Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Not doing very well. We knew but we didn't know...we knew kiki was ASD...but this was " parent " confirmed. She is now doctor comfirmed as autistic. He can't promise her out come...fo course. He is not God. A little different feeling with this label....feel like I am in shock....strange since I already knew.... Guys I can't take much more. No one understands...no one cares....don't have much money....they poisoned my baby.....they should have to pay. But no...they didn't break the law....they didn't do it on purpose so they remain protected to do this to others....a malignant cancer waiting to spread...ruining the lives of other innocent children. DAN! is so expensive...so many tests to be done.....what is needed, what isn't....whyat is true....what isn't......what SCD will take care of....God truly is the only one who knows. Who do I trust?????? I will pray...I will listen.....hope for ansers. We knew we where " tamming " a monster...but didn't know what it looked like...now we are learning....same monster but with blinders removed for some reason intemidates me more. So scarey to look at! Very intemidating. ****If people with experience strength and hope would give me personal e-mails would highly appreciate it at this time. Will be crying a lot today...I am certain others have felt this pain, or you wouldn't be here. Holding on to the miracles we have experienced in the last two months of SCD....have hope..but don't know what road to go down with all these tests and " treatment " plans. I am the pilot....DAN! is the plane....I have to learn how to fly this thing fast! HELP! Mom that may panic/break down....but won't because I am a mom now...and someone has to fly this darn plane! Husband has to spend much time making money to play for the gas...of the plane! What a world we live in. Sincerely, Antoinette and her Silly yaks with ASD at the Zoo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Antoinette, Breathe. The label is bull#(%^ Your child is the same child the day before the diagnosis as the day after. You said: " No one understands...no one cares...don't have much money...they poisonned my baby...they should have to pay. " Don't we all feel like that! We all care, we all understand. Breathe deep, it will be okay. Don't get stuck on the label. Kiki is still Kiki. No one else. Think this way. Autism is not a monster, this brings up fear. Autism is simply a puzzle. Do not be afraid, it is a puzzle. You said: " Who do I trust? " My answer would be no one but yourself. You have to be your childs own advocate. You go to doctors, you go to pecanbread, and anywhere else for advice, opinions, and information, but you cannot accept anything handed to you with trust, nor the person handing it to you. Be objective, verify, and trust yourself, what you see. Some tests are helpful, others are not, some people are more testable than other people, after all the tests, we walked away with only a little information, same people, same problems. Your DAN doctor should provide you detailed information about all tests, including cost, give his recommendation for the most important ones. You should research. I know, when I need a test done, I don't go for a doctors visit and take what I am told to get. I show up at the doctors with the tests I want run. You can find much valuable information and research at the www.autismresearchinstitute.org You can study the DAN protocols yourself. The protocols do not work and are not apporpriate for everybody, it is for you to decide. For instance, we will not do chelation, and are able, as our bodies get healthier to bring down metals. Things like that. You do not have to buy everything that is given. I keep meeting more and more people with cognitive difficulties after chelation, so I am prejudiced. Anyway, this is my own opinion, and goodness knows I do not have much in the way of money, and I have taken it upon myself to research to get the biggest bang from my bucks, and have done a million times better than when we had insurance that covered everything, and had all the tests, doctors visits and specialists. Amazing, isn't it? Who do you trust? Think about that one. If you have low self confidence (like I had), you need to work on that area first. Email if you would like! Summer kikijabunce wrote: Not doing very well. We knew but we didn't know...we knew kiki was ASD...but this was " parent " confirmed. She is now doctor comfirmed as autistic. He can't promise her out come...fo course. He is not God. A little different feeling with this label....feel like I am in shock....strange since I already knew.... Guys I can't take much more. No one understands...no one cares....don't have much money....they poisoned my baby.....they should have to pay. But no...they didn't break the law....they didn't do it on purpose so they remain protected to do this to others....a malignant cancer waiting to spread...ruining the lives of other innocent children. DAN! is so expensive...so many tests to be done.....what is needed, what isn't....whyat is true....what isn't......what SCD will take care of....God truly is the only one who knows. Who do I trust?????? I will pray...I will listen.....hope for ansers. We knew we where " tamming " a monster...but didn't know what it looked like...now we are learning....same monster but with blinders removed for some reason intemidates me more. So scarey to look at! Very intemidating. --------------------------------- Yahoo! Mail goes everywhere you do. Get it on your phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hang in there! I have been in this path for three years but everything I have done has been worth it. For my two kids, I don't vaccinate them anymore. I saw before my eyes how my son regressed tremendously everytime I took him to get his shots. I believe that autism is caused by a virus and metal toxicity and this has ruined their gut. For my kids, Valtrex and B12 has helped tremendously. You just have to find the things that help improve their symptoms. This is the hard part. I have seen some of my friends who are the biggest warriors fighting autism and see their children improve before my eyes when we have get togethers. Never give up hope. I believe that Faith is our biggest hope. I believe in miracle transformations even if the whole world does not believe. I see my children as a blessing and not a burden. My prayers are with you, Kathrina -Chin > >Reply-To: pecanbread >To: pecanbread >Subject: Need Some Support AGAIN >Date: Thu, 27 Apr 2006 13:17:54 -0000 > >Not doing very well. > >We knew but we didn't know...we knew kiki was ASD...but this >was " parent " confirmed. She is now doctor comfirmed as autistic. He >can't promise her out come...fo course. He is not God. > >A little different feeling with this label....feel like I am in >shock....strange since I already knew.... > >Guys I can't take much more. No one understands...no one >cares....don't have much money....they poisoned my baby.....they >should have to pay. > >But no...they didn't break the law....they didn't do it on purpose so >they remain protected to do this to others....a malignant cancer >waiting to spread...ruining the lives of other innocent children. > >DAN! is so expensive...so many tests to be done.....what is needed, >what isn't....whyat is true....what isn't......what SCD will take care >of....God truly is the only one who knows. > >Who do I trust?????? > >I will pray...I will listen.....hope for ansers. > >We knew we where " tamming " a monster...but didn't know what it looked >like...now we are learning....same monster but with blinders removed >for some reason intemidates me more. So scarey to look at! Very >intemidating. > >****If people with experience strength and hope would give me personal >e-mails would highly appreciate it at this time. > >Will be crying a lot today...I am certain others have felt this pain, >or you wouldn't be here. Holding on to the miracles we have >experienced in the last two months of SCD....have hope..but don't know >what road to go down with all these tests and " treatment " plans. > >I am the pilot....DAN! is the plane....I have to learn how to fly this >thing fast! HELP! Mom that may panic/break down....but won't because >I am a mom now...and someone has to fly this darn plane! Husband has >to spend much time making money to play for the gas...of the plane! > >What a world we live in. > >Sincerely, Antoinette and her Silly yaks with ASD at the Zoo. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Antoinette, First have good, long, exhausting, recuperative, screaming, wailing, cry. THEN, remind yourself of what you already, in your heart, know. . . autism is not the end of the world. There are many really difficult paths through life and yours is to be the one person who can help and guide your family through that life - and, they are uniquely able to help and guide you. We are so fortunate to have access here to so much more support and knowledge than others have had. Your beautiful Kiki is in there, within that diagnosis, and with your, and your family's and friends', love and compassion she will continue to grow and blossom. In time the diagnosis will be just another piece of who she is. My friend had a truly appalling childhood. He entered my life when he was ten. I've seen his diagnoses increase in quantity and severity, his treatment by others and himself degenerate until he was near death and I've seen the incredibly amazing resilience and recuperative powers brought abou t by having people that love and believe in him. Over the past years he too has blossomed. He's a man with some astounding, unexpected talents, a tremendous albeit unique charm, and an uncanny sense about people, all things I certainly didn't foresee in his childhood. In the big picture, Kiki is just like any other kid: a little girl with lots of room to grow and with an unforeseen and amazing future ahead of her. After you've grieved the loss of the child you thought you had, look forward toward the incredible potential future that's out there and know that you and yours are not alone. CD companion to J, 34 yo w/ chronic systemic yeast, leaky gut, autism, Tourette's, OCD, Bi-Polar, MR hugely successful SCD 8/05 Quote Link to comment Share on other sites More sharing options...
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