Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 welcome denise, comparatively, i hear way more good about pregnancy after WLS then bad. i got pregnant 2 months after WLS (had WLS 6 months ago and am 4 months pregnant) and it's not bad, jsut a lot of morning sickness, which i had with my first son as well. i'm starting to get low on my labs, but that's from morning sickness. good luck with conceiving nad welcome to the group. aka mom2ben99 (jennilee75@...) Kay Independent Beauty Consultant http://www.marykay.com/koopmans I have all your summer care needs...tanning lotion, sunblock, even sunblock for your lips, get yours today! Introduction Hi Everyone~ My name is . I am married to and we have 3 daughters. Ages 17.5, 12, and 10. I'm 41 and live in Minnesota. I had WLS on 2.13.04 and I just went off the pill. I had my tubes tied in 1994 and reversed in 2000. We've conceived 3 times since my reversal but have miscarried. We would like to have another baby as soon as possible. I NEED to hear success stories. Seems all I ever hear about WLS and pregnancy is negative. Looking forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 welcome denise, comparatively, i hear way more good about pregnancy after WLS then bad. i got pregnant 2 months after WLS (had WLS 6 months ago and am 4 months pregnant) and it's not bad, jsut a lot of morning sickness, which i had with my first son as well. i'm starting to get low on my labs, but that's from morning sickness. good luck with conceiving nad welcome to the group. aka mom2ben99 (jennilee75@...) Kay Independent Beauty Consultant http://www.marykay.com/koopmans I have all your summer care needs...tanning lotion, sunblock, even sunblock for your lips, get yours today! Introduction Hi Everyone~ My name is . I am married to and we have 3 daughters. Ages 17.5, 12, and 10. I'm 41 and live in Minnesota. I had WLS on 2.13.04 and I just went off the pill. I had my tubes tied in 1994 and reversed in 2000. We've conceived 3 times since my reversal but have miscarried. We would like to have another baby as soon as possible. I NEED to hear success stories. Seems all I ever hear about WLS and pregnancy is negative. Looking forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 welcome peter, I have the same issues as you. depending on how bad the midline is off will determine if it can be manipulated. it's good you caught it early as the bones haven't healed yet. my midline was off by 3mm at first but was due partly from the maxilla not being level. I also mentioned it at my first post-op and the doc downplayed it. he changed me to only banding on one side for a week but that did no good so he put a band like yours at 45 degrees. after one week it has tipped my maxilla so that the midline is now about 1mm off. the good news is if it can heal in this position i'll at least be able to chew somewhat normally. the bad news is i'll have to be banded for 8 weeks total to ensure the bones have healed and then wait another week to see if it stays. this was his second attempt at getting the maxilla right so if this doesn't work needless to say i'll be searching for another OS. the good news for you is if your maxilla needs to be redone the recovery is much easier than both upper and lower. while the midline is only aesthetic small corrections can be done with orthodontia. did you say if you had braces? have you talked to your orthodontist about this? good luck/eric > > Hello, > > I thought I'd introduce myself to the group before posting anything > else. > > I'm a male in my early thirties who underwent a bimaxilliary > osteotomy including bone harvesting (for the maxillar) from my hip. > I am approximately two-weeks post-op. > > I experienced most of the unpleasant symptoms in the first post-op > week, i.e. drooling, pain from the naso-gastric tube, weird dreams > and constipation from the analgesics, complete nasal congestion, > anxiety etc. > > I am now -- only two weeks post-op -- much better. My current > symptoms are slight swelling and minor facial and hip discomfort. > > I have had a discouraging set-back today. It appears that my maxilla > is slightly rotated to the left such that my two incissors (big front > teeth) do not meet precisely at the mid-line of my face. The surgeon > is not sure whether this happened post-op or after the plates were > applied. I noticed this three-days post-op but I thought it was just > an illusion from the swelling of my lips so I said nothing of it. My > mistake, but then again the surgeon didn't notice it either so it > wouldn't be fair to castigate myself. > > I now have four bands that run at 45-degree angles from top-to-bottom > jaws to try and rotate the maxillar (in addition to the vertical > bands). The surgeon says this should > correct the problem within two-weeks. I am informed that there is a > small chance that I may have to re-opened to correct the problem (if > the band don't fix it). This is a blow to me since I have been > making such good progress. Hopefully there will be now need for > further surgery. Has anyone had a similar experience? > > Also, I'd like to add that I have not lost any weight. It is > possible. I'm a very inventive blender cook and I make extensive use > of nutritional supplements. If anyone wants the details please let > me know. > > Best regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 welcome peter, I have the same issues as you. depending on how bad the midline is off will determine if it can be manipulated. it's good you caught it early as the bones haven't healed yet. my midline was off by 3mm at first but was due partly from the maxilla not being level. I also mentioned it at my first post-op and the doc downplayed it. he changed me to only banding on one side for a week but that did no good so he put a band like yours at 45 degrees. after one week it has tipped my maxilla so that the midline is now about 1mm off. the good news is if it can heal in this position i'll at least be able to chew somewhat normally. the bad news is i'll have to be banded for 8 weeks total to ensure the bones have healed and then wait another week to see if it stays. this was his second attempt at getting the maxilla right so if this doesn't work needless to say i'll be searching for another OS. the good news for you is if your maxilla needs to be redone the recovery is much easier than both upper and lower. while the midline is only aesthetic small corrections can be done with orthodontia. did you say if you had braces? have you talked to your orthodontist about this? good luck/eric > > Hello, > > I thought I'd introduce myself to the group before posting anything > else. > > I'm a male in my early thirties who underwent a bimaxilliary > osteotomy including bone harvesting (for the maxillar) from my hip. > I am approximately two-weeks post-op. > > I experienced most of the unpleasant symptoms in the first post-op > week, i.e. drooling, pain from the naso-gastric tube, weird dreams > and constipation from the analgesics, complete nasal congestion, > anxiety etc. > > I am now -- only two weeks post-op -- much better. My current > symptoms are slight swelling and minor facial and hip discomfort. > > I have had a discouraging set-back today. It appears that my maxilla > is slightly rotated to the left such that my two incissors (big front > teeth) do not meet precisely at the mid-line of my face. The surgeon > is not sure whether this happened post-op or after the plates were > applied. I noticed this three-days post-op but I thought it was just > an illusion from the swelling of my lips so I said nothing of it. My > mistake, but then again the surgeon didn't notice it either so it > wouldn't be fair to castigate myself. > > I now have four bands that run at 45-degree angles from top-to-bottom > jaws to try and rotate the maxillar (in addition to the vertical > bands). The surgeon says this should > correct the problem within two-weeks. I am informed that there is a > small chance that I may have to re-opened to correct the problem (if > the band don't fix it). This is a blow to me since I have been > making such good progress. Hopefully there will be now need for > further surgery. Has anyone had a similar experience? > > Also, I'd like to add that I have not lost any weight. It is > possible. I'm a very inventive blender cook and I make extensive use > of nutritional supplements. If anyone wants the details please let > me know. > > Best regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 I do know that some folks have had mismatched midlines -- me included, but my docs say mine is because I have different size teeth, upper and lower, and because I have lost different numbers of teeth on the left and on the right, and just not to worry about it. There have been others with this trouble whose orthos indeed were able to work wonders, bringing the midlines together. Still others have had to have a second surgery, which is generally conceded to be easier than the first -- perhaps because one knows what to expect. I do not remember anyone having specifically mentioned maxillary rotation in this context, but I could be mistaken about that. Good wishes to you. It must indeed be frustrating, and I hope that the elastics do their thing for you! Cammie > > Hello, > > I thought I'd introduce myself to the group before posting anything > else. > > I'm a male in my early thirties who underwent a bimaxilliary > osteotomy including bone harvesting (for the maxillar) from my hip. > I am approximately two-weeks post-op. > > I experienced most of the unpleasant symptoms in the first post-op > week, i.e. drooling, pain from the naso-gastric tube, weird dreams > and constipation from the analgesics, complete nasal congestion, > anxiety etc. > > I am now -- only two weeks post-op -- much better. My current > symptoms are slight swelling and minor facial and hip discomfort. > > I have had a discouraging set-back today. It appears that my maxilla > is slightly rotated to the left such that my two incissors (big front > teeth) do not meet precisely at the mid-line of my face. The surgeon > is not sure whether this happened post-op or after the plates were > applied. I noticed this three-days post-op but I thought it was just > an illusion from the swelling of my lips so I said nothing of it. My > mistake, but then again the surgeon didn't notice it either so it > wouldn't be fair to castigate myself. > > I now have four bands that run at 45-degree angles from top-to- bottom > jaws to try and rotate the maxillar (in addition to the vertical > bands). The surgeon says this should > correct the problem within two-weeks. I am informed that there is a > small chance that I may have to re-opened to correct the problem (if > the band don't fix it). This is a blow to me since I have been > making such good progress. Hopefully there will be now need for > further surgery. Has anyone had a similar experience? > > Also, I'd like to add that I have not lost any weight. It is > possible. I'm a very inventive blender cook and I make extensive use > of nutritional supplements. If anyone wants the details please let > me know. > > Best regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 I do know that some folks have had mismatched midlines -- me included, but my docs say mine is because I have different size teeth, upper and lower, and because I have lost different numbers of teeth on the left and on the right, and just not to worry about it. There have been others with this trouble whose orthos indeed were able to work wonders, bringing the midlines together. Still others have had to have a second surgery, which is generally conceded to be easier than the first -- perhaps because one knows what to expect. I do not remember anyone having specifically mentioned maxillary rotation in this context, but I could be mistaken about that. Good wishes to you. It must indeed be frustrating, and I hope that the elastics do their thing for you! Cammie > > Hello, > > I thought I'd introduce myself to the group before posting anything > else. > > I'm a male in my early thirties who underwent a bimaxilliary > osteotomy including bone harvesting (for the maxillar) from my hip. > I am approximately two-weeks post-op. > > I experienced most of the unpleasant symptoms in the first post-op > week, i.e. drooling, pain from the naso-gastric tube, weird dreams > and constipation from the analgesics, complete nasal congestion, > anxiety etc. > > I am now -- only two weeks post-op -- much better. My current > symptoms are slight swelling and minor facial and hip discomfort. > > I have had a discouraging set-back today. It appears that my maxilla > is slightly rotated to the left such that my two incissors (big front > teeth) do not meet precisely at the mid-line of my face. The surgeon > is not sure whether this happened post-op or after the plates were > applied. I noticed this three-days post-op but I thought it was just > an illusion from the swelling of my lips so I said nothing of it. My > mistake, but then again the surgeon didn't notice it either so it > wouldn't be fair to castigate myself. > > I now have four bands that run at 45-degree angles from top-to- bottom > jaws to try and rotate the maxillar (in addition to the vertical > bands). The surgeon says this should > correct the problem within two-weeks. I am informed that there is a > small chance that I may have to re-opened to correct the problem (if > the band don't fix it). This is a blow to me since I have been > making such good progress. Hopefully there will be now need for > further surgery. Has anyone had a similar experience? > > Also, I'd like to add that I have not lost any weight. It is > possible. I'm a very inventive blender cook and I make extensive use > of nutritional supplements. If anyone wants the details please let > me know. > > Best regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 > Good wishes to you. It must indeed be frustrating, and I hope that > the elastics do their thing for you! Success! It's been only nine days (the first five quite painful) but the midline of my teeth now matches the midline of my lip! If there is a lesson in this its to take an interest in your mouth and examine your teeth (without causing pain to yourself) and report any anomalies to your orthodontist and surgeon. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 > Good wishes to you. It must indeed be frustrating, and I hope that > the elastics do their thing for you! Success! It's been only nine days (the first five quite painful) but the midline of my teeth now matches the midline of my lip! If there is a lesson in this its to take an interest in your mouth and examine your teeth (without causing pain to yourself) and report any anomalies to your orthodontist and surgeon. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Welcome . My name is Sue Ann and I have a 3 1/2 year old boy. Who until 2 weeks ago was scooting around the house (and even has a bald spot to prove it), but to our pleasant surprise he took his first steps and now loves to practice walking with his walker. My son is also g-tube fed and uses a bi-pap to breath at night. It's hard to say what his cognitive level is -- is deaf and we use sign with him but he doesn't have the hand/arm control necessary to sign back to us. However, I know he is a smart boy. He has special switches in his bedroom that allows him to turn on his bedroom light and some of his toys. He knows what each switch does and can activate them on command. Well -- I wish you the best -- this is a great group with many different experiences. Sue Ann Bube President, UMDF Indiana Introduction Hi,My name is . I'm mom to 3 kids which includes my 5 yos who we believe has a mitochondrial disorder. I had a typical pregnancy with except the morning sickness was worse with him out of my 3 pregnancies. He delivered normally and he had no issues other than mild jaundice(all 3 of my kids were mildly jaundiced the first week because they were breastfed) I " think " hit his first milestones from 0-4 months. I " think " he maintained eye contact, and gave us a social smile and picked up his head. Its difficult to trust my memory in those first months but I don't recall being concerned. started rolling around 4 months so when had trouble sitting up or others issues I just thought it was because he wanted to roll. I started having trouble nursing him after 4 months. But I was pregnant and didn't know it so of course he wouldn't get enough food from me anyway. knew I was pregnant before I did:) I took for his 6 month check-up and my world was blown apart. I mentioned my mild concerns and the doc measured Chris's head. It hadn't grown since the 4 mo check-up. He wasn't sitting up at the time but he was STILL rolling. I incorrectly thought he wasn't sitting up because he didn't want to. I thought he just wanted to move around. He had an MRI which showed the frontal lobe of his brain had atrophied and had decreased mylenation(?SP). I'll skip ahead to today or I'll write forever. is an extremely happy 5 yo boy. He's globally delayed at the dev age of 6 months. He has low muscle tone throughout his body including his internal muscles(GI tract etc). can't walk or speak. He's been Gtube fed for 2 1/2 years and has had seizures for 3 years. He has visual cortical impairment, cerebral palsy & poor regulation of his body temperature. And his primary means of getting around when not in equipment is still rolling:) has been tested for soooo many things. Lots of bloodwork and urine tests,MRIs & other numerous scans,lumbar punctures,muscle & skin biopsies & probably more than I can't recall. Every test come back essentially normal. Occasionally a test may be slightly off but they aren't sure it means anything or if it's his diet. His genetics doctor & neurologist both think it's a metabolic/mitochondrial disorder. The latest tests are still pending. With all Chris's medical issues he's still the happiest of my 3 kids. He has a 7 yob and almost 4 yos who both are in excellent health. My 7 yo is defintely ADHD and has some behavior issues but his health is fine. My daughter is fine but she's also a hyper kid. Three high energy kids equals one tired mom-LOL I'd better go now. My 7 yo's bus will be here soon and I promised to read my daughter a story before he gets here. She's pouting:( I just thought I should introduce myself since I joined over a month ago. Blessings, Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Welcome . My name is Sue Ann and I have a 3 1/2 year old boy. Who until 2 weeks ago was scooting around the house (and even has a bald spot to prove it), but to our pleasant surprise he took his first steps and now loves to practice walking with his walker. My son is also g-tube fed and uses a bi-pap to breath at night. It's hard to say what his cognitive level is -- is deaf and we use sign with him but he doesn't have the hand/arm control necessary to sign back to us. However, I know he is a smart boy. He has special switches in his bedroom that allows him to turn on his bedroom light and some of his toys. He knows what each switch does and can activate them on command. Well -- I wish you the best -- this is a great group with many different experiences. Sue Ann Bube President, UMDF Indiana Introduction Hi,My name is . I'm mom to 3 kids which includes my 5 yos who we believe has a mitochondrial disorder. I had a typical pregnancy with except the morning sickness was worse with him out of my 3 pregnancies. He delivered normally and he had no issues other than mild jaundice(all 3 of my kids were mildly jaundiced the first week because they were breastfed) I " think " hit his first milestones from 0-4 months. I " think " he maintained eye contact, and gave us a social smile and picked up his head. Its difficult to trust my memory in those first months but I don't recall being concerned. started rolling around 4 months so when had trouble sitting up or others issues I just thought it was because he wanted to roll. I started having trouble nursing him after 4 months. But I was pregnant and didn't know it so of course he wouldn't get enough food from me anyway. knew I was pregnant before I did:) I took for his 6 month check-up and my world was blown apart. I mentioned my mild concerns and the doc measured Chris's head. It hadn't grown since the 4 mo check-up. He wasn't sitting up at the time but he was STILL rolling. I incorrectly thought he wasn't sitting up because he didn't want to. I thought he just wanted to move around. He had an MRI which showed the frontal lobe of his brain had atrophied and had decreased mylenation(?SP). I'll skip ahead to today or I'll write forever. is an extremely happy 5 yo boy. He's globally delayed at the dev age of 6 months. He has low muscle tone throughout his body including his internal muscles(GI tract etc). can't walk or speak. He's been Gtube fed for 2 1/2 years and has had seizures for 3 years. He has visual cortical impairment, cerebral palsy & poor regulation of his body temperature. And his primary means of getting around when not in equipment is still rolling:) has been tested for soooo many things. Lots of bloodwork and urine tests,MRIs & other numerous scans,lumbar punctures,muscle & skin biopsies & probably more than I can't recall. Every test come back essentially normal. Occasionally a test may be slightly off but they aren't sure it means anything or if it's his diet. His genetics doctor & neurologist both think it's a metabolic/mitochondrial disorder. The latest tests are still pending. With all Chris's medical issues he's still the happiest of my 3 kids. He has a 7 yob and almost 4 yos who both are in excellent health. My 7 yo is defintely ADHD and has some behavior issues but his health is fine. My daughter is fine but she's also a hyper kid. Three high energy kids equals one tired mom-LOL I'd better go now. My 7 yo's bus will be here soon and I promised to read my daughter a story before he gets here. She's pouting:( I just thought I should introduce myself since I joined over a month ago. Blessings, Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 , Welcome aboard!!! Glad you are here, but sorry you need to be. I laugh when you said that with his medical problems he is still your happiest child... that is my daughter. She has so many things wrong with her (bone marrow failure, autism, and on and on,) but she just is really so very happy. She really never complains even when you know she is really very sick. Well, anyways, welcome again, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 , Welcome aboard!!! Glad you are here, but sorry you need to be. I laugh when you said that with his medical problems he is still your happiest child... that is my daughter. She has so many things wrong with her (bone marrow failure, autism, and on and on,) but she just is really so very happy. She really never complains even when you know she is really very sick. Well, anyways, welcome again, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Welcome to the group. I am glad you introduced yourself and told us about your child. Feel free to ask any questions as the women on this group have a wealth of info as you probably already know. My youngest daughter, Zipporrah, also started having major nursing difficulty at 4 months and the docs told me it was because that is approximately the age where the infant's sucking reflex leaves. By this point baby's usually understand sucking gets them the food they desire, but to those who find it too tiring or hard, it is just too much work for the benefit. They suck shortly or improperly and then give up. Our daughter ended up needing the NG-tube by 4 1/2 months and the G-tube by the time she was 6 months. I am sorry it has been a hard struggle for the past several years. It seems like it takes forever for the docs to figure out what is wrong with out kids sometimes. Hope your answers will come quick. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Introduction > > > > Hi,My name is . I'm mom to 3 kids which includes my 5 yos who > we believe has a mitochondrial disorder. I had a typical pregnancy > with except the morning sickness was worse with him out of my 3 > pregnancies. He delivered normally and he had no issues other than > mild jaundice(all 3 of my kids were mildly jaundiced the first week > because they were breastfed) > I " think " hit his first milestones from 0-4 months. I " think " > he maintained eye contact, and gave us a social smile and picked up > his head. Its difficult to trust my memory in those first months but > I don't recall being concerned. started rolling around 4 > months so when had trouble sitting up or others issues I just thought > it was because he wanted to roll. I started having trouble nursing > him after 4 months. But I was pregnant and didn't know it so of > course he wouldn't get enough food from me anyway. knew I was > pregnant before I did:) > I took for his 6 month check-up and my world was blown apart. > I mentioned my mild concerns and the doc measured Chris's head. It > hadn't grown since the 4 mo check-up. He wasn't sitting up at the > time but he was STILL rolling. I incorrectly thought he wasn't > sitting up because he didn't want to. I thought he just wanted to > move around. He had an MRI which showed the frontal lobe of his > brain had atrophied and had decreased mylenation(?SP). > I'll skip ahead to today or I'll write forever. is an > extremely happy 5 yo boy. He's globally delayed at the dev age of 6 > months. He has low muscle tone throughout his body including his > internal muscles(GI tract etc). can't walk or speak. He's > been Gtube fed for 2 1/2 years and has had seizures for 3 years. He > has visual cortical impairment, cerebral palsy & poor regulation of > his body temperature. And his primary means of getting around when > not in equipment is still rolling:) > has been tested for soooo many things. Lots of bloodwork and > urine tests,MRIs & other numerous scans,lumbar punctures,muscle & > skin biopsies & probably more than I can't recall. Every test come > back essentially normal. Occasionally a test may be slightly off but > they aren't sure it means anything or if it's his diet. > His genetics doctor & neurologist both think it's a > metabolic/mitochondrial disorder. The latest tests are still pending. > With all Chris's medical issues he's still the happiest of my 3 > kids. He has a 7 yob and almost 4 yos who both are in excellent > health. My 7 yo is defintely ADHD and has some behavior issues but > his health is fine. My daughter is fine but she's also a hyper kid. > Three high energy kids equals one tired mom-LOL > I'd better go now. My 7 yo's bus will be here soon and I promised to > read my daughter a story before he gets here. She's pouting:( > I just thought I should introduce myself since I joined over a month > ago. > Blessings, > > > > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 , sounds alot like my son Lucas. Lucas is 8.5 yrs old. He has a cognitive level of 6 months, severe GI issues(J-tube fed since 4 yrs of age), cortical visual impairment, learned to walk when 4 yrs old, does not talk, has delayed myelination per MRI, abnormal EEG (on seizure meds but no clinical seizures), abnormal nonspecific muscle biopsy suggestive of mito.. My pregnancy with him included morning sickness whereas my prior pregnancy with my twins was without. Fortunately the geneticist may have discovered a piece of the puzzle as he just recently uncovered a mild defect in long chain fatty acid oxidation. He still thinks it is a mito disorder, too. Lucas' older brothers who are 12 yrs old (twins) both have ADHD. One has been on meds since 1st grade (now 7th grade) and he has not had very good success with finding medication that works. Hang in there I'm sure we are not alone with 3 time consuming children a piece. Loriannnu12002 wrote: Hi,My name is . I'm mom to 3 kids which includes my 5 yos whowe believe has a mitochondrial disorder. I had a typical pregnancywith except the morning sickness was worse with him out of my 3pregnancies. He delivered normally and he had no issues other thanmild jaundice(all 3 of my kids were mildly jaundiced the first weekbecause they were breastfed)I "think" hit his first milestones from 0-4 months. I "think"he maintained eye contact, and gave us a social smile and picked uphis head. Its difficult to trust my memory in those first months butI don't recall being concerned. started rolling around 4months so when had trouble sitting up or others issues I just thoughtit was because he wanted to roll. I started having trouble nursinghim after 4 months. But I was pregnant and didn't know it so ofcourse he wouldn't get enough food from me anyway. knew I waspregnant before I did:)I took for his 6 month check-up and my world was blown apart.I mentioned my mild concerns and the doc measured Chris's head. Ithadn't grown since the 4 mo check-up. He wasn't sitting up at thetime but he was STILL rolling. I incorrectly thought he wasn'tsitting up because he didn't want to. I thought he just wanted tomove around. He had an MRI which showed the frontal lobe of hisbrain had atrophied and had decreased mylenation(?SP).I'll skip ahead to today or I'll write forever. is anextremely happy 5 yo boy. He's globally delayed at the dev age of 6months. He has low muscle tone throughout his body including hisinternal muscles(GI tract etc). can't walk or speak. He'sbeen Gtube fed for 2 1/2 years and has had seizures for 3 years. Hehas visual cortical impairment, cerebral palsy & poor regulation ofhis body temperature. And his primary means of getting around whennot in equipment is still rolling:)has been tested for soooo many things. Lots of bloodwork andurine tests,MRIs & other numerous scans,lumbar punctures,muscle & skin biopsies & probably more than I can't recall. Every test comeback essentially normal. Occasionally a test may be slightly off butthey aren't sure it means anything or if it's his diet.His genetics doctor & neurologist both think it's ametabolic/mitochondrial disorder. The latest tests are still pending.With all Chris's medical issues he's still the happiest of my 3kids. He has a 7 yob and almost 4 yos who both are in excellenthealth. My 7 yo is defintely ADHD and has some behavior issues buthis health is fine. My daughter is fine but she's also a hyper kid.Three high energy kids equals one tired mom-LOLI'd better go now. My 7 yo's bus will be here soon and I promised toread my daughter a story before he gets here. She's pouting:(I just thought I should introduce myself since I joined over a monthago.Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi Marie, Welcome to our group. I have heard too that high lactate is a hallmark ofo mito. My son doesn't have this so I can't shed light on that issue. But, regarding the regression, has only regressed twice during acute illnesses. Both times he was under 1 1/2 years. He has been surprisingly healthy since then--no hospital admissions, no pneumonias, etc. He makes painfully slow developmental progress like your son. He is 5 1/2 and is bearing some weight and taking a few steps with assistance. He just learned his first sign (more). He is now much more socially responsive (lights up when I am around----I couldn't wait for that!). I asked two different mito specialists about life span given my son's constellation of symptoms (hypotonia, mental retardation, GERD, some visual issues). Neither would give us details as they simply don't know. When I really pressed the issue with Bruce Barshop in San Diego, he said he felt that he would start to have " crises " during the second decade of life. :I guess the way I understand it is lifespan is " compromised " ---he will not lead as long a life as he would without mito. On the other hand, they do not feel death is imminent--typically if the child is very ill, he/she will continue to be very ill or worse. If the child is fairly healthy, he/she will continue to be fairly healthy. I hope this helps! There are many on the list with more expertise than I have. But, I understand the need to know and understand. Lori and (5 1/2, complex I and IV) Introduction > > > > I am the mom to a 4 1/2 years old boy. My son was born prematurely > (33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53 > days in NICU and was re-hospitalized at 4 months with RSV in PICU for > another 54 days. He was discharged on oxigen for 3 months. Given > his birth story and complications during his first months of life, > his pediatrician as well as his neurologist think that his > developmental delays and hearing loss are the result of this. He has > been diagnosed with extrapiramidal Cerebral Palsy since he does not > show the commonly CP symptoms of spasticity and seizure. Instead he > is hypotonic and has some choreoathetoid movements. This diagnosis > is not definite since his developmental pediatrician and geneticist > think that a metabolic disease might be involved. > > Of all the metabolic and genetic tests done to my son the only one > that has come back with abnormal results has been the lactate blood > test and pyruvate blood test, therefore, his P/L ratio is way out of > range. This tests has been done three times and the results of the > three tests has not been normal although they have not been > consistent either. The first test results were High lactate, normal > pyruvate. The second one results were normal lactate, low pyruvate. > And the third test results done recently were high lactate, low > pyruvate. I have read a lot about this tests and how difficult it > is to have an true results given the fact that not all laboratories > personnel take the sample and manage it appropriately. The three > tests done to my son were on the same laboratory. > > On our last appointment with the geneticist he order to repeat the > pyruvate and lactate tests (the third ones) and said that if the > results were not normal he would start my son in a diet and > supplements. Our next appoinment to bring in the results is in a > couple of weeks. > > I have searched the net looking for information on these results but > so far there is not so much information regarding them > specifically. One thing I read was that high lactate leves is > a " hallmark " of mitochondrial disease. Hence I joined this group to > try and learn the most I can regarding mito disease and the possible > diagnosis of my son. I would greatly appreciate if anyone can shred > some light on the lactate/pyruvate levels and its relationship with > mito disease. Also would like to know if all mito diseases are > deadly sooner or later, I have read so many sad stories that right > now I am extremely worry about my son's future. Some of > the " symptoms " that my son shows that might fit a mito diagnosis > are his developmental delays, hypotonia, choreathetoid movements, > profound hearing loss, lung problems (chronic asthma), gerd. However > all those symptoms could also be related to his prematurity and > neonatal complications. He has always fed well and has not have > problems gaining weight ever. He has been improving over the years > with a lot of physical, occupational and speech therapy although his > progress has been painfully slow. He has never experienced a > regression on the skills acquired with therapy. > > Regards, > > Marie > > > > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Welcome to the group Marie. I don't know much about the bloodwork, sorry. I just wanted to say hi. Also I noticed you mentioned reading alot of info about mito. I was warned about this rather early. There are many places to find info on the web, but many are not giving correct info about mito. Gracies mito doc reccomended only reading what is on the UMDF's website, but not too deeply. Yes, you need to understand your childs condition but remember the docs know very little about the disease themselves. If a doctor tells you a prediction on your childs health in detail, odds are they are not credible. Yes, many forms of mito are fatal, some very early on in life but there are many kids in this group who have beaten so many odds. We did not think our little girl would make it very long when she was first diagnosed. Now she is a very active 2 1/2 year old. Of course she has issues, but the person walking down the road would never be able to tell that she is sick. Mito is a very nasty disease, no doubt, but it is not always a death sentence. Best wishes With MSN Hotmail's Photo Upload Tool preview and edit pictures before you email them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 I don't think I can actually be of much help to you but I just wanted to say Hi and welcome to the group. My son (3 1/2) has also had high lactates a couple of times and was diagnosed with mito by muscle biopsy. He also has developmental delays, hypotonia, gerd, and no speech. He does have regressions with illnesses. I am the mom to a 4 1/2 years old boy. My son was born prematurely (33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53 days in NICU and was re-hospitalized at 4 months with RSV in PICU for another 54 days. He was discharged on oxigen for 3 months. Given his birth story and complications during his first months of life, his pediatrician as well as his neurologist think that his developmental delays and hearing loss are the result of this. He has been diagnosed with extrapiramidal Cerebral Palsy since he does not show the commonly CP symptoms of spasticity and seizure. Instead he is hypotonic and has some choreoathetoid movements. This diagnosis is not definite since his developmental pediatrician and geneticist think that a metabolic disease might be involved. Of all the metabolic and genetic tests done to my son the only one that has come back with abnormal results has been the lactate blood test and pyruvate blood test, therefore, his P/L ratio is way out of range. This tests has been done three times and the results of the three tests has not been normal although they have not been consistent either. The first test results were High lactate, normal pyruvate. The second one results were normal lactate, low pyruvate. And the third test results done recently were high lactate, low pyruvate. I have read a lot about this tests and how difficult it is to have an true results given the fact that not all laboratories personnel take the sample and manage it appropriately. The three tests done to my son were on the same laboratory. On our last appointment with the geneticist he order to repeat the pyruvate and lactate tests (the third ones) and said that if the results were not normal he would start my son in a diet and supplements. Our next appoinment to bring in the results is in a couple of weeks. I have searched the net looking for information on these results but so far there is not so much information regarding them specifically. One thing I read was that high lactate leves is a " hallmark " of mitochondrial disease. Hence I joined this group to try and learn the most I can regarding mito disease and the possible diagnosis of my son. I would greatly appreciate if anyone can shred some light on the lactate/pyruvate levels and its relationship with mito disease. Also would like to know if all mito diseases are deadly sooner or later, I have read so many sad stories that right now I am extremely worry about my son's future. Some of the " symptoms " that my son shows that might fit a mito diagnosis are his developmental delays, hypotonia, choreathetoid movements, profound hearing loss, lung problems (chronic asthma), gerd. However all those symptoms could also be related to his prematurity and neonatal complications. He has always fed well and has not have problems gaining weight ever. He has been improving over the years with a lot of physical, occupational and speech therapy although his progress has been painfully slow. He has never experienced a regression on the skills acquired with therapy. Regards, Marie Please contact mito-owner with any problems or questions. Yahoo! Groups Sponsor ADVERTISEMENT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Dear Marie: Welcome to the group. My 13 year old boy and 8 year old boy both have mito. They haven't had any high results for Lactate or Pyruvate, but the mito was found in muscle biopsy. (It's odd that these types of things aren't really definitive for mito. But, I think raised results at least are a flag for further checking mito) Hopefully someone can address those issues for you. Welcome and good luck in your search for diagnosis and with your little boy. Cindy Cruz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi Marie, My son Joe was also born premature (26 weeks) and we spent plenty of time in the NICU and shortly thereafter some anemia caused a trip back to PICU, transfusion reaction (misdiagnosed as CHF), over medicated on diuretics and he coded on us at home. As a result he dose have a CP diagnosis (damage deep in the white matter of the brain) that was diagnosed when he was almost 1yr old. At 2 yrs. old he was diagnosed with tethered chord syndrome (w/o spina bifida) and after the release surgery was doing great until - the regression. After 6+ months and many specialists later (most tried to convince me it was just his CP and just deal with it) we finally started the testing for mito. The labs were the red flag for the neuro who finally saw us and helped us get the biopsy. Joe's lactate and pyruvate ratio's were really out there too, and they would vary considerably at times. Although his pyruvate seem to come back pretty consistently "none detected", his lactate levels would be all over. I too went to all the web sites and was gripped with fear. Joe is doing well now, he is learning fine (no signs of MR), very creative and extremely "happy go lucky" . His main issues are his motor functions, low tone in trunk, spastic in legs (with weakness also). I learned within the last year that I also have mito, so I believe that many of our children can and will make it to adulthood and have active and productive lives as many of us adults with mito have done. There are many "worst case scenarios" out there on the web and not many of our stories of hope!!! In this group I have found many answers and so much hope!!!! I am glad that you found this group and hope that you can find answers for your son. The "not knowing" was harder than the actual diagnosis. Hope I didn't ramble on too long. Praying for all of us, AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine issues) Married to my best friend Rick, Very Busy Mom to (15), (12), Cassandra (6) and Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) gina.m.fernandez@... wrote: I am the mom to a 4 1/2 years old boy. My son was born prematurely (33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53 days in NICU and was re-hospitalized at 4 months with RSV in PICU for another 54 days. He was discharged on oxigen for 3 months. Given his birth story and complications during his first months of life, his pediatrician as well as his neurologist think that his developmental delays and hearing loss are the result of this. He has been diagnosed with extrapiramidal Cerebral Palsy since he does not show the commonly CP symptoms of spasticity and seizure. Instead he is hypotonic and has some choreoathetoid movements. This diagnosis is not definite since his developmental pediatrician and geneticist think that a metabolic disease might be involved. Of all the metabolic and genetic tests done to my son the only one that has come back with abnormal results has been the lactate blood test and pyruvate blood test, therefore, his P/L ratio is way out of range. This tests has been done three times and the results of the three tests has not been normal although they have not been consistent either. The first test results were High lactate, normal pyruvate. The second one results were normal lactate, low pyruvate. And the third test results done recently were high lactate, low pyruvate. I have read a lot about this tests and how difficult it is to have an true results given the fact that not all laboratories personnel take the sample and manage it appropriately. The three tests done to my son were on the same laboratory. On our last appointment with the geneticist he order to repeat the pyruvate and lactate tests (the third ones) and said that if the results were not normal he would start my son in a diet and supplements. Our next appoinment to bring in the results is in a couple of weeks. I have searched the net looking for information on these results but so far there is not so much information regarding them specifically. One thing I read was that high lactate leves is a "hallmark" of mitochondrial disease. Hence I joined this group to try and learn the most I can regarding mito disease and the possible diagnosis of my son. I would greatly appreciate if anyone can shred some light on the lactate/pyruvate levels and its relationship with mito disease. Also would like to know if all mito diseases are deadly sooner or later, I have read so many sad stories that right now I am extremely worry about my son's future. Some of the "symptoms" that my son shows that might fit a mito diagnosis are his developmental delays, hypotonia, choreathetoid movements, profound hearing loss, lung problems (chronic asthma), gerd. However all those symptoms could also be related to his prematurity and neonatal complications. He has always fed well and has not have problems gaining weight ever. He has been improving over the years with a lot of physical, occupational and speech therapy although his progress has been painfully slow. He has never experienced a regression on the skills acquired with therapy. Regards, Marie Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi Marie, My son Joe was also born premature (26 weeks) and we spent plenty of time in the NICU and shortly thereafter some anemia caused a trip back to PICU, transfusion reaction (misdiagnosed as CHF), over medicated on diuretics and he coded on us at home. As a result he dose have a CP diagnosis (damage deep in the white matter of the brain) that was diagnosed when he was almost 1yr old. At 2 yrs. old he was diagnosed with tethered chord syndrome (w/o spina bifida) and after the release surgery was doing great until - the regression. After 6+ months and many specialists later (most tried to convince me it was just his CP and just deal with it) we finally started the testing for mito. The labs were the red flag for the neuro who finally saw us and helped us get the biopsy. Joe's lactate and pyruvate ratio's were really out there too, and they would vary considerably at times. Although his pyruvate seem to come back pretty consistently "none detected", his lactate levels would be all over. I too went to all the web sites and was gripped with fear. Joe is doing well now, he is learning fine (no signs of MR), very creative and extremely "happy go lucky" . His main issues are his motor functions, low tone in trunk, spastic in legs (with weakness also). I learned within the last year that I also have mito, so I believe that many of our children can and will make it to adulthood and have active and productive lives as many of us adults with mito have done. There are many "worst case scenarios" out there on the web and not many of our stories of hope!!! In this group I have found many answers and so much hope!!!! I am glad that you found this group and hope that you can find answers for your son. The "not knowing" was harder than the actual diagnosis. Hope I didn't ramble on too long. Praying for all of us, AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine issues) Married to my best friend Rick, Very Busy Mom to (15), (12), Cassandra (6) and Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) gina.m.fernandez@... wrote: I am the mom to a 4 1/2 years old boy. My son was born prematurely (33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53 days in NICU and was re-hospitalized at 4 months with RSV in PICU for another 54 days. He was discharged on oxigen for 3 months. Given his birth story and complications during his first months of life, his pediatrician as well as his neurologist think that his developmental delays and hearing loss are the result of this. He has been diagnosed with extrapiramidal Cerebral Palsy since he does not show the commonly CP symptoms of spasticity and seizure. Instead he is hypotonic and has some choreoathetoid movements. This diagnosis is not definite since his developmental pediatrician and geneticist think that a metabolic disease might be involved. Of all the metabolic and genetic tests done to my son the only one that has come back with abnormal results has been the lactate blood test and pyruvate blood test, therefore, his P/L ratio is way out of range. This tests has been done three times and the results of the three tests has not been normal although they have not been consistent either. The first test results were High lactate, normal pyruvate. The second one results were normal lactate, low pyruvate. And the third test results done recently were high lactate, low pyruvate. I have read a lot about this tests and how difficult it is to have an true results given the fact that not all laboratories personnel take the sample and manage it appropriately. The three tests done to my son were on the same laboratory. On our last appointment with the geneticist he order to repeat the pyruvate and lactate tests (the third ones) and said that if the results were not normal he would start my son in a diet and supplements. Our next appoinment to bring in the results is in a couple of weeks. I have searched the net looking for information on these results but so far there is not so much information regarding them specifically. One thing I read was that high lactate leves is a "hallmark" of mitochondrial disease. Hence I joined this group to try and learn the most I can regarding mito disease and the possible diagnosis of my son. I would greatly appreciate if anyone can shred some light on the lactate/pyruvate levels and its relationship with mito disease. Also would like to know if all mito diseases are deadly sooner or later, I have read so many sad stories that right now I am extremely worry about my son's future. Some of the "symptoms" that my son shows that might fit a mito diagnosis are his developmental delays, hypotonia, choreathetoid movements, profound hearing loss, lung problems (chronic asthma), gerd. However all those symptoms could also be related to his prematurity and neonatal complications. He has always fed well and has not have problems gaining weight ever. He has been improving over the years with a lot of physical, occupational and speech therapy although his progress has been painfully slow. He has never experienced a regression on the skills acquired with therapy. Regards, Marie Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Nice to mean you a...and welcome. We all love Ron here and Im sure we will love you too!! > > Hi Group. My name is a, Ron's sister. I'm glad to join. I will probably lurk mostly and chine in occassionally. I am a weekend computer. > > I was reading some posts and made some notes. Here are my stats: > I first requested being referred in February of last year; and the following week the girls at work started a " Weight Watchers at Work " group and invited me along. I hadn't gone to orientation or anyting, did I want to start losing weight already? I figured I would start the group but just not try too hard until it was time for me to really start. That time came soon enough and I had already lost 14 lbs.! (My starting weight was 301; I'm 5' 3 " ; build like a bartlet) By the time I went to orientation I was 287. My goal weight was 257 and I reached that goal with the help of WW July 13th. I weighed in to get my surgery date at 250; I was promptly given August 31, 2005. My surgery took place in Richmond, CA; performed by Dr. Fisher laparoscopically. He said " your surgery went like train tracks " and the smile on his face told me that train tracks are good. I had very little pain, was only in the hospital until the following day after lunch, but stayed home from work until the end of the six weeks. I thought I was ready to return at 3 wks., but the action of starting my solid food, my esophagus (which had a lg. hernia fixed during my surgery) contracted so badly when I ate that I had to lay down for 30 to 45 minutes after. It was nearly better by the time I went back to work. It's all better now. I am weighing about 155ish now and my goal is to be 145 to 150. I have looked at a couple of charts and for my height and age (45) I should be around 141. I am a happy camper. > > So before I shut up...Robynn, thank you for asking about me. I feel WONDERFUL! I am struggling with my " self image size " I have not got a grasp yet that I don't even need to buy XL blouses (only a M), I'm moving quickly into a size 12 pant. People that haven't seen me for some time are shocked. That's kinda fun now, but I used to think " I couldn't look that different! " But I DO! > > , Keep Sipping! You need all the water you can get in so you too don't get the dredded constipation. > > Sassy, congrats on your 13 lbs. keep up the good work. > > , put your big girl panties on. You're in for the ride of your life. Best wishes to you. > > Ro " bert " a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Welcome to the group. Glad you could join us. It sounds like you have done wonderfully! PEGGY > > Hi Group. My name is a, Ron's sister. I'm glad to join. I will probably lurk mostly and chine in occassionally. I am a weekend computer. > > I was reading some posts and made some notes. Here are my stats: > I first requested being referred in February of last year; and the following week the girls at work started a " Weight Watchers at Work " group and invited me along. I hadn't gone to orientation or anyting, did I want to start losing weight already? I figured I would start the group but just not try too hard until it was time for me to really start. That time came soon enough and I had already lost 14 lbs.! (My starting weight was 301; I'm 5' 3 " ; build like a bartlet) By the time I went to orientation I was 287. My goal weight was 257 and I reached that goal with the help of WW July 13th. I weighed in to get my surgery date at 250; I was promptly given August 31, 2005. My surgery took place in Richmond, CA; performed by Dr. Fisher laparoscopically. He said " your surgery went like train tracks " and the smile on his face told me that train tracks are good. I had very little pain, was only in the hospital until the following day after lunch, but stayed home from work until the end of the six weeks. I thought I was ready to return at 3 wks., but the action of starting my solid food, my esophagus (which had a lg. hernia fixed during my surgery) contracted so badly when I ate that I had to lay down for 30 to 45 minutes after. It was nearly better by the time I went back to work. It's all better now. I am weighing about 155ish now and my goal is to be 145 to 150. I have looked at a couple of charts and for my height and age (45) I should be around 141. I am a happy camper. > > So before I shut up...Robynn, thank you for asking about me. I feel WONDERFUL! I am struggling with my " self image size " I have not got a grasp yet that I don't even need to buy XL blouses (only a M), I'm moving quickly into a size 12 pant. People that haven't seen me for some time are shocked. That's kinda fun now, but I used to think " I couldn't look that different! " But I DO! > > , Keep Sipping! You need all the water you can get in so you too don't get the dredded constipation. > > Sassy, congrats on your 13 lbs. keep up the good work. > > , put your big girl panties on. You're in for the ride of your life. Best wishes to you. > > Ro " bert " a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Welcome to the list a. We hope you love it here and stay for a long time! Laurie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 a, Big girl panties are precisely one of the many problems I'm trying to rectify!!LOLI just about wet them laughing. Cute. Sounds like you are having a great time. I'm so looking forward to that goal too. It is very hard at this point to even see myself there. It's been too many looong years. I have to say I haven't been this jazzed about anything in a very long time. Can't wait! Congrats on your success.pegmo1212 wrote: Welcome to the group. Glad you could join us. It sounds like you have done wonderfully! PEGGY>> Hi Group. My name is a, Ron's sister. I'm glad to join. I will probably lurk mostly and chine in occassionally. I am a weekend computer.> > I was reading some posts and made some notes. Here are my stats:> I first requested being referred in February of last year; and the following week the girls at work started a "Weight Watchers at Work" group and invited me along. I hadn't gone to orientation or anyting, did I want to start losing weight already? I figured I would start the group but just not try too hard until it was time for me to really start. That time came soon enough and I had already lost 14 lbs.! (My starting weight was 301; I'm 5' 3"; build like a bartlet) By the time I went to orientation I was 287. My goal weight was 257 and I reached that goal with the help of WW July 13th. I weighed in to get my surgery date at 250; I was promptly given August 31, 2005. My surgery took place in Richmond, CA; performed by Dr. Fisher laparoscopically. He said "your surgery went like train tracks" and the smile on his face told me that train tracks are good. I had very little pain, was only in the hospital until the following day after lunch, but stayed home from work until the end of the six weeks. I thought I was ready to return at 3 wks., but the action of starting my solid food, my esophagus (which had a lg. hernia fixed during my surgery) contracted so badly when I ate that I had to lay down for 30 to 45 minutes after. It was nearly better by the time I went back to work. It's all better now. I am weighing about 155ish now and my goal is to be 145 to 150. I have looked at a couple of charts and for my height and age (45) I should be around 141. I am a happy camper.> > So before I shut up...Robynn, thank you for asking about me. I feel WONDERFUL! I am struggling with my "self image size" I have not got a grasp yet that I don't even need to buy XL blouses (only a M), I'm moving quickly into a size 12 pant. People that haven't seen me for some time are shocked. That's kinda fun now, but I used to think "I couldn't look that different!" But I DO!> > , Keep Sipping! You need all the water you can get in so you too don't get the dredded constipation.> > Sassy, congrats on your 13 lbs. keep up the good work.> > , put your big girl panties on. You're in for the ride of your life. Best wishes to you.> > Ro"bert"a> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Hello, I am the mother of a 7.5 year old son who has " issuse " . We do not have an official dx but depending on the day, he shows signs of: ADD, anxiety, Bipolar, ODD, and very high level autism. His behaviors have gotten to the point where I have been considering medication. But before I go to that extreme, I decided that trying this Pecan bread diet might be worth a try. The more I read the more I can see how he fits the profile. Reflux as an infant, chronic allergies (to everything), gas and constipation, chronic ear and sinus infections and antibiotics. I am going out to buy the book today. Just thought I would stop by and say " hi " . Thanks, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.