Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 , I would like to say that I felt something in breathe a sigh of relief when I read this. I know my listmates here have come to SCD as a way to solve/resolve issues that haven't been otherwise with other diets/therapies. I am in the process of sorting out why we are on the diet, if you will. The short story: I explained my son's symptoms to Kayla on another forum that we belong to. She recommended SCD for my son. I never had him tested except for pancreatic enzyme function. The test was normal. I have been wandering around here in SCD world aimlessly, wondering if I need to be on this diet, wondering if we could do something less drastic as watch every little thing we put into our bodies in order to heal. And to heal what? I still don't know what's going on and I have a hard time just going on blind faith that SCD is the right thing for us. I just went to a talk by DeFelice..highly recommend seeing her, by the way. He talk on enzymes helped me to understand more what SCD is all about and who's it for. I wouldn't have come to her talk/book if it hadn't been for SCD. I also have learned so much from studying the SCDiet and from being involved on this listserve. I wish I had just started with enzymes and probiotics with the same kind of resolve I have about SCD but if I had I wouldn't have the puzzle pieces that I do now. said: " Many people will never be healed, many people take things away and heal in other ways, SCD is not the alpha and the omega of life " and " Also please remember that BTVC is not the Bible and Elaine is not God, although both are wonderful and Elaine was undoubtedly full of useful information and intellegence she is still human, meaning, she was not perfect. " I appreciate this kind of support. I don't want to wander around aimlessly on here with people who need to concentrate on their own healing and dealing with illness. I feel so much more healthy than a lot of people on here. I feel humbled by this. But also concerned. My son and I look healthy and we have lots of energy. We have very,very mild sensory stuff and who knows, maybe that's okay. I sure as heck wouldn't want to be less sensitive. So where do we fit in? Me with my IBS (that, by the way, feels so much better today after starting fresh raw juice and no nuts!). And my son, with his chronic constipation, low weight percentage, now diarrhea/undigested food in bms. It's confusing. And I felt that the support I get here is saying " do SCD, or be sick. " And for some many of us on here, this very well may be true. Truth be told, I'm scared and I'm looking for help. I'm scared to go to the docs because it's hard to find someone who has the same knowledge that I do now, someone to listen, to be supportive and to be partners with me in finding the answer. I'm scared to be assertive because I tend toward the shy side and have been raised not to rock the boat. I was also raised in a medical household and was " taught " that the docs know more than I do. BUt this path has been amazing and the puzzle pieces are falling into place. I learned recently that overactive let down can be the instigator of gut issues for children. I had that. OLD can also be a cause for slow to eat solids, just like my kid. There can be a tentative diagnosis of GERD, like with my kid. All of it fits...but what to do. Now, I'm actually hoping that it IS a gut issue and nothing else. BEcause with enzymes and this diet, we can resolve this issue pretty quickly, I think. And I know I need milk back in my life but how do I resolve that with SCD? Yes, eat yogurt, and I do. But I have seen my child go from being what looks like a little deficient to having rickets because he doesn't get enough Vit D and that scares me. It's like I've taken a healthy child with a gut problem and made him into an unhealthy child with a gut issue. I'm not into the supps. I think it's on this path through and with SCd that I'm learning what we are about and learning to trust my intuition. Ahhh.... So, where to go from here? I'm hoping the tests will show something. AFter researching celiacs and listening to celiacs talk on here, I'm pretty darn skeptical of that diagnosis for us. We just aren't that sick. Could it be silent? Yes, maybe. I guess and adding wheat in will be the last thing we do. I'll never go back to eating as much wheat/gluten as I did before. In the meantime, I try to stay the course with the faith that I will continue to learn from other amazing people like Elaine and in the end find something that helps all of us. And, as for how your post, you articulated something that I've been trying to articulate here but it's come off sounding threatening to the SCD philosophy. I haven't meant to do that. If my probing and questioning is uncomfortable for a lot of you on this list, I will curb it and/or leave. I just need to know who's drawn to this diet and why? It's clear to me why people with ASD, CD, IBD would need to be on here, but I'm not sure why I am. That's the niggling question that keeps me researching the why's, what if's and what about other therapies/remedies might fit for me. BUt of course, I have this starting point of SCD and it's hard to ignore that when looking at other courses of treatment. If someone recommends physillum seed for constipation, for example, I here my SCD knowledge telling me that that's hard on the gut, especially a damaged one. THat's enough for now. Gwen Luca -3 SCD 2 m for digestive issues " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Gwen, I'm glad I could help you in some way. I think we are all just here fighting to survive and live the best life possible. It is a constant journey, I hope you find your way. > >Reply-To: pecanbread >To: pecanbread >Subject: SCD, starting point for healing re: 's response >to GERD/REFLUX/btvc reread! >Date: Sun, 23 Apr 2006 15:01:14 -0700 (PDT) > >, > I would like to say that I felt something in breathe a sigh of relief >when I read this. I know my listmates here have come to SCD as a way to >solve/resolve issues that haven't been otherwise with other >diets/therapies. > > I am in the process of sorting out why we are on the diet, if you will. > > The short story: I explained my son's symptoms to Kayla on another >forum that we belong to. She recommended SCD for my son. I never had him >tested except for pancreatic enzyme function. The test was normal. > > I have been wandering around here in SCD world aimlessly, wondering if I >need to be on this diet, wondering if we could do something less drastic as >watch every little thing we put into our bodies in order to heal. And to >heal what? I still don't know what's going on and I have a hard time just >going on blind faith that SCD is the right thing for us. > > I just went to a talk by DeFelice..highly recommend seeing her, by >the way. He talk on enzymes helped me to understand more what SCD is all >about and who's it for. I wouldn't have come to her talk/book if it hadn't >been for SCD. I also have learned so much from studying the SCDiet and >from being involved on this listserve. > I wish I had just started with enzymes and probiotics with the same kind >of resolve I have about SCD but if I had I wouldn't have the puzzle pieces >that I do now. > > said: " Many people will >never be healed, many people take things away and heal in other ways, SCD >is >not the alpha and the omega of life " and > > " Also please remember that BTVC is not the Bible and Elaine is not God, >although both are wonderful and Elaine was undoubtedly full of useful >information and intellegence she is still human, meaning, she was not >perfect. " > >I appreciate this kind of support. I don't want to wander around aimlessly >on here with people who need to concentrate on their own healing and >dealing with illness. I feel so much more healthy than a lot of people on >here. I feel humbled by this. But also concerned. My son and I look >healthy and we have lots of energy. We have very,very mild sensory stuff >and who knows, maybe that's okay. I sure as heck wouldn't want to be less >sensitive. So where do we fit in? Me with my IBS (that, by the way, feels >so much better today after starting fresh raw juice and no nuts!). And my >son, with his chronic constipation, low weight percentage, now >diarrhea/undigested food in bms. It's confusing. And I felt that the >support I get here is saying " do SCD, or be sick. " And for some many of us >on here, this very well may be true. > > Truth be told, I'm scared and I'm looking for help. I'm scared to go to >the docs because it's hard to find someone who has the same knowledge that >I do now, someone to listen, to be supportive and to be partners with me in >finding the answer. I'm scared to be assertive because I tend toward the >shy side and have been raised not to rock the boat. I was also raised in a >medical household and was " taught " that the docs know more than I do. > > BUt this path has been amazing and the puzzle pieces are falling into >place. I learned recently that overactive let down can be the instigator of >gut issues for children. I had that. OLD can also be a cause for slow to >eat solids, just like my kid. There can be a tentative diagnosis of GERD, >like with my kid. All of it fits...but what to do. Now, I'm actually >hoping that it IS a gut issue and nothing else. BEcause with enzymes and >this diet, we can resolve this issue pretty quickly, I think. And I know I >need milk back in my life but how do I resolve that with SCD? Yes, eat >yogurt, and I do. But I have seen my child go from being what looks like a >little deficient to having rickets because he doesn't get enough Vit D and >that scares me. It's like I've taken a healthy child with a gut problem >and made him into an unhealthy child with a gut issue. I'm not into the >supps. I think it's on this path through and with SCd that I'm learning >what we are about and > learning to trust my intuition. > > Ahhh.... > > So, where to go from here? I'm hoping the tests will show something. >AFter researching celiacs and listening to celiacs talk on here, I'm pretty >darn skeptical of that diagnosis for us. We just aren't that sick. Could >it be silent? Yes, maybe. I guess and adding wheat in will be the last >thing we do. I'll never go back to eating as much wheat/gluten as I did >before. In the meantime, I try to stay the course with the faith that I >will continue to learn from other amazing people like Elaine and in the end >find something that helps all of us. > > And, as for how your post, you articulated something that I've been >trying to articulate here but it's come off sounding threatening to the SCD >philosophy. I haven't meant to do that. If my probing and questioning is >uncomfortable for a lot of you on this list, I will curb it and/or leave. >I just need to know who's drawn to this diet and why? It's clear to me why >people with ASD, CD, IBD would need to be on here, but I'm not sure why I >am. That's the niggling question that keeps me researching the why's, what >if's and what about other therapies/remedies might fit for me. BUt of >course, I have this starting point of SCD and it's hard to ignore that when >looking at other courses of treatment. If someone recommends physillum >seed for constipation, for example, I here my SCD knowledge telling me that >that's hard on the gut, especially a damaged one. > > THat's enough for now. > > Gwen > Luca -3 > SCD 2 m for digestive issues > > > " Today a new sun rises for me; everything lives, >everything is animated, everything seems to speak >to me of my passion, everything invites me to cherish it. " > >--Anne de Lenclos-- > >--------------------------------- >New Yahoo! Messenger with Voice. Call regular phones from your PC and save >big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Hi Gwen, Have you checked out www.enterolab.com ? I also was not " that sick " . Just given the vague diagnosis of IBS and told by one doc to increase my fiber and another to " just live with it " . I finally convinced my doc to run a celiac blood test on me after showing him my kids' positive ones. It came back totally fine! A year more of stomach issues and heartburn and reflux, etc. I used enterolabs stool test. I was positive on all markers and have a main celiac gene besides a gluten intolerant gene. Going gluten free made a huge difference within days. Now I am looking at SCD for myself and daughter seeing the improvements in my son. So.... I guess what I am saying is don't always trust the blood tests. The enterolab site has a lot more info on it- interesting reading. I wish you the best in whatever path you take. Janet, mom to: Cody- almost 5 yrs old - multiple food allergies - asthma 1 yr but off meds since removing grains & sugar - SCD 1 week tomorrow and doing great so far > > > > > >> > > >AFter researching celiacs and listening to celiacs talk on here, I'm pretty > >darn skeptical of that diagnosis for us. We just aren't that sick. Could > >it be silent? Yes, maybe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Hey Gwen, I recognize your frustration... Gut and Psychology Syndrome by Dr. -McBride ... ISBN # 0-9548520-0-1 Also www.sensorylearning.com will probably help Agape, Gwen Pollara wrote: , I would like to say that I felt something in breathe a sigh of relief when I read this. I know my listmates here have come to SCD as a way to solve/resolve issues that haven't been otherwise with other diets/therapies. I am in the process of sorting out why we are on the diet, if you will. The short story: I explained my son's symptoms to Kayla on another forum that we belong to. She recommended SCD for my son. I never had him tested except for pancreatic enzyme function. The test was normal. I have been wandering around here in SCD world aimlessly, wondering if I need to be on this diet, wondering if we could do something less drastic as watch every little thing we put into our bodies in order to heal. And to heal what? I still don't know what's going on and I have a hard time just going on blind faith that SCD is the right thing for us. I just went to a talk by DeFelice..highly recommend seeing her, by the way. He talk on enzymes helped me to understand more what SCD is all about and who's it for. I wouldn't have come to her talk/book if it hadn't been for SCD. I also have learned so much from studying the SCDiet and from being involved on this listserve. I wish I had just started with enzymes and probiotics with the same kind of resolve I have about SCD but if I had I wouldn't have the puzzle pieces that I do now. said: " Many people will never be healed, many people take things away and heal in other ways, SCD is not the alpha and the omega of life " and " Also please remember that BTVC is not the Bible and Elaine is not God, although both are wonderful and Elaine was undoubtedly full of useful information and intellegence she is still human, meaning, she was not perfect. " I appreciate this kind of support. I don't want to wander around aimlessly on here with people who need to concentrate on their own healing and dealing with illness. I feel so much more healthy than a lot of people on here. I feel humbled by this. But also concerned. My son and I look healthy and we have lots of energy. We have very,very mild sensory stuff and who knows, maybe that's okay. I sure as heck wouldn't want to be less sensitive. So where do we fit in? Me with my IBS (that, by the way, feels so much better today after starting fresh raw juice and no nuts!). And my son, with his chronic constipation, low weight percentage, now diarrhea/undigested food in bms. It's confusing. And I felt that the support I get here is saying " do SCD, or be sick. " And for some many of us on here, this very well may be true. Truth be told, I'm scared and I'm looking for help. I'm scared to go to the docs because it's hard to find someone who has the same knowledge that I do now, someone to listen, to be supportive and to be partners with me in finding the answer. I'm scared to be assertive because I tend toward the shy side and have been raised not to rock the boat. I was also raised in a medical household and was " taught " that the docs know more than I do. BUt this path has been amazing and the puzzle pieces are falling into place. I learned recently that overactive let down can be the instigator of gut issues for children. I had that. OLD can also be a cause for slow to eat solids, just like my kid. There can be a tentative diagnosis of GERD, like with my kid. All of it fits...but what to do. Now, I'm actually hoping that it IS a gut issue and nothing else. BEcause with enzymes and this diet, we can resolve this issue pretty quickly, I think. And I know I need milk back in my life but how do I resolve that with SCD? Yes, eat yogurt, and I do. But I have seen my child go from being what looks like a little deficient to having rickets because he doesn't get enough Vit D and that scares me. It's like I've taken a healthy child with a gut problem and made him into an unhealthy child with a gut issue. I'm not into the supps. I think it's on this path through and with SCd that I'm learning what we are about and learning to trust my intuition. Ahhh.... So, where to go from here? I'm hoping the tests will show something. AFter researching celiacs and listening to celiacs talk on here, I'm pretty darn skeptical of that diagnosis for us. We just aren't that sick. Could it be silent? Yes, maybe. I guess and adding wheat in will be the last thing we do. I'll never go back to eating as much wheat/gluten as I did before. In the meantime, I try to stay the course with the faith that I will continue to learn from other amazing people like Elaine and in the end find something that helps all of us. And, as for how your post, you articulated something that I've been trying to articulate here but it's come off sounding threatening to the SCD philosophy. I haven't meant to do that. If my probing and questioning is uncomfortable for a lot of you on this list, I will curb it and/or leave. I just need to know who's drawn to this diet and why? It's clear to me why people with ASD, CD, IBD would need to be on here, but I'm not sure why I am. That's the niggling question that keeps me researching the why's, what if's and what about other therapies/remedies might fit for me. BUt of course, I have this starting point of SCD and it's hard to ignore that when looking at other courses of treatment. If someone recommends physillum seed for constipation, for example, I here my SCD knowledge telling me that that's hard on the gut, especially a damaged one. THat's enough for now. Gwen Luca -3 SCD 2 m for digestive issues " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Hi , Thanks for the links but not sure how they can help us? I read Gut and Psychology at the same time as BTVC. I still have my questions. As for sensorylearning.com...I've ordered some stuff off of there because I like their selection but my son is not sensory challanged and does not show behavioral issues related to food. A couple of nights ago a friend was visiting for dinner. He is the father of a child has sensory stuff. His child only eats about 5 foods but is bright and a lovely little guy. Our friend commented with envy at how diverse my son's palate is. Truly, compared to most children, he eats a pretty sophisticated diet. He does try new things and is sometimes very eager to do so. No, I don't find reading more about SCD helpful for me when it comes to answering my questions about why my son's bm's look worse than they ever have. I just need a professional who can assimilate all this information that I've researched into some sort of plan of action. I think our family doc might be of great help with steering us in the right direction. She is a friend of the family, pro-extended breastfeeding, and can see our son outside of the office. I would love to know why those two items/sites came up for you when you read my post? Thanks gwen luca-3 scd 2 months for digestive issues davis wrote: Hey Gwen, I recognize your frustration... Gut and Psychology Syndrome by Dr. -McBride ... ISBN # 0-9548520-0-1 Also www.sensorylearning.com will probably help Agape, Gwen Pollara wrote: , I would like to say that I felt something in breathe a sigh of relief when I read this. I know my listmates here have come to SCD as a way to solve/resolve issues that haven't been otherwise with other diets/therapies. I am in the process of sorting out why we are on the diet, if you will. The short story: I explained my son's symptoms to Kayla on another forum that we belong to. She recommended SCD for my son. I never had him tested except for pancreatic enzyme function. The test was normal. I have been wandering around here in SCD world aimlessly, wondering if I need to be on this diet, wondering if we could do something less drastic as watch every little thing we put into our bodies in order to heal. And to heal what? I still don't know what's going on and I have a hard time just going on blind faith that SCD is the right thing for us. I just went to a talk by DeFelice..highly recommend seeing her, by the way. He talk on enzymes helped me to understand more what SCD is all about and who's it for. I wouldn't have come to her talk/book if it hadn't been for SCD. I also have learned so much from studying the SCDiet and from being involved on this listserve. I wish I had just started with enzymes and probiotics with the same kind of resolve I have about SCD but if I had I wouldn't have the puzzle pieces that I do now. said: " Many people will never be healed, many people take things away and heal in other ways, SCD is not the alpha and the omega of life " and " Also please remember that BTVC is not the Bible and Elaine is not God, although both are wonderful and Elaine was undoubtedly full of useful information and intellegence she is still human, meaning, she was not perfect. " I appreciate this kind of support. I don't want to wander around aimlessly on here with people who need to concentrate on their own healing and dealing with illness. I feel so much more healthy than a lot of people on here. I feel humbled by this. But also concerned. My son and I look healthy and we have lots of energy. We have very,very mild sensory stuff and who knows, maybe that's okay. I sure as heck wouldn't want to be less sensitive. So where do we fit in? Me with my IBS (that, by the way, feels so much better today after starting fresh raw juice and no nuts!). And my son, with his chronic constipation, low weight percentage, now diarrhea/undigested food in bms. It's confusing. And I felt that the support I get here is saying " do SCD, or be sick. " And for some many of us on here, this very well may be true. Truth be told, I'm scared and I'm looking for help. I'm scared to go to the docs because it's hard to find someone who has the same knowledge that I do now, someone to listen, to be supportive and to be partners with me in finding the answer. I'm scared to be assertive because I tend toward the shy side and have been raised not to rock the boat. I was also raised in a medical household and was " taught " that the docs know more than I do. BUt this path has been amazing and the puzzle pieces are falling into place. I learned recently that overactive let down can be the instigator of gut issues for children. I had that. OLD can also be a cause for slow to eat solids, just like my kid. There can be a tentative diagnosis of GERD, like with my kid. All of it fits...but what to do. Now, I'm actually hoping that it IS a gut issue and nothing else. BEcause with enzymes and this diet, we can resolve this issue pretty quickly, I think. And I know I need milk back in my life but how do I resolve that with SCD? Yes, eat yogurt, and I do. But I have seen my child go from being what looks like a little deficient to having rickets because he doesn't get enough Vit D and that scares me. It's like I've taken a healthy child with a gut problem and made him into an unhealthy child with a gut issue. I'm not into the supps. I think it's on this path through and with SCd that I'm learning what we are about and learning to trust my intuition. Ahhh.... So, where to go from here? I'm hoping the tests will show something. AFter researching celiacs and listening to celiacs talk on here, I'm pretty darn skeptical of that diagnosis for us. We just aren't that sick. Could it be silent? Yes, maybe. I guess and adding wheat in will be the last thing we do. I'll never go back to eating as much wheat/gluten as I did before. In the meantime, I try to stay the course with the faith that I will continue to learn from other amazing people like Elaine and in the end find something that helps all of us. And, as for how your post, you articulated something that I've been trying to articulate here but it's come off sounding threatening to the SCD philosophy. I haven't meant to do that. If my probing and questioning is uncomfortable for a lot of you on this list, I will curb it and/or leave. I just need to know who's drawn to this diet and why? It's clear to me why people with ASD, CD, IBD would need to be on here, but I'm not sure why I am. That's the niggling question that keeps me researching the why's, what if's and what about other therapies/remedies might fit for me. BUt of course, I have this starting point of SCD and it's hard to ignore that when looking at other courses of treatment. If someone recommends physillum seed for constipation, for example, I here my SCD knowledge telling me that that's hard on the gut, especially a damaged one. THat's enough for now. Gwen Luca -3 SCD 2 m for digestive issues " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Gwen, Stop comparing yourself to anyone here or elsewhere, and look within. This is where the answer is, not " out there " . You cannot read your way into these answers, you can gather information that way. If your son has vitamin D deficiency, you have to dig down to the causes, to the roots. Why vitamin D? Is anything exclusive? No. Forget diet for just a moment. Think on that for a bit, come back to it. Gwen, I positively do not believe there is such a thing as reading a book and doing a diet, everyone, to some extent, must find their own causes, and work on those, the diet is tailored in such a way. Carlson's Cod Liver Oil has natural vitamin a and d, is sold at Wild Oats, Vitanet, and many other health food places. The much needed omega 3's, no solvents in distillation, and nitrogen packed. It would be one step to work on that, although vitamin d deficiency is so much more complicated than taking a vitamin d supplement. One would have to look at trace minerals in the diet and foods one is eating, consider eating animals that are humanely cared for by being free in the pasture, natural sunlight above, fresh air to breathe, and tasty pasture variety underneathe. And so on. Vitamin D is no more exclusive, seperate from the rest as I am from other people, there just is no such thing. No use trying to bend yourself to someone elses philosophy, search for the causes and let the information work its way to you, instead of grasping for the answer. No either/or's, one day at a time, nothing else is requisite, comparisons do not amount to much. We make them. Summer Gwen Pollara wrote: Hi , Thanks for the links but not sure how they can help us? I read Gut and Psychology at the same time as BTVC. I still have my questions. As for sensorylearning.com...I've ordered some stuff off of there because I like their selection but my son is not sensory challanged and does not show behavioral issues related to food. A couple of nights ago a friend was visiting for dinner. He is the father of a child has sensory stuff. His child only eats about 5 foods but is bright and a lovely little guy. Our friend commented with envy at how diverse my son's palate is. Truly, compared to most children, he eats a pretty sophisticated diet. He does try new things and is sometimes very eager to do so. No, I don't find reading more about SCD helpful for me when it comes to answering my questions about why my son's bm's look worse than they ever have. I just need a professional who can assimilate all this information that I've researched into some sort of plan of action. I think our family doc might be of great help with steering us in the right direction. She is a friend of the family, pro-extended breastfeeding, and can see our son outside of the office. I would love to know why those two items/sites came up for you when you read my post? Thanks gwen luca-3 scd 2 months for digestive issues davis wrote: Hey Gwen, I recognize your frustration... Gut and Psychology Syndrome by Dr. -McBride ... ISBN # 0-9548520-0-1 Also www.sensorylearning.com will probably help Agape, Gwen Pollara wrote: , I would like to say that I felt something in breathe a sigh of relief when I read this. I know my listmates here have come to SCD as a way to solve/resolve issues that haven't been otherwise with other diets/therapies. I am in the process of sorting out why we are on the diet, if you will. The short story: I explained my son's symptoms to Kayla on another forum that we belong to. She recommended SCD for my son. I never had him tested except for pancreatic enzyme function. The test was normal. I have been wandering around here in SCD world aimlessly, wondering if I need to be on this diet, wondering if we could do something less drastic as watch every little thing we put into our bodies in order to heal. And to heal what? I still don't know what's going on and I have a hard time just going on blind faith that SCD is the right thing for us. I just went to a talk by DeFelice..highly recommend seeing her, by the way. He talk on enzymes helped me to understand more what SCD is all about and who's it for. I wouldn't have come to her talk/book if it hadn't been for SCD. I also have learned so much from studying the SCDiet and from being involved on this listserve. I wish I had just started with enzymes and probiotics with the same kind of resolve I have about SCD but if I had I wouldn't have the puzzle pieces that I do now. said: " Many people will never be healed, many people take things away and heal in other ways, SCD is not the alpha and the omega of life " and " Also please remember that BTVC is not the Bible and Elaine is not God, although both are wonderful and Elaine was undoubtedly full of useful information and intellegence she is still human, meaning, she was not perfect. " I appreciate this kind of support. I don't want to wander around aimlessly on here with people who need to concentrate on their own healing and dealing with illness. I feel so much more healthy than a lot of people on here. I feel humbled by this. But also concerned. My son and I look healthy and we have lots of energy. We have very,very mild sensory stuff and who knows, maybe that's okay. I sure as heck wouldn't want to be less sensitive. So where do we fit in? Me with my IBS (that, by the way, feels so much better today after starting fresh raw juice and no nuts!). And my son, with his chronic constipation, low weight percentage, now diarrhea/undigested food in bms. It's confusing. And I felt that the support I get here is saying " do SCD, or be sick. " And for some many of us on here, this very well may be true. Truth be told, I'm scared and I'm looking for help. I'm scared to go to the docs because it's hard to find someone who has the same knowledge that I do now, someone to listen, to be supportive and to be partners with me in finding the answer. I'm scared to be assertive because I tend toward the shy side and have been raised not to rock the boat. I was also raised in a medical household and was " taught " that the docs know more than I do. BUt this path has been amazing and the puzzle pieces are falling into place. I learned recently that overactive let down can be the instigator of gut issues for children. I had that. OLD can also be a cause for slow to eat solids, just like my kid. There can be a tentative diagnosis of GERD, like with my kid. All of it fits...but what to do. Now, I'm actually hoping that it IS a gut issue and nothing else. BEcause with enzymes and this diet, we can resolve this issue pretty quickly, I think. And I know I need milk back in my life but how do I resolve that with SCD? Yes, eat yogurt, and I do. But I have seen my child go from being what looks like a little deficient to having rickets because he doesn't get enough Vit D and that scares me. It's like I've taken a healthy child with a gut problem and made him into an unhealthy child with a gut issue. I'm not into the supps. I think it's on this path through and with SCd that I'm learning what we are about and learning to trust my intuition. Ahhh.... So, where to go from here? I'm hoping the tests will show something. AFter researching celiacs and listening to celiacs talk on here, I'm pretty darn skeptical of that diagnosis for us. We just aren't that sick. Could it be silent? Yes, maybe. I guess and adding wheat in will be the last thing we do. I'll never go back to eating as much wheat/gluten as I did before. In the meantime, I try to stay the course with the faith that I will continue to learn from other amazing people like Elaine and in the end find something that helps all of us. And, as for how your post, you articulated something that I've been trying to articulate here but it's come off sounding threatening to the SCD philosophy. I haven't meant to do that. If my probing and questioning is uncomfortable for a lot of you on this list, I will curb it and/or leave. I just need to know who's drawn to this diet and why? It's clear to me why people with ASD, CD, IBD would need to be on here, but I'm not sure why I am. That's the niggling question that keeps me researching the why's, what if's and what about other therapies/remedies might fit for me. BUt of course, I have this starting point of SCD and it's hard to ignore that when looking at other courses of treatment. If someone recommends physillum seed for constipation, for example, I here my SCD knowledge telling me that that's hard on the gut, especially a damaged one. THat's enough for now. Gwen Luca -3 SCD 2 m for digestive issues " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Hey Gwen, www.sensorylearning.com is not a place from which things are ordered... it's an informational website describing a very effective combination sensory treatment to balance auditory, vestbular, and visual processing difficulties, ie- auditory integration and syntonic optometry lights with concurrent, gentle, vestibular input. I guess it was who'd mentioned sensory concerns. www.magneticosleep.com 20 gauss matress pad system... no $$$ benefit for me... but it detoxes, chelates, reduces stimming, curbs immune problems... look into it. Agape, Gwen Pollara wrote: Hi , Thanks for the links but not sure how they can help us? I read Gut and Psychology at the same time as BTVC. I still have my questions. As for sensorylearning.com...I've ordered some stuff off of there because I like their selection but my son is not sensory challanged and does not show behavioral issues related to food. A couple of nights ago a friend was visiting for dinner. He is the father of a child has sensory stuff. His child only eats about 5 foods but is bright and a lovely little guy. Our friend commented with envy at how diverse my son's palate is. Truly, compared to most children, he eats a pretty sophisticated diet. He does try new things and is sometimes very eager to do so. No, I don't find reading more about SCD helpful for me when it comes to answering my questions about why my son's bm's look worse than they ever have. I just need a professional who can assimilate all this information that I've researched into some sort of plan of action. I think our family doc might be of great help with steering us in the right direction. She is a friend of the family, pro-extended breastfeeding, and can see our son outside of the office. I would love to know why those two items/sites came up for you when you read my post? Thanks gwen luca-3 scd 2 months for digestive issues davis wrote: Hey Gwen, I recognize your frustration... Gut and Psychology Syndrome by Dr. -McBride ... ISBN # 0-9548520-0-1 Also www.sensorylearning.com will probably help Agape, Gwen Pollara wrote: , I would like to say that I felt something in breathe a sigh of relief when I read this. I know my listmates here have come to SCD as a way to solve/resolve issues that haven't been otherwise with other diets/therapies. I am in the process of sorting out why we are on the diet, if you will. The short story: I explained my son's symptoms to Kayla on another forum that we belong to. She recommended SCD for my son. I never had him tested except for pancreatic enzyme function. The test was normal. I have been wandering around here in SCD world aimlessly, wondering if I need to be on this diet, wondering if we could do something less drastic as watch every little thing we put into our bodies in order to heal. And to heal what? I still don't know what's going on and I have a hard time just going on blind faith that SCD is the right thing for us. I just went to a talk by DeFelice..highly recommend seeing her, by the way. He talk on enzymes helped me to understand more what SCD is all about and who's it for. I wouldn't have come to her talk/book if it hadn't been for SCD. I also have learned so much from studying the SCDiet and from being involved on this listserve. I wish I had just started with enzymes and probiotics with the same kind of resolve I have about SCD but if I had I wouldn't have the puzzle pieces that I do now. said: " Many people will never be healed, many people take things away and heal in other ways, SCD is not the alpha and the omega of life " and " Also please remember that BTVC is not the Bible and Elaine is not God, although both are wonderful and Elaine was undoubtedly full of useful information and intellegence she is still human, meaning, she was not perfect. " I appreciate this kind of support. I don't want to wander around aimlessly on here with people who need to concentrate on their own healing and dealing with illness. I feel so much more healthy than a lot of people on here. I feel humbled by this. But also concerned. My son and I look healthy and we have lots of energy. We have very,very mild sensory stuff and who knows, maybe that's okay. I sure as heck wouldn't want to be less sensitive. So where do we fit in? Me with my IBS (that, by the way, feels so much better today after starting fresh raw juice and no nuts!). And my son, with his chronic constipation, low weight percentage, now diarrhea/undigested food in bms. It's confusing. And I felt that the support I get here is saying " do SCD, or be sick. " And for some many of us on here, this very well may be true. Truth be told, I'm scared and I'm looking for help. I'm scared to go to the docs because it's hard to find someone who has the same knowledge that I do now, someone to listen, to be supportive and to be partners with me in finding the answer. I'm scared to be assertive because I tend toward the shy side and have been raised not to rock the boat. I was also raised in a medical household and was " taught " that the docs know more than I do. BUt this path has been amazing and the puzzle pieces are falling into place. I learned recently that overactive let down can be the instigator of gut issues for children. I had that. OLD can also be a cause for slow to eat solids, just like my kid. There can be a tentative diagnosis of GERD, like with my kid. All of it fits...but what to do. Now, I'm actually hoping that it IS a gut issue and nothing else. BEcause with enzymes and this diet, we can resolve this issue pretty quickly, I think. And I know I need milk back in my life but how do I resolve that with SCD? Yes, eat yogurt, and I do. But I have seen my child go from being what looks like a little deficient to having rickets because he doesn't get enough Vit D and that scares me. It's like I've taken a healthy child with a gut problem and made him into an unhealthy child with a gut issue. I'm not into the supps. I think it's on this path through and with SCd that I'm learning what we are about and learning to trust my intuition. Ahhh.... So, where to go from here? I'm hoping the tests will show something. AFter researching celiacs and listening to celiacs talk on here, I'm pretty darn skeptical of that diagnosis for us. We just aren't that sick. Could it be silent? Yes, maybe. I guess and adding wheat in will be the last thing we do. I'll never go back to eating as much wheat/gluten as I did before. In the meantime, I try to stay the course with the faith that I will continue to learn from other amazing people like Elaine and in the end find something that helps all of us. And, as for how your post, you articulated something that I've been trying to articulate here but it's come off sounding threatening to the SCD philosophy. I haven't meant to do that. If my probing and questioning is uncomfortable for a lot of you on this list, I will curb it and/or leave. I just need to know who's drawn to this diet and why? It's clear to me why people with ASD, CD, IBD would need to be on here, but I'm not sure why I am. That's the niggling question that keeps me researching the why's, what if's and what about other therapies/remedies might fit for me. BUt of course, I have this starting point of SCD and it's hard to ignore that when looking at other courses of treatment. If someone recommends physillum seed for constipation, for example, I here my SCD knowledge telling me that that's hard on the gut, especially a damaged one. THat's enough for now. Gwen Luca -3 SCD 2 m for digestive issues " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Thanks . Yes, I think it might have been laura. We did check out Just Take a Bite. It was helpful for me to go through the check list of sensory stuff. Either we are catching stuff really, really early, or we don't have sensory issues. The book is helpful though and I think compliments how to implement SCD with children who do not want to eat. I'm curious about this magnetico mattress idea. It's big bucks and we are in the market for a new organic mattress as well. It's hard to know if the magnetico bed would help....did you notice a big difference right away? Cheers, gwen davis wrote: Hey Gwen, www.sensorylearning.com is not a place from which things are ordered... it's an informational website describing a very effective combination sensory treatment to balance auditory, vestbular, and visual processing difficulties, ie- auditory integration and syntonic optometry lights with concurrent, gentle, vestibular input. I guess it was who'd mentioned sensory concerns. www.magneticosleep.com 20 gauss matress pad system... no $$$ benefit for me... but it detoxes, chelates, reduces stimming, curbs immune problems... look into it. Agape, " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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