Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I am just not sure about this. I understand even after removing the SCD foods and the doing the inro and all- we are watching for food intolerances as we intro new foods, but what are we watching for? Diarrhea, constipation, hyperness, what? Is there any dead give-aways? When my son was on milk, wheat, etc. he would get spaced out and sometimes before SCD without no-phenol I would notice some red cheeks (not every time) with apples or something. Is that all I look for? What else? This is very confusing. Some days seem to just be better than others and I find myslef trying to attach a food to any off behavior, etc. - when maybe that's not it!?! Any advice appreciated, Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 i remember those early days well. . . sort of confusing guesswork. i hope you are keeping a good log of new foods and behaviors. i would question any unusual behaviors and stool appearence & frequency, physical discomfort and physical changes. i always would recommend a new food be introduced with a very small portion until you know if it is a food not tolerated. this isnt alway easy especially in the beginning when there arent too many foods to pick from . as you get further along in the diet it is safer to go slow with small portions. donna > > I am just not sure about this. I understand even after removing the > SCD foods and the doing the inro and all- we are watching for food > intolerances as we intro new foods, but what are we watching for? > > Diarrhea, constipation, hyperness, what? Is there any dead give- aways? > When my son was on milk, wheat, etc. he would get spaced out and > sometimes before SCD without no-phenol I would notice some red cheeks > (not every time) with apples or something. Is that all I look for? > What else? This is very confusing. > > Some days seem to just be better than others and I find myslef trying > to attach a food to any off behavior, etc. - when maybe that's not > it!?! > > Any advice appreciated, > Laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Dear Laurie, My gut became so damaged I became " intolerant " or sensitive to just about everything. No joke. This is why I didn't have those expensive tests done. It was obviously gluten and dairy...but food in general was becoming a problem. What was I to do...cut out food. I am not joking here. My Celiac became this bad! Remember that Elaine told us that unless it causes severe reaction or anaphylaxis to go a head and eat a well balanced diet, without so much fear. Don't worry so much, because as we heal our guts the SCD way with " fanatical adherence " to her ways and not others, that we will heal out of most of these sensitivities. Thank the lord! Because we are now on two months plus and going strong. We just where able to put in the nut flours! We made waffles and they where soooooo good! We are also able to eat un cooked and raw fruit with no distressing symptoms. Just in two months this much healing! Backed off the goat yogurt...but will add this back too, in a while. I think Elaine was trying to tell us that nothing needs to be removed permanently (as long as it doesn't cause deadly reaction), and it is SCD safe. These where our symptoms of sensitivity/or not being ready to eat a food yet: a.. returned diarrhea b.. gas and bloating c.. cramping d.. Sometimes it seemed to cause behavior problems These are the symptoms we had of Die Off: a.. irritability b.. rage attacks c.. sleep disturbance d.. nausea and dizziness e.. feeling toxic Everyone is different. Remember when the gut heals the behavior problems vanish or are better delt with. Because these odd sensitivities vanish or lessen as the immune system heals with the healing gut. Hope this helps and gives you hope and motivation to continue the SCDiet Elaine's way. We have not had much success with enzymes...make us sick. So trying to figure out what to do about those. Elaine said that we wouldn't need them anyway once the gut heals. This is why she never promoted them. So many have healed without them following her advice. Talk to Lucy R at Lucy's Kitchen she will testify to this and she almost died! Elaine's SCD saved her...so many out there who have been saved without enzymes. Protease kept my intestines RAW! Ask Lucy about this one too. I urge you to call her. Her number is in back of BTVC book...or e-mail her from her web site. Sincerely, Antoinette (2 mo SCD entire family thanks to Celiac disease/malabsorption that caused ASD problems in all of us...just because of our damaged guts and healing for the first time the SCD way) For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.com<http://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Laurie, Oh yes, I have the same questions myself. We never tested for food intolerances and I'm relunctant to do so. I do notice that I feel better now that I'm off wheat and lactose but it wasn't immediate. I have a pain on my side sometimes after eating nuts or other foods. I think this is one symptom. In a child it is harder to tell. Laurie wrote: I am just not sure about this. I understand even after removing the SCD foods and the doing the inro and all- we are watching for food intolerances as we intro new foods, but what are we watching for? I would say you will definately look for diarrhea and/or perhaps constipation though less likely...I'm no expert. Look for undigested foods in stool. Those foods would be the ones the child is not tolerating well at the time. Behavioral yes, but be careful not to over interpret as food related. Some days seem to just be better than others and I find myslef trying to attach a food to any off behavior, etc. - when maybe that's not it!?! Yes, I did this too. My child is seeming so gregarious these days. Is it a coicidence that I just added enzymes or are they really the cause of his change from being a little tentative and unsure to be outgoing? Or could it be that he is almost three and this is pretty normal " turning three " behavior. He's more sure of himself in space and time. He's not a baby anymore and doesn't need to have me in eyeshot to feel safe. My child also has temper tantrums. Is it a food intolerance? I could easily go down that path but I have to be careful. One thing, I rage, so he's learned to deal with his anger from me. Two, he's a toddler. Three, he's tired...over tired, overstimulated and, yes, probably hungry because of all the stimulation taking his attention away from eating. I think it's good that you asked this question. I think it's important for us to relax with our child's behaviors. We need to know what is perfectly normal and what is down right correlated to diet. I think we also would benefit from guidelines on what to look for in terms of food intolerances. It's so hard to do when it isn't our bodies that we are dealing with but someone else's body. I think that is why so many of rely on the look, smell and consistency of our children's poops. Try and take a deep breath. Healing will come. Keep asking questions of this forum and of yourself. Warmly, gwen luca-3 SCD 2 months second time around for digestive issues. For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 These tests for food intolerances are not needed if one adheres to the strictest SCD diet. I have learned from those who knew her well that, Elaine did not like them and thought them to be a waste of money too. So I am not alone here. Many a DAN! doctor wants you to do these tests....but what he/she may not realize is that eating a strict SCDiet the gut heals out of such intolerances! So why do the tests...if in a year you can eat what ever you want on the SCDiet? There for I conclude that the tests are a waste of time and money! One year into the SCDiet and the test would come back looking like the person had no more intolerances! But if one does not adhere to the magic of the SCDiet...and cheats or eats other ways.....yes these problems will continue because the " vicious cycle " has not been broken. Making it appear that these tests are wonderful...until you have taken everything out of the diet...your poor child is starving...with only a hand full of things to eat. Try to follow what Elaine said in her BTVC book. To only take out foods that cause anaphylactic reaction, or cause the most severe distress. For anaphylactic reactions take it out forever. For the other try again in a few/three months. Wait to see the miracle, stop cheating if you maybe doing this...and have " fanatical adherence " and heal out of these stressful problems...that will VANISH! Be it phenols, oxalates, casein....the list goes on....you see God didn't want us to be restricted to just eating dirt and water...and either did Elaine. The SCDiet is expensive, save your money to buy SCD safe foods. The other thing goofy with these tests is that they do not test for the T cell response that Elaine spoke of in her book being the CAUSE of sensitivity to foods. Not being caused by a IgG,IgA and IgE immune reaction! You see the food intolerance tests only check for the IgG and IgA, skin tests only check IgE....so how can they work in light of this information. So you are bound to get many false negatives and false positives. Look at us we are all celiac...biopsy approved. Our blood claimed that we are IgG and IgA negative to gluten! If we eat gluten...with a damaged gut...we get SICK, even a painful gluten related rash called Dermatitis Herpetiformis! You see it's a T cell response!!! This is the case with most of us who have a vicious cycle going! Especially our ASD kids. So beware of expensive tests. 2 mo+ and already showing signs of healing out of " sensitivity and allergies to foods.....it works it truly does. Talk to those who have more time. They will tell you. All these testimonies can not be lying. It takes time to heal though so be patient. Sincerely, Antoinette Re: Food intolerances...what am I looking for? Laurie, Oh yes, I have the same questions myself. We never tested for food intolerances and I'm relunctant to do so. I do notice that I feel better now that I'm off wheat and lactose but it wasn't immediate. I have a pain on my side sometimes after eating nuts or other foods. I think this is one symptom. In a child it is harder to tell. Laurie wrote: I am just not sure about this. I understand even after removing the SCD foods and the doing the inro and all- we are watching for food intolerances as we intro new foods, but what are we watching for? I would say you will definately look for diarrhea and/or perhaps constipation though less likely...I'm no expert. Look for undigested foods in stool. Those foods would be the ones the child is not tolerating well at the time. Behavioral yes, but be careful not to over interpret as food related. Some days seem to just be better than others and I find myslef trying to attach a food to any off behavior, etc. - when maybe that's not it!?! Yes, I did this too. My child is seeming so gregarious these days. Is it a coicidence that I just added enzymes or are they really the cause of his change from being a little tentative and unsure to be outgoing? Or could it be that he is almost three and this is pretty normal " turning three " behavior. He's more sure of himself in space and time. He's not a baby anymore and doesn't need to have me in eyeshot to feel safe. My child also has temper tantrums. Is it a food intolerance? I could easily go down that path but I have to be careful. One thing, I rage, so he's learned to deal with his anger from me. Two, he's a toddler. Three, he's tired...over tired, overstimulated and, yes, probably hungry because of all the stimulation taking his attention away from eating. I think it's good that you asked this question. I think it's important for us to relax with our child's behaviors. We need to know what is perfectly normal and what is down right correlated to diet. I think we also would benefit from guidelines on what to look for in terms of food intolerances. It's so hard to do when it isn't our bodies that we are dealing with but someone else's body. I think that is why so many of rely on the look, smell and consistency of our children's poops. Try and take a deep breath. Healing will come. Keep asking questions of this forum and of yourself. Warmly, gwen luca-3 SCD 2 months second time around for digestive issues. For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.com<http://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Antoinette- It is wonderful you and your family are doing so well with this diet. While I completely agree with you about the food intolerance issues being just the result of " leaky gut " , I think it is not fair to make generalizations about DAN doctors not realizing or understanding the SCDiet. I believe you are new to all of this and the DAN movement, having just had your first appts with a DAN, right? Several DAN's, particularly the good ones, are well aware of SCD, especially if they have been keeping up with the most recent conferences. In addition, many DAN's are they themselves parents of ASD kids, and are just as motivated to help their child are we are ours. SCD is not however the magic bullet for everyone, I don't believe any of the things we do for our kids is the " right thing " across the board for all kids. Each recovered child has his/her own unique path to recovery... be it ABA, GFCF, chelation, homeopathy or SCD. My own DAN in a very well known practice had his whole family on SCD for a year. The benefits for their son peaked at 9 months and they stuck with it another 3 with no changes. So they went back to GFCF with no problems and greater variety. While I believe this diet has tremendous benefit for many of our children, I doubt it will cure them. Not the majority at least. There are many, many more issue with our kids than the gut issues, and while SCD may be a big puzzle piece, it is hardly the whole puzzle. Becky mom to Noah (6, HFA) and (3, NT) SCD 8 wks > > Many a DAN! doctor wants you to do these tests....but what he/she may not > realize is that eating a strict SCDiet the gut heals out of such > intolerances! So why do the tests...if in a year you can eat what ever > you want on the SCDiet? > > There for I conclude that the tests are a waste of time and money! One > year into the SCDiet and the test would come back looking like the person > had no more intolerances! > Quote Link to comment Share on other sites More sharing options...
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