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NORD Conference

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The National Org for Rare Diseases is having a conference in the Wash. DC area

in late Sept. I can't make it there myself; but I like the org. because they

help me with my Carnitor, and they are actually funding research for KSS. So,

if you're in the area, and can make the trip, it may be worth checking out.

http://www.rarediseases.org/news/events#conference

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