What to start first - Enzymes or Pentasa?

[Guest guest]

Hi listmates, I need advice on this. Tom has a very inflamed gut (as

measured by high lactoferrin levels in a stool test). From 2 months of

age we have strictly avoided his allergic foods - he is IgE reactive

to all but about 12 foods. We started the SCD diet 2 months ago, along

with more antifungals in our latest round of the yeast battle. But I

don't believe that diet and yeast treatments alone are not going to

heal his severe inflammation. In fact, on SCD he has experienced worse

reflux and his poops have become undigested (which has never been a

problem before). However, they are mostly solid now, and are getting

more digested - I think due to his recent HBOT treatments (we are 13

dives into a 20-dive course).

Now, our DAN has finally prescribed Pentasa, and our nutritionist has

also recommended pancreatic enzymes. Which should we start first? Any

recommendations?

Thanks,

Suzanne

Tom, ASD 3.5

[Guest guest]

Dear Suzanne,

IT looks like you have alot on your plate too. It is difficult to

know what way to go. I know. I still am trying to hang on to

Elaine's truth.....whe did not like protease because she feared that

it would cause an already inflamed injured gut to become more

inflamed and injured.

You see, Protease breaks down protien....how does this enzyme know

the difference between a peace of steak and a peice of intestine if

it is raw inflamed and vulnerable? Our new nutritionis that came

with DAN! evaluation, doubted this...but I nknow for a FACT that

when I took protease out I felt MUCH BETTER! AND THIS WAS NOT IN MY

HEAD EITHER! Any more I don't argue. We all have mortgages we have

to pay! Elaine new alot...she didn't know everything...but she knew

alot. Our DAN! accidently called her Dr. Gottshall...not realizing

that she was not a doctor. This was a sign to me!

I try to remember that many have healed the gut without all this

fancy DAN! protocol. Enzymes, expensive tests and chelation

therapies. I am not saying we will not use it....I don't know what

road to go down yet. In just two month with only SCd...and laready

a profound miracle. Plus we are broke and can't afford the DAN! and

all his tests and tricks up his sleeve. I liked the man I did...I

just don't know who to beleive anymore. No one is trying to

desceive anybody...I am certain he has only good intentions.

I just know that there are many testimonies claming that SCD alone

heals the gut that caused the ASD in the first place. Some kids

with SCd alone have lost their label as ASD. I don't think it was

in their head either....it was all in healing their damaged guts!

Many a DAN! doubt these tesimonies too. So who is right...this is

the question I ask today?

Thought I would share with you all, Antoinette

(2 mo and healing from malabsorption...now with a DAN! confusing us)

>

>

[Guest guest]

Hi Suzanne,

I hear your frustration and confusion. My son does not have ASD but he did

have the similar reaction to SCD; undigested food in stool. I have been

wondering about reflux too for a variety of reasons. We recently started

enzymes again per DeFelice's advice. She has written a book call Enzymes

and Autism. Have you read this or chekced out her site: www.enzymestuff.com? I

highly recommend reading her book and perusing the site before starting enzymes.

Houston are the best brand out there but there are other good brands. She has a

Slow and Low method of introducing enzymes that is very helpful. The protease

comes last and if there is a reaction, as Antoinette is talking about, it easily

enough to remove. She also includes in her method, the place to introduce other

helpful meds/remedies. On her site she talks about SCD and enzymes. I found

all of it helpful. We've been doing SCD for a few months now the second time

around. We've done SCD alone, SCD with

enzymes and a regular American diet with enzymes. I've seen improvement on

and off SCD with enzymes for sure! There's some concern about the body becoming

dependent on enzymes but DeFelice's findings do not support such claims.

Hope this helps. There is so much information to sort through, eh?

warmly,

gwen

luca-3

SCD 2 months for digestive issues

Suzanne wrote:

Hi listmates, I need advice on this. Tom has a very inflamed gut (as

measured by high lactoferrin levels in a stool test). From 2 months of

age we have strictly avoided his allergic foods - he is IgE reactive

to all but about 12 foods. We started the SCD diet 2 months ago, along

with more antifungals in our latest round of the yeast battle. But I

don't believe that diet and yeast treatments alone are not going to

heal his severe inflammation. In fact, on SCD he has experienced worse

reflux and his poops have become undigested (which has never been a

problem before). However, they are mostly solid now, and are getting

more digested - I think due to his recent HBOT treatments (we are 13

dives into a 20-dive course).

Now, our DAN has finally prescribed Pentasa, and our nutritionist has

also recommended pancreatic enzymes. Which should we start first? Any

recommendations?

Thanks,

Suzanne

Tom, ASD 3.5

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com