Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 1). . F 2). Wellington, New Zealand for the last 6 years but originally from Fife, Scotland, UK 3) 2 boys Finlay aged 4 and Logan nearly 2. Finlay has RSS and is currently 93cms 12.5kgs. Logan has no growth issues what so ever!! 4). Born 11/19/1999 At birth Finlay was 3lbs 5oz (1.5kgs). He was born by c-section at 38weeks gest when they realised that he was vv small and not growing. In retrospect it is obvious his growth failure began before 12 weeks gest - I had a scan then and my dates were put back as a result as they said there was no way I had a 12 week old fetus - it was too small and the variation in size was virtually zilch at that gestation. Also worth noting I had a HUGE bleed at 12 weeks gest which (according to my specialist) should have resulted in a miscarriage. >5). Finlay has had a g-tube for the last 2 years. He is fed continuously over night and has bolus top ups during the day. He is on cisapride which can still be prescribed in New Zealand. He has been on GH - genotropin for just over 1 month. 6). Finlay is under Dr Esko Wiltshire at Wellington Hospital. He has also been seen by Dr Harbison at the Magic Convention in 2003. 7). Formally dx'd in July 2003 by Dr Harbison and Dr Stanhope - but had a ???RSS dx for about 18mths prior to that. Quote Link to comment Share on other sites More sharing options...
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