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athena mito results

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Hi, I got my results from Athena for the mitochondrial genetic tests.

They were negative. I assume that rules them out. Have any of you

had them turn out negative, then had a biopsy say otherwise?

I'm still waiting on the electron microscope study of my 2nd muscle

biopsy. Because some of my cells have central nucleus, and some other

abnormalities, there's a chance I have centronuclear/myotubular

myopathy. If I do, the electron microscope study should be able to

diagnose it.

I'm now at three years of trying to find a diagnosis. If my symptoms

hadn't been blamed on my bad heart valve, I'm sure it would have been

looked into and diagnosed long ago. I try to ignore this whole

situation, and just live life. I suppose that's why I don't read or

post to the list much.

With the negative genetic tests, I guess I should say goodbye to this

list. Thank you all for your support. It really has helped.

Kim

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