Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Can those out there help me to make since of some of this. She is improving dramaticaly SCD, now two plus months. We are certain we are on the right track. But wanted to know if we have a few things in common with others. As you know 23 month old, KiKi was diangosed first with Celiac/malabsorption and not so surprisingly the next diagnosis was autism...as a reslut to her " starving brain " . Have others of autistic toddlers/kids had problems with their child not wanting to swing in a swing....KiKi gets terrified like she is falling. She screams in terror....just hates the movement...even starts to shake in fear. Did it go away with time...if your child did have a problem with swinging movement. She is getting better when we go to the play ground...so much better...but doesn't want to swing...or do much other than the slide...she now likes the wagon better. But still clings like a little monkey to me, much of the time. As Elaine predicted we are going through a die off again. She says in her BTVC book that it happens at around 2 to 3 months. She was right. All of us not feeling to hot today....all the signs of die off are back....glad to know we are doing somehting right to be on " track " ....but feel awful! Sincerely, Antoinette (2 months SCDiet/thanks to celiac and asd in the family) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Two sites of info on sensory ...Yes in some this certainly gets better... You are speaking of a child who is over responding to the environment.. Many kids are underesponders and need much sensory yours is the opposite...So I would keep doing slow steady movement to retrain the neurological system........... Here are two reads for you.. http://www.autism.org/interview/ljk.html http://www.autism.org/si.html HTH Sandy > > Can those out there help me to make since of some of this. She is > improving dramaticaly SCD, now two plus months. We are certain we > are on the right track. But wanted to know if we have a few things > in common with others. > > As you know 23 month old, KiKi was diangosed first with > Celiac/malabsorption and not so surprisingly the next diagnosis was > autism...as a reslut to her " starving brain " . > > Have others of autistic toddlers/kids had problems with their child > not wanting to swing in a swing....KiKi gets terrified like she is > falling. She screams in terror....just hates the movement...even > starts to shake in fear. > > Did it go away with time...if your child did have a problem with > swinging movement. > > She is getting better when we go to the play ground...so much > better...but doesn't want to swing...or do much other than the > slide...she now likes the wagon better. But still clings like a > little monkey to me, much of the time. > > As Elaine predicted we are going through a die off again. She says > in her BTVC book that it happens at around 2 to 3 months. She was > right. All of us not feeling to hot today....all the signs of die > off are back....glad to know we are doing somehting right to be > on " track " ....but feel awful! > > Sincerely, Antoinette (2 months SCDiet/thanks to celiac and asd in > the family) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 antoinette, are you familiar with sensory integration dysfunction (aka sensory processing issues)? there is a fabulous book called " out of sync child " all about children who struggle with things like movement, touch, sound, smells, taste, food textures, and then others who crave these and are undersensitive and cant register these sensations. it is such a good book and well worth reading if you werent on scd. but i honestly believe that scd will make your kiki's sensory issues fade away over time. i say this because i have watched my undersensitive kid who couldnt tell he was falling and couldnt care cause he didnt feel it when he fell, and my oversensitive kid who couldnt handle normal noises any touch, and any movement become happy boys ages 9 and 11. it was some journey . . . could have saved many years of occupational therapy working on sensory processing when i should have just jumped on scd when they were little. oh yeah i keep reminding myself that the book hadnt been written until i think 1999 and most practioners i had gone to for dietary guidance hadnt heard of scd at least up till 2004. i hope that is changing now. donna > > Can those out there help me to make since of some of this. She is > improving dramaticaly SCD, now two plus months. We are certain we > are on the right track. But wanted to know if we have a few things > in common with others. > > As you know 23 month old, KiKi was diangosed first with > Celiac/malabsorption and not so surprisingly the next diagnosis was > autism...as a reslut to her " starving brain " . > > Have others of autistic toddlers/kids had problems with their child > not wanting to swing in a swing....KiKi gets terrified like she is > falling. She screams in terror....just hates the movement...even > starts to shake in fear. > > Did it go away with time...if your child did have a problem with > swinging movement. > > She is getting better when we go to the play ground...so much > better...but doesn't want to swing...or do much other than the > slide...she now likes the wagon better. But still clings like a > little monkey to me, much of the time. > > As Elaine predicted we are going through a die off again. She says > in her BTVC book that it happens at around 2 to 3 months. She was > right. All of us not feeling to hot today....all the signs of die > off are back....glad to know we are doing somehting right to be > on " track " ....but feel awful! > > Sincerely, Antoinette (2 months SCDiet/thanks to celiac and asd in > the family) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Antoinette, I'm surprised, because autistic kids usually love to swing, spin, etc. Simon sure did -- they seek the " vestibular in-put. " Can you put her on your lap in the swing and swing with her, slowly and gently and see how that goes? Swings are often recommended for autistic children because they find it comforting, but if it's not comforting to Kiki, then I wouldn't worry about incorporating it into her sensory program just now. Does anyone know why another die-off happens after 2 months on the diet? Debbie Pappas (9 year old son with ASD, getting geared up for SCD) At 04:44 PM 4/30/2006, you wrote: >Can those out there help me to make since of some of this. She is >improving dramaticaly SCD, now two plus months. We are certain we >are on the right track. But wanted to know if we have a few things >in common with others. > >As you know 23 month old, KiKi was diangosed first with >Celiac/malabsorption and not so surprisingly the next diagnosis was >autism...as a reslut to her " starving brain " . > >Have others of autistic toddlers/kids had problems with their child >not wanting to swing in a swing....KiKi gets terrified like she is >falling. She screams in terror....just hates the movement...even >starts to shake in fear. > >Did it go away with time...if your child did have a problem with >swinging movement. > >She is getting better when we go to the play ground...so much >better...but doesn't want to swing...or do much other than the >slide...she now likes the wagon better. But still clings like a >little monkey to me, much of the time. > >As Elaine predicted we are going through a die off again. She says >in her BTVC book that it happens at around 2 to 3 months. She was >right. All of us not feeling to hot today....all the signs of die >off are back....glad to know we are doing somehting right to be >on " track " ....but feel awful! > >Sincerely, Antoinette (2 months SCDiet/thanks to celiac and asd in >the family) > > > > > > > > >For information on the Specific Carbohydrate Diet, please read the book >_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following >websites: >http://www.breakingtheviciouscycle.info >and >http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 I want to chime in that my youngest son had the same issues as Kiki. He is not ASD but definitely has some traits but not enough for a Dx. He would freak out as a baby/toddler when I carried him and walked down the stairs too fast. Swinging put him in a panic is someone not knowing pushed him too much. He is better now at age three. But still gets scared. Poor bugger, we took him on Goofy's Roller Coaster at Disney world (he wanted to go and it is big brother's favorite). I felt like the worst mom in the world. Becky mom to Noah (6, HFA) and (3, NT) SCD 8 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Jeni Lyn please call me if you want to talk. Jenn Lessard Becky Grant-Widen wrote: I want to chime in that my youngest son had the same issues as Kiki. He is not ASD but definitely has some traits but not enough for a Dx. He would freak out as a baby/toddler when I carried him and walked down the stairs too fast. Swinging put him in a panic is someone not knowing pushed him too much. He is better now at age three. But still gets scared. Poor bugger, we took him on Goofy's Roller Coaster at Disney world (he wanted to go and it is big brother's favorite). I felt like the worst mom in the world. Becky mom to Noah (6, HFA) and (3, NT) SCD 8 weeks For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Something caught my attention. When all my children were infants the feeling of going down the stairs with them facing the same direction as I was going (face forward) terrified them I could tell by the way they would tense up. Only my middle child is ASD. I myself am terrafied of high rides. Maybe infants are aware off their surroundings being so much bigger then they are and fear develops? I personally wouldn't say it was an indicater of ASD, Toni mom to Matteo 4yrs Asd, SCD strict sinceOct/05 RE: OT Symptoms of ASD/KiKi Jeni Lyn please call me if you want to talk. Jenn Lessard Becky Grant-Widen wrote: I want to chime in that my youngest son had the same issues as Kiki. He is not ASD but definitely has some traits but not enough for a Dx. He would freak out as a baby/toddler when I carried him and walked down the stairs too fast. Swinging put him in a panic is someone not knowing pushed him too much. He is better now at age three. But still gets scared. Poor bugger, we took him on Goofy's Roller Coaster at Disney world (he wanted to go and it is big brother's favorite). I felt like the worst mom in the world. Becky mom to Noah (6, HFA) and (3, NT) SCD 8 weeks For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.