was on that

> list.

> > > >When I see my neuro in a couple of weeks I'll ask about that.

> If I

> > > >have to go off the BC, I don't know what we'll do about the

> > dysmenorrhea.

> > > >

> > > >Thank you for asking about the biopsy. I will get the results on

> > > >January 26. I'm nervous about it!!

> > > >

> > > >Take care,

> > > >Shayna

> >

> >

> >

> >