Re: Desperate, need advice OT

[Guest guest]

PLease DO NOT Vaccinate your kiddos right now. Get them healthy first. Contact

a DAN doctor (www.autismwebsite.com). They have experience inthe diet and

nutritional aspects of what you are experiencing. I can hear the panic in your

voice. Please, don't do this on your own without the guidance of a DAN doctor.

email me privately if you have questions.

Prayers for you and your little girls.

Vera Liebenthal wrote:

I am a mom of 7 months old twins. Both of the girls have feeding

issues and were diagnosed with severe reflux. I am not sure at all

that this is the correct diagnosis since non of the reflux related

drugs evert worked for us. Recently our GI said that this is

probably severe food allergies... Basically, he doesn't really know

what it is or how to treat it. One of the girls is doing much worse

than the other. She has been having diarrhea for over 2 months now

and there is a lot of mucus and occasionally blood in her stools.

She also was recently diagnosed with developmental delays (she is

not doing ant babbling yet and is on the low side with her cognitive

skills). I am obviously very worried and would appreciate any

advice. We tried any formula imaginable and nothing has worked so

far. She has been on Alimentum for a few months and was also on

Neocate short term - nothing seems to work for her. The doctors

don't know what to do. It seems that her system can not really

tolerate any commercial formula at this point. Please, please,

please does anyone know a recipe for a home made formula that might

help? In the " Breaking the Vicious Cycle " book there is a recipe for

baby formula but it contains honey which you are not supposed to

give before they are 1 y/o. Does anyone have any experience with

this home-made formula? Other any other good tested recipes to try?

I would be very greatful for any feedback.

Thank you so much for your help,

Vera

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

A few things to note.. Children must get on a pure (chemical free) lifestyle

and

I suspect you are going to try SCD diet..As well as make some environmental

changes.. Your babies need to have their home their haven a place where

they can begin to heal and not be hit with chemicals ..Think of a barrel and

thiers are overflowing with junk..you need to keep the barrel low of these

things at home then when they go out in the world of chemicals it is easier for

them...I am sorry.. I am sure this is a lot to digest but do one new thing a

week

and pic away at it..If you can stand doing more go girl!

1) Buy seventh generation laundry & cleaning supplies or something without

chemicals..

2) Shop Whole foods or Cub or somewhere where they have organic no

chemical foods and cleaning supplies.....

3) A book called " What the Doctor doesn't tell you about Vaccinations " by Dr

Cave You must educate yourself so you can make an informed

decision...

4)SCD This is a great diet and it will help you children heal...The most

important thing is to get the gut healthy without a healthy gut all other

systems

suffer..we need our nutrients and this is where to start..There are many here

with much experience and help is sitting right at your computer..;-)

5)www.AutismNDI.com another wonderful sourse of science and gut

relations..

6) Supplements you need to get kids set up on supplements especially due to

the severe gut issues..as mentioned get a good DAN Dr or someone who is a

specialist in functional medicine.(this doesn't mean you abandon your regular

medicine both worlds are important..)

7) You also need to care for you..supplements and eat well the kids need you

to be well...Without your wellness this will be difficult..drink your water eat

good food and get to bed and sleep ...

8)Another book to get " Children with Starving Brains " by Dr

McCandless MD

9)Fwew.....print and pluck away at this one by one...a great web site for

making your home healthy is www.thegreenguide.com

10) My thoughts and prayers are with you.. hope you find a good doc and you

all start on the road to wellness.. There is a road to wellness......... you now

have to take the steps to make change..Unfortunately our world is very

unhealthy..so we have to make change..

Best Wishes

Sandy.... Mom to pretty much recovered ASD and Isaak 6 ASD......I

am also a ASD Consultant with Special Ed and Nursing as my background...

1 month SCD / 8+ years DAN Biomedical & dietary intervention..... blah blah

blah....and still learning...;-)

>

> I am a mom of 7 months old twins. Both of the girls have feeding

> issues and were diagnosed with severe reflux. I am not sure at all

> that this is the correct diagnosis since non of the reflux related

> drugs evert worked for us. Recently our GI said that this is

> probably severe food allergies... Basically, he doesn't really know

> what it is or how to treat it. One of the girls is doing much worse

> than the other. She has been having diarrhea for over 2 months now

> and there is a lot of mucus and occasionally blood in her stools.

> She also was recently diagnosed with developmental delays (she is

> not doing ant babbling yet and is on the low side with her cognitive

> skills). I am obviously very worried and would appreciate any

> advice. We tried any formula imaginable and nothing has worked so

> far. She has been on Alimentum for a few months and was also on

> Neocate short term - nothing seems to work for her. The doctors

> don't know what to do. It seems that her system can not really

> tolerate any commercial formula at this point. Please, please,

> please does anyone know a recipe for a home made formula that might

> help? In the " Breaking the Vicious Cycle " book there is a recipe for

> baby formula but it contains honey which you are not supposed to

> give before they are 1 y/o. Does anyone have any experience with

> this home-made formula? Other any other good tested recipes to try?

> I would be very greatful for any feedback.

> Thank you so much for your help,

> Vera

>

>

>

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>