Univ. of Pitt's Children's

[Guest guest]

Hi-

I've been offline for sometime due to losing my laptop computer.

Accidently got dropped on the tile floor and had to be replaced. It's really

been

difficult for me to adjust to using a deskptop again. I must have been really

spoiled with my portable.

I'm feeling about the same. I see my surgeon on Tues for a recheck and am

going to see a GI at Cincy Children's on Fri. I'm still having pseudo probs

but better than with my colon. Just hate it that after 5 surgeries I'm still

having to take medications to have a BM.

Dr. Cohen is referring me to a doc Vockley at Univ. of Pitts Children's

who is a biochemical geneticist. My records have been sent and am waiting to

hear back about an appt. He apparently does research into FODS and carnitine.

Have spoken to the NP and she was very nice. Has anyone heard of this doc or

seen him?

Welcome to all the new members. We are having family visit from Seattle

this next week and with traveling to Cincinatti I'll prob not been online much

again. I think of you all and pray for you.

Thanks.