Re: OT Evaluation For Therapy on Tuesday/ VENT

[Guest guest]

For me (this was the same environment my child was evaluated in), this meant

that he may not do everything he normally does when he is comfortable. He

would most likely be at his most severe. I saw this as a good thing because

it meant that he may get the services he needs.

Kelli

SAHM to Kai 3 1/2- ASD and Tatum 1 1/2 NT

SCD since 5/05, off for 3 months, back on 3/10/06

_____

From: pecanbread [mailto:pecanbread ] On

Behalf Of kikijabunce

Sent: Friday, May 12, 2006 3:22 PM

To: pecanbread

Subject: OT Evaluation For Therapy on Tuesday/ VENT

Hey fellow mom's and dad's,

I just found out that Eight people are going to be in the evaluators

room on Tueday when the District Evaluates KiKi for Early

Intervention Programs through the state. TWO hour evaluation with an

autistic 2 year old who is healing from celiac disease.

Has anybody else had this number of people in the room??? Is she a

celeberty or " freak show " ? It is pissing me off a bit none the

less. IT seems that everyone is interested in her AUTISM, and they

have missed teh CHILD already and we are not even there.

I have put call in to decrease this number of people, no one has

returned my phone call yet. How do you advocate for your child

when " well intentioned " people " gang " up on you with their opinons

of what needs to be done and all their RED TAPE and protocol???

I had origionaly asked for the elvaluation to take place in the

home. Knowing her " special needs " and personality this in itself

would have been a chalenge but not as bad. I was told unless she

was medicaly fragile that they would not do this. I told them that

more than likely that although improved in last 2.5 months on

special SCDiet, that she will Still SHUT DOWN (her way of vanishing

and coping with HIGH STRESS) if we try this out side the home...and

that this has happened before when we had her evaluated for

before....they did not care.

The Dan! said let them see her shut down and have her problem. That

they need to see it. I say this is a bunch of c*** because this is

not who she is in the home. And a two year old doesn't need to be

woryying about the " real " world....autistic or not. There is time

for this when she is older and more healed.

I am ready to cancel the entire thing! But this could offer her

state paid speech and other therapy. They even do horse therapy,

and since she opens up with animals I thought this would be good

fore her.....

I feel a little upset right now. Do others have any experience

strength and hope???

If windy e-mail me personaly ajbunce@...

Thanks ahead of time, Antoinette

(mother of 2 year old KiKi/celiac/injured intestines that resulted

in Autism)

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Look for an educational advocate in your area, ask other parents, look in the

phone book. Cancel the appointment and find someone who can represent you on

your behalf.

Advocates will make sure you get what your child needs into the IEP.

After going through this process, I chose to withdraw my son, as he was

shutting down during the state paid therapy. However, at the time, if I had an

advocate on my side, I may have been able to get the therapy and school

environment situated more sastifactory.

An advocate is a great idea for anyone going through or have issues with the

IEP process. It benefits the child and the parent, and can help enable the needs

of the child to be met by the state.

Summer

Hey fellow mom's and dad's,

I just found out that Eight people are going to be in the evaluators

room on Tueday when the District Evaluates KiKi for Early

Intervention Programs through the state. TWO hour evaluation with an

autistic 2 year old who is healing from celiac disease.

Has anybody else had this number of people in the room??? Is she a

celeberty or " freak show " ? It is pissing me off a bit none the

less. IT seems that everyone is interested in her AUTISM, and they

have missed teh CHILD already and we are not even there.

I have put call in to decrease this number of people, no one has

returned my phone call yet. How do you advocate for your child

when " well intentioned " people " gang " up on you with their opinons

of what needs to be done and all their RED TAPE and protocol???

I had origionaly asked for the elvaluation to take place in the

home. Knowing her " special needs " and personality this in itself

would have been a chalenge but not as bad. I was told unless she

was medicaly fragile that they would not do this. I told them that

more than likely that although improved in last 2.5 months on

special SCDiet, that she will Still SHUT DOWN (her way of vanishing

and coping with HIGH STRESS) if we try this out side the home...and

that this has happened before when we had her evaluated for

before....they did not care.

The Dan! said let them see her shut down and have her problem. That

they need to see it. I say this is a bunch of c*** because this is

not who she is in the home. And a two year old doesn't need to be

woryying about the " real " world....autistic or not. There is time

for this when she is older and more healed.

I am ready to cancel the entire thing! But this could offer her

state paid speech and other therapy. They even do horse therapy,

and since she opens up with animals I thought this would be good

fore her.....

I feel a little upset right now. Do others have any experience

strength and hope???

If windy e-mail me personaly ajbunce@...

Thanks ahead of time, Antoinette

(mother of 2 year old KiKi/celiac/injured intestines that resulted

in Autism)

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Dear Summer and to whom it may concern,

What do I look under...because it wasn't under educational advocate,

and I am a little clueless. What is IEP for starters. I am truly

new to this.

In a way others have made good point about them seeing her at her

worst so that she will get the therapy she needs...but this too

agrivates me. Not the suggestion, that it isn't her that they are

seing.

At home she is Autistic but not " disabled " like she becomes when she

is out and about. She truly will " disappear " when stressed out in

public. AS a baby she would go into a self induced deep sleep. It

was only one month ago that she could tolerate going to the grocery

store, with out a crises.

When she withdraws into herself, if I or anybody pushes her into

participating or interacting then this horrible tantrum/melt down

nuculear reaction takes place...and she becomes a screaming puddle.

Is that descriptive enough??? Just getting home will be a

chalenge...if this happens and I highly suspect it will, the meeting

that they think will last two hours will be certainly cut short.

The evaluation would be done rather fast and nothing much gained

from it. I am sure others may know what this looks like. I pay

for it for three days, from past experience. I just dread this.

I also have possible " irrational " fears that they will blame me for

her conditon. We all have heard of the " refrigerator mom " being

blamed in the past. Before my son was diagnosed with Celiac...this

happened....my husband and I where blamed as being the " bad "

parents. Many assumed that it was all behavioral and that he just

needed disaplined better. Later to all learn that it is BIOMEDICAL

and related to ASD/ADHD and CELIAC DISEASE/injured intestines.

I have not had good experiences with doctors, therapists or

evaluators with my kids. Much anxiety...that I need to let go of.

This for sure will make her worse. She is a MIRROR of my emotions.

This in itself is strange how she will do this.

Thank you to those who are trying to help me sort this out,

Antoinette

>

> Look for an educational advocate in your area, ask other parents,

look in the phone book. Cancel the appointment and find someone who

can represent you on your behalf.

>

> Advocates will make sure you get what your child needs into the

IEP.

>

> After going through this process, I chose to withdraw my son, as

he was shutting down during the state paid therapy. However, at the

time, if I had an advocate on my side, I may have been able to get

the therapy and school environment situated more sastifactory.

>

> An advocate is a great idea for anyone going through or have

issues with the IEP process. It benefits the child and the parent,

and can help enable the needs of the child to be met by the state.

>

> Summer

>

>

> Hey fellow mom's and dad's,

>

> I just found out that Eight people are going to be in the

evaluators

> room on Tueday when the District Evaluates KiKi for Early

> Intervention Programs through the state. TWO hour evaluation with

an

> autistic 2 year old who is healing from celiac disease.

>

> Has anybody else had this number of people in the room??? Is she

a

> celeberty or " freak show " ? It is pissing me off a bit none the

> less. IT seems that everyone is interested in her AUTISM, and they

> have missed teh CHILD already and we are not even there.

>

> I have put call in to decrease this number of people, no one has

> returned my phone call yet. How do you advocate for your child

> when " well intentioned " people " gang " up on you with their opinons

> of what needs to be done and all their RED TAPE and protocol???

>

> I had origionaly asked for the elvaluation to take place in the

> home. Knowing her " special needs " and personality this in itself

> would have been a chalenge but not as bad. I was told unless she

> was medicaly fragile that they would not do this. I told them

that

> more than likely that although improved in last 2.5 months on

> special SCDiet, that she will Still SHUT DOWN (her way of

vanishing

> and coping with HIGH STRESS) if we try this out side the

home...and

> that this has happened before when we had her evaluated for

> before....they did not care.

>

> The Dan! said let them see her shut down and have her problem.

That

> they need to see it. I say this is a bunch of c*** because this

is

> not who she is in the home. And a two year old doesn't need to be

> woryying about the " real " world....autistic or not. There is time

> for this when she is older and more healed.

>

> I am ready to cancel the entire thing! But this could offer her

> state paid speech and other therapy. They even do horse therapy,

> and since she opens up with animals I thought this would be good

> fore her.....

>

> I feel a little upset right now. Do others have any experience

> strength and hope???

>

> If windy e-mail me personaly ajbunce@...

>

> Thanks ahead of time, Antoinette

>

> (mother of 2 year old KiKi/celiac/injured intestines that resulted

> in Autism)

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

You are going to have to search around. Sometimes they are called Educational

Consultants, some people who provide tutoring services to school children and

homeschooled children double as an advocate. Learning about the IEP process will

help you too. Here are some possibilities below to call.

CO - Colarado Advocacy for the Whole Child

Advocates

4313 South Andes Way #204

Aurora, CO 80015

Phone:

Fax:

advocacypro@...

www.advocacyproject.net

States Served: CO, TX, MO, CA, etc.

Collaborative of ADVOCATES who have received a certificate in special education

advocacy from the Advocacy Project. All states served. Phone/e-mail

consultation, meeting attendance, parent support, educator training, full

service advocacy. Advocates specialize in learning disabilities, mental illness,

developmental disabilities, physical disabilities.

Bostic

Advocate

899 Logan, Suite 311

Denver, CO 80203

Phone:

Fax:

denverarcj@...

Serving CO - Denver City and County

PEAK Parent Center

611 N. Weber St. Suite 200

Colorado Springs, CO 80903

Phone:

Fax:

www.peakparent.org

PEAK Parent Center's mission is to ensure that individuals with disabilities

lead rich, active lives and participate as full members of their schools and

communities. To fulfill this mission, PEAK provides information, training, and

technical assistance to families of children with disabilities and the

professionals who work with them.

kikijabunce wrote:

Dear Summer and to whom it may concern,

What do I look under...because it wasn't under educational advocate,

and I am a little clueless. What is IEP for starters. I am truly

new to this.

In a way others have made good point about them seeing her at her

worst so that she will get the therapy she needs...but this too

agrivates me. Not the suggestion, that it isn't her that they are

seing.

At home she is Autistic but not " disabled " like she becomes when she

is out and about. She truly will " disappear " when stressed out in

public. AS a baby she would go into a self induced deep sleep. It

was only one month ago that she could tolerate going to the grocery

store, with out a crises.

When she withdraws into herself, if I or anybody pushes her into

participating or interacting then this horrible tantrum/melt down

nuculear reaction takes place...and she becomes a screaming puddle.

Is that descriptive enough??? Just getting home will be a

chalenge...if this happens and I highly suspect it will, the meeting

that they think will last two hours will be certainly cut short.

The evaluation would be done rather fast and nothing much gained

from it. I am sure others may know what this looks like. I pay

for it for three days, from past experience. I just dread this.

I also have possible " irrational " fears that they will blame me for

her conditon. We all have heard of the " refrigerator mom " being

blamed in the past. Before my son was diagnosed with Celiac...this

happened....my husband and I where blamed as being the " bad "

parents. Many assumed that it was all behavioral and that he just

needed disaplined better. Later to all learn that it is BIOMEDICAL

and related to ASD/ADHD and CELIAC DISEASE/injured intestines.

I have not had good experiences with doctors, therapists or

evaluators with my kids. Much anxiety...that I need to let go of.

This for sure will make her worse. She is a MIRROR of my emotions.

This in itself is strange how she will do this.

Thank you to those who are trying to help me sort this out,

Antoinette

>

> Look for an educational advocate in your area, ask other parents,

look in the phone book. Cancel the appointment and find someone who

can represent you on your behalf.

>

> Advocates will make sure you get what your child needs into the

IEP.

>

> After going through this process, I chose to withdraw my son, as

he was shutting down during the state paid therapy. However, at the

time, if I had an advocate on my side, I may have been able to get

the therapy and school environment situated more sastifactory.

>

> An advocate is a great idea for anyone going through or have

issues with the IEP process. It benefits the child and the parent,

and can help enable the needs of the child to be met by the state.

>

> Summer

>

>

> Hey fellow mom's and dad's,

>

> I just found out that Eight people are going to be in the

evaluators

> room on Tueday when the District Evaluates KiKi for Early

> Intervention Programs through the state. TWO hour evaluation with

an

> autistic 2 year old who is healing from celiac disease.

>

> Has anybody else had this number of people in the room??? Is she

a

> celeberty or " freak show " ? It is pissing me off a bit none the

> less. IT seems that everyone is interested in her AUTISM, and they

> have missed teh CHILD already and we are not even there.

>

> I have put call in to decrease this number of people, no one has

> returned my phone call yet. How do you advocate for your child

> when " well intentioned " people " gang " up on you with their opinons

> of what needs to be done and all their RED TAPE and protocol???

>

> I had origionaly asked for the elvaluation to take place in the

> home. Knowing her " special needs " and personality this in itself

> would have been a chalenge but not as bad. I was told unless she

> was medicaly fragile that they would not do this. I told them

that

> more than likely that although improved in last 2.5 months on

> special SCDiet, that she will Still SHUT DOWN (her way of

vanishing

> and coping with HIGH STRESS) if we try this out side the

home...and

> that this has happened before when we had her evaluated for

> before....they did not care.

>

> The Dan! said let them see her shut down and have her problem.

That

> they need to see it. I say this is a bunch of c*** because this

is

> not who she is in the home. And a two year old doesn't need to be

> woryying about the " real " world....autistic or not. There is time

> for this when she is older and more healed.

>

> I am ready to cancel the entire thing! But this could offer her

> state paid speech and other therapy. They even do horse therapy,

> and since she opens up with animals I thought this would be good

> fore her.....

>

> I feel a little upset right now. Do others have any experience

> strength and hope???

>

> If windy e-mail me personaly ajbunce@...

>

> Thanks ahead of time, Antoinette

>

> (mother of 2 year old KiKi/celiac/injured intestines that resulted

> in Autism)

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Sorry for the double post, here is another resource, The Yellowpages for people

with disabilities in your area, including educational consultants, doctors,

therapists, the ARC and so on:

http://www.yellowpagesforkids.com/help/co.htm

You can reschedule your IEP appointment, allow yourself a chance to become

informed about the process and the questions you need to ask, the things you

want on the IEP, and preferably, find an advocate who will be by your side and

help negotiate with the school system.

Best of Luck!

Summer

kikijabunce wrote:

Dear Summer and to whom it may concern,

What do I look under...because it wasn't under educational advocate,

and I am a little clueless. What is IEP for starters. I am truly

new to this.

In a way others have made good point about them seeing her at her

worst so that she will get the therapy she needs...but this too

agrivates me. Not the suggestion, that it isn't her that they are

seing.

At home she is Autistic but not " disabled " like she becomes when she

is out and about. She truly will " disappear " when stressed out in

public. AS a baby she would go into a self induced deep sleep. It

was only one month ago that she could tolerate going to the grocery

store, with out a crises.

When she withdraws into herself, if I or anybody pushes her into

participating or interacting then this horrible tantrum/melt down

nuculear reaction takes place...and she becomes a screaming puddle.

Is that descriptive enough??? Just getting home will be a

chalenge...if this happens and I highly suspect it will, the meeting

that they think will last two hours will be certainly cut short.

The evaluation would be done rather fast and nothing much gained

from it. I am sure others may know what this looks like. I pay

for it for three days, from past experience. I just dread this.

I also have possible " irrational " fears that they will blame me for

her conditon. We all have heard of the " refrigerator mom " being

blamed in the past. Before my son was diagnosed with Celiac...this

happened....my husband and I where blamed as being the " bad "

parents. Many assumed that it was all behavioral and that he just

needed disaplined better. Later to all learn that it is BIOMEDICAL

and related to ASD/ADHD and CELIAC DISEASE/injured intestines.

I have not had good experiences with doctors, therapists or

evaluators with my kids. Much anxiety...that I need to let go of.

This for sure will make her worse. She is a MIRROR of my emotions.

This in itself is strange how she will do this.

Thank you to those who are trying to help me sort this out,

Antoinette

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1 & cent;/min.

[Guest guest]

Kai was like that as well. Because he was like that at the evaluation, he

got the diagnosis RIGHT away and granted services 2 days later. In many

ways, I went into the evaluation really advocating for his autism and the

strange environment and strange people aided in pulling out his autistic

behavior. I am glad it happened that way because a year later, he is very

close to recovery (thanks to SCD AND early intervention).

FWIW, I did feel similarly but realized that he would always have his ups

and his downs. It was best for them to see him at his worst so that he would

receive services to accommodate those times more than try and accommodate

him at his " best. "

This is just where I am coming from ).

Kelli

Kai 3 1/2 (ASD)

and Tatum 2 (NT)

SCD round 2

**SCD house**

_____

From: pecanbread [mailto:pecanbread ] On

Behalf Of kikijabunce

Sent: Friday, May 12, 2006 5:54 PM

To: pecanbread

Subject: Re: OT Evaluation For Therapy on Tuesday/ VENT

Dear Summer and to whom it may concern,

What do I look under...because it wasn't under educational advocate,

and I am a little clueless. What is IEP for starters. I am truly

new to this.

In a way others have made good point about them seeing her at her

worst so that she will get the therapy she needs...but this too

agrivates me. Not the suggestion, that it isn't her that they are

seing.

At home she is Autistic but not " disabled " like she becomes when she

is out and about. She truly will " disappear " when stressed out in

public. AS a baby she would go into a self induced deep sleep. It

was only one month ago that she could tolerate going to the grocery

store, with out a crises.

When she withdraws into herself, if I or anybody pushes her into

participating or interacting then this horrible tantrum/melt down

nuculear reaction takes place...and she becomes a screaming puddle.

Is that descriptive enough??? Just getting home will be a

chalenge...if this happens and I highly suspect it will, the meeting

that they think will last two hours will be certainly cut short.

The evaluation would be done rather fast and nothing much gained

from it. I am sure others may know what this looks like. I pay

for it for three days, from past experience. I just dread this.

I also have possible " irrational " fears that they will blame me for

her conditon. We all have heard of the " refrigerator mom " being

blamed in the past. Before my son was diagnosed with Celiac...this

happened....my husband and I where blamed as being the " bad "

parents. Many assumed that it was all behavioral and that he just

needed disaplined better. Later to all learn that it is BIOMEDICAL

and related to ASD/ADHD and CELIAC DISEASE/injured intestines.

I have not had good experiences with doctors, therapists or

evaluators with my kids. Much anxiety...that I need to let go of.

This for sure will make her worse. She is a MIRROR of my emotions.

This in itself is strange how she will do this.

Thank you to those who are trying to help me sort this out,

Antoinette

>

> Look for an educational advocate in your area, ask other parents,

look in the phone book. Cancel the appointment and find someone who

can represent you on your behalf.

>

> Advocates will make sure you get what your child needs into the

IEP.

>

> After going through this process, I chose to withdraw my son, as

he was shutting down during the state paid therapy. However, at the

time, if I had an advocate on my side, I may have been able to get

the therapy and school environment situated more sastifactory.

>

> An advocate is a great idea for anyone going through or have

issues with the IEP process. It benefits the child and the parent,

and can help enable the needs of the child to be met by the state.

>

> Summer

>

>

> Hey fellow mom's and dad's,

>

> I just found out that Eight people are going to be in the

evaluators

> room on Tueday when the District Evaluates KiKi for Early

> Intervention Programs through the state. TWO hour evaluation with

an

> autistic 2 year old who is healing from celiac disease.

>

> Has anybody else had this number of people in the room??? Is she

a

> celeberty or " freak show " ? It is pissing me off a bit none the

> less. IT seems that everyone is interested in her AUTISM, and they

> have missed teh CHILD already and we are not even there.

>

> I have put call in to decrease this number of people, no one has

> returned my phone call yet. How do you advocate for your child

> when " well intentioned " people " gang " up on you with their opinons

> of what needs to be done and all their RED TAPE and protocol???

>

> I had origionaly asked for the elvaluation to take place in the

> home. Knowing her " special needs " and personality this in itself

> would have been a chalenge but not as bad. I was told unless she

> was medicaly fragile that they would not do this. I told them

that

> more than likely that although improved in last 2.5 months on

> special SCDiet, that she will Still SHUT DOWN (her way of

vanishing

> and coping with HIGH STRESS) if we try this out side the

home...and

> that this has happened before when we had her evaluated for

> before....they did not care.

>

> The Dan! said let them see her shut down and have her problem.

That

> they need to see it. I say this is a bunch of c*** because this

is

> not who she is in the home. And a two year old doesn't need to be

> woryying about the " real " world....autistic or not. There is time

> for this when she is older and more healed.

>

> I am ready to cancel the entire thing! But this could offer her

> state paid speech and other therapy. They even do horse therapy,

> and since she opens up with animals I thought this would be good

> fore her.....

>

> I feel a little upset right now. Do others have any experience

> strength and hope???

>

> If windy e-mail me personaly ajbunce@...

>

> Thanks ahead of time, Antoinette

>

> (mother of 2 year old KiKi/celiac/injured intestines that resulted

> in Autism)

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Kelli wrote: Kai was like that as well. Because he

was like that at the evaluation, he

got the diagnosis RIGHT away and granted services 2 days later. In many

ways, I went into the evaluation really advocating for his autism and the

strange environment and strange people aided in pulling out his autistic

behavior. I am glad it happened that way because a year later, he is very

close to recovery (thanks to SCD AND early intervention).

I also had 3 kids have and IEP. I was glad when the worst came out in the

meeting. It helped me get the most services for them. Pearl

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Antionette, it is scary to take your precious child, who you protect

and guard, into the hands of strangers who will do who-knows-what to

her. But these people have done many of these kinds of evaluations,

and you may find that they are prepared for your daughter's

sensitivities. Give them a chance. But also be prepared. Here are

some suggestions.

1. Contact your local Autism Society of America chapter to get

recommendaiton for an advocate. If you can't get an advocate, at

least take a good, level-headed friend. It's a good rule to never go

to an IFSP/IEP meeting along.

2. Having 8 people might not be so bad. It probably menas that they

are bringing a lot of specialists into the process to give your

daughter a more accurate and detailed diagnosis and make specific

recommendations for OT, ST, etc. We saw 3 doctors over 10 months

who each evaluated my son alone, but in a very cursory manner and

never gave him the most current and accurate tests that are supposed

to be used. They didn't catch his autism. When we finally got into

a university autism clinic, there were 16 people who participated in

the evaluation, and it was thorough, accurate, and detailed. I was

grateful for their thoroughness. I had suspected autism since 6

months of age and known since 16 months, but he wasn't officially

diagnosed til 22 months. In that final evaluation, he wasn't ever

confronted with all 8 people at one time, they watched from behind a

one-way mirror while one person at a time interacted with him. He

always had a parent in the room with him. The testers were very kind

and sensitive with him, it wasn't a bad experience for him at all.

He has always enjoyed new experiences and people, but my sense was

that if he had been upset, that the team would have handled it

gently and sensitively.

Go into the process with an open heart and a prepared mind, and be

ready to find that these people are on your side. If you find that

they aren't, you have every right to leave to protect your

daughter's sensitivity. The friend you take can help you evaluate

the situation and respond appropriately.

(Hugs). It will get easier over time and as your daughter grows up

and as you get more experience handling the " experts " . Always

remember that you are the expert on your daughter.

Suzanne

>

> Look for an educational advocate in your area, ask other parents,

look in the phone book. Cancel the appointment and find someone who

can represent you on your behalf.

>

> Advocates will make sure you get what your child needs into the

IEP.

>

> After going through this process, I chose to withdraw my son, as

he was shutting down during the state paid therapy. However, at the

time, if I had an advocate on my side, I may have been able to get

the therapy and school environment situated more sastifactory.

>

> An advocate is a great idea for anyone going through or have

issues with the IEP process. It benefits the child and the parent,

and can help enable the needs of the child to be met by the state.

>

> Summer

>

>

> Hey fellow mom's and dad's,

>

> I just found out that Eight people are going to be in the

evaluators

> room on Tueday when the District Evaluates KiKi for Early

> Intervention Programs through the state. TWO hour evaluation with

an

> autistic 2 year old who is healing from celiac disease.

>

> Has anybody else had this number of people in the room??? Is she

a

> celeberty or " freak show " ? It is pissing me off a bit none the

> less. IT seems that everyone is interested in her AUTISM, and they

> have missed teh CHILD already and we are not even there.

>

> I have put call in to decrease this number of people, no one has

> returned my phone call yet. How do you advocate for your child

> when " well intentioned " people " gang " up on you with their opinons

> of what needs to be done and all their RED TAPE and protocol???

>

> I had origionaly asked for the elvaluation to take place in the

> home. Knowing her " special needs " and personality this in itself

> would have been a chalenge but not as bad. I was told unless she

> was medicaly fragile that they would not do this. I told them

that

> more than likely that although improved in last 2.5 months on

> special SCDiet, that she will Still SHUT DOWN (her way of

vanishing

> and coping with HIGH STRESS) if we try this out side the

home...and

> that this has happened before when we had her evaluated for

> before....they did not care.

>

> The Dan! said let them see her shut down and have her problem.

That

> they need to see it. I say this is a bunch of c*** because this

is

> not who she is in the home. And a two year old doesn't need to be

> woryying about the " real " world....autistic or not. There is time

> for this when she is older and more healed.

>

> I am ready to cancel the entire thing! But this could offer her

> state paid speech and other therapy. They even do horse therapy,

> and since she opens up with animals I thought this would be good

> fore her.....

>

> I feel a little upset right now. Do others have any experience

> strength and hope???

>

> If windy e-mail me personaly ajbunce@...

>

> Thanks ahead of time, Antoinette

>

> (mother of 2 year old KiKi/celiac/injured intestines that resulted

> in Autism)

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>