Re: I can't do the diet 100%

April 18, 2006

Hi. It it makes you feel better, your situation might not be as unusual as

you think. We started the diet because of my daughter. It happens that I

have many health problems myself, CFS is one of them. We have severe egg,

casein, plus many more allergies. There are alternatives to all the

supplements you might need. It is just harder to find them when we have all

this restrictions.

The diet has helped me tremendously. Don't give up. I do believe that in

order for the diet to work it has to be 100.0000%. It is harder at the

beginning but it gets better as your gut heals.

Maybe if you list your illegal supplements/meds we can help you sort out or

recommend legal alternatives. Not with food, that you have to give up. Let

me tell you that it is possible. At the time we were contemplating SCD, my

daughter was taking rice as her only solid food that she would tolerate, and

breastmilk. Because what you eat goes into the breastmilk, that was my only

food as well. She had severe allergies to all meats, most veggies, nearly

everything! One day things were so bad that we decided to just start SCD and

we were going to figure out what to eat as every hour passed. We bought a

big sack of very ripe bananas. That is all she ate (and breastmilk) for over

a week! Immediately we started to see benefits, for her, for me and for my

husband. We haven't yet stopped getting benefits from the diet. My daughter

now eats more than 6 kinds of meats, fruits and vegetables each. What

seemed impossible is now a great reality.

With the supplements it was very hard because we are both extremely

sensitive to additives and ingredients. We are now on full supplementation

and full enzymes.

Do not give up. The ONLY thing that you need to succeed in the diet is

COMMITMENT. That is all it takes. The group is very supportive and you can

ask any questions you want. There is a world of resources here. Use them.

You will not regret it.

Welcome and ..Get Healthy!

Best regards,

mom to fiol asd 16mo

>

> My situation is a bit unusual, I'm working with a chronic fatigue

> syndrome specialist and have agreed to follow his protocol to the

> letter this year. But then I read about the SCD and thought it might

> be helpful as well since he mentions xenobiotic toxins in the gut as

> contributing some of the problems in CFIDS.

>

> However, some of the things I am supposed to take have small amounts

> of lactose and starch in them, like ImmunePro, Zypan digestive

> enzymes, and other supplements.

>

> I started on a semblance of the diet Sunday, but no honey due to

> hypoglycemia, no eggs or cow dairy due to allergies. Tried to make

> goat yogurt but my gas oven pilot only gets the oven to 90 so that

> didn't work. Need to get a yogurt maker.

>

> Made some almond carrot muffins that turned out okay. I just used

> pulp from when I juiced carrots, ground almonds myself, coconut oil,

> cinnamon, baking soda and water.

>

> I quit drinking rice milk, eating rice crackers, etc., etc, but am

> wondering if doing a semblance of the diet will do me any good at all.

>

> Don't remember the last time I had diarrhea but I have leaky gut

> syndrome, gluten/casein intolerance, have had digestive tests that

> indicated high levels of fecal fat, rapid transit and imbalanced

> flora.

>

> any comments appreciated,

> Helen

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

April 19, 2006

Thanks for your response. I am working with the Cheney clinic and

committed to a specific protocol for the rest of the year, which

includes ImmunePro that contains .3 grams of lactose. Additionally

some of the supplements contain starch and/or lactose.

My question is can 90 to 95% compliance to the diet achieve anything

positive?

I cannot do 100% at this time.

Will have to get a yogurt maker, my attempt to make some goat yogurt

here was a disaster.

The almond flour bread on the other hand was okay. But I'm thinking I

had better do the chicken soup for a couple days the next time I try

to start this diet. Can't have eggs, don't want to mess around with

gelatin or honey.

thanks,

Helen

> >

> > My situation is a bit unusual, I'm working with a chronic fatigue

> > syndrome specialist and have agreed to follow his protocol to the

> > letter this year. But then I read about the SCD and thought it

might

> > be helpful as well since he mentions xenobiotic toxins in the gut

as

> > contributing some of the problems in CFIDS.

> >

> > However, some of the things I am supposed to take have small

amounts

> > of lactose and starch in them, like ImmunePro, Zypan digestive

> > enzymes, and other supplements.

> >

> > I started on a semblance of the diet Sunday, but no honey due to

> > hypoglycemia, no eggs or cow dairy due to allergies. Tried to make

> > goat yogurt but my gas oven pilot only gets the oven to 90 so that

> > didn't work. Need to get a yogurt maker.

> >

> > Made some almond carrot muffins that turned out okay. I just used

> > pulp from when I juiced carrots, ground almonds myself, coconut

oil,

> > cinnamon, baking soda and water.

> >

> > I quit drinking rice milk, eating rice crackers, etc., etc, but am

> > wondering if doing a semblance of the diet will do me any good at

all.

> >

> > Don't remember the last time I had diarrhea but I have leaky gut

> > syndrome, gluten/casein intolerance, have had digestive tests that

> > indicated high levels of fecal fat, rapid transit and imbalanced

> > flora.

> >

> > any comments appreciated,

> > Helen

> >

> > For information on the Specific Carbohydrate Diet, please read

the book

> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following

> > websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

April 19, 2006

" Thanks for your response. I am working with the Cheney clinic and

committed to a specific protocol for the rest of the year, which

includes ImmunePro that contains .3 grams of lactose. Additionally

some of the supplements contain starch and/or lactose. "

Why don't you get some good enzymes and take enzymes before you take

these medications that you need? That should at least help with the

lactose and starch.

Something like H-NZymePrime from Houston would be a good choice.

http://www.houstonni.com

Jody

mom to -7 and -9

SCD 1/03

April 19, 2006

Thanks. He has me on enzymes, Zypan, and it has a small amount of

lactose in it. Sigh. I am still just collecting information and

trying to figure out what to do.

Having just seen my doctor and discussed my case in detail, there is

a lot for me to think about. I have diastolic cardiomyopathy as they

are discovering is a factor in many severe cases of CFIDS and so the

heart situation trumps the gut situation, although he discusses

xenobiotic toxicity and how toxins in the gut impact the situation

negatively. Something about superoxide and nitrous oxide formation,

and the mitochondrial cooling system not working properly. It's a

pity my science background is so limited, I really struggle to

comprehend this stuff.

So it's complicated but the gut problems are a factor. Right now I'm

reviewing my visit with him and transcribing what I taped while I was

there. He talks about the Herxheimer response and that is something I

need to be very wary of with my particular condition.

So now I'm wondering if the SCD die-off is essentially the same thing

as herxing, which to my understanding is that when the bad bacteria

die, they release toxins, and those toxins dramatically increase the

very substances that I am hampered in ridding myself of due to my

mitochondrial dysfunction. Which would not necessarily apply to

anyone else here, I don't know.

But it's got me wondering if there is any way to ease onto this diet

and starve the bacteria gradually? Or do they just gobble up whatever

you put down there in the way of lactose and starch, and a small

amount is enough for them to thrive? That would be my main question,

if anyone knows.

I did ask the doctor if he was familiar with the diet and he wasn't.

I gave him my copy of Pangborn and Baker's autism book which another

CFIDS researcher recommended to me, and it was in that book that I

learned about the SCD. So maybe my doctor will check it out if he has

time. He's very involved with the new cardiomyopathic findings so I'm

a bit alone here in trying to put the two concepts together in a way

that will help me and not harm me.

thanks,

Helen

>

> " Thanks for your response. I am working with the Cheney clinic and

> committed to a specific protocol for the rest of the year, which

> includes ImmunePro that contains .3 grams of lactose. Additionally

> some of the supplements contain starch and/or lactose. "

>

> Why don't you get some good enzymes and take enzymes before you take

> these medications that you need? That should at least help with the

> lactose and starch.

>

> Something like H-NZymePrime from Houston would be a good choice.

> http://www.houstonni.com

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

April 20, 2006

I think, the stricter the better; but many, including myself, have seen definite

improvment by doing as much as you can. Don't be discouraged!!!

Agape,

helen9jora wrote:

My situation is a bit unusual, I'm working with a chronic fatigue

syndrome specialist and have agreed to follow his protocol to the

letter this year. But then I read about the SCD and thought it might

be helpful as well since he mentions xenobiotic toxins in the gut as

contributing some of the problems in CFIDS.

However, some of the things I am supposed to take have small amounts

of lactose and starch in them, like ImmunePro, Zypan digestive

enzymes, and other supplements.

I started on a semblance of the diet Sunday, but no honey due to

hypoglycemia, no eggs or cow dairy due to allergies. Tried to make

goat yogurt but my gas oven pilot only gets the oven to 90 so that

didn't work. Need to get a yogurt maker.

Made some almond carrot muffins that turned out okay. I just used

pulp from when I juiced carrots, ground almonds myself, coconut oil,

cinnamon, baking soda and water.

I quit drinking rice milk, eating rice crackers, etc., etc, but am

wondering if doing a semblance of the diet will do me any good at all.

Don't remember the last time I had diarrhea but I have leaky gut

syndrome, gluten/casein intolerance, have had digestive tests that

indicated high levels of fecal fat, rapid transit and imbalanced

flora.

any comments appreciated,

Helen

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

April 20, 2006

helen9jora wrote:

My question is can 90 to 95% compliance to the diet achieve anything

positive?

I'd bet money it will!!!

Agape,

> >

and read the

following

> > websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

April 20, 2006

I don't know about you, but we experimented I almost every way last year. Now

that we are 100% and practicing the " fanatical adherance " that Elaine speaks of

in her BTVC book, this is when the miracle started to happen! Out of the grace

of God we had to wait to see the DAN!...who I guess may have ordered all sorts

of tests and chelation therapies......to now be strict SCD for two months.....we

are already different people/kids....wonder what the DAN will say now.

Get your enzymes compounded at a special pharmacy to make them SCD legal, so

that you can practice 100% adherence! This is what we do with all our

prescriptions.........a pain and an incontinence but worth it! When you see the

BENEFITS of what Elaine and her BTVC book promised!

Guess this promise is for anybody who wants it....try it another way it is not

going to work.

Sincerely, Antoinette (two months entire family SCD and doing so much better

than last year trying other ways!)

Re: I can't do the diet 100%

I think, the stricter the better; but many, including myself, have seen

definite improvment by doing as much as you can. Don't be discouraged!!!

Agape,

helen9jora > wrote:

My situation is a bit unusual, I'm working with a chronic fatigue

syndrome specialist and have agreed to follow his protocol to the

letter this year. But then I read about the SCD and thought it might

be helpful as well since he mentions xenobiotic toxins in the gut as

contributing some of the problems in CFIDS.

However, some of the things I am supposed to take have small amounts

of lactose and starch in them, like ImmunePro, Zypan digestive

enzymes, and other supplements.

I started on a semblance of the diet Sunday, but no honey due to

hypoglycemia, no eggs or cow dairy due to allergies. Tried to make

goat yogurt but my gas oven pilot only gets the oven to 90 so that

didn't work. Need to get a yogurt maker.

Made some almond carrot muffins that turned out okay. I just used

pulp from when I juiced carrots, ground almonds myself, coconut oil,

cinnamon, baking soda and water.

I quit drinking rice milk, eating rice crackers, etc., etc, but am

wondering if doing a semblance of the diet will do me any good at all.

Don't remember the last time I had diarrhea but I have leaky gut

syndrome, gluten/casein intolerance, have had digestive tests that

indicated high levels of fecal fat, rapid transit and imbalanced

flora.

any comments appreciated,

Helen

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>

April 21, 2006

dear helen:

my sister has complicated heart problems that make it very dangerous to

detoxify as well. in your case you want to make small steady changes and

listen to your body as they happen. this will help you and your doctor how

soon to go to the next step and what that next step should be. it is

possible.

good luck.

maria

mom to fiol asd 16mo

>

> Thanks. He has me on enzymes, Zypan, and it has a small amount of

> lactose in it. Sigh. I am still just collecting information and

> trying to figure out what to do.

>

> Having just seen my doctor and discussed my case in detail, there is

> a lot for me to think about. I have diastolic cardiomyopathy as they

> are discovering is a factor in many severe cases of CFIDS and so the

> heart situation trumps the gut situation, although he discusses

> xenobiotic toxicity and how toxins in the gut impact the situation

> negatively. Something about superoxide and nitrous oxide formation,

> and the mitochondrial cooling system not working properly. It's a

> pity my science background is so limited, I really struggle to

> comprehend this stuff.

>

> So it's complicated but the gut problems are a factor. Right now I'm

> reviewing my visit with him and transcribing what I taped while I was

> there. He talks about the Herxheimer response and that is something I

> need to be very wary of with my particular condition.

>

> So now I'm wondering if the SCD die-off is essentially the same thing

> as herxing, which to my understanding is that when the bad bacteria

> die, they release toxins, and those toxins dramatically increase the

> very substances that I am hampered in ridding myself of due to my

> mitochondrial dysfunction. Which would not necessarily apply to

> anyone else here, I don't know.

>

> But it's got me wondering if there is any way to ease onto this diet

> and starve the bacteria gradually? Or do they just gobble up whatever

> you put down there in the way of lactose and starch, and a small

> amount is enough for them to thrive? That would be my main question,

> if anyone knows.

>

> I did ask the doctor if he was familiar with the diet and he wasn't.

> I gave him my copy of Pangborn and Baker's autism book which another

> CFIDS researcher recommended to me, and it was in that book that I

> learned about the SCD. So maybe my doctor will check it out if he has

> time. He's very involved with the new cardiomyopathic findings so I'm

> a bit alone here in trying to put the two concepts together in a way

> that will help me and not harm me.

>

> thanks,

> Helen

>

> >

> > " Thanks for your response. I am working with the Cheney clinic and

> > committed to a specific protocol for the rest of the year, which

> > includes ImmunePro that contains .3 grams of lactose. Additionally

> > some of the supplements contain starch and/or lactose. "

> >

> > Why don't you get some good enzymes and take enzymes before you take

> > these medications that you need? That should at least help with the

> > lactose and starch.

> >

> > Something like H-NZymePrime from Houston would be a good choice.

> > http://www.houstonni.com

> >

> > Jody

> > mom to -7 and -9

> > SCD 1/03

> >

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

May 5, 2006

Dear Helen:

There are supplements that can be taken for mitochondrial support. Check out

the parent group chat line at www.autismanswer.com . To support the

mitochondria, Dr. Amy Yasko suggested the following for our daughter:

carnosine

NADH

ATP

Idebenone

As a matter of fact, she has very helpful suggestions for supporting various

organ/body systems.

Hope this helps,

Fiol I Vanek-Bermudez wrote: