Please, I need success stories from people who have Ulcerative Colitis/Proctitis

[Guest guest]

Hello everyone,

I am feeling very discouraged right now and none of my friends or

family know what I'm going through. My son is eight years old - he's

been on the diet for two months now and I don't know if it's working or

not. He just came off Prednisone on Monday and was put back on it today

(Saturday) because he's going to the washroom non-stop. They also

started Salofalk on him yesterday. His disease is currently affecting

mostly his lower colon and rectum. The inflammation in his rectum

causes him to constantly feel the urge to defecate even though there's

no stool. I feel like a prisoner in our home due to the need to be near

a washroom at all times. I've read that people who have Ulcerative

Colitis or Crohn's usually take over a year on the SCD diet to be in

complete remission. Whatever encouragement or personal stories you can

send my way would be greatly appreciated.

Thanks,

Helen

Son eight years old, UC 11 months, SCD 2 months

[Guest guest]

We were told " ulcerative Colittis " during the colonoscopy. When the

biopsies came back they said " crohns. "

Ella's been on the basic diet very high in protein and then the stage

one foods of pearsauce, applesauce, butternut squash, ripe banana,

cooked and pureed green beans.

Since you are still having acute syptoms have you gone back to the

intro diet?

Do you know if you son is sensitive to dairy? or any other items?

What have you added recently?

Sheila would always ask us .. " what have you added to your diet " when

we saw softness. I found ELLa's trigger was even too much simple

carbs in the legal form. We've found several illegals as well in

the first two months. Can you post exactly what he is eating for

folks to scour thru? Right down to the very detail of salt?

We are newbies, but we could always find formed stools by scaling

back on the carbs and going back to proteins. Does your son get

much meat or is he resistant to this?

Brent Father of Ella age 4 SCD 5 months

[Guest guest]

Dear Helen,

I don't have this problem with our two children but I will be

praying for you. From the things that I have read, I would

encourage you to keep on keeping on. Healing will come.

Be blessed

Sandy M.

>

> Hello everyone,

>

> I am feeling very discouraged right now and none of my friends or

> family know what I'm going through. My son is eight years old -

he's

> been on the diet for two months now and I don't know if it's

working or

> not. He just came off Prednisone on Monday and was put back on it

today

> (Saturday) because he's going to the washroom non-stop. They also

> started Salofalk on him yesterday. His disease is currently

affecting

> mostly his lower colon and rectum. The inflammation in his rectum

> causes him to constantly feel the urge to defecate even though

there's

> no stool. I feel like a prisoner in our home due to the need to be

near

> a washroom at all times. I've read that people who have Ulcerative

> Colitis or Crohn's usually take over a year on the SCD diet to be

in

> complete remission. Whatever encouragement or personal stories you

can

> send my way would be greatly appreciated.

>

> Thanks,

> Helen

> Son eight years old, UC 11 months, SCD 2 months

>

[Guest guest]

Well I have UC and have been on the diet for two years and am not anywhere

close to complete remission. I think for some people complete remission is

not possible, you have to accept something less. Not to be negative, just

be patient and realize perfection might not be a possibility. SCD might be

your answer it might not, but regardlless the above is true

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Please, I need success stories from people who have

>Ulcerative Colitis/Proctitis

>Date: Sun, 09 Apr 2006 03:18:21 -0000

>

>Hello everyone,

>

>I am feeling very discouraged right now and none of my friends or

>family know what I'm going through. My son is eight years old - he's

>been on the diet for two months now and I don't know if it's working or

>not. He just came off Prednisone on Monday and was put back on it today

>(Saturday) because he's going to the washroom non-stop. They also

>started Salofalk on him yesterday. His disease is currently affecting

>mostly his lower colon and rectum. The inflammation in his rectum

>causes him to constantly feel the urge to defecate even though there's

>no stool. I feel like a prisoner in our home due to the need to be near

>a washroom at all times. I've read that people who have Ulcerative

>Colitis or Crohn's usually take over a year on the SCD diet to be in

>complete remission. Whatever encouragement or personal stories you can

>send my way would be greatly appreciated.

>

>Thanks,

>Helen

>Son eight years old, UC 11 months, SCD 2 months

>

>

>

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[Guest guest]

>

> Please contact Lucy at Lucy's Kitchen...she survived ulcerative colitis...they

where going

to remove her colon...this SCDiet saved her life many years ago.....she was

personal

friends with Elaine (the author of BTVC)....for you I will give you her E-mail:

lucy@... Her kitchen sells all sorts of stuff to get started

with the SCD

diet. She is a wonderful inspiration to all and to our family!

>

Jodi Bager recovered from UC

contact her via her web site:

http://www.jgourmet.ca/

Carol F.