mom of 7 month old needs advice

[Guest guest]

I am writing on behalf of a mom who needs help with her 7 month old.

Her membership is pending, but we are anxious to get answers for her

baby. Her 7 month old has mucousy, bloody diarrhea daily, is very

uncomfortable, has been completely unhelped by GI and various formuals,

and mom is now ready for SCD. We looked up the formula recipe in BTVC

and were concerned about use of honey for a 7 month old. We were also

concerned about the casein, since the child has developmental delays

and she is considering going casein-free (though at this point this

formula would be a step up).

For those of you who used SCD formula, what has been your experience?

If anyone with a shared experience would like to email this mom

directly, she really needs some guidance. Her name is Vera and she

will be a member soon! vliebenthal@...

Thanks so much

Karin

[Guest guest]

I can't speak for the SCD legality of this particular formula, but I

have seen it mentioned on other lists as a good choice for those

wanting to avoid Casein. The name of the formula is Neocate - I

have not seen it in stores, but I'm sure it's probably available via

prescription (and if a doctor writes a script for it, she would have

better chance of insurance covering the cost). You mentioned that

she has tried other formulas but didn't say which ones.

Here is a FAQ about this particular formula:

http://www.shsweb.co.uk/neocate/pat/faq/index.htm

Good Luck,

Amy w/Mason (who also has a 9 mo. old little sister, Emerson)

>

> I am writing on behalf of a mom who needs help with her 7 month

old.

> Her membership is pending, but we are anxious to get answers for

her

> baby. Her 7 month old has mucousy, bloody diarrhea daily, is very

> uncomfortable, has been completely unhelped by GI and various

formuals,

> and mom is now ready for SCD. We looked up the formula recipe in

BTVC

> and were concerned about use of honey for a 7 month old. We were

also

> concerned about the casein, since the child has developmental

delays

> and she is considering going casein-free (though at this point

this

> formula would be a step up).

>

> For those of you who used SCD formula, what has been your

experience?

> If anyone with a shared experience would like to email this mom

> directly, she really needs some guidance. Her name is Vera and

she

> will be a member soon! vliebenthal@...

>

> Thanks so much

>

> Karin

>

[Guest guest]

Neocate is definitely not SCD legal. It is primarily corn syrup.

For a casein free 7-month old that would be really tough... unless the

mom can still nurse the child, which doesn't sound likely since

they've been trying formulas.

I don't know if a 7-month old can eat enough by mouth (baby food) to

thrive.

I think that a infant dietician needs to be contacted about this issue.

If the child can consume enough food orally, then I would make SCD

baby food out of the easiest to digest foods.

Otherwise, perhaps a feeding tube might be needed for the short term?

I'm just not comfortable giving suggestions for such a young child.

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

What is legal, I think, would be the amino acid modules from SHS

(the Neocate company). These are usually given in a flavored,

sugared base of some sort, but can be used with almost any base that

has the right fats in proportion. Because of the food sensitivities

and the risk of yeast problems, I'd avoid all polysaccharides, and

honey and fruits too. In my son's case (sensitive to all formulas

including Neocate), I ended up with me lactating and eating a very

limited diet, but we considered the amino acid module option. The

bases that we considered were pureed avocado, coconut milk, and

pureed squash with safflower or olive or coconut oil. These would be

SCD legal, with the exception perhaps of coconut milk. You would

still need a source of severl vitamins and minerals, and it's tough

to find corn-free and soy-free multis for the hyper-sensitive little

ones. My son is 3.5 now and we still don't have a multi. Adding a

bit of occasional pureed organic lamb liver would be a good source

of iron, she's at the age she will be needing more of this.

Has eosinophilic esophagitis been ruled out? Kids with this usually

require an elemental formula for months or years to heal, and often

G-tube feeding.

I've been there - it's a tough place to be. My heart goes out to the

family.

Suzanne

>

> Neocate is definitely not SCD legal. It is primarily corn syrup.

>

> For a casein free 7-month old that would be really tough... unless

the

> mom can still nurse the child, which doesn't sound likely since

> they've been trying formulas.

>

> I don't know if a 7-month old can eat enough by mouth (baby food)

to

> thrive.

>

> I think that a infant dietician needs to be contacted about this

issue.

>

> If the child can consume enough food orally, then I would make SCD

> baby food out of the easiest to digest foods.

>

> Otherwise, perhaps a feeding tube might be needed for the short

term?

>

> I'm just not comfortable giving suggestions for such a young child.

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

[Guest guest]

My neice was a little older, about 8 or 9 months, so this may or may

not apply.

She was occasionally kept by a family where the mom was a

nutritionist. My neice had terrible eczema and lots of gas/ stomach

issues and the nutritionist mom suggested to my sister in law that

she thought it was the formula. They tried several different types

that didn't work and finally the nutr. mom suggested goats milk. My

sis in law asked their family physician and he said it would be fine

since she was over 6 months old. He reminded my sister in law that

it's only been in recent years that they started suggesting formula

for babies over 6 months anyway. Anyway, they switched my neice and

she did great on it. The eczema & gas didn't totally clear, but it

did get somewhat better. Of course, I know liquid goat's milk isn't

SCD legal unless it's turned into yogurt.

Another idea- when I was nursing my kids, I went to meetings at a

parenting center for breastfeeding moms. On a few occasions they

passed out papers about women donating their breast milk to a breast

milk bank. I don't know how it worked or anything further than that

as I had my own issues to deal with my son by then, but maybe she

could check into seeing if something is available in her state like

that? Although, then you have to worry about what the moms ate and

whether they had amalgam fillings, their own metal issues, etc etc.

Hmmm, maybe scrap that idea.

I had to relactate when my daughter didn't tolerate any formula, but

she was only a few weeks old so I don't know if that would be an

option for a 7 month old.

Definitely would have any decisions ran by a doctor with a baby this

little.

Hope things improve soon!

Janet, mom to Cody- almost 5 yrs old- multi food allergies- SCD

since 4-17-06

[Guest guest]

Please use caution with goats milk in a milk-allergic child. Over

90% of babies who react to cow's milk also react to goat milk. The

protein make-up is nearly identical. Mare's (or donkey's) milk is

closer to human milk and is more commonly used in Europe but is not

available in the US - I know someone who paid bundles of money to

import it frozen, through Customs and all, from Europe. Not cheap,

in the quantities you'd need it to feed a 7-month old.

Re-lactation is a possibility - virgin adoptive mothers have done

it, grandmothers have done it, even men can lactate. But it is very

hard work and I don't know if a mom with twins could find the time.

She'd also have to figure out through elimination dieting which

foods were problematic, and this can take awhile with a very

sensitive kid. The baby's gut is probably so torn up at this point

that the inflammation is causing her to react to everything, and the

best thing would be to find a safe hypoallergenic/elemental formula

for about a month to let her gut calm and heal. Tube-feeding can be

a temporary option for kids like this, though make sure it's meant

to be temporary and wean the child from it as soon as possible.

Key will be finding a good ped. GI doctor and a allergy-specialist

nutritionist who knows her stuff, and that can be really hard.

Suzanne

>

> My neice was a little older, about 8 or 9 months, so this may or

may

> not apply.

> She was occasionally kept by a family where the mom was a

> nutritionist. My neice had terrible eczema and lots of gas/

stomach

> issues and the nutritionist mom suggested to my sister in law that

> she thought it was the formula. They tried several different

types

> that didn't work and finally the nutr. mom suggested goats milk.

My

> sis in law asked their family physician and he said it would be

fine

> since she was over 6 months old. He reminded my sister in law

that

> it's only been in recent years that they started suggesting

formula

> for babies over 6 months anyway. Anyway, they switched my neice

and

> she did great on it. The eczema & gas didn't totally clear, but

it

> did get somewhat better. Of course, I know liquid goat's milk

isn't

> SCD legal unless it's turned into yogurt.

> Another idea- when I was nursing my kids, I went to meetings at a

> parenting center for breastfeeding moms. On a few occasions they

> passed out papers about women donating their breast milk to a

breast

> milk bank. I don't know how it worked or anything further than

that

> as I had my own issues to deal with my son by then, but maybe she

> could check into seeing if something is available in her state

like

> that? Although, then you have to worry about what the moms ate

and

> whether they had amalgam fillings, their own metal issues, etc

etc.

> Hmmm, maybe scrap that idea.

> I had to relactate when my daughter didn't tolerate any formula,

but

> she was only a few weeks old so I don't know if that would be an

> option for a 7 month old.

> Definitely would have any decisions ran by a doctor with a baby

this

> little.

> Hope things improve soon!

> Janet, mom to Cody- almost 5 yrs old- multi food allergies- SCD

> since 4-17-06

>