Getting my child started on supplementation

[Guest guest]

Hi ,

I recently been reading all of the post on apraxic children taking vitamin

supplements and seeing wonderful results. I was trying to take notes and

figure out what I should give my daughter age 7, weighing 40 lbs. She was

dx with apraxia of speech and low muscle tone when she was 3. With the

correct SLP and PT she has come a very long way and I am super proud of her.

I only give her a multi vitamin in the day but I really would like to start

giving her supplements to see if it makes a difference.

Would you be so kind as to give me some information on what vitamins, and

dosage I should start her off with. Like I said I was trying to piece

together all the other post and figure it out myself but I seemed to have

gotten overwhelmed with all the information.

Thank you so much for your time and knowledge.

Liz in NH

-- [ ] Re: Our progress with vitamin E! -

CLAUDIA!!!!

> > Wow, that is great news! Hopefully if you continue on this

road,

> > sign language will only be a short term thing. ph still

> > occasionally signs, but not because we don't understand him (he

> used

> > to sign words I couldn't understand, which was great for

> > communication - just 2-3 months ago)...but now sign is for

emphasis

> > if we are not paying attention to his request. After

> > screaming " more " (I was in the middle of a conversation) - he

> jumped

> > up in my lap, put his hands on my cheeks to turn my face to him,

> and

> > then screamed " more watamelon!!!!! " ...frantically signing more.

It

> > was actually very funny. I got his point.

> >

> > As excited as I was after the first 1-2 weeks of vitamin

E...still

> > wondering if it was for real, now nearly 2 months into it I

can't

> > believe how far we have come. We are still seeing things that

amaze

> > us. For example, when ph used to run, his right arm would

pull

> > back and contort behind his body in an odd dystonic-looking

> posture.

> > Never would he bring his right arm in front of his body. (A bad

> > thing if her would fall - because there was no reflexive arms to

> > break the fall - and thus a face plant...which of course

wouldn't

> > hurt since he wasn't feeling pain - but the bloody mouth/nose

was

> > always very painful for ME. Today he was running down the hall

and

> > we noticed that both arms were in front of him, moving in a

normal

> > flow for a running child. This may not sound like a big deal,

but

> > neurologically something has drastically changed in my son. It

is

> > truly amazing to watch this all unfold, and then to start to

hear

> > other stories that sound alot like ours in the beginning. -

> >

> > > I apologize if this ends up being posted twice, I typed it out

> and

> > > then it disappeared, so I am retyping.

> > >

> > > My son Isaac is 24 months w/mild oral apraxia, suspected

several

> > > verbal apraxis, mild hypotonia, moderate SID, and our newest

> > > label...asthma (figured this one out on Saturday night when we

> > rushed

> > > him to the ER and ended up having to stay the night in the

> > pediatric

> > > ward until his breathing was under control).

> > >

> > > After reading 's post, I have been giving him one 400

I.U.

> > > softgel of natural Vit. E with gamma. After just one week, we

> > have

> > > seen so much progress! I really believe that is on to

> > > something here. Within the last week, he has learned to say

his

> > name

> > > ( " I-deah " is how he says it, we call him " Izey " ), he

previously

> > > counted to three and now counts to ten. Although his words

are

> > still

> > > very incorrect, he has learned to use the sounds that he knows

> how

> > to

> > > say and combine them to sound like the words he wants to say

> (with

> > > the exception of the number six, which he says by simply

choking

> > two

> > > times). Every time he gets to ten, he claps for himself and

> > > screams, " yea! " . Another big step...his sign language is

vastly

> > > improving. I see him look at his hands and think about what

he

> > wants

> > > to say before signing. We will be focusing on learning more

> signs

> > > and teaching him more signs this week because he is clearly

> > ready.

> > > Also - big deal here - this week he has started to combine

words

> > with

> > > his sign language. Instead of simply signing " all done " after

he

> > is

> > > done eating, he signs it and says the words, " ahh-duh " . There

> are

> > > several other examples of this. Another thing...he has

started

> to

> > > learn letters. We bought him a new alphabet DVD this week,

and

> > > suddenly he is saying about half the letters. Again, he says

> them

> > in

> > > his own way, but we can tell what he means. For example, " C "

> > > is " seh " and " W " is " ebu-du " .

> > >

> > > We are so happy! Thank you so much to for discovering

> and

> > > sharing this and to for building this forum for us to

share

> > our

> > > experiences with eachother.

> > >

> > > Robin

> > >

> > > Also...

> > >

> > > Funny story - at the hospital this weekend, Isaac had to have

> lots

> > of

> > > treatments and medicines that he hated, most administered by a

> > cranky

> > > nurse. When he was finally disconnected from everything and

was

> > able

> > > to run around the room, the first thing he did was follow the

> > nurse

> > > to the door. When she turned around to speak to me from the

> > doorway,

> > > Isaac slammed the door and yelled, " Ahh-Duhh " for all done.

He

> > > started laughing and I couldn't help but praise him for

> speaking.

> > I

> > > am sure the nurse thought we were very rude...but I know that

the

> > > parents here can appreciate the joy in the moments like

these.

> > >

> >

>