Re: Strangers and friends not understanding and judging

[Guest guest]

Nannette, you really made me laugh. I have gotten pretty blunt

also. I asked one person if they had ever experienced a 5 yr old

totally out of control. I then informed them that anyone that

thought it was important for him to have ..... you be signing up for

such an experience and it would notbe a short one.

Sandy M.

>

> Hi all.

> I was enjoying all the rants and thought I'd pipe in.

I'm " luckier " than most of you, because my daughter is so severely

challenged by autism (and beyond the age where people act like

there's a chance she'll turn out relatively normal and this is all

in my head), so she doesn't go to church or Sunday School or

anything like that. (We've arranged private Sunday

School/babysitting for her at church in the past, but that's not the

case now.)

>

> But, when people do question me about the diet, I always have a

comeback ready. My current favorite, and proven most effective,

is: " Oh, yeah, I let her cheat on the diet. But only when the

person who gave her the food has offered to babysit her at their

house for the next month, because we've learned that's how long it

takes her very painful constipation to clear up after she's eaten

something illegal. . . "

>

> (and because I have an obnoxious personality, I usually continue)

>

> " . . . and we just can't bear her sobbing and her hitting her

head. And sometimes we get hurt ourselves when we intervene between

her fist and her head, so it's a pretty precarious babysitting job

you're signing up for. Oh, and she's not fully independent on the

toilet yet, so you'll have to accompany her at each visit, day or

night, and assist with wiping, pulling pants up, washing hands. And

there are a LOT of bathroom visits when she's constipated from

cheating, so you'll have to take time off from (work/school/choose

their activity) while you babysit her. So, there you go, those are

the rules of her cheating, but, sure, she can cheat. "

>

> Needless to say, no friends or relatives challenge me (but most

have seen suffer), and I feel sorry for all acquaintances who

won't take a simple " No, thank you " to their " May she have one? "

>

> Another helpful response for when people give you the line

about " grains being from the earth and certainly being meant for

human consumption " or whatever line they have that reflects their

food ideology: " The Specific Carbohydrate Diet is for damaged GI

tracts. Our family's diet is for our unhealthy, inflamed guts that

make us run to the bathroom after every meal or become constipated

for 2 weeks at a time. If you're just talking about how the average

healthy gut person eats, I would probably totally agree with you.

But, that information has no bearing on unhealthy nasty guts. "

>

> And I always make sure I add, " So, this diet isn't the one you

should be on. Only people who are suffering, like my daughter and

I, need to be on it. " It seems that as soon as people realize your

lifestyle choice isn't an indictment of their lifestyle choices,

they ease up and become nice again.

>

> (If you'll notice, I use words like bathroom and constipation. I

find the more bathroom words I use, the less likely anyone wants to

continue talking to me. It's a lovely winning strategy. ;-)

>

> Nannette, SCD 8 months, IBD

> daughter, , SCD 8 months, 14yo, autism

>

>

[Guest guest]

Nannette, you really made me laugh. I have gotten pretty blunt

also. I asked one person if they had ever experienced a 5 yr old

totally out of control. I then informed them that anyone that

thought it was important for him to have ..... you be signing up for

such an experience and it would notbe a short one.

Sandy M.

>

> Hi all.

> I was enjoying all the rants and thought I'd pipe in.

I'm " luckier " than most of you, because my daughter is so severely

challenged by autism (and beyond the age where people act like

there's a chance she'll turn out relatively normal and this is all

in my head), so she doesn't go to church or Sunday School or

anything like that. (We've arranged private Sunday

School/babysitting for her at church in the past, but that's not the

case now.)

>

> But, when people do question me about the diet, I always have a

comeback ready. My current favorite, and proven most effective,

is: " Oh, yeah, I let her cheat on the diet. But only when the

person who gave her the food has offered to babysit her at their

house for the next month, because we've learned that's how long it

takes her very painful constipation to clear up after she's eaten

something illegal. . . "

>

> (and because I have an obnoxious personality, I usually continue)

>

> " . . . and we just can't bear her sobbing and her hitting her

head. And sometimes we get hurt ourselves when we intervene between

her fist and her head, so it's a pretty precarious babysitting job

you're signing up for. Oh, and she's not fully independent on the

toilet yet, so you'll have to accompany her at each visit, day or

night, and assist with wiping, pulling pants up, washing hands. And

there are a LOT of bathroom visits when she's constipated from

cheating, so you'll have to take time off from (work/school/choose

their activity) while you babysit her. So, there you go, those are

the rules of her cheating, but, sure, she can cheat. "

>

> Needless to say, no friends or relatives challenge me (but most

have seen suffer), and I feel sorry for all acquaintances who

won't take a simple " No, thank you " to their " May she have one? "

>

> Another helpful response for when people give you the line

about " grains being from the earth and certainly being meant for

human consumption " or whatever line they have that reflects their

food ideology: " The Specific Carbohydrate Diet is for damaged GI

tracts. Our family's diet is for our unhealthy, inflamed guts that

make us run to the bathroom after every meal or become constipated

for 2 weeks at a time. If you're just talking about how the average

healthy gut person eats, I would probably totally agree with you.

But, that information has no bearing on unhealthy nasty guts. "

>

> And I always make sure I add, " So, this diet isn't the one you

should be on. Only people who are suffering, like my daughter and

I, need to be on it. " It seems that as soon as people realize your

lifestyle choice isn't an indictment of their lifestyle choices,

they ease up and become nice again.

>

> (If you'll notice, I use words like bathroom and constipation. I

find the more bathroom words I use, the less likely anyone wants to

continue talking to me. It's a lovely winning strategy. ;-)

>

> Nannette, SCD 8 months, IBD

> daughter, , SCD 8 months, 14yo, autism

>

>

[Guest guest]

Dear Nannette,

God Bless you....what a mom you have to be, the acceptance in the tone of this

e-mail...gets me off my Pity pot! Our kids and myself are ASD high

functioning.....thanks to Celiac Disease not being recognized for many

years....and the gluten free diet not working......became very sick......all of

us.

Thank God for SCDiet...it has put an end to what I assume to be my early

death....you see many a celiac in my family has slipped through the cracks and

died in their late fifties. Today that has been lifted.

All though my suffering is different than yours...I too am motivated to stay

away from " cheating " and will remember sharing " potty tells " with people who

simply do not get it or respect our choice for " fanatical adherence " and share

about how myself and my children sometimes couldn't make it to the toilet having

nasty diarrhea accidents....that explode in ones pants despite plenty of

" sphincter " control and smell like " death " because on is not digesting the fat

that they are eating!...Crying in pain because of the cramping, making one

literaly feel as if they had been shot in the stomach with a shot gun! AS good

as your constipation tells! Good suggestion!

I may not have severe autism...but suffered from 14 surgeries, multiple

fractures, 4 miscarriages, multiple visits to ER, multiple one month stays at

Psychiatric hospitals, and almost lost the children that God did gave

me...thanks to them not realizing that my mental condition was due to

undiagnosed damaged intestines that did not absorb vital nutrients for strong

bones and a normal " head " ! I was a walking Celiac...and nobody, no doctor even

realized it!

Out of the grace of God....I was lead to research that made me realize why I was

so sick...before I became so disabled I would be " locked up again " loosing

everything I now had, I made the doctors save me!

My teen years where a night mare. For some reason...I got better before

motherhood.....we still do not know why...with the stress of motherhood....my

disease came back full force. You see ASD and Celiac are auto-immune

conditions...and stress made me worse!

When my dear baby KiKI, had failure to thrive/and vanished into herself and my

son was showing all the developmental delays and aspergers traits that his

mother had/has. Thank the lord the doctors listened to me finally...not blowing

me off as " hypochondriac " or " overly worried mother " ...or blaming it on

parenting/care...or even neglect and turning me into the social

workers!......later........confirming me and my children and even my husband as

being Celiac!...you see he too has many many traits of AS...and countless traits

of Celiac Disease.....and it is no doubt that it was because of this that I was

attracted to him! Now we have " double " Celiac/ASD Children!

Thanks for sharing...it helped me to put things in perspective....high

functioning...we are very lucky.....god bless you and we will keep you in our

prayers...you sound so strong...what a wonderful person you may be! Will always

remember to talk about the toilet when they don't get it!

Sincerely, Antoinette (entire family Celiac/asd...and healing with 100%

adherence!)

Strangers and friends not understanding and judging

Hi all.

I was enjoying all the rants and thought I'd pipe in. I'm " luckier " than most

of you, because my daughter is so severely challenged by autism (and beyond the

age where people act like there's a chance she'll turn out relatively normal and

this is all in my head), so she doesn't go to church or Sunday School or

anything like that. (We've arranged private Sunday School/babysitting for her

at church in the past, but that's not the case now.)

But, when people do question me about the diet, I always have a comeback

ready. My current favorite, and proven most effective, is: " Oh, yeah, I let

her cheat on the diet. But only when the person who gave her the food has

offered to babysit her at their house for the next month, because we've learned

that's how long it takes her very painful constipation to clear up after she's

eaten something illegal. . . "

(and because I have an obnoxious personality, I usually continue)

" . . . and we just can't bear her sobbing and her hitting her head. And

sometimes we get hurt ourselves when we intervene between her fist and her head,

so it's a pretty precarious babysitting job you're signing up for. Oh, and

she's not fully independent on the toilet yet, so you'll have to accompany her

at each visit, day or night, and assist with wiping, pulling pants up, washing

hands. And there are a LOT of bathroom visits when she's constipated from

cheating, so you'll have to take time off from (work/school/choose their

activity) while you babysit her. So, there you go, those are the rules of her

cheating, but, sure, she can cheat. "

Needless to say, no friends or relatives challenge me (but most have seen

suffer), and I feel sorry for all acquaintances who won't take a simple

" No, thank you " to their " May she have one? "

Another helpful response for when people give you the line about " grains being

from the earth and certainly being meant for human consumption " or whatever line

they have that reflects their food ideology: " The Specific Carbohydrate Diet

is for damaged GI tracts. Our family's diet is for our unhealthy, inflamed

guts that make us run to the bathroom after every meal or become constipated for

2 weeks at a time. If you're just talking about how the average healthy gut

person eats, I would probably totally agree with you. But, that information has

no bearing on unhealthy nasty guts. "

And I always make sure I add, " So, this diet isn't the one you should be on.

Only people who are suffering, like my daughter and I, need to be on it. " It

seems that as soon as people realize your lifestyle choice isn't an indictment

of their lifestyle choices, they ease up and become nice again.

(If you'll notice, I use words like bathroom and constipation. I find the

more bathroom words I use, the less likely anyone wants to continue talking to

me. It's a lovely winning strategy. ;-)

Nannette, SCD 8 months, IBD

daughter, , SCD 8 months, 14yo, autism

[Guest guest]

You know, I've always thought that the best part about this list is reading all

the educational info, but was I ever wrong...

Clearly it is the pearls of wisdom/poisonous barbs/sarcastic comebacks and other

gems like this one that have me, what were the initials,?:ROFLMAO? (or something

like that...Hee Hee) Thanks for the upper.

Tracey

Mom to Clay, 4 yo, SCD since 8/05 Autism

Strangers and friends not understanding and judging

Hi all.

I was enjoying all the rants and thought I'd pipe in. I'm " luckier " than most

of you, because my daughter is so severely challenged by autism (and beyond the

age where people act like there's a chance she'll turn out relatively normal and

this is all in my head), so she doesn't go to church or Sunday School or

anything like that. (We've arranged private Sunday School/babysitting for her

at church in the past, but that's not the case now.)

But, when people do question me about the diet, I always have a comeback

ready. My current favorite, and proven most effective, is: " Oh, yeah, I let

her cheat on the diet. But only when the person who gave her the food has

offered to babysit her at their house for the next month, because we've learned

that's how long it takes her very painful constipation to clear up after she's

eaten something illegal. . . "

(and because I have an obnoxious personality, I usually continue)

" . . . and we just can't bear her sobbing and her hitting her head. And

sometimes we get hurt ourselves when we intervene between her fist and her head,

so it's a pretty precarious babysitting job you're signing up for. Oh, and

she's not fully independent on the toilet yet, so you'll have to accompany her

at each visit, day or night, and assist with wiping, pulling pants up, washing

hands. And there are a LOT of bathroom visits when she's constipated from

cheating, so you'll have to take time off from (work/school/choose their

activity) while you babysit her. So, there you go, those are the rules of her

cheating, but, sure, she can cheat. "

Needless to say, no friends or relatives challenge me (but most have seen

suffer), and I feel sorry for all acquaintances who won't take a simple

" No, thank you " to their " May she have one? "

Another helpful response for when people give you the line about " grains being

from the earth and certainly being meant for human consumption " or whatever line

they have that reflects their food ideology: " The Specific Carbohydrate Diet

is for damaged GI tracts. Our family's diet is for our unhealthy, inflamed

guts that make us run to the bathroom after every meal or become constipated for

2 weeks at a time. If you're just talking about how the average healthy gut

person eats, I would probably totally agree with you. But, that information has

no bearing on unhealthy nasty guts. "

And I always make sure I add, " So, this diet isn't the one you should be on.

Only people who are suffering, like my daughter and I, need to be on it. " It

seems that as soon as people realize your lifestyle choice isn't an indictment

of their lifestyle choices, they ease up and become nice again.

(If you'll notice, I use words like bathroom and constipation. I find the

more bathroom words I use, the less likely anyone wants to continue talking to

me. It's a lovely winning strategy. ;-)

Nannette, SCD 8 months, IBD

daughter, , SCD 8 months, 14yo, autism