Re: DAN /WAS - Reaction to water in swimming pool?

May 17, 2006

Does insurance cover DAN docs? I have to admit I have been thinking

of doing something like this. It is so overwhelming though. Our

oldest son is a quad. I am his one and only aid. I know, I know we

need to get someone else to help. Been down that road. If we could

find someone that resembled sane, clean and compitent I would hire

in a blink. We spend bucko bucks advertizing and .......it gets

very frustrating.

We made 3 major trips in 13 months last year and the last almost

killed me. I am not kidding. Motel rooms that you have spent hrs

and hrs getting reservations for and then you get there. Oh, that

room does not have a role in shower I thought you could just

transfer him to a chair in the tub. Well he is 6' and weighs 210#

and we do not transfer to anything we don't have to.

At any rate I just need to really pray for the Lords leading in

this. We also have the whole SCD now to consider. We do ok for a

day going to town or what ever but to go for 3 or 4 days...... I

know many of you have done it but once again my brain is having

trouble wrapping around this.

I know that I need some help figuring all of this out but have not

made the move to do anything major about it.

I talked to my husband about backing up with SCD and doing the intro

which we did not do at the beginning. Non of us have had diarea,

h has always been constipated but that has gotten much better

with SCD.

I guess the other is the money to travel with. It takes two rooms

for us and it is never in a cheap motel.

Well, enough of my sob story, sorry.

Sandy M.

>

> Hi Sandy;

>

> Most DAN docs will do phone consults for patients that live far

away. This is what I do for my 3 yo. We only had to go for the

initial consult, and now we consult every 2 weeks by phone with our

DAN. It is quite expensive though :-(

>

> If you check out the Autism Research Institute site there is a

link to DAN docs who practice across the globe.

www.autismwebsite.com/ari/index.htm

>

> Kim :-)

>

> Re: Reaction to water in swimming pool?

>

> As I said before we do not have a DAN Dr available. I would

love to

> have that kind of support but it isn't there.

> Sandy M.

>

May 18, 2006

Hi Sandy.

Don't apologize for sharing your sad story. We all feel overwhelmed by life

often and need an outlet.

I live in NY, on Long Island, and my health insurance does cover my DAN doctor

visits, but I suspect that more often than not, insurance doesn't. My insurance

doen't cover the B-12 shots, but I remember a post where the shots were covered,

so the moral is that some DAN docs are covered.

Our DAN doc is an allergist/immunologist and participates in my plan, so visits

are covered. Check your plan for this specialty and call them all to see if

they are DAN doctors and ask if the visits are covered. Some plans let you go

out of network and you pay some of the cost only.

As for getting help for your oldest son, do you live near any hospitals or

universities? You may be able to post a free ad in those places where grad

students or health care workers may see them. Also, you may qualify for help

from the county or state you live in. Try calling your local town or sounty

government offices or social services dept. This may be free and qualified help.

Also, if your insurance doesn't cover DAN docs, sometimes another plan might, so

if you are in a situation where you can change your insurance plan (some

employers offer this open window opportunity once a year) you may want to

research if another available plan does have such coverage.

Hope this helps. Good Luck.

Tracey, mom of Clay, 4 Autism SCD 9 mos

Re: Reaction to water in swimming pool?

>

> As I said before we do not have a DAN Dr available. I would

love to

> have that kind of support but it isn't there.

> Sandy M.

>

May 18, 2006

Hi Sandy;

I'm sorry to hear how awful travelling is for you and your family. No Mommy

should have to deal with that :-(

I'm wondering if there is a DAN who would make an exception as far as having an

initial consultation in office? Maybe if you call and explain your situation -

what is involved for overnight travel - he/she might be willing to forgo an in

person consult.

I live in Canada and our health systems differ. I don't know whether DAN doc

visits are covered - perhaps it depends on your personal health insurance plan?

I know our visits are not covered :-(