Re: Re:ENTERO LABS/ SCD, starting point for healing re: 's response to GERD/REFLUX/btvc reread!

[Guest guest]

Thanks for this Antoinette.

I had wondered about his findings and something told me that the lab tests

would say that we were gluten intolerant. I'm glad that I waited. As I do more

research and reading into what celiac and gluten intolerance is, I know that the

only way to find out if it is truly celiac is to the darn biopsy!

I'm also glad that I started with the knowledge behind SCD because it helps

immensely when trying to sort out the other info I find. I plan to use Great

Smokies, now Genova, for our initial testing but don't know where we will go

from there. I really like to rule out Celiac but am ambivalent about the test

for my son. Perhaps my husband and I could get the biopsies and then if we have

it, have son testing for the genetic predisposition via blood sample. The Doc

I'm reading now, really warns against trying a gluten free diet as a way to see

if we have celiac. i can see his reasoning. We might just be gluten intolerant

and be able to heal on SCD and with enzymes but if we have Celiac we will be on

the diet forever and enzymes will only help with other issues like lactose

inolerance not celiac.

Cheers,

gwen

" Today a new sun rises for me; everything lives,

everything is animated, everything seems to speak

to me of my passion, everything invites me to cherish it. "

--Anne de Lenclos--

---------------------------------

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[Guest guest]

Gwen,

A biopsy often does not show celiac.

If you tolerate enzymes, whether celiac or not, enzymes help with more than

just lactose. They help to break up yeast cells, they help break down garbage in

the blood stream and vascular walls, they give an overworking pancreas a break,

and it is often overworked when there are allergies and sensitivities. Enzymes

help facilitate healing of the mucosal lining, as well as helping with lactose

intolerance.

Our progress in healing has been equal amounts of SCD and Enzymes...its not

either/or because of celiac or anything else. If they are helpful and you need

them, then take them. People healing on SCD is progressive. I wouldn't worry

about whether you have to stay on this diet or not forever, it's simply healthy

diet no matter what. It helps reduce the bioload through food, easing the

function of the liver, and aiding the bodies own natural detoxification of

metals and other garbage. In my opinion, the positive effects of this diet can

be undone by consumming too many nut products, especially unsoaked nut products,

and it is best to limit those. Most of the footwork you have to do on your own,

you'll find the nutritional advice of physicians and others become less

meaningful as you start with a proper elimination (intro diet) and keep good

notes in a food and symptom journal. No one can tell you what reactions and

signs you will see regarding allergies and intolerances,

this legwork will be of your own observation and study, and this will give you

the answers you are looking for, is SCD appropriate, is there a problem with

gluten, is there a problem with phenols, glutamines, etc. and etc. We use

Houston's Enzymes, and they are indispensable for our healing, they double the

progress for us. You are committed to the journey of discovery, exploration and

healing, do not worry yourself with diagnosis that may/may not be accurate, and

causes an additional patch of injured mucosal lining. You can get the answers

another way. The only reason I can think your doctor would not want you trying a

diet to see, is, you may not be paying for a test. Way back when, we paid for

all the tests, and they showed nothing, and we continued to get sicker. If I had

only known then about this diet, and food elimination and signs (besides taking

out the biggies like GF/CF/SF), I could have arrested damage before it became so

much more severe! All in all, we

started the diet much later than many coming here. I have since learned to be

my own childs detective.

Good luck!

Summer

I'm also glad that I started with the knowledge behind SCD because it helps

immensely when trying to sort out the other info I find. I plan to use Great

Smokies, now Genova, for our initial testing but don't know where we will go

from there. I really like to rule out Celiac but am ambivalent about the test

for my son. Perhaps my husband and I could get the biopsies and then if we have

it, have son testing for the genetic predisposition via blood sample. The Doc

I'm reading now, really warns against trying a gluten free diet as a way to see

if we have celiac. i can see his reasoning. We might just be gluten intolerant

and be able to heal on SCD and with enzymes but if we have Celiac we will be on

the diet forever and enzymes will only help with other issues like lactose

inolerance not celiac.

Cheers,

gwen

" Today a new sun rises for me; everything lives,

everything is animated, everything seems to speak

to me of my passion, everything invites me to cherish it. "

--Anne de Lenclos--

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Be careful with the enzymes if you think your gut is inflamed, ulcerated or

damaged like that of Celiac. The PROTEASE didn't know the difference between

the damaged lining of my intestines and the meat it was trying to digest!

Found out from Lucy R. from Lucy's kitchen that Elaine was very, very concern

about this one. Many of our ASD kids are not biopsy comfirmed and we may be

adding enzymes that are possibly making the problem worse. I took out protease

and have done so much better, so has KiKI! Call Lucy and learn what Elaine said

about protease, before you blindly use this one.

Yes I agree....the biopsy does not always show celiac because they are looking

" just " for celiac...and not paying attention to other symptoms and signs of

malabsorption that can be caused by many things other than gluten. All foods

have Lectin in them and some lectins are dangerous and destroy the intestinal

lining (such as casein, soy lectins, some beans (that are illegal on SCD), and

all the stuff that Elaine cuts out of the SCDiet!).

These GI specialists only want to confirm the " classical " kinds of damage. Plus

the EGD and biopsy does not reach the Ileum where Elaine and S.V. Haas said most

of the damage lies! To top that off the surface area of the intestines is that

of a tennis court in an adult...a doctor can not even come close to seeing all

of it, and the biopsy is just a pin point!

Simply not a good test! Either is the blood work, and either is ENTRO LABS.

Some day we may have better tests for those who need confirmation they are sick.

Take the stuff out of your diet...heal and one year after symptoms leave add the

illegal back in slowly and see if you get sick again? This is a sure trial that

no one will be able to argue. Remembering that the vicious cycle could start

back up because Elaine says that none of us as HUMANS can digest starch

well...it just sits and ferments in the gut....setting ANYONE up for

consequences, especially if they become immuno -deficient thanks to CANCER,

stress or other forms of sickness...that sets up the body to not be able to

fight the bad guys off...causing the vicious cycle too start. You see it can be

any of us...not just those with gluten sensitive genes...any of us. Please I

urge all of us to read the BTVC book and learn how celiac disease has been

narrowed down to only 5% of the population causing thousands upon thousands to

slipp through the cracks! Being diagnosed with everything but...and even at

that Celiac disease does not " neal " on a gluten free diet...it is just managed.

Read Elaine's " What Ever Happen to the CURE of Celiac Disease? " .

Hope this helps explains things too, Antoinette (2 mo scd/celiac asd)

Re: Re:ENTERO LABS/ SCD, starting point for healing re:

's response to GERD/REFLUX/btvc reread!

Gwen,

A biopsy often does not show celiac.

If you tolerate enzymes, whether celiac or not, enzymes help with more than

just lactose. They help to break up yeast cells, they help break down garbage in

the blood stream and vascular walls, they give an overworking pancreas a break,

and it is often overworked when there are allergies and sensitivities. Enzymes

help facilitate healing of the mucosal lining, as well as helping with lactose

intolerance.

Our progress in healing has been equal amounts of SCD and Enzymes...its not

either/or because of celiac or anything else. If they are helpful and you need

them, then take them. People healing on SCD is progressive. I wouldn't worry

about whether you have to stay on this diet or not forever, it's simply healthy

diet no matter what. It helps reduce the bioload through food, easing the

function of the liver, and aiding the bodies own natural detoxification of

metals and other garbage. In my opinion, the positive effects of this diet can

be undone by consumming too many nut products, especially unsoaked nut products,

and it is best to limit those. Most of the footwork you have to do on your own,

you'll find the nutritional advice of physicians and others become less

meaningful as you start with a proper elimination (intro diet) and keep good

notes in a food and symptom journal. No one can tell you what reactions and

signs you will see regarding allergies and intolerances,

this legwork will be of your own observation and study, and this will give you

the answers you are looking for, is SCD appropriate, is there a problem with

gluten, is there a problem with phenols, glutamines, etc. and etc. We use

Houston's Enzymes, and they are indispensable for our healing, they double the

progress for us. You are committed to the journey of discovery, exploration and

healing, do not worry yourself with diagnosis that may/may not be accurate, and

causes an additional patch of injured mucosal lining. You can get the answers

another way. The only reason I can think your doctor would not want you trying a

diet to see, is, you may not be paying for a test. Way back when, we paid for

all the tests, and they showed nothing, and we continued to get sicker. If I had

only known then about this diet, and food elimination and signs (besides taking

out the biggies like GF/CF/SF), I could have arrested damage before it became so

much more severe! All in all, we

started the diet much later than many coming here. I have since learned to be

my own childs detective.

Good luck!

Summer

I'm also glad that I started with the knowledge behind SCD because it helps

immensely when trying to sort out the other info I find. I plan to use Great

Smokies, now Genova, for our initial testing but don't know where we will go

from there. I really like to rule out Celiac but am ambivalent about the test

for my son. Perhaps my husband and I could get the biopsies and then if we have

it, have son testing for the genetic predisposition via blood sample. The Doc

I'm reading now, really warns against trying a gluten free diet as a way to see

if we have celiac. i can see his reasoning. We might just be gluten intolerant

and be able to heal on SCD and with enzymes but if we have Celiac we will be on

the diet forever and enzymes will only help with other issues like lactose

inolerance not celiac.

Cheers,

gwen

" Today a new sun rises for me; everything lives,

everything is animated, everything seems to speak

to me of my passion, everything invites me to cherish it. "

--Anne de Lenclos--

---------------------------------

How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Guest guest]

You're right, if your intestines are very damaged, the enzymes may cause

inflammation by digesting the dead and dying material. Not all proteases are the

same though.

http://www.enzymestuff.com/discussionmythbusters.htm

From the studies that have been done so far on enzymes and ASD kids, enzymes

have been very helpful. But like anything, are not for everyone. DeFelice

in her book " Enzymes for Autism and Other Neurological Conditions " introduces

the " slow method " to introducing enzymes, which is helpful for checking

reactions. It's the same principle as going slow with yogurt, starting with an

1/8th tsp a day, to check how the body handles it, minimize die off, and so

forth. Enzymes are always in your stomach, one needs supplementation if they are

lower in digestive enzymes, have weak pancreas. Alot of autistics with impaired

immune systems have a weak functioning pancreas, and enzymes help to break down.

Enzymes are always in the body naturally.

Enzymes themselves are no more dangerous than vitamin C, but if you cannot

tolerated the Vitamin C, you shouldn't take it, and if you cannot tolerate

enzymes, one shouldn't take them either...they should be introduced with the

same care as any new food or other supplement. Enzymes are safe if tolerated. A

healthy person produces their own.

Summer

Bunce wrote:

Be careful with the enzymes if you think your gut is inflamed, ulcerated or

damaged like that of Celiac. The PROTEASE didn't know the difference between

the damaged lining of my intestines and the meat it was trying to digest!

Found out from Lucy R. from Lucy's kitchen that Elaine was very, very concern

about this one. Many of our ASD kids are not biopsy comfirmed and we may be

adding enzymes that are possibly making the problem worse. I took out protease

and have done so much better, so has KiKI! Call Lucy and learn what Elaine said

about protease, before you blindly use this one.

Yes I agree....the biopsy does not always show celiac because they are looking

" just " for celiac...and not paying attention to other symptoms and signs of

malabsorption that can be caused by many things other than gluten. All foods

have Lectin in them and some lectins are dangerous and destroy the intestinal

lining (such as casein, soy lectins, some beans (that are illegal on SCD), and

all the stuff that Elaine cuts out of the SCDiet!).

These GI specialists only want to confirm the " classical " kinds of damage. Plus

the EGD and biopsy does not reach the Ileum where Elaine and S.V. Haas said most

of the damage lies! To top that off the surface area of the intestines is that

of a tennis court in an adult...a doctor can not even come close to seeing all

of it, and the biopsy is just a pin point!

Simply not a good test! Either is the blood work, and either is ENTRO LABS.

Some day we may have better tests for those who need confirmation they are sick.

Take the stuff out of your diet...heal and one year after symptoms leave add the

illegal back in slowly and see if you get sick again? This is a sure trial that

no one will be able to argue. Remembering that the vicious cycle could start

back up because Elaine says that none of us as HUMANS can digest starch

well...it just sits and ferments in the gut....setting ANYONE up for

consequences, especially if they become immuno -deficient thanks to CANCER,

stress or other forms of sickness...that sets up the body to not be able to

fight the bad guys off...causing the vicious cycle too start. You see it can be

any of us...not just those with gluten sensitive genes...any of us. Please I

urge all of us to read the BTVC book and learn how celiac disease has been

narrowed down to only 5% of the population causing thousands upon thousands to

slipp through the cracks! Being diagnosed with everything but...and even at

that Celiac disease does not " neal " on a gluten free diet...it is

just managed. Read Elaine's " What Ever Happen to the CURE of Celiac Disease? " .

Hope this helps explains things too, Antoinette (2 mo scd/celiac asd)

Re: Re:ENTERO LABS/ SCD, starting point for healing re:

's response to GERD/REFLUX/btvc reread!

Gwen,

A biopsy often does not show celiac.

If you tolerate enzymes, whether celiac or not, enzymes help with more than

just lactose. They help to break up yeast cells, they help break down garbage in

the blood stream and vascular walls, they give an overworking pancreas a break,

and it is often overworked when there are allergies and sensitivities. Enzymes

help facilitate healing of the mucosal lining, as well as helping with lactose

intolerance.

Our progress in healing has been equal amounts of SCD and Enzymes...its not

either/or because of celiac or anything else. If they are helpful and you need

them, then take them. People healing on SCD is progressive. I wouldn't worry

about whether you have to stay on this diet or not forever, it's simply healthy

diet no matter what. It helps reduce the bioload through food, easing the

function of the liver, and aiding the bodies own natural detoxification of

metals and other garbage. In my opinion, the positive effects of this diet can

be undone by consumming too many nut products, especially unsoaked nut products,

and it is best to limit those. Most of the footwork you have to do on your own,

you'll find the nutritional advice of physicians and others become less

meaningful as you start with a proper elimination (intro diet) and keep good

notes in a food and symptom journal. No one can tell you what reactions and

signs you will see regarding allergies and intolerances,

this legwork will be of your own observation and study, and this will give you

the answers you are looking for, is SCD appropriate, is there a problem with

gluten, is there a problem with phenols, glutamines, etc. and etc. We use

Houston's Enzymes, and they are indispensable for our healing, they double the

progress for us. You are committed to the journey of discovery, exploration and

healing, do not worry yourself with diagnosis that may/may not be accurate, and

causes an additional patch of injured mucosal lining. You can get the answers

another way. The only reason I can think your doctor would not want you trying a

diet to see, is, you may not be paying for a test. Way back when, we paid for

all the tests, and they showed nothing, and we continued to get sicker. If I had

only known then about this diet, and food elimination and signs (besides taking

out the biggies like GF/CF/SF), I could have arrested damage before it became so

much more severe! All in all, we

started the diet much later than many coming here. I have since learned to be

my own childs detective.

Good luck!

Summer

I'm also glad that I started with the knowledge behind SCD because it helps

immensely when trying to sort out the other info I find. I plan to use Great

Smokies, now Genova, for our initial testing but don't know where we will go

from there. I really like to rule out Celiac but am ambivalent about the test

for my son. Perhaps my husband and I could get the biopsies and then if we have

it, have son testing for the genetic predisposition via blood sample. The Doc

I'm reading now, really warns against trying a gluten free diet as a way to see

if we have celiac. i can see his reasoning. We might just be gluten intolerant

and be able to heal on SCD and with enzymes but if we have Celiac we will be on

the diet forever and enzymes will only help with other issues like lactose

inolerance not celiac.

Cheers,

gwen

" Today a new sun rises for me; everything lives,

everything is animated, everything seems to speak

to me of my passion, everything invites me to cherish it. "

--Anne de Lenclos--

---------------------------------

How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Guest guest]

Well now,

My emotions are all over the place on this path. Whew! I start feeling

confident that I'm on the right path, no matter how difficult it is, then, BAM!,

I read something that causes me concern or to question my path forward.

Now then, here's what I know about testing. The great smokies test should

reveal malabsorption and/or bacterial/yeast overgrowth. I think this is

important to know. I think I could do some investigative work on my own without

the tests but I feel that I need a clearer path forward and the tests should

reveal something. We are not super unhealthy. My son is just on the small side

and has chronic constipation. I just don't want to miss something...like all

this could be something other than gut related....though I doubt it. I have the

means to test.

As for biopsy, I have read, too, that the biopsy can miss celiac. I wasn't

all that pleased to find out that I would have to go in for repeat biopsies. No

thanks. I agree, too much damage to an already damaged gut.

" Be careful with the enzymes if you think your gut is inflamed, ulcerated or

damaged like that of Celiac. The PROTEASE didn't know the difference between

the damaged lining of my intestines and the meat it was trying to digest! "

As for enzymes, they are important. THat's what i feel in my gut...(ahem, pun

intended:). The protease is a major problem with people with true Celiac

Sprue/Disease. Those people with a gluten intolerance or non-Celiac gluten

intolerance, the protease can actually help with the breakdown of gluten. Now,

in your case, Antoinette, I guess the protease was a problem after you got rid

of gluten. That's a concern and I'm confused about that. My son did so much

better on the healthy/organic version of SAD with enzymes. He started pooping

everyday, had more energy, etc. AFter we started SCD with enzymes, is when he

started down the road to diarrhea. I'm also confused about this. He also

started showing signs of rickets on the diet. It's like his malabsorption got a

lot worse. Rickets has been resolved and he is sleeping a lot better...when he

eats.

It would be nice to be either confirmed celiac or not. My mother has

fibro-myalgia and won't listen to me about gut damage. If I was diagnosed with

celiac then she might listen and stop treating herself so poorly. But you know

what, we're all on our own path. It's sad that so many people are left

untreated and undiagnosed and that our diets in this nation are horrible. It's

also hard to be on this diet! I'm not so concerned about not eating certain

foods as I am concerned about limitations. Limitations, though, can look like a

whole world opening up when you are really sick. For me, I don't feel I'm

headed down a slippery slope. I've always listened to my body and done fairly

well, when I've heeded it's cautious outcries. It's harder to listen to my son's

body and to help him make his way toward eating a different way.

I will reread the stuff about celiac in Elaine's book. It is interesting to

gather all this information. I wonder how many people on here are confirmed as

Celiac? I guess it's important to me to know if I'm merely non-Celiac gluten

intolerant. I have other plans for my future if that is the case. Antoinetter

is right, I could do the diet for an amount of time then try to put stuff back

in. I know I'll never go back to eating the way I did before.

Antoinette, I think your doc in Co. Springs sounds great. I think I might go

see her. Is it the female doc that you are referring to in your last post?

I'm feeling a little blue tonight because my son hasn't pooped or eaten much

all day. It just bothers me that we are back to this. He gets constipated on

the meat and veggie diet and has diarrhea with the fruit! Darn it! I'm trying

to get us back to an intro but it is so darn hard and I just feel soooooo hungry

on that diet and depleted of nutrients and burnt out on cooking....I'm always in

the darn kitchen. I want to be at the meditation center, I want to be going for

hikes, doing my artwork, reading a piece of fiction, etc. Complaining? Yes. I

know it's only a few months but really....must I garnish a apron 12 hours a day!

I know it will get better:) It already has. Finally my pain in my side is gone.

I've gone no nuts and will start soaking them because maybe that will allow me

to have some. I really think the raw veggie drinks are helping.

Cheers,

gwen

" Today a new sun rises for me; everything lives,

everything is animated, everything seems to speak

to me of my passion, everything invites me to cherish it. "

--Anne de Lenclos--

---------------------------------

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