Gwen, Here are your answers to your interview.

[Guest guest]

Dear Gwen and to all who show curiosity,

I will answer the questions after they are made:

>

>I am wondering why you are feeling the need to be so adamant in

your proclamation of this diet and its benefits?

Answer: After personaly suffering for 38 years and slipping through

the cracks miserably for close to four decades. I personaly know

what it is like to be some of these kids. For my own experience,

pain is not always heard or interpreted correctly. We suffer with

parents trying what they think is best for us...but sometimes

continue to suffer all the same. Good intentions are not always

enough.....pain does not care.

Are you feeling frustrated with others on this list because of your

need to follow the healthiest path is not being met?

Answer: I trusted those who suggested enzymes (it was not just

those on this serve). We put KiKi and myself into a " celiac " crises

thanks to protease. Since I didn't know better, I am at fault as

much as anybody. Caused a set back that we did not need in the

beggining of our SCD journey. And then when I talk to " old timers "

who knew Elaine, find out that she did not trust the use of

chelation and certain enzymes with those with severely damaged

intestines. That even GAPS warns about the same thing. That some

supplements can caused irritation to an already damaged gut and

cause set serious set backs that keep SCDiet from working.

Answer: Would it help to hear support for your ideas? No, I get much

support and validation from my reading and seeing my family finnaly

get better for the first time.

Is your need for support not being met because you feel that your

ideas are being challenged?

Answer: I am often told that everybody is unique and that I need to

respect this...and am truly trying to do so. But those who suggest

enzymes and chelation to new comers are forgetting their own

suggestion. I know I was once " new " . Some of these treatments are

TRULY dangerous for some of us here. We should not assume that they

are not. And to blindly suggest to new commer about some of these

supplements is careless. Again this is from our own experience of

it blowing up in our face. Like I am always being told: It is not

a " one size fits all " picture.....this means for all of us. Maybe

warning should go out with such suggestions, so they are not lead

blindly into possibly making their child sicker. Which was are

experience. Again the GAPS book gives such warnings.

Are you feeling scared because your need to help others heal is

challenged when you hear some conflicting notions about healing on

this forum?

Answer: I feel sad in side because I feel that some are not having

success because they chalenge the SCDiet by adding to many factors

and complicate things to the point where it may not work as

well...if at all. Again GAPS book talks about this.

Would it help to hear others commend your efforts to communicate the

effectiveness of SCD and to give you credit for all the immense

amount of research you have done?

Answer: No, I get much validation from Dr. Scot Lewey D.O. when he

recommends a patient to me to help. And I see my family heal for

the first time.

>

> I'm wondering also if you are feeling stressed because of all

the years you have spent trying to find a cure for you and your

family. And now that you have, it feels frustrating to hear others

doubting or questioning if SCD is the only way?

Answer: Yes....I do my best to let go of things that are out of my

control. This very thing frustrated Elaine too. She too got sad

and needed boosted up by her friends and family. I hate to see

children suffering.

I feel that you are waiting to breathe a big sigh of relief.

Reply: We are...and thank God it is working. So many

improvements. I can not wait for a year from now. I look forward

to getting my muscles back and seeing my kids become healthier than

the neighbors.

You have found what works for you and your family, but now you have

this altruistic need to help others who are suffering from ailments

similar to yours. After reading through the many posts to you, I

can't help think you are feeling attacked because your need for

support and comaraderie is not being met here on Pecanbread?

Answer: I don't feel " attacked " I feel that I am being " scoffed " at

and " judged " , because " just " SCD with minimal additions is working

so well for us. Everytime I share this some one commits sarcasticly

to me that I am nieve and that SCD alone is not enough. I get

personal e-mails from others saying that we need to buy this, do

this, and add this...or we are gonners. The three books I read,

BTVC, Dr. Haas and now GAPS say differently. I try to trust what is

working....thanks to not having much money....this is good. I am

not tempted to get sucked into " sucker scams " and " sucker traps " ,

that prey upon us desperate parents with ASD kids.

Would some validation, support and empathy around your own ailments

feel good?

Answer: No, I get plenty from those who know me in person....it

would be nice to not always be scoffed at because SCD alone (with

only minimal additions that Elaine did not mention in her BTVC book)

is working for us. I am learning how to move on these days from a

life of literal h***.

>

>Reply: I do feel the need to spread the good word about SCD and

sometimes I do feel that this site is leading people astray. I have

already helped over a dozen suffering Celiac's that come to me from

the CSA-USA....one man was going to have part of his colon removed,

as a result to damage was becoming mentaly ill ...he heals now with

only using fanatical adherance....just like countless before

him...and us.

I am kinda frustrated to not find the concrete, fanatical support of

the diet that WE had hoped to find. I was told that other SCD list

serves may be more appropriate. I have thought of experimenting

with them....but none know about the ASD thing like this one. I have

become friends wiht the moderators and don't want to leave. But

mostly stay to help the new commer in need...so that they are not

lead astray or given " bad " advice with good intentions that keep

their kids sicker for longer (like what happened to us).

>

> Gwen, this did help to answer these questions. You are right,

we have been through so much. More than you guys even know...more

than I would want to share. THis is why I write my book. I truly

would rather die than to see my children suffer like I have. You

are right when you say: " You obviously don't want their lives to

repeat your own ailments. I'm so happy for you that SCD has been the

answer you have been looking for. It must be a relief to find such

a remedy. To see it actually work in such a short time period must

be such a joyous experience for you. "

We are so much happeir now...and still have a ways to go. I only

wish that others could have this success. But realize that this is

where I have to have acceptance of those things that I am powerless

over. SCD is not for everybody. We all have our own journeys and

experiences that need to be learned. I was not ready 15 months ago

for SCD....I know. I too thought Ihad it all figured out until I

realized that the answer was right in front of me. Sadly to say

this is not everybodies answer though....acceptance is the answer to

all my problems.....

Sincerly Antoinette and her Silly Yaks at the Zoo!

(family of five SCd finnaly healing from celiac/malabsorption/leaky

gut that cuased us all to perish to mere existance at times.....and

caused ASD problems in most all of us....we are truly a " rain

family " ..but now recover thanks to this wonderful solution.)

>

>

[Guest guest]

Maybe you could just limit your posts warning about enzymes to once a week

Antoinette. That way newcomers will get that message regularly and the rest

of us who have been on this list for awhile and plan to be on it awhile

longer won't get sick of hearing it over and over. Think that might be

doable for you? Anyone else on the list OK with that?

Kerri

Gwen, Here are your answers to your interview.

> Dear Gwen and to all who show curiosity,

>

> I will answer the questions after they are made:

>>

>>I am wondering why you are feeling the need to be so adamant in

> your proclamation of this diet and its benefits?

>

> Answer: After personaly suffering for 38 years and slipping through

> the cracks miserably for close to four decades. I personaly know

> what it is like to be some of these kids. For my own experience,

> pain is not always heard or interpreted correctly. We suffer with

> parents trying what they think is best for us...but sometimes

> continue to suffer all the same. Good intentions are not always

> enough.....pain does not care.

>

>

>

> Are you feeling frustrated with others on this list because of your

> need to follow the healthiest path is not being met?

>

> Answer: I trusted those who suggested enzymes (it was not just

> those on this serve). We put KiKi and myself into a " celiac " crises

> thanks to protease. Since I didn't know better, I am at fault as

> much as anybody. Caused a set back that we did not need in the

> beggining of our SCD journey. And then when I talk to " old timers "

> who knew Elaine, find out that she did not trust the use of

> chelation and certain enzymes with those with severely damaged

> intestines. That even GAPS warns about the same thing. That some

> supplements can caused irritation to an already damaged gut and

> cause set serious set backs that keep SCDiet from working.

>

> Answer: Would it help to hear support for your ideas? No, I get much

> support and validation from my reading and seeing my family finnaly

> get better for the first time.

>

> Is your need for support not being met because you feel that your

> ideas are being challenged?

>

> Answer: I am often told that everybody is unique and that I need to

> respect this...and am truly trying to do so. But those who suggest

> enzymes and chelation to new comers are forgetting their own

> suggestion. I know I was once " new " . Some of these treatments are

> TRULY dangerous for some of us here. We should not assume that they

> are not. And to blindly suggest to new commer about some of these

> supplements is careless. Again this is from our own experience of

> it blowing up in our face. Like I am always being told: It is not

> a " one size fits all " picture.....this means for all of us. Maybe

> warning should go out with such suggestions, so they are not lead

> blindly into possibly making their child sicker. Which was are

> experience. Again the GAPS book gives such warnings.

>

>

>

> Are you feeling scared because your need to help others heal is

> challenged when you hear some conflicting notions about healing on

> this forum?

>

> Answer: I feel sad in side because I feel that some are not having

> success because they chalenge the SCDiet by adding to many factors

> and complicate things to the point where it may not work as

> well...if at all. Again GAPS book talks about this.

>

>

> Would it help to hear others commend your efforts to communicate the

> effectiveness of SCD and to give you credit for all the immense

> amount of research you have done?

>

> Answer: No, I get much validation from Dr. Scot Lewey D.O. when he

> recommends a patient to me to help. And I see my family heal for

> the first time.

>>

>> I'm wondering also if you are feeling stressed because of all

> the years you have spent trying to find a cure for you and your

> family. And now that you have, it feels frustrating to hear others

> doubting or questioning if SCD is the only way?

>

> Answer: Yes....I do my best to let go of things that are out of my

> control. This very thing frustrated Elaine too. She too got sad

> and needed boosted up by her friends and family. I hate to see

> children suffering.

>

>

> I feel that you are waiting to breathe a big sigh of relief.

>

> Reply: We are...and thank God it is working. So many

> improvements. I can not wait for a year from now. I look forward

> to getting my muscles back and seeing my kids become healthier than

> the neighbors.

>

> You have found what works for you and your family, but now you have

> this altruistic need to help others who are suffering from ailments

> similar to yours. After reading through the many posts to you, I

> can't help think you are feeling attacked because your need for

> support and comaraderie is not being met here on Pecanbread?

>

> Answer: I don't feel " attacked " I feel that I am being " scoffed " at

> and " judged " , because " just " SCD with minimal additions is working

> so well for us. Everytime I share this some one commits sarcasticly

> to me that I am nieve and that SCD alone is not enough. I get

> personal e-mails from others saying that we need to buy this, do

> this, and add this...or we are gonners. The three books I read,

> BTVC, Dr. Haas and now GAPS say differently. I try to trust what is

> working....thanks to not having much money....this is good. I am

> not tempted to get sucked into " sucker scams " and " sucker traps " ,

> that prey upon us desperate parents with ASD kids.

>

>

> Would some validation, support and empathy around your own ailments

> feel good?

>

> Answer: No, I get plenty from those who know me in person....it

> would be nice to not always be scoffed at because SCD alone (with

> only minimal additions that Elaine did not mention in her BTVC book)

> is working for us. I am learning how to move on these days from a

> life of literal h***.

>>

>>Reply: I do feel the need to spread the good word about SCD and

> sometimes I do feel that this site is leading people astray. I have

> already helped over a dozen suffering Celiac's that come to me from

> the CSA-USA....one man was going to have part of his colon removed,

> as a result to damage was becoming mentaly ill ...he heals now with

> only using fanatical adherance....just like countless before

> him...and us.

>

>

>

> I am kinda frustrated to not find the concrete, fanatical support of

> the diet that WE had hoped to find. I was told that other SCD list

> serves may be more appropriate. I have thought of experimenting

> with them....but none know about the ASD thing like this one. I have

> become friends wiht the moderators and don't want to leave. But

> mostly stay to help the new commer in need...so that they are not

> lead astray or given " bad " advice with good intentions that keep

> their kids sicker for longer (like what happened to us).

>>

>> Gwen, this did help to answer these questions. You are right,

> we have been through so much. More than you guys even know...more

> than I would want to share. THis is why I write my book. I truly

> would rather die than to see my children suffer like I have. You

> are right when you say: " You obviously don't want their lives to

> repeat your own ailments. I'm so happy for you that SCD has been the

> answer you have been looking for. It must be a relief to find such

> a remedy. To see it actually work in such a short time period must

> be such a joyous experience for you. "

>

> We are so much happeir now...and still have a ways to go. I only

> wish that others could have this success. But realize that this is

> where I have to have acceptance of those things that I am powerless

> over. SCD is not for everybody. We all have our own journeys and

> experiences that need to be learned. I was not ready 15 months ago

> for SCD....I know. I too thought Ihad it all figured out until I

> realized that the answer was right in front of me. Sadly to say

> this is not everybodies answer though....acceptance is the answer to

> all my problems.....

>

> Sincerly Antoinette and her Silly Yaks at the Zoo!

>

> (family of five SCd finnaly healing from celiac/malabsorption/leaky

> gut that cuased us all to perish to mere existance at times.....and

> caused ASD problems in most all of us....we are truly a " rain

> family " ..but now recover thanks to this wonderful solution.)

>

>

>

>

>>

>>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

If your child was going to be hit by a truck would you not want the

neighbor to warn you? Once a week may not cut it....they may be

missed and not have success with SCD because of it.

IF you don't like my posts about " fanatical adhearance " to SCD,

PLEASE avoid them. OR go to a list serve that talks about enzymes.

I think P has started on called " Open Blooms " .

Thanks Antoinette

>

> Maybe you could just limit your posts warning about enzymes to

once a week

> Antoinette. That way newcomers will get that message regularly and

the rest

> of us who have been on this list for awhile and plan to be on it

awhile

> longer won't get sick of hearing it over and over. Think that

might be

> doable for you? Anyone else on the list OK with that?

> Kerri

> Gwen, Here are your answers to your

interview.

>

>

> > Dear Gwen and to all who show curiosity,

> >

> > I will answer the questions after they are made:

> >>

> >>I am wondering why you are feeling the need to be so adamant in

> > your proclamation of this diet and its benefits?

> >

> > Answer: After personaly suffering for 38 years and slipping

through

> > the cracks miserably for close to four decades. I personaly know

> > what it is like to be some of these kids. For my own experience,

> > pain is not always heard or interpreted correctly. We suffer

with

> > parents trying what they think is best for us...but sometimes

> > continue to suffer all the same. Good intentions are not always

> > enough.....pain does not care.

> >

> >

> >

> > Are you feeling frustrated with others on this list because of

your

> > need to follow the healthiest path is not being met?

> >

> > Answer: I trusted those who suggested enzymes (it was not just

> > those on this serve). We put KiKi and myself into a " celiac "

crises

> > thanks to protease. Since I didn't know better, I am at fault as

> > much as anybody. Caused a set back that we did not need in the

> > beggining of our SCD journey. And then when I talk to " old

timers "

> > who knew Elaine, find out that she did not trust the use of

> > chelation and certain enzymes with those with severely damaged

> > intestines. That even GAPS warns about the same thing. That

some

> > supplements can caused irritation to an already damaged gut and

> > cause set serious set backs that keep SCDiet from working.

> >

> > Answer: Would it help to hear support for your ideas? No, I get

much

> > support and validation from my reading and seeing my family

finnaly

> > get better for the first time.

> >

> > Is your need for support not being met because you feel that your

> > ideas are being challenged?

> >

> > Answer: I am often told that everybody is unique and that I

need to

> > respect this...and am truly trying to do so. But those who

suggest

> > enzymes and chelation to new comers are forgetting their own

> > suggestion. I know I was once " new " . Some of these treatments

are

> > TRULY dangerous for some of us here. We should not assume that

they

> > are not. And to blindly suggest to new commer about some of

these

> > supplements is careless. Again this is from our own experience

of

> > it blowing up in our face. Like I am always being told: It is

not

> > a " one size fits all " picture.....this means for all of us.

Maybe

> > warning should go out with such suggestions, so they are not lead

> > blindly into possibly making their child sicker. Which was are

> > experience. Again the GAPS book gives such warnings.

> >

> >

> >

> > Are you feeling scared because your need to help others heal is

> > challenged when you hear some conflicting notions about healing

on

> > this forum?

> >

> > Answer: I feel sad in side because I feel that some are not

having

> > success because they chalenge the SCDiet by adding to many

factors

> > and complicate things to the point where it may not work as

> > well...if at all. Again GAPS book talks about this.

> >

> >

> > Would it help to hear others commend your efforts to communicate

the

> > effectiveness of SCD and to give you credit for all the immense

> > amount of research you have done?

> >

> > Answer: No, I get much validation from Dr. Scot Lewey D.O. when

he

> > recommends a patient to me to help. And I see my family heal for

> > the first time.

> >>

> >> I'm wondering also if you are feeling stressed because of all

> > the years you have spent trying to find a cure for you and your

> > family. And now that you have, it feels frustrating to hear

others

> > doubting or questioning if SCD is the only way?

> >

> > Answer: Yes....I do my best to let go of things that are out of

my

> > control. This very thing frustrated Elaine too. She too got sad

> > and needed boosted up by her friends and family. I hate to see

> > children suffering.

> >

> >

> > I feel that you are waiting to breathe a big sigh of relief.

> >

> > Reply: We are...and thank God it is working. So many

> > improvements. I can not wait for a year from now. I look

forward

> > to getting my muscles back and seeing my kids become healthier

than

> > the neighbors.

> >

> > You have found what works for you and your family, but now you

have

> > this altruistic need to help others who are suffering from

ailments

> > similar to yours. After reading through the many posts to you, I

> > can't help think you are feeling attacked because your need for

> > support and comaraderie is not being met here on Pecanbread?

> >

> > Answer: I don't feel " attacked " I feel that I am

being " scoffed " at

> > and " judged " , because " just " SCD with minimal additions is

working

> > so well for us. Everytime I share this some one commits

sarcasticly

> > to me that I am nieve and that SCD alone is not enough. I get

> > personal e-mails from others saying that we need to buy this, do

> > this, and add this...or we are gonners. The three books I read,

> > BTVC, Dr. Haas and now GAPS say differently. I try to trust

what is

> > working....thanks to not having much money....this is good. I am

> > not tempted to get sucked into " sucker scams " and " sucker traps " ,

> > that prey upon us desperate parents with ASD kids.

> >

> >

> > Would some validation, support and empathy around your own

ailments

> > feel good?

> >

> > Answer: No, I get plenty from those who know me in person....it

> > would be nice to not always be scoffed at because SCD alone (with

> > only minimal additions that Elaine did not mention in her BTVC

book)

> > is working for us. I am learning how to move on these days from

a

> > life of literal h***.

> >>

> >>Reply: I do feel the need to spread the good word about SCD and

> > sometimes I do feel that this site is leading people astray. I

have

> > already helped over a dozen suffering Celiac's that come to me

from

> > the CSA-USA....one man was going to have part of his colon

removed,

> > as a result to damage was becoming mentaly ill ...he heals now

with

> > only using fanatical adherance....just like countless before

> > him...and us.

> >

> >

> >

> > I am kinda frustrated to not find the concrete, fanatical

support of

> > the diet that WE had hoped to find. I was told that other SCD

list

> > serves may be more appropriate. I have thought of experimenting

> > with them....but none know about the ASD thing like this one. I

have

> > become friends wiht the moderators and don't want to leave. But

> > mostly stay to help the new commer in need...so that they are not

> > lead astray or given " bad " advice with good intentions that keep

> > their kids sicker for longer (like what happened to us).

> >>

> >> Gwen, this did help to answer these questions. You are right,

> > we have been through so much. More than you guys even

know...more

> > than I would want to share. THis is why I write my book. I

truly

> > would rather die than to see my children suffer like I have. You

> > are right when you say: " You obviously don't want their lives to

> > repeat your own ailments. I'm so happy for you that SCD has been

the

> > answer you have been looking for. It must be a relief to find

such

> > a remedy. To see it actually work in such a short time period

must

> > be such a joyous experience for you. "

> >

> > We are so much happeir now...and still have a ways to go. I only

> > wish that others could have this success. But realize that this

is

> > where I have to have acceptance of those things that I am

powerless

> > over. SCD is not for everybody. We all have our own journeys

and

> > experiences that need to be learned. I was not ready 15 months

ago

> > for SCD....I know. I too thought Ihad it all figured out until I

> > realized that the answer was right in front of me. Sadly to say

> > this is not everybodies answer though....acceptance is the

answer to

> > all my problems.....

> >

> > Sincerly Antoinette and her Silly Yaks at the Zoo!

> >

> > (family of five SCd finnaly healing from

celiac/malabsorption/leaky

> > gut that cuased us all to perish to mere existance at

times.....and

> > caused ASD problems in most all of us....we are truly a " rain

> > family " ..but now recover thanks to this wonderful solution.)

> >

> >

> >

> >

> >>

> >>

> >

> >

> >

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read

the book

> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following

> > websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

[Guest guest]

Just to be clear my list Open Blooms is not just about enzymes, it is about

a wide range of healing methods different people might have used or tried to

help support an scd base diet. It is open to everyone and a place to learn,

research, ask question and find what works best for us.

It is absolutly truck free and as long as you obey common traffic laws I

promise there will be no hit and run incidents.

Thanks,

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Re: Gwen, Here are your answers to your interview.

>Date: Fri, 19 May 2006 23:57:57 -0000

>

>If your child was going to be hit by a truck would you not want the

>neighbor to warn you? Once a week may not cut it....they may be

>missed and not have success with SCD because of it.

>

>IF you don't like my posts about " fanatical adhearance " to SCD,

>PLEASE avoid them. OR go to a list serve that talks about enzymes.

>I think P has started on called " Open Blooms " .

>

>Thanks Antoinette

>

>

> >

> > Maybe you could just limit your posts warning about enzymes to

>once a week

> > Antoinette. That way newcomers will get that message regularly and

>the rest

> > of us who have been on this list for awhile and plan to be on it

>awhile

> > longer won't get sick of hearing it over and over. Think that

>might be

> > doable for you? Anyone else on the list OK with that?

> > Kerri

> > Gwen, Here are your answers to your

>interview.

> >

> >

> > > Dear Gwen and to all who show curiosity,

> > >

> > > I will answer the questions after they are made:

> > >>

> > >>I am wondering why you are feeling the need to be so adamant in

> > > your proclamation of this diet and its benefits?

> > >

> > > Answer: After personaly suffering for 38 years and slipping

>through

> > > the cracks miserably for close to four decades. I personaly know

> > > what it is like to be some of these kids. For my own experience,

> > > pain is not always heard or interpreted correctly. We suffer

>with

> > > parents trying what they think is best for us...but sometimes

> > > continue to suffer all the same. Good intentions are not always

> > > enough.....pain does not care.

> > >

> > >

> > >

> > > Are you feeling frustrated with others on this list because of

>your

> > > need to follow the healthiest path is not being met?

> > >

> > > Answer: I trusted those who suggested enzymes (it was not just

> > > those on this serve). We put KiKi and myself into a " celiac "

>crises

> > > thanks to protease. Since I didn't know better, I am at fault as

> > > much as anybody. Caused a set back that we did not need in the

> > > beggining of our SCD journey. And then when I talk to " old

>timers "

> > > who knew Elaine, find out that she did not trust the use of

> > > chelation and certain enzymes with those with severely damaged

> > > intestines. That even GAPS warns about the same thing. That

>some

> > > supplements can caused irritation to an already damaged gut and

> > > cause set serious set backs that keep SCDiet from working.

> > >

> > > Answer: Would it help to hear support for your ideas? No, I get

>much

> > > support and validation from my reading and seeing my family

>finnaly

> > > get better for the first time.

> > >

> > > Is your need for support not being met because you feel that your

> > > ideas are being challenged?

> > >

> > > Answer: I am often told that everybody is unique and that I

>need to

> > > respect this...and am truly trying to do so. But those who

>suggest

> > > enzymes and chelation to new comers are forgetting their own

> > > suggestion. I know I was once " new " . Some of these treatments

>are

> > > TRULY dangerous for some of us here. We should not assume that

>they

> > > are not. And to blindly suggest to new commer about some of

>these

> > > supplements is careless. Again this is from our own experience

>of

> > > it blowing up in our face. Like I am always being told: It is

>not

> > > a " one size fits all " picture.....this means for all of us.

>Maybe

> > > warning should go out with such suggestions, so they are not lead

> > > blindly into possibly making their child sicker. Which was are

> > > experience. Again the GAPS book gives such warnings.

> > >

> > >

> > >

> > > Are you feeling scared because your need to help others heal is

> > > challenged when you hear some conflicting notions about healing

>on

> > > this forum?

> > >

> > > Answer: I feel sad in side because I feel that some are not

>having

> > > success because they chalenge the SCDiet by adding to many

>factors

> > > and complicate things to the point where it may not work as

> > > well...if at all. Again GAPS book talks about this.

> > >

> > >

> > > Would it help to hear others commend your efforts to communicate

>the

> > > effectiveness of SCD and to give you credit for all the immense

> > > amount of research you have done?

> > >

> > > Answer: No, I get much validation from Dr. Scot Lewey D.O. when

>he

> > > recommends a patient to me to help. And I see my family heal for

> > > the first time.

> > >>

> > >> I'm wondering also if you are feeling stressed because of all

> > > the years you have spent trying to find a cure for you and your

> > > family. And now that you have, it feels frustrating to hear

>others

> > > doubting or questioning if SCD is the only way?

> > >

> > > Answer: Yes....I do my best to let go of things that are out of

>my

> > > control. This very thing frustrated Elaine too. She too got sad

> > > and needed boosted up by her friends and family. I hate to see

> > > children suffering.

> > >

> > >

> > > I feel that you are waiting to breathe a big sigh of relief.

> > >

> > > Reply: We are...and thank God it is working. So many

> > > improvements. I can not wait for a year from now. I look

>forward

> > > to getting my muscles back and seeing my kids become healthier

>than

> > > the neighbors.

> > >

> > > You have found what works for you and your family, but now you

>have

> > > this altruistic need to help others who are suffering from

>ailments

> > > similar to yours. After reading through the many posts to you, I

> > > can't help think you are feeling attacked because your need for

> > > support and comaraderie is not being met here on Pecanbread?

> > >

> > > Answer: I don't feel " attacked " I feel that I am

>being " scoffed " at

> > > and " judged " , because " just " SCD with minimal additions is

>working

> > > so well for us. Everytime I share this some one commits

>sarcasticly

> > > to me that I am nieve and that SCD alone is not enough. I get

> > > personal e-mails from others saying that we need to buy this, do

> > > this, and add this...or we are gonners. The three books I read,

> > > BTVC, Dr. Haas and now GAPS say differently. I try to trust

>what is

> > > working....thanks to not having much money....this is good. I am

> > > not tempted to get sucked into " sucker scams " and " sucker traps " ,

> > > that prey upon us desperate parents with ASD kids.

> > >

> > >

> > > Would some validation, support and empathy around your own

>ailments

> > > feel good?

> > >

> > > Answer: No, I get plenty from those who know me in person....it

> > > would be nice to not always be scoffed at because SCD alone (with

> > > only minimal additions that Elaine did not mention in her BTVC

>book)

> > > is working for us. I am learning how to move on these days from

>a

> > > life of literal h***.

> > >>

> > >>Reply: I do feel the need to spread the good word about SCD and

> > > sometimes I do feel that this site is leading people astray. I

>have

> > > already helped over a dozen suffering Celiac's that come to me

>from

> > > the CSA-USA....one man was going to have part of his colon

>removed,

> > > as a result to damage was becoming mentaly ill ...he heals now

>with

> > > only using fanatical adherance....just like countless before

> > > him...and us.

> > >

> > >

> > >

> > > I am kinda frustrated to not find the concrete, fanatical

>support of

> > > the diet that WE had hoped to find. I was told that other SCD

>list

> > > serves may be more appropriate. I have thought of experimenting

> > > with them....but none know about the ASD thing like this one. I

>have

> > > become friends wiht the moderators and don't want to leave. But

> > > mostly stay to help the new commer in need...so that they are not

> > > lead astray or given " bad " advice with good intentions that keep

> > > their kids sicker for longer (like what happened to us).

> > >>

> > >> Gwen, this did help to answer these questions. You are right,

> > > we have been through so much. More than you guys even

>know...more

> > > than I would want to share. THis is why I write my book. I

>truly

> > > would rather die than to see my children suffer like I have. You

> > > are right when you say: " You obviously don't want their lives to

> > > repeat your own ailments. I'm so happy for you that SCD has been

>the

> > > answer you have been looking for. It must be a relief to find

>such

> > > a remedy. To see it actually work in such a short time period

>must

> > > be such a joyous experience for you. "

> > >

> > > We are so much happeir now...and still have a ways to go. I only

> > > wish that others could have this success. But realize that this

>is

> > > where I have to have acceptance of those things that I am

>powerless

> > > over. SCD is not for everybody. We all have our own journeys

>and

> > > experiences that need to be learned. I was not ready 15 months

>ago

> > > for SCD....I know. I too thought Ihad it all figured out until I

> > > realized that the answer was right in front of me. Sadly to say

> > > this is not everybodies answer though....acceptance is the

>answer to

> > > all my problems.....

> > >

> > > Sincerly Antoinette and her Silly Yaks at the Zoo!

> > >

> > > (family of five SCd finnaly healing from

>celiac/malabsorption/leaky

> > > gut that cuased us all to perish to mere existance at

>times.....and

> > > caused ASD problems in most all of us....we are truly a " rain

> > > family " ..but now recover thanks to this wonderful solution.)

> > >

> > >

> > >

> > >

> > >>

> > >>

> > >

> > >

> > >

> > >

> > >

> > >

> > > For information on the Specific Carbohydrate Diet, please read

>the book

> > > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

>following

> > > websites:

> > > http://www.breakingtheviciouscycle.info

> > > and

> > > http://www.pecanbread.com

> > >

> > >

[Guest guest]

Antoinette,

I am glad that my post to you was of some help.

" Answer: After personaly suffering for 38 years and slipping through

the cracks miserably for close to four decades. I personaly know

what it is like to be some of these kids. For my own experience,

pain is not always heard or interpreted correctly. We suffer with

parents trying what they think is best for us...but sometimes

continue to suffer all the same. Good intentions are not always

enough.....pain does not care. "

It is obvious that you feel so much empathy for the children on this forum and

for others who are suffering from dibilatating diseases of the gut. Do you feel

that these people could so benefit from this answer that you have found? I hear

that you feel that you have suffered at the hands of wrong anwers, diagnoses and

invasive diagnostic tools. I think it helps us all to hear this story, as most

of us have a need to connect and to empathize; to see where the other person is

coming from.

" Answer: I trusted those who suggested enzymes (it was not just

those on this serve). We put KiKi and myself into a " celiac " crises

thanks to protease. Since I didn't know better, I am at fault as

much as anybody. Caused a set back that we did not need in the

beggining of our SCD journey. And then when I talk to " old timers "

who knew Elaine, find out that she did not trust the use of

chelation and certain enzymes with those with severely damaged

intestines. That even GAPS warns about the same thing. That some

supplements can caused irritation to an already damaged gut and

cause set serious set backs that keep SCDiet from working. "

Do you feel slighted by this forum because some of the suggestions had ill

affects for you and your family? Do you worry that this recommendations will

hurt others too, but that others will not recognize that it is those

recommendations that are causing the set backs in health? Do you feel that this

forum doesn't address the concerns of chelation and enzymes? That is, that

enzymes, chelation and other supplements can be detrimental to some people.

" No, I get much

support and validation from my reading and seeing my family finnaly

get better for the first time. "

I'm happy that you are feeling validated and supported. It is an important

need of my own to feel these things. I also have a need to feel that I'm

supported in what ever choices that I make for my family's health whether it

differs from others or is the same.

" Answer: I am often told that everybody is unique and that I need to

respect this...and am truly trying to do so. But those who suggest

enzymes and chelation to new comers are forgetting their own

suggestion. I know I was once " new " . Some of these treatments are

TRULY dangerous for some of us here. We should not assume that they

are not. And to blindly suggest to new commer about some of these

supplements is careless. "

It sounds like you are scared that new-comers are ill advised and that they

come to this forum looking for SCD legal information. You must feel that people

are getting confused and are possibly getting information that could potentially

hurt them. You also sound like you feel that new comers should be treated with

the utmost care. If this were true, I could see how that attitude would meet

your need to protect others and to heal others.

" Answer: I feel sad in side because I feel that some are not having

success because they chalenge the SCDiet by adding to many factors

and complicate things to the point where it may not work as

well...if at all. Again GAPS book talks about this. "

" Answer: I don't feel " attacked " I feel that I am being " scoffed " at

and " judged " , because " just " SCD with minimal additions is working

so well for us. Everytime I share this some one commits sarcasticly

to me that I am nieve and that SCD alone is not enough. I get

personal e-mails from others saying that we need to buy this, do

this, and add this...or we are gonners. The three books I read,

BTVC, Dr. Haas and now GAPS say differently. I try to trust what is

working....thanks to not having much money....this is good. I am

not tempted to get sucked into " sucker scams " and " sucker traps " , "

that prey upon us desperate parents with ASD kids. "

I can see that you feel that other remedies might be leading people in other

directions...away from SCD. I'm wondering if you feel slighted by these other

remedies because they have not worked for you? Here I will comment on the

feelling that I am left with after reading your last statement. I am sad that

you have felt so slighted because I have a need for everyone to feel supported

and for us all to have empathy for one another in our struggles toward optimal

health. For me, your posts have left me with a feeling of feeling slighted as

well. I have not felt supported by you because my need to be heard and

respected has not been met by your posts. This forum has fairly unbendable

rules of etiquette, but at least I have found some compliments to SCD that have

helped me understand the workings of the healing process. For myself, I take

the suggestions made here with a grain of salt. I research the recommendations

for myself. I appreciate the diversity of remedies

and opinions. Like you, I, too, worry about how others are sometimes buying

into certain remedies. I have my own reasoning for this but I, too, have this

need to see the rightness, simplicity and non-outrageous use of remedies for

optimal health. I, too, hate to see others get " swayed " into some alternative

remedy or some belief that this or that is bad or good for us. There are so

many opinions and so much research on both sides of every coin. It is confusing

to the new comer.

" >Reply: I do feel the need to spread the good word about SCD and

sometimes I do feel that this site is leading people astray. I have

already helped over a dozen suffering Celiac's that come to me from

the CSA-USA....one man was going to have part of his colon removed,

as a result to damage was becoming mentaly ill ...he heals now with

only using fanatical adherance....just like countless before

him...and us. "

I think it is great that you are helping others and directing them to SCD. I,

too, feel a need to do this. I see, again, your fear that this site is not

supporting the fanatical adherance like you thought it would when you joined. I

feel that this site, on the other hand, does support fanatical adherance. I was

told that many times when I first joined. It was really hard for me to hear

because I have a need to see the middle way. I am not a dogmatic person by

nature and I have a need to remain flexible. I also have a need to see the

world as a safe place, no matter how ill I might feel. I fundamental belief

that the world is a safe place is challenged from reading posts on here, time

and time again. I wonder if you share that same fear...the fear that there is a

possibility that the world is not a safe place.

" I am kinda frustrated to not find the concrete, fanatical support of

the diet that WE had hoped to find. I was told that other SCD list

serves may be more appropriate. "

I wonder what you need behind finding concrete, fantatical support of this

diet. You seem very educated on SCD. I'm wondering if you are looking for some

answer that hasn't been revealed to you in your readings thus far? I wonder if

you feel a little blind like you are walking this SCD road alone, though it

doesn't really sound like it from what you have written. Do you feel that the

alternative, non-SCD advice, outweighs or discounts the solid, fanatical SCD

advice that does show up on here? Do you worry that SCD is truly not the only

way for your family? If you had some underlying fear about this, about the

winding path instead of the straight forward path, I could understand

I wonder if you can see that others are feeling yelled by your posts. There

is a need by most of us to be heard, to be treated with respect. I have felt

scorned myself after reading the posts that you have written. I have also felt

disrespected for the knowledge that I do possess. I have a need to be treated

with equality, respect and gentleness. I do not know everything and the

universe does not offer up finite answers for all of us. There is always a flip

side to every coin. Others on this forum have offered up how they are feeling

around your posts. Indeed, we can ignore your warnings and posts but I think,

we, too, worry about the newbies; me included in that group. I am in

fact/opinion gathering mode. I don't want someone to protect me with what they

fear for me might be detrimental to my health. I do want to hear opinions that

are expressed with gentleness and regard for my own knowledge. I feel

threatened sometimes by your posts because I have these

needs that I just stated.

Truly, I hope that you can find what you need here but I also hope that others

continue to find what they need here. In listening to the needs of others and

honoring that, we do so much more to support each other along our paths. In

warning each other out of our own fear we lose the oppurtunity to support,

encourage and even mentor others. Touching the hearts of others is the first

step toward getting them to listen. If you truly want to get the word out,

first listen, listen with your heart. Hear the fear, the desperation, the

exhaustion, the stress. These are feelings we all share. We have people on the

flip side who are incredibly adamant that a special diet is not needed. For me,

at least, I want to come onto a support group like this one and be treated with

a kinder ear.

As for not reading your posts, by the way, though I suscribe to this theory

too, I feel the energy of your posts throughout the message board. We cannot

treat fear with fear. For me, this past month on this message board has been a

lesson in letting go, of not letting the arguement at hand to dissuade what my

intuition tells me to do. I've stayed because of, what has become, all the

inbetween helpful posts.

Antoinette, I know you mean so well. It is obvious to all of us. You are a

dear soul finding her way just like the rest of us. We are no different than

you. We all find what works for us and some of us feel very fanatical and

adamant about our way. Support comes from a much higher place than what's in

our brains or in some book. Connecting over the email is this weird cyber

spirituality. We tread on tricky waters here because there are no faces and

our words look more exagerrated on our posts. A lot of us here, who have

sensory issues, are a sensitive bunch. I do not believe that anyone can make us

feel a certain way unless we give them permission to do so. But, I do wonder

why you feel so adamant and continue to be so radical in your approach to

sharing your knowledge and opinions when so many of us are telling you that it

is not helpful and that we feel hurt reading your posts. You could so much to

help us and the newbies by sharing your info through

gentler means. Don't undermine your own quest by putting people off.

Instead, it would be helpful to me for you to share you joy, your happiness in

what works. You were doing this in the beginning and it was so refreshing to

read your posts. You were helpful.

Warmly,

gwen

>

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Yea, I won't open your posts anymore Antoinette. Why didn't I think of that?

(I personally think telling your story once a week is enough...there's a lot

of us on this list...lots of stories to tell...but like you said, you're

free to post what you want to) Good warning about enzymes though...I was

very very glad to hear your story both as a mother with sick kids and a

psychologist...your story just doesn't apply to me or my kids really so I'll

skip them now....we are fanatical SCD-ers(the dark circles under my eyes and

my messy house prove it :-) but we use some things listed under supplements

on pecanbread.What is " trolling? " and why would Antoinette think my post was

" trolling? " I'll only go over to open blooms if Summer goes :-)...I've felt

kind of comfy here at pecanbread, but it's nice to know another option is

out there. Please don't write me off list Antoinette-can't handle the drama

right now.

Kerri

All SCD 5 months for 7 yr old w/constipation (sooo much better...this month)

and rages (sooo much better...this month) etc

To: <pecanbread >

Sent: Friday, May 19, 2006 4:57 PM

Subject: Re: Gwen, Here are your answers to your interview.

> If your child was going to be hit by a truck would you not want the

> neighbor to warn you? Once a week may not cut it....they may be

> missed and not have success with SCD because of it.

>

> IF you don't like my posts about " fanatical adhearance " to SCD,

> PLEASE avoid them. OR go to a list serve that talks about enzymes.

> I think P has started on called " Open Blooms " .

>

> Thanks Antoinette

>

>

>>

>> Maybe you could just limit your posts warning about enzymes to

> once a week

>> Antoinette. That way newcomers will get that message regularly and

> the rest

>> of us who have been on this list for awhile and plan to be on it

> awhile

>> longer won't get sick of hearing it over and over. Think that

> might be

>> doable for you? Anyone else on the list OK with that?

>> Kerri

>> Gwen, Here are your answers to your

> interview.

>>

>>

>> > Dear Gwen and to all who show curiosity,

>> >

>> > I will answer the questions after they are made:

>> >>

>> >>I am wondering why you are feeling the need to be so adamant in

>> > your proclamation of this diet and its benefits?

>> >

>> > Answer: After personaly suffering for 38 years and slipping

> through

>> > the cracks miserably for close to four decades. I personaly know

>> > what it is like to be some of these kids. For my own experience,

>> > pain is not always heard or interpreted correctly. We suffer

> with

>> > parents trying what they think is best for us...but sometimes

>> > continue to suffer all the same. Good intentions are not always

>> > enough.....pain does not care.

>> >

>> >

>> >

>> > Are you feeling frustrated with others on this list because of

> your

>> > need to follow the healthiest path is not being met?

>> >

>> > Answer: I trusted those who suggested enzymes (it was not just

>> > those on this serve). We put KiKi and myself into a " celiac "

> crises

>> > thanks to protease. Since I didn't know better, I am at fault as

>> > much as anybody. Caused a set back that we did not need in the

>> > beggining of our SCD journey. And then when I talk to " old

> timers "

>> > who knew Elaine, find out that she did not trust the use of

>> > chelation and certain enzymes with those with severely damaged

>> > intestines. That even GAPS warns about the same thing. That

> some

>> > supplements can caused irritation to an already damaged gut and

>> > cause set serious set backs that keep SCDiet from working.

>> >

>> > Answer: Would it help to hear support for your ideas? No, I get

> much

>> > support and validation from my reading and seeing my family

> finnaly

>> > get better for the first time.

>> >

>> > Is your need for support not being met because you feel that your

>> > ideas are being challenged?

>> >

>> > Answer: I am often told that everybody is unique and that I

> need to

>> > respect this...and am truly trying to do so. But those who

> suggest

>> > enzymes and chelation to new comers are forgetting their own

>> > suggestion. I know I was once " new " . Some of these treatments

> are

>> > TRULY dangerous for some of us here. We should not assume that

> they

>> > are not. And to blindly suggest to new commer about some of

> these

>> > supplements is careless. Again this is from our own experience

> of

>> > it blowing up in our face. Like I am always being told: It is

> not

>> > a " one size fits all " picture.....this means for all of us.

> Maybe

>> > warning should go out with such suggestions, so they are not lead

>> > blindly into possibly making their child sicker. Which was are

>> > experience. Again the GAPS book gives such warnings.

>> >

>> >

>> >

>> > Are you feeling scared because your need to help others heal is

>> > challenged when you hear some conflicting notions about healing

> on

>> > this forum?

>> >

>> > Answer: I feel sad in side because I feel that some are not

> having

>> > success because they chalenge the SCDiet by adding to many

> factors

>> > and complicate things to the point where it may not work as

>> > well...if at all. Again GAPS book talks about this.

>> >

>> >

>> > Would it help to hear others commend your efforts to communicate

> the

>> > effectiveness of SCD and to give you credit for all the immense

>> > amount of research you have done?

>> >

>> > Answer: No, I get much validation from Dr. Scot Lewey D.O. when

> he

>> > recommends a patient to me to help. And I see my family heal for

>> > the first time.

>> >>

>> >> I'm wondering also if you are feeling stressed because of all

>> > the years you have spent trying to find a cure for you and your

>> > family. And now that you have, it feels frustrating to hear

> others

>> > doubting or questioning if SCD is the only way?

>> >

>> > Answer: Yes....I do my best to let go of things that are out of

> my

>> > control. This very thing frustrated Elaine too. She too got sad

>> > and needed boosted up by her friends and family. I hate to see

>> > children suffering.

>> >

>> >

>> > I feel that you are waiting to breathe a big sigh of relief.

>> >

>> > Reply: We are...and thank God it is working. So many

>> > improvements. I can not wait for a year from now. I look

> forward

>> > to getting my muscles back and seeing my kids become healthier

> than

>> > the neighbors.

>> >

>> > You have found what works for you and your family, but now you

> have

>> > this altruistic need to help others who are suffering from

> ailments

>> > similar to yours. After reading through the many posts to you, I

>> > can't help think you are feeling attacked because your need for

>> > support and comaraderie is not being met here on Pecanbread?

>> >

>> > Answer: I don't feel " attacked " I feel that I am

> being " scoffed " at

>> > and " judged " , because " just " SCD with minimal additions is

> working

>> > so well for us. Everytime I share this some one commits

> sarcasticly

>> > to me that I am nieve and that SCD alone is not enough. I get

>> > personal e-mails from others saying that we need to buy this, do

>> > this, and add this...or we are gonners. The three books I read,

>> > BTVC, Dr. Haas and now GAPS say differently. I try to trust

> what is

>> > working....thanks to not having much money....this is good. I am

>> > not tempted to get sucked into " sucker scams " and " sucker traps " ,

>> > that prey upon us desperate parents with ASD kids.

>> >

>> >

>> > Would some validation, support and empathy around your own

> ailments

>> > feel good?

>> >

>> > Answer: No, I get plenty from those who know me in person....it

>> > would be nice to not always be scoffed at because SCD alone (with

>> > only minimal additions that Elaine did not mention in her BTVC

> book)

>> > is working for us. I am learning how to move on these days from

> a

>> > life of literal h***.

>> >>

>> >>Reply: I do feel the need to spread the good word about SCD and

>> > sometimes I do feel that this site is leading people astray. I

> have

>> > already helped over a dozen suffering Celiac's that come to me

> from

>> > the CSA-USA....one man was going to have part of his colon

> removed,

>> > as a result to damage was becoming mentaly ill ...he heals now

> with

>> > only using fanatical adherance....just like countless before

>> > him...and us.

>> >

>> >

>> >

>> > I am kinda frustrated to not find the concrete, fanatical

> support of

>> > the diet that WE had hoped to find. I was told that other SCD

> list

>> > serves may be more appropriate. I have thought of experimenting

>> > with them....but none know about the ASD thing like this one. I

> have

>> > become friends wiht the moderators and don't want to leave. But

>> > mostly stay to help the new commer in need...so that they are not

>> > lead astray or given " bad " advice with good intentions that keep

>> > their kids sicker for longer (like what happened to us).

>> >>

>> >> Gwen, this did help to answer these questions. You are right,

>> > we have been through so much. More than you guys even

> know...more

>> > than I would want to share. THis is why I write my book. I

> truly

>> > would rather die than to see my children suffer like I have. You

>> > are right when you say: " You obviously don't want their lives to

>> > repeat your own ailments. I'm so happy for you that SCD has been

> the

>> > answer you have been looking for. It must be a relief to find

> such

>> > a remedy. To see it actually work in such a short time period

> must

>> > be such a joyous experience for you. "

>> >

>> > We are so much happeir now...and still have a ways to go. I only

>> > wish that others could have this success. But realize that this

> is

>> > where I have to have acceptance of those things that I am

> powerless

>> > over. SCD is not for everybody. We all have our own journeys

> and

>> > experiences that need to be learned. I was not ready 15 months

> ago

>> > for SCD....I know. I too thought Ihad it all figured out until I

>> > realized that the answer was right in front of me. Sadly to say

>> > this is not everybodies answer though....acceptance is the

> answer to

>> > all my problems.....

>> >

>> > Sincerly Antoinette and her Silly Yaks at the Zoo!

>> >

>> > (family of five SCd finnaly healing from

> celiac/malabsorption/leaky

>> > gut that cuased us all to perish to mere existance at

> times.....and

>> > caused ASD problems in most all of us....we are truly a " rain

>> > family " ..but now recover thanks to this wonderful solution.)

>> >

>> >

>> >

>> >

>> >>

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> > For information on the Specific Carbohydrate Diet, please read

> the book

>> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

> following

>> > websites:

>> > http://www.breakingtheviciouscycle.info

>> > and

>> > http://www.pecanbread.com

>> >

>> >

[Guest guest]

Kerri,

Summer is actually a moderator at Open Blooms with myself, we would love to

have you

>

>Reply-To: pecanbread

>To: <pecanbread >

>Subject: Re: Re: Gwen, Here are your answers to your

>interview.

>Date: Fri, 19 May 2006 23:43:36 -0700

>

>Yea, I won't open your posts anymore Antoinette. Why didn't I think of

>that?

>(I personally think telling your story once a week is enough...there's a

>lot

>of us on this list...lots of stories to tell...but like you said, you're

>free to post what you want to) Good warning about enzymes though...I was

>very very glad to hear your story both as a mother with sick kids and a

>psychologist...your story just doesn't apply to me or my kids really so

>I'll

>skip them now....we are fanatical SCD-ers(the dark circles under my eyes

>and

>my messy house prove it :-) but we use some things listed under supplements

>on pecanbread.What is " trolling? " and why would Antoinette think my post

>was

> " trolling? " I'll only go over to open blooms if Summer goes :-)...I've felt

>kind of comfy here at pecanbread, but it's nice to know another option is

>out there. Please don't write me off list Antoinette-can't handle the drama

>right now.

>Kerri

>All SCD 5 months for 7 yr old w/constipation (sooo much better...this

>month)

>and rages (sooo much better...this month) etc

>

>

>To: <pecanbread >

>Sent: Friday, May 19, 2006 4:57 PM

>Subject: Re: Gwen, Here are your answers to your interview.

>

>

> > If your child was going to be hit by a truck would you not want the

> > neighbor to warn you? Once a week may not cut it....they may be

> > missed and not have success with SCD because of it.

> >

> > IF you don't like my posts about " fanatical adhearance " to SCD,

> > PLEASE avoid them. OR go to a list serve that talks about enzymes.

> > I think P has started on called " Open Blooms " .

> >

> > Thanks Antoinette

> >

> >

> >>

> >> Maybe you could just limit your posts warning about enzymes to

> > once a week

> >> Antoinette. That way newcomers will get that message regularly and

> > the rest

> >> of us who have been on this list for awhile and plan to be on it

> > awhile

> >> longer won't get sick of hearing it over and over. Think that

> > might be

> >> doable for you? Anyone else on the list OK with that?

> >> Kerri

> >> Gwen, Here are your answers to your

> > interview.

> >>

> >>

> >> > Dear Gwen and to all who show curiosity,

> >> >

> >> > I will answer the questions after they are made:

> >> >>

> >> >>I am wondering why you are feeling the need to be so adamant in

> >> > your proclamation of this diet and its benefits?

> >> >

> >> > Answer: After personaly suffering for 38 years and slipping

> > through

> >> > the cracks miserably for close to four decades. I personaly know

> >> > what it is like to be some of these kids. For my own experience,

> >> > pain is not always heard or interpreted correctly. We suffer

> > with

> >> > parents trying what they think is best for us...but sometimes

> >> > continue to suffer all the same. Good intentions are not always

> >> > enough.....pain does not care.

> >> >

> >> >

> >> >

> >> > Are you feeling frustrated with others on this list because of

> > your

> >> > need to follow the healthiest path is not being met?

> >> >

> >> > Answer: I trusted those who suggested enzymes (it was not just

> >> > those on this serve). We put KiKi and myself into a " celiac "

> > crises

> >> > thanks to protease. Since I didn't know better, I am at fault as

> >> > much as anybody. Caused a set back that we did not need in the

> >> > beggining of our SCD journey. And then when I talk to " old

> > timers "

> >> > who knew Elaine, find out that she did not trust the use of

> >> > chelation and certain enzymes with those with severely damaged

> >> > intestines. That even GAPS warns about the same thing. That

> > some

> >> > supplements can caused irritation to an already damaged gut and

> >> > cause set serious set backs that keep SCDiet from working.

> >> >

> >> > Answer: Would it help to hear support for your ideas? No, I get

> > much

> >> > support and validation from my reading and seeing my family

> > finnaly

> >> > get better for the first time.

> >> >

> >> > Is your need for support not being met because you feel that your

> >> > ideas are being challenged?

> >> >

> >> > Answer: I am often told that everybody is unique and that I

> > need to

> >> > respect this...and am truly trying to do so. But those who

> > suggest

> >> > enzymes and chelation to new comers are forgetting their own

> >> > suggestion. I know I was once " new " . Some of these treatments

> > are

> >> > TRULY dangerous for some of us here. We should not assume that

> > they

> >> > are not. And to blindly suggest to new commer about some of

> > these

> >> > supplements is careless. Again this is from our own experience

> > of

> >> > it blowing up in our face. Like I am always being told: It is

> > not

> >> > a " one size fits all " picture.....this means for all of us.

> > Maybe

> >> > warning should go out with such suggestions, so they are not lead

> >> > blindly into possibly making their child sicker. Which was are

> >> > experience. Again the GAPS book gives such warnings.

> >> >

> >> >

> >> >

> >> > Are you feeling scared because your need to help others heal is

> >> > challenged when you hear some conflicting notions about healing

> > on

> >> > this forum?

> >> >

> >> > Answer: I feel sad in side because I feel that some are not

> > having

> >> > success because they chalenge the SCDiet by adding to many

> > factors

> >> > and complicate things to the point where it may not work as

> >> > well...if at all. Again GAPS book talks about this.

> >> >

> >> >

> >> > Would it help to hear others commend your efforts to communicate

> > the

> >> > effectiveness of SCD and to give you credit for all the immense

> >> > amount of research you have done?

> >> >

> >> > Answer: No, I get much validation from Dr. Scot Lewey D.O. when

> > he

> >> > recommends a patient to me to help. And I see my family heal for

> >> > the first time.

> >> >>

> >> >> I'm wondering also if you are feeling stressed because of all

> >> > the years you have spent trying to find a cure for you and your

> >> > family. And now that you have, it feels frustrating to hear

> > others

> >> > doubting or questioning if SCD is the only way?

> >> >

> >> > Answer: Yes....I do my best to let go of things that are out of

> > my

> >> > control. This very thing frustrated Elaine too. She too got sad

> >> > and needed boosted up by her friends and family. I hate to see

> >> > children suffering.

> >> >

> >> >

> >> > I feel that you are waiting to breathe a big sigh of relief.

> >> >

> >> > Reply: We are...and thank God it is working. So many

> >> > improvements. I can not wait for a year from now. I look

> > forward

> >> > to getting my muscles back and seeing my kids become healthier

> > than

> >> > the neighbors.

> >> >

> >> > You have found what works for you and your family, but now you

> > have

> >> > this altruistic need to help others who are suffering from

> > ailments

> >> > similar to yours. After reading through the many posts to you, I

> >> > can't help think you are feeling attacked because your need for

> >> > support and comaraderie is not being met here on Pecanbread?

> >> >

> >> > Answer: I don't feel " attacked " I feel that I am

> > being " scoffed " at

> >> > and " judged " , because " just " SCD with minimal additions is

> > working

> >> > so well for us. Everytime I share this some one commits

> > sarcasticly

> >> > to me that I am nieve and that SCD alone is not enough. I get

> >> > personal e-mails from others saying that we need to buy this, do

> >> > this, and add this...or we are gonners. The three books I read,

> >> > BTVC, Dr. Haas and now GAPS say differently. I try to trust

> > what is

> >> > working....thanks to not having much money....this is good. I am

> >> > not tempted to get sucked into " sucker scams " and " sucker traps " ,

> >> > that prey upon us desperate parents with ASD kids.

> >> >

> >> >

> >> > Would some validation, support and empathy around your own

> > ailments

> >> > feel good?

> >> >

> >> > Answer: No, I get plenty from those who know me in person....it

> >> > would be nice to not always be scoffed at because SCD alone (with

> >> > only minimal additions that Elaine did not mention in her BTVC

> > book)

> >> > is working for us. I am learning how to move on these days from

> > a

> >> > life of literal h***.

> >> >>

> >> >>Reply: I do feel the need to spread the good word about SCD and

> >> > sometimes I do feel that this site is leading people astray. I

> > have

> >> > already helped over a dozen suffering Celiac's that come to me

> > from

> >> > the CSA-USA....one man was going to have part of his colon

> > removed,

> >> > as a result to damage was becoming mentaly ill ...he heals now

> > with

> >> > only using fanatical adherance....just like countless before

> >> > him...and us.

> >> >

> >> >

> >> >

> >> > I am kinda frustrated to not find the concrete, fanatical

> > support of

> >> > the diet that WE had hoped to find. I was told that other SCD

> > list

> >> > serves may be more appropriate. I have thought of experimenting

> >> > with them....but none know about the ASD thing like this one. I

> > have

> >> > become friends wiht the moderators and don't want to leave. But

> >> > mostly stay to help the new commer in need...so that they are not

> >> > lead astray or given " bad " advice with good intentions that keep

> >> > their kids sicker for longer (like what happened to us).

> >> >>

> >> >> Gwen, this did help to answer these questions. You are right,

> >> > we have been through so much. More than you guys even

> > know...more

> >> > than I would want to share. THis is why I write my book. I

> > truly

> >> > would rather die than to see my children suffer like I have. You

> >> > are right when you say: " You obviously don't want their lives to

> >> > repeat your own ailments. I'm so happy for you that SCD has been

> > the

> >> > answer you have been looking for. It must be a relief to find

> > such

> >> > a remedy. To see it actually work in such a short time period

> > must

> >> > be such a joyous experience for you. "

> >> >

> >> > We are so much happeir now...and still have a ways to go. I only

> >> > wish that others could have this success. But realize that this

> > is

> >> > where I have to have acceptance of those things that I am

> > powerless

> >> > over. SCD is not for everybody. We all have our own journeys

> > and

> >> > experiences that need to be learned. I was not ready 15 months

> > ago

> >> > for SCD....I know. I too thought Ihad it all figured out until I

> >> > realized that the answer was right in front of me. Sadly to say

> >> > this is not everybodies answer though....acceptance is the

> > answer to

> >> > all my problems.....

> >> >

> >> > Sincerly Antoinette and her Silly Yaks at the Zoo!

> >> >

> >> > (family of five SCd finnaly healing from

> > celiac/malabsorption/leaky

> >> > gut that cuased us all to perish to mere existance at

> > times.....and

> >> > caused ASD problems in most all of us....we are truly a " rain

> >> > family " ..but now recover thanks to this wonderful solution.)

> >> >

> >> >

> >> >

> >> >

> >> >>

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> > For information on the Specific Carbohydrate Diet, please read

> > the book

> >> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

> > following

> >> > websites:

> >> > http://www.breakingtheviciouscycle.info

> >> > and

> >> > http://www.pecanbread.com

> >> >

> >> >