Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Hyun, welcome the the most wondeful support group around.... Glad to hear that you are doing okay with RP.... Please feel free to add anything to the group or ask any questions.... This is how we all learn.... Please keep posting and let us know how you are. Again welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Hyun, welcome the the most wondeful support group around.... Glad to hear that you are doing okay with RP.... Please feel free to add anything to the group or ask any questions.... This is how we all learn.... Please keep posting and let us know how you are. Again welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 8:15:29 AM Central Daylight Time, ncrshakit@... writes: << .And 29 years old. I Have had RP about 2 years. >> Hyun, as rotten as this disease is, I think it is totally unfair toget it at 29!!!!!!!! Just like I keep complaining to my rheumy that arthritis in my elbow is just unfair! What can you do without bending your arm? It would be one thilng if we only had the RP to deal with (and I truly hope your have only that) but it's the rest of the stuff that really gets you down! Hang in there and keep on keeping on! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 8:15:29 AM Central Daylight Time, ncrshakit@... writes: << .And 29 years old. I Have had RP about 2 years. >> Hyun, as rotten as this disease is, I think it is totally unfair toget it at 29!!!!!!!! Just like I keep complaining to my rheumy that arthritis in my elbow is just unfair! What can you do without bending your arm? It would be one thilng if we only had the RP to deal with (and I truly hope your have only that) but it's the rest of the stuff that really gets you down! Hang in there and keep on keeping on! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2005 Report Share Posted February 20, 2005 I came to this board years ago when my wife and I found out our daughter would be born with club foot. This site was a wealth of info to me then so I thought I would come back and give an update. was casted after birth, then about 10 weeks later she had her heel cord released. Never used any braces or a dbb. Her foot looks and works great. The physician we chose is Dr. son from Childrens Hosp in Philadelphia....he also practices over at Shriners. Dr son is the best and really knows his stuff. He agree's with some of Ponseti's methods and ideas...and he disagree's with others. I like checks and balances, but moreso his knowledge of club foot and experence made him strike me as a physician I could trust. You would never know my daughter had club foot. Even at 2 1/2, she runs, jumps, plays...she does it all. And Wow, has the photo database grown. Just goes to show what a great support group we have here. I do have a question...my wife and I are definitely planning on having another baby. WHat are the risks for a couple who have had a child with club foot, as well as my wife will be 38 this month. We're going to have one anyway...Im just curious of the risks/percentages of problems that we could face. Best of luck all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2005 Report Share Posted February 20, 2005 This is curious - how has her foot not relapsed? Could her's have been positional rather than genetic club foot? I would like to hear more about that if you don't mind. It's fairly rare to have another cf child, although myself I beat those odds and had two for two - both boys with bcf....the 2nd born when I was 38. Good luck on having another! s. Hi all... I came to this board years ago when my wife and I found out our daughter would be born with club foot. This site was a wealth of info to me then so I thought I would come back and give an update. was casted after birth, then about 10 weeks later she had her heel cord released. Never used any braces or a dbb. Her foot looks and works great. The physician we chose is Dr. son from Childrens Hosp in Philadelphia....he also practices over at Shriners. Dr son is the best and really knows his stuff. He agree's with some of Ponseti's methods and ideas...and he disagree's with others. I like checks and balances, but moreso his knowledge of club foot and experence made him strike me as a physician I could trust. You would never know my daughter had club foot. Even at 2 1/2, she runs, jumps, plays...she does it all. And Wow, has the photo database grown. Just goes to show what a great support group we have here. I do have a question...my wife and I are definitely planning on having another baby. WHat are the risks for a couple who have had a child with club foot, as well as my wife will be 38 this month. We're going to have one anyway...Im just curious of the risks/percentages of problems that we could face. Best of luck all! Quote Link to comment Share on other sites More sharing options...
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