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Re: Osteopath Visit = Less Seizures

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" It is very likely that writing this

note will incur seizures, " so I probably will start the Lamictal. We'll

see ...

Dear Sharon,

What does this mean? Is he near the computer screen? CRT's (monitors) have

rhythmic light emitted that you and I don't see, but did you ever watch a

computer screen on TV? have you noticed the " bands " rolling upwards? Your son

may see these and incur a seizure, just as a strobe light would. My daughter

has nocturnal partial-complex hyperelectrical

activity, right temporal, full occipital. I read at ARI that this comes from

damaged gut. She only has this increased, uncontrolled activity when she

sleeps...

Cara

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Hi Cara - sorry I just meant that it seems that whenever I announce

that something has helped his seizures, they immediately come back.

His seizures are not photic (induced by flickering lights or anything

like that). He has severe brain damage and is cortically blind (but he

does react to lights/movement, so he can see something).

> " It is very likely that writing this

> note will incur seizures, " so I probably will start the Lamictal.

We'll

> see ...

>

> Dear Sharon,

> What does this mean? Is he near the computer screen? CRT's

(monitors) have rhythmic light emitted that you and I don't see, but

did you ever watch a computer screen on TV?

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Way to go Cruikhank family!

Agape,

SHARON CRUIKSHANK wrote:

We took to an osteopath who also does CST yesterday. Now I know

this is only 1.5 days later, but he typically has 5-6 strong clusters a

day. Since the treatment he has only had 2 light clusters, 1 last night

falling asleep, and 1 this afternoon. He did a lot of sighing with

relief during the treatment, and she did a lot of work on the top of his

spine/base of skull. He is VERY relaxed and very " even " looking (vs.

turning to one side). He also pooped on his own 3x yesterday and 4x

today. Woo hoo. He's been doing better with this since we started the

SCD, but he's really cleaning himself out now (and it's good well-formed

poops too).

We were just about to start a new, potentially nasty drug called

Lamictal.So, now what do I do? Do I go ahead and start the Lamictal I

just picked up, or wait a few days. It is very likely that writing this

note will incur seizures, so I probably will start the Lamictal. We'll

see ...

Sharon Cruikshank

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