Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 HI, HOW ARE YOU ALL? THIS IS CHRISTINE. MY SON IS DOING SOMETHING DIFFERENT. SOMETIME HE WILL STOP IN THE MIDDLE OF WHAT EVER HE IS PLAY WITH AND BLINKS HIS EYES FOR A FEW SECONDS AND GET BACK TO WHAT HE WAS DOING AND PLAY. HE NEVER HAD SEIZURE NOT THAT I KNOW OF. I AM NOT SURE IF THIS IS STIMMING BEHAVIOR OR IT IS HIS WAY OF FILTERING OUT THE INFORMATIONS THAT HE WAS TAKING IN. WE WILL SEE A DEVELOPMENTAL PEDIATRICIAN IN AUGUST. THIS IS WORRYING ME BECAUSE I DON'T KNOW WHY HE IS BLINKING HIS EYES AT TIMES. I REALLY NEED TO KNOW IF YOUR KIDS HAVE THIS PROBLEMS AND HOW DO YOU DEAL WITH IT. THANK YOU SO MUCH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 My son also began blinking and squiting his eyes. I doing know why yet??? edie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Hi My daughter blinks her eyes, too. I wonder if it's something to do with the CLO she's getting. Maybe she's seeing things differently? Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Is his vision ok, maybe when he is playing his eyes are losing focus, my oldest son used to do that and it didi turn out his vision is very bad. F Re: STIMMING > HI, HOW ARE YOU ALL? THIS IS CHRISTINE. MY SON IS DOING SOMETHING > DIFFERENT. SOMETIME HE WILL STOP IN THE MIDDLE OF WHAT EVER HE IS PLAY WITH > AND BLINKS HIS EYES FOR A FEW SECONDS AND GET BACK TO WHAT HE WAS DOING AND > PLAY. HE NEVER HAD SEIZURE NOT THAT I KNOW OF. I AM NOT SURE IF THIS IS > STIMMING BEHAVIOR OR IT IS HIS WAY OF FILTERING OUT THE INFORMATIONS THAT HE > WAS TAKING IN. WE WILL SEE A DEVELOPMENTAL PEDIATRICIAN IN AUGUST. THIS IS > WORRYING ME BECAUSE I DON'T KNOW WHY HE IS BLINKING HIS EYES AT TIMES. I > REALLY NEED TO KNOW IF YOUR KIDS HAVE THIS PROBLEMS AND HOW DO YOU DEAL WITH > IT. THANK YOU SO MUCH. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Hi : I think one way to know if your son is having a seizure is to see if you can get his attention while he's blinking. If he's totally lost in his own world, I wouldn't wait until your appointment with the developmental pediatrician, I'd call your him/her or your regular pediatrician now to discuss your concerns. My older son blinks his eyes a lot - it's almost like a tic, but I believe it's due to the nystantin and probiotics we're giving him that cause his eyes to water more than usual. I think this because I tried the probiotics I'm using for him on myself and I was blinking like crazy - feeling like there was some kind of film over my eyes a lot. I hope this helps. ( & Malachi's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 My 9 yo used to blink and roll his eyes from side to side quickly. He finally quit. Wasn't taking any supplements, and I can't link it to anything. Lolita >My daughter blinks her eyes, too. I wonder if it's something to do with the >CLO she's getting. Maybe she's seeing things differently? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Have you tried Cod Liver Oil (CLO) My son had visual stims and they were elminated after we started CLO - ALSO You may want to do a 24 hr EEG to rule out seizures Good luck a Jeffs mom Re: STIMMING HI, HOW ARE YOU ALL? THIS IS CHRISTINE. MY SON IS DOING SOMETHING DIFFERENT. SOMETIME HE WILL STOP IN THE MIDDLE OF WHAT EVER HE IS PLAY WITH AND BLINKS HIS EYES FOR A FEW SECONDS AND GET BACK TO WHAT HE WAS DOING AND PLAY. HE NEVER HAD SEIZURE NOT THAT I KNOW OF. I AM NOT SURE IF THIS IS STIMMING BEHAVIOR OR IT IS HIS WAY OF FILTERING OUT THE INFORMATIONS THAT HE WAS TAKING IN. WE WILL SEE A DEVELOPMENTAL PEDIATRICIAN IN AUGUST. THIS IS WORRYING ME BECAUSE I DON'T KNOW WHY HE IS BLINKING HIS EYES AT TIMES. I REALLY NEED TO KNOW IF YOUR KIDS HAVE THIS PROBLEMS AND HOW DO YOU DEAL WITH IT. THANK YOU SO MUCH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Has anyone had any experience with stimming. My son is 7 and stimms for any oportunity given to him . Visual, shadows, he mainly loves getting annything that hangd a piece of ribbon, the string on his trousers around waist , a piece of grass to stimm. I would love your imput. We have not started the diet SCD diet but like to read this group. kind regards Chriso Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 This is what will help the most, and quickest: 1- SCD 2- www.magneticosleep.com 20 gauss matresspad, worth every penny 3- www.neuralcrainialrestructuring.com 3- chelation to remove heavy metals 4- www.amri-intl.com 5- human umbilical cord stem cells; Morales, MD; 6- www.sensorylearning.com Sauna Detoxification, Hyperbaric Oxygen Treatment, and Ozone (blood oxygen) are also helpful. I wish I'd know about these early on. Agape, (mother of a 12 yo son recovering from asd, heavy metal toxicity, chemical sensitivities, ocd, tourette's, adhd symptoms) chriso wrote: Has anyone had any experience with stimming. My son is 7 and stimms for any oportunity given to him . Visual, shadows, he mainly loves getting annything that hangd a piece of ribbon, the string on his trousers around waist , a piece of grass to stimm. I would love your imput. We have not started the diet SCD diet but like to read this group. kind regards Chriso Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Dear Chriso, My son has PDD-NOS and he stimms constantly. Flaps his hands in front of his eyes or runs around with ANY toy giggling it in front of his eyes...to the point where he doesn't look where he's going. He is very difficult to get to make eye contact. He'll make it if he wants something from me, but if I want something from him, forget it! Oddly enough, no one has told me to stop the stimming. Just to teach him appropriate ways to play with his toys. I really don't have any advice yet since we just started SCD, but at least you know we're out here. --Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Oddly > enough, no one has told me to stop the stimming. Just to teach him > appropriate ways to play with his toys. I really don't have any > advice yet since we just started SCD, but at least you know we're > out > here. >> --Mel Alot of people don't recommend trying to stop the stimming. I know alot of folks that try to use the stimming to teach. If the child is really into stimming, then that is a highly motivating activity for them that can be stretched into a teachable moment. For example, if your child has a verbal stim, use what s/he is interested in to teach vocabulary related to the verbal stim. My son shakes a wire while he is pretending things, I have taken wires and shaped them into letters. Patty T mom to Matt (17), and Luke (7) food allergies, ulcerative colitis, asd, etc. in family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Cod Liver Oil (CLO)and now SCD were very helpful in reducing my son's stims. The Vitamin A in the CLO is what is believed to be helpful for the eye stims, which it seems like is going on with your son, mostly visual stuff from the way you describe it. Google Dr. Megson and Vitamin A, you should come up with some of her work. We have been using it for 1.5 years now. In the beginning we used 1 tsp a day at night and it dramatically reduced the frequency of stimming. Then the stims crept back so we added a tsp in the morning as well about 6 months ago which cut the stims again. We use Nordic Naturals liquid CLO. I think the SCD has also reduced the stims even further- to none! We are one month into full SCD and when I came back Monday from a weekend out of town, I noticed that he is not doing any visual stims. It's been all week, I've been slack at giving him the Cod Liver Oil, and yet no stims! My son is on the very high functioning end of the autism spectrum. Stims are really the last thing for us, in all other areas he is typical, but a little quirky. So you can imagine how thrilled we are, the stims were the last thing that made him stand out from other kids. I have 2 theories as to why the SCD reduced stims on top of the reduction seen with CLO: 1) his gut is healing, so he is better absorbing the Vit A naturally found in foods and in the CLO, 2) some of the eye stims were attributed to bacterial overgrowth (which we know he had per OAT test) and the SCD is balancing his gut flora. Its probably a combination of both. Becky mom to Noah (6, HFA) and (3, NT-gut issues) SCD 1 month > Has anyone had any experience with stimming. My son is 7 and stimms for > any oportunity given to him . Visual, shadows, he mainly loves getting > annything that hangd a piece of ribbon, the string on his trousers around > waist , a piece of grass to stimm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Oddly > enough, no one has told me to stop the stimming. Just to teach him > appropriate ways to play with his toys. I would agree with this advice also. In my opinion, this behavior (and others) have a biological basis. I feel that the kids need to do this and should be allowed to be continued. The only time I try to put a halt to it is when it puts him at risk for getting hurt or gets in the way of someone else (such as spinning in the middle of the grocery store-he could run into someone). Other than times like that, he could do it whenever he needed to. I find it much easier to evaluate the effect of a food or supplement this way. If I were constantly trying to reduce the behavior with verbal reminders, I wouldn't really be able to judge if it was that, or the addition of CLO or diet, for example. Plus, these kids can't help it and I think if I were to constantly be on my son for this, it would negatively affect how he feels about himself or how he thinks I feel about him. Becky mom to Noah (6, HFA) and (3, NT-with gut issues) SCD 1 month Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 > > This is what will help the most, and quickest: I would like to caution against statements like this, instead saying them in relationship to our own individual children such as: " This is what helped MY CHILD the most, and quickest " . It's hard to give a " formula " for all children based on what we may have experienced with our own children. Each child is an individual, and there are lots of kids with autism who are recovered or otherwise, and had different interventions which did the trick for them. As you know, the spectrum is broad and is a diagnosis of behaviors, but similar behaviors can be caused by different things. In addition, it can cause a lot of anxiety for a parent to read that if the therapy is not available to them financially or otherwise. I don't mean to sound critical, the info you provided was very enlightening to me, and I plan to look into some of the things you mentioned that I had not heard about. We have also had a lot of success with reduced and now completely no stimming, yet, what worked a lot for my child was somewhat different from your experience. Becky mom to Noah (6, HFA) and (3, NT) SCD 1 month Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 > > Oddly > > enough, no one has told me to stop the stimming. Just to teach him > > appropriate ways to play with his toys. > Stimming is also done by adults. An individual in a mental hospital was observed to keep switching a light on and off to the annoyance of other patients. Following recovery, the behavior was never repeated. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Hello. My son stimmed quite a lot, and when we started the SCD diet in addition to being GF/CF, it went way down. Now it is about 90 percent gone. If there's a nice wheel around he still likes to give it a few spins but at least now I can move him away from it and he doesn't have a huge fit. He is 22 months old and we've been GF/CF - SCD for 7 months now. , mom to Broderick, PDD-NOS - SCD 7 months > Has anyone had any experience with stimming. My son is 7 and stimms for any oportunity given to him . Visual, shadows, he mainly loves getting annything that hangd a piece of ribbon, the string on his trousers around waist , a piece of grass to stimm. I would love your imput. We have not started the diet SCD diet but like to read this group. > kind regards > Chriso > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 HFA is High Functioning Autism (not a true Dx, I know). However, from seeing " recovered " children at a recent conference, I'd say he is well past what most would consider recovered. Our psych IMO, has a habit of overdiagnosing kids, and any kid that falls on the spectrum (PDD-NOS, Asperger's) will get an autism Dx so the can get services. My son from the get-go, before any biomed or dietary interventions was in the mild range of the autism spectrum. With biomed, he's indistinguishable except if he's stimming. My son's only stim is visual, which usually is shaking a toy or other object in front of his eyes, or just looking at something very closely. It is always incorporated into pretend play. We'll have to agree to disagree on whether or not to allow to stim. I've done lots of reading on it and there are varying opinions on both sides. There are also opinions that if a child is forbidden from a particular behavior such as a certain stim, a worse behavior may crop up somewhere else that is harder to extinguish. I agree with all of your suggestions, I would just choose not to focus on the behavior, but try to distract from it I guess. Certainly sensory input can be helpful, which we parents should do for multiple reasons. I would also suggest reducing stress, which always increases stimming for my son. We homeschool, therefore greatly reducing stress, and that is a huge blessing in my son's life. In my son's situation, CLO reduced the stimming, and now it seems SCD has ended it, at least for now. I will say we just finished a year of chelating, having just finished an IV challenge indicating the metals are out. Maybe that had something to do with it. I honestly never saw anything very dramatic with chelation. Even what we would consider powerful interventions still don't hold all the answers for these kids, otherwise all the kids undergoing extensive biomed would be recovered or close too it. Sadly, I know too many parents of kids that have done it all and still have a very autistic child. Some of us have just had better luck. What we have done has worked for us, but may not work for another. Best, Becky mom to Noah (6, HFA) and (3, NT) SCD 1 month > > Believe me stimming is not helpful socially, cognitively, behaviorally, > or physically. > It dissconnects rather than connects. It is related to later OCD, > peseveration, and vocal/motor ticking. > > Go for the powerful, effective in vitually all cases, > interventions/treatments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Hey Becky, What is 'HFA'? Is that 'high functioning autism'? Mine son is not. Some parents want a 'cut to the chase' kind of answer. I give 'cut to the chase' kind of responses and ask 'cut to the chase' kind of questions. I take into account style, and look at 'from', the 'signature', and the 'subject' line to find out who is sharing their experince/opinion/information. It can allow you to take care of yourself, after realizing the circumstances and personal styles, and delete accordingly. I, as many of us, are doing the best we can. I'm sorry for your exprience of discomfort from anything I posted. I actually like and appreciate the different styles. Jodi, Carol, and Jenni Lyn's all have very different styles, but enjoyable. And Antoinette makes me laugh out loud sometimes. In fact, I make it a point not to become offended by anybody's style, instead, appreciating the variety. Yes I get a lot of chuckles from this group, and support, and helpful information too, thank God!!! I'm not surprised that you'll be looking into some of the effective treatments I shared. Not everbody gets to help their child in the first birth to 3, or second 3 to 6yr window. I would be remiss if when asked, I didn't share my experience. " I wish I'd known earlier " ; don't let that be your lament. As for anxiety, there is much more created when your child is stimming and/or uncomfortable, than when you find a treatment that significantly reduces or eliminates symptoms. I'm going for recovery, because I believe it's God's will !!! Agape, Becky Grant-Widen wrote: > This is what will help the most, and quickest: the info you provided was very enlightening to me, and I plan to look into some of the things you mentioned that I had not heard about. mom to Noah (6, HFA) and (3, NT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 I did answer your first post about HFA, did it go through? Anyway, yes, high functioning autism. > Some parents want a 'cut to the chase' kind of answer. I give 'cut to > the chase' kind of responses and ask 'cut to the chase' kind of questions. > Sorry , I wasn't criticizing your style. I actually really, really appreciate your cut to the chase style. I am long winded myself, even though I try not to be. The only point I was trying to make was to suggest is that we all put things in terms of what worked for our own children, then people can do with that info what they choose. I would suggest anyone on these autism or other treatment type lists use that type of approach. 1) Kids are individuals and what works will vary, what worked for your son may not help my son a lick and vice versa and 2) it treads a little too closely to giving medical advice which I doubt any of us are licensed to give and even if we were, the internet would not be the way to give it. It can allow you to take care of yourself, > after realizing the circumstances and personal styles, and delete > accordingly. I, as many of us, are doing the best we can. I'm sorry for > your exprience of discomfort from anything I posted. I wasn't saying it out of discomfort myself, I would never want to delete your posts, you have great experience that I know I can learn from. My recommendation was to protect parents out there who are new to biomed/diet and such and take what other parents say will help their child as gospel. All I was recommending was that we try to preface our statements by saying " this is what helped MY CHILD the most and quickest " rather than " this is what WILL help the most and quickest " . DAN doctors can't even make statements, really promises, like that, it is trial and error as I'm sure you know. That's the only point I was trying to make. I'm so sorry if you took this personally. It was not intended, and I really meant it for the while group of us out there. I know I have made similar statements on other lists and your post was the trigger to remind us all to try to avoid statements worded in this way. > I would be remiss if when asked, I didn't share my experience. " I wish > I'd known earlier " ; don't let that be your lament. Of course, we are all dependant on hearing others experiences. Hopefully I explained what I meant a little better? > I'm going for recovery, because I believe it's God's will !!! Go for it! Becky mom to Noah (6, HFA) and (3, NT) SCD 1 month Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Cool! Agape, Becky Grant-Widen wrote: I did answer your first post about HFA, did it go through? Anyway, yes, high functioning autism. > Some parents want a 'cut to the chase' kind of answer. I give 'cut to > the chase' kind of responses and ask 'cut to the chase' kind of questions. > Sorry , I wasn't criticizing your style. I actually really, really appreciate your cut to the chase style. I am long winded myself, even though I try not to be. The only point I was trying to make was to suggest is that we all put things in terms of what worked for our own children, then people can do with that info what they choose. I would suggest anyone on these autism or other treatment type lists use that type of approach. 1) Kids are individuals and what works will vary, what worked for your son may not help my son a lick and vice versa and 2) it treads a little too closely to giving medical advice which I doubt any of us are licensed to give and even if we were, the internet would not be the way to give it. It can allow you to take care of yourself, > after realizing the circumstances and personal styles, and delete > accordingly. I, as many of us, are doing the best we can. I'm sorry for > your exprience of discomfort from anything I posted. I wasn't saying it out of discomfort myself, I would never want to delete your posts, you have great experience that I know I can learn from. My recommendation was to protect parents out there who are new to biomed/diet and such and take what other parents say will help their child as gospel. All I was recommending was that we try to preface our statements by saying " this is what helped MY CHILD the most and quickest " rather than " this is what WILL help the most and quickest " . DAN doctors can't even make statements, really promises, like that, it is trial and error as I'm sure you know. That's the only point I was trying to make. I'm so sorry if you took this personally. It was not intended, and I really meant it for the while group of us out there. I know I have made similar statements on other lists and your post was the trigger to remind us all to try to avoid statements worded in this way. > I would be remiss if when asked, I didn't share my experience. " I wish > I'd known earlier " ; don't let that be your lament. Of course, we are all dependant on hearing others experiences. Hopefully I explained what I meant a little better? > I'm going for recovery, because I believe it's God's will !!! Go for it! Becky mom to Noah (6, HFA) and (3, NT) SCD 1 month For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Phew- I was feeling horrible about this. E-mail is so hard to get intentions across. Becky mom to Noah (6, HFA) and (3, NT) SCD 1 month > > Cool! > Agape, > > Becky Grant-Widen wrote: > I did answer your first post about HFA, did it go through? Anyway, yes, > high functioning autism. > > > > Some parents want a 'cut to the chase' kind of answer. I give 'cut > to > > the chase' kind of responses and ask 'cut to the chase' kind of > questions. > > > > Sorry , I wasn't criticizing your style. I actually really, really > appreciate your cut to the chase style. I am long winded myself, even > though I try not to be. Quote Link to comment Share on other sites More sharing options...
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