Re: Re: Brent/Just Curious

[Guest guest]

Brent Said:

....am a total believer in

SCD myself, but maybe have a different angle since my child had

runny, bloody diarrhea....I wonder, did your kids have bleeding ulcers when you

gave probiotics

or enzymes? Was this in the first several weeks of the diet if so?

I think there is a difference here worth talking about. Maybe its in

the fine details.......

Dear Brent,

We have been very careful with the probiotics thus far....only eating a few

teaspoons of the goat yogurt a day.

Plus word about enzymes: Lucy Rosset (survivor of ulcerative colitis/who almost

had her colon removed!), from Lucy's kitchen shop has voiced concern about

enzymes containing " protease " in those with intestinal inflammation, ulcers and

bleeding. Elaine shared this concern with her when alive. You see protease is

an enzyme that breaks down Protein...if ones intestines are damaged/bleeding or

inflamed...Elaine feared that this enzyme PROTEASE would cause problems......the

enzyme protease possibly causing more inflammation and bleeding. We where told

to not use protease with KIKI, since she has shown signs of inflammation and

bleeding. We have been seeking out the ones with out this enzyme...buying those

SCD safe kinds that contain lipase (digest fat/since she had signs of

steatorrhea...smelly rancid vinegary smelling diarrhea (a sign of undigested

fat) and lactase (to digest milk sugar lactose/since she is/was truly lactose

intolerant and still breast feeding/human milk. I have been very hesitant to try

other enzymes even though recommended to us. Hoping that as she heals her

intestines (like Elaine promised) her intestines will heal on strict SCD and

will take over the job!

We had a set back a week ago.....and had to go back to introductory diet with

KiKi...almond flours/other nut flours and too much raw fruit sent her into

diarrhea/mucousy/craming/pain/seizures again. Was told it may be a Phenol

sensitivity or that we jumped too fast to advanced foods....no more almonds or

nuts of any kind. Still cooking fruits into purées and steaming vegetables.

She does ok right now with coconut flour (grinded as fine as I can process the

stuff I might add) and the peanut butter brownies in Elaines BTVC book...I add

an extra egg to make it like cake (since creamy peanut doesn't cause her

problems that we can see thus far)...may note that the peanut is not a nut a

legume! Still eating rather limited. Ok with eggs....she loves them, fish of

all kinds (being mindful of the mercury ones), meats of all kinds, fruits if

cooked of all kinds, and vegetables steamed of all kinds....no beans (with

exception of peanut butter brownies occasionally) and no nuts (make her cake

with coconut flours.

When KiKI was the sickest we thought she may have Cystic Fibrosis....she even

came back border line diabetic at one time.....mucous literally poured from

her....her diaper was filled with mucous, some times streaked with blood...she

was first diagnosed with " colic " and then diagnosed with " Celiac Disease " due to

failure to thrive...literally stopped growing and started starving....(yet the

gluten free diet failed her and my family MISERABLY!)...my son did the same

thing as a baby (but not as bad by far, he always grew well and never got as

sick), and they diagnosed him at the time with " colic " ...when older it turned to

" colitis " .... he too is now diagnosed with " Celiac Disease " . As a baby I was

labeled with " colic " , then it turned to colitis, then it turned to IBS....then

it turned to " hypochondria and mental illness " ....and then I was diagnosed with

EGD and biopsy as having Celiac Disease.....The symptoms of both Celiac,

Colitis, IBD, IBS....all have similarities when I did my own research. " Colic "

is the catch all phrase for any baby under the age of three months old!

One thing is for certain...if you are on this list we have damaged intestines in

common...I try not to worry about specific diagnosis...thanks to loosing faith

in the medical community misdiagnosing and missing the problem (calling it this

and then that).......short of needing them in cases that are truly baffling, or

a true emergency we try to stay away......I have realized that they are as

confused as we are!

***Elaine seems to be the only one who knew it was one BAG OF INTESTINAL

PROBLEMS......not the many as they think.........notice how the book speaks to

all of us: Crohn's Disease, Ulcerative Colitis, Diverticulitits, Celiac Disease,

Cystic Fibrosis and Chronic Diarrhea...and then she realized that this also

included the autistics/ASD people....you see one book...speaking to all of

us....not in several books....but ONE****.

Hope this helps, call Lucy at Lucy's kitchen Shop (...she has much experience

strength and hope and loves to share (when she isn't swamped)! You see we all

belong. Nothing unique about any of us....just one big thing in common damaged

GUTS! That make us all feel sick.

Sincerely, Antoinette and the " Silly Yaks " at the Bunce Zoo.....

now you know why I don't put " Celiac " ....you see we are " silly yaks " ....nothing

classical celiac about us....this is why the traditional gluten free diet did

not work...and does not work for many celiacs! It's a crime that this stupid

Gluten Free Diet even started as far as I am concerned....it is keeping to many

of us terribly and dangerously sick. Day 47 entire family SCDiet

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>

[Guest guest]

Antoinette,

I think you have in the past, but I have deleted it--what

enzyme do you use that are lipase?

Thanks

Rhonda

daughter, UC

Re: Re: Brent/ " Just Curious "

Plus word about enzymes: Lucy Rosset (survivor of

ulcerative colitis/who almost had her colon removed!), from

Lucy's kitchen shop has voiced concern about enzymes

containing " protease " in those with intestinal inflammation,

ulcers and bleeding. Elaine shared this concern with her

when alive. You see protease is an enzyme that breaks down

Protein...if ones intestines are damaged/bleeding or

inflamed...Elaine feared that this enzyme PROTEASE would

cause problems......the enzyme protease possibly causing

more inflammation and bleeding. We where told to not use

protease with KIKI, since she has shown signs of

inflammation and bleeding. We have been seeking out the ones

with out this enzyme...buying those SCD safe kinds that

contain lipase (digest fat/since she had signs of

steatorrhea...smelly rancid vinegary smelling diarrhea (a

sign of undigested fat) and lactase (to digest milk sugar

lactose/since she is/was truly lactose intolerant and still

breast feeding/human milk. I have been very hesitant to try

other enzymes even though recommended to us. Hoping that as

she heals her intestines (like Elaine promised) her

intestines will heal on strict SCD and will take over the

job!

[Guest guest]

We use " Enzymedica " , but to be honest think they are too strong (and not to

happy because of this). I think it was Jody (moderator) who said this too,

about this brand, can't remember. We are looking into changing. Get in touch

with below companies/Call them, and tell them your request to have some without

protein enzymes/protease. That is what I plan on doing. Can find many of them

on the web (with phone numbers) I prefer to talk to people in person. Remember

that enzymes are supposedly not needed full term unless you have a problem where

you have permanent damage. For example I lost my gallbladder.....otherwise

Elaine says we heal out of needing them. I don't know for sure, but I don't

think they even used them for her daughter Judy when she was healing! And she

healed fine! Jody said to me that it speeds up healing though, if you can use

them. Hope this helps, Antoinette

Here is a list that the serve uses more often:

LEGAL ENZYMES

Houston Nutraceuticals, Inc. Peptizyde

No Fenol

H N-Zyme Prime

Kirkman Labs DPP IV Forte

EnZymAid

Enzym-Complete/DPP

Multi-Enzyme Formula

Peptidase Complete

Phenol Assist

Digest Gold by Enzymedica

Ultra-zyme Plus by Thorp Nutrition

Vitase Digestion Formula

Re: Re: Brent/ " Just Curious "

Antoinette,

I think you have in the past, but I have deleted it--what

enzyme do you use that are lipase?

Thanks

Rhonda

daughter, UC

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>