Periodic regressions on SCD / WAS: Re: Another Chlorine question

[Guest guest]

Tracey,

Does your DAN doc happen to be Sid Baker? This sounds like him. I

would like to have this discussion on-list about the regression

periods. I bet some of the more seasoned members would know a lot

about this, but I don't other than what's in Sid Baker's book, which

is pretty much just what you mentioned.

I wonder how often kids fluctuate from this pattern?

Someone suggested to me that yeasts seem to die off in layers, and I

wonder if this acccounts for the periodic regressions.

I'd love other listmates who know more than I do to address this.

Suzanne

Tom, ASD, SCD 3 months

>

> Hi Sandy.

> No high tech answers here, but has anyone heard of or seen so-

called regressions periodically happening during the first year on

SCD, which can't be explained by other factors like a new food?

> My Dan doctor (Long Island, NY) gave me a handout created by a

mom in his practice that followed about 9 kids during their first

year of SCD, looking for patterns. This handout reported that the

vast majority of these 9 ASD kids on SCD experienced noticeable

regressions throughtout the year, starting at about the 2 month

interval and recurring every 2 months thereafter. The regressions

can last anywhere from a few days to about 3 weeks. Its usually

return of/increase in stimming, " bad " behaviors, sleep disturbances,

things like that...

> I not know if this is reliable info, but thought I'd mention

it to see if any veterans out there have seen this to be true. So

how about it you " old timers " : Anyone notice a pattern of

unexplained regressions?

> If so, maybe this is going on for you Sandy and hopefully

it'll subside soon since its been 2-1/2 weeks already. I do hope

that the veterans will have a more concrete answer for you. Good

Luck.

> Tracey, mom of Clay, 4, autism. SCD 9 mos.

[Guest guest]

Tracey's post pretty much sums up our first year experience with SCD. We had

periodic regressions, they became less and less over time, both in duration and

severity, until about 11 months, we had a whopper then. Usually the regressions

followed from slight infractions, after Halloween, Hunter found a corner of one

red gummy bear, 1/4 centimeter in size piece he ate, minute, and that triggered

a huge regression. He found it on the floor at a grocery store, I did not give

it to him. I think if the yeast get any chance, they will fight until their

death for their space in the intestine. They are fighting for their lives! I

haven't read Sid Baker's book, but would be interesting to pull out my food

journals and take a peak. We have been doing dandy for a long time, but Hunter

just pulled out of a long regression, not severe, but behavoirally annoying, and

I believe it was triggered from a flu that he had. Regressions now are nowhere

near 11/2 years ago, not even close.

Generally, there seems to be an exacting trigger, while in the past, it seemed

more out of the sky.

I don't care about stimming, I encourage it when it happens and try to make

art out of it, and by embracing it, it always disappears. Hunter used to tear up

paper real small, then I got the idea, if he is going to do this, he should make

art out of it, and he would tear up all the paper, and I would hand him glue and

poster board, he would make mosaic designs from his stimming. Stimming becomes

rarer and rarer in this house, and whatever is going on with the yeast,

embracing the behavoir when it happens and redirecting nips it in the bud for

us. Stimming and yeast are connected, but I don't know if lack of stimming is

because of better control over yeast, or our home-made way of dealing with it.

That's all I know.

Summer

Suzanne wrote:

Tracey,

Does your DAN doc happen to be Sid Baker? This sounds like him. I

would like to have this discussion on-list about the regression

periods. I bet some of the more seasoned members would know a lot

about this, but I don't other than what's in Sid Baker's book, which

is pretty much just what you mentioned.

I wonder how often kids fluctuate from this pattern?

Someone suggested to me that yeasts seem to die off in layers, and I

wonder if this acccounts for the periodic regressions.

I'd love other listmates who know more than I do to address this.

Suzanne

Tom, ASD, SCD 3 months

>

> Hi Sandy.

> No high tech answers here, but has anyone heard of or seen so-

called regressions periodically happening during the first year on

SCD, which can't be explained by other factors like a new food?

> My Dan doctor (Long Island, NY) gave me a handout created by a

mom in his practice that followed about 9 kids during their first

year of SCD, looking for patterns. This handout reported that the

vast majority of these 9 ASD kids on SCD experienced noticeable

regressions throughtout the year, starting at about the 2 month

interval and recurring every 2 months thereafter. The regressions

can last anywhere from a few days to about 3 weeks. Its usually

return of/increase in stimming, " bad " behaviors, sleep disturbances,

things like that...

> I not know if this is reliable info, but thought I'd mention

it to see if any veterans out there have seen this to be true. So

how about it you " old timers " : Anyone notice a pattern of

unexplained regressions?

> If so, maybe this is going on for you Sandy and hopefully

it'll subside soon since its been 2-1/2 weeks already. I do hope

that the veterans will have a more concrete answer for you. Good

Luck.

> Tracey, mom of Clay, 4, autism. SCD 9 mos.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

I am headed off to the zoo pretty soon with my kids, but just a quick note, some

yeasts and molds are inhaled, definitely. While Candida cannot be " inhaled " as

such, other yeast strains can.

And also, when we have a snafu, we always go back to intro, which for us is

bone marrow broths. Gives the gut a break, provides nutrition, and can eliminate

other factors quite easily.

The biggest thing, when there are regressions, or returning to intro, doesn't

matter what is happening, and what mistakes (if any) are made, it is a learning

experience. This is how I view every event, rather than getting depressed. There

is something to be learned. It is temporary, it will pass.

sueb409 wrote:

> Someone suggested to me that yeasts seem to die off in layers, and

I

> wonder if this acccounts for the periodic regressions.

>

> I'd love other listmates who know more than I do to address this.

When researching c.diff, I came across a site (I can't find it again,

and didn't bookmark it) where it was said that c.diff procreates by

spores. No matter how long you take the stuff that kills them, they

don't go away right away. The spores go into hiding, and when

conditions are favorable, they make themselves known. So the theory

was to take the meds for 2 weeks to kill the active ones, then stop.

When the symptoms began again, within a few days, to begin the meds

again for another 2 weeks. You continue in the schedule until the

symptoms are gone.

If I remember correctly, at least some yeasts produce spores. My

theory - if this is the case, then at certain times, as more foods

are added into the diet the yeast rears its ugly heads because the

environment has become more friendly. The regressions are less

severe because there are fewer yeasts. Most parents have noted that

when regressions hit they return to the intro diet for a short time

(making the environment unfriendly for the beasties) and the

regression ends. Then a few months later the same thing happens. It

seems to be every 2-3 months, until about a year. BJ had them pretty

much on schedule. It's been a year for him now, and he's a

completely different child. We've still got a long way to go - I am

so tired of changing wet sheets - but we've come so, so far.

Just my theory - I'd love to hear others.

Sue B

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com