More on the success of thos who have fanatical adherance

[Guest guest]

This is an old e-mail to me giving me hope from Mimi the owner and

one of the moderators of Pecan Bread. I wanted to share to all who

question that SCDiet may not work for them and share that HOPE:

My first SCD experience was with the SCD-list (also known as the

Long

Island list). At that time,it was the only beginner's list. That list

was so fanatical! When a list member said that brand X garlic powder

had

no starch (he knew someone who worked in that company),the list

member

was thrown out. No risks,no change for the SCD rules...

Everyone promoted fanatical adherence and any violation was taboo.

Someone once tracked the children of autism whose parents

participated

in the Long Island list). At that time,there were very few parents of

aautism on the list but the outcome was phenomenal. All the children

who

were 5 or younger had recovered from autism! (One exception was a boy

from the UK who ate his sister's treats.)

I am not saying that SCD will cure all our autistic children but that

you should give fanatical SCD a chance. Make sure that you are doing

it

right. Many parents are sure that they did SCD.....

From Mimi (owner of Pecan Bread)

This GAVE ME SUCH HOPE when she sent this to me off serve, and

helped us to realize that " fanatical adherance " the suggestion that

Elaine gives, is not a joke to be taken lightly if one wants success

with SCDiet alone. No nothing else needed but Elaine promoted

supplements and SCD foods.

As difficult it has been for us to origional trust this, we are

truly now reaping the benifits. I truly understand that this may

not work for others. That is why we have other solutions, other

books, DAN! protocol and all sorts of info out there, that often

confuses the new comer. But for SCD to work the integrety of this

diet plan can not be altered with other ways....I urge you to give

it a chance before trying other ways and see if it works for you and

your child.

Sincerely Antoinette

[Guest guest]

I want to clarify that this essay was not finished. I was in a hurry

when I wrote it and you can see that the last sentence " Many parents

are sure that they did SCD..... " was incomplete and meant to say:

Many parents are sure that they did SCD correctly.....but actually

made mistakes and need more help. Please always try to get help if

you are not getting good results. I also made mistakes in the

beginning. Don't give up on SCD without checking to make sure that

the diet was done correctly.

I also meant to add that while I know of several kids who recovered

with just SCD,it is essential to get good educational interventions.

There are also many good therapies that do not interfere with SCD.

My son complies fully with SCD,but my daughter fights it. Last year

we spent over $20000 to get additional therapies for her...Yes,they

were very helpful but when she had a SCD infraction,she regressed

dramatically. SCD was 90% and the rest was 10%. My daughter needs

all these interventions but SCD is the most important.

Try to avoid treatments that interfere with SCD. If your child is

now taking a lot of supplements,then stop all the pills for one

month and retry them one at a time. Some kids with severe gut issues

might not tolerate any pills. Of course,use caution and medical help

if your child has seizures or other serious complications. You might

get the pills to be compounded to only contain legal ingredients.

Most importantly,I want to thank the owner of the long Island List

for all her dedication to SCD. Running a fanatical SCD list did not

make her popular...most newbies hated her and the list. However,she

did not care for popularity. She only cared to heal her list members

and she knew that fanatical adherence does bring phenomenal results.

I want to express my love and admiration to Turet,a true

heroine. Please pray for her;she needs your prayers now. Tears are

coming to my eyes.

All the best,Mimi

>

> This is an old e-mail to me giving me hope from Mimi the owner and

> one of the moderators of Pecan Bread. I wanted to share to all

who

> question that SCDiet may not work for them and share that HOPE:

>

>

> My first SCD experience was with the SCD-list (also known as the

> Long

> Island list). At that time,it was the only beginner's list. That

list

> was so fanatical! When a list member said that brand X garlic

powder

> had

> no starch (he knew someone who worked in that company),the list

> member

> was thrown out. No risks,no change for the SCD rules...

> Everyone promoted fanatical adherence and any violation was taboo.

>

>

> Someone once tracked the children of autism whose parents

> participated

> in the Long Island list). At that time,there were very few parents

of

> aautism on the list but the outcome was phenomenal. All the

children

> who

> were 5 or younger had recovered from autism! (One exception was a

boy

> from the UK who ate his sister's treats.)

>

> I am not saying that SCD will cure all our autistic children but

that

> you should give fanatical SCD a chance. Make sure that you are

doing

> it

> right. Many parents are sure that they did SCD.....

>

> From Mimi (owner of Pecan Bread)

>

>

>

> This GAVE ME SUCH HOPE when she sent this to me off serve, and

> helped us to realize that " fanatical adherance " the suggestion

that

> Elaine gives, is not a joke to be taken lightly if one wants

success

> with SCDiet alone. No nothing else needed but Elaine promoted

> supplements and SCD foods.

>

> As difficult it has been for us to origional trust this, we are

> truly now reaping the benifits. I truly understand that this may

> not work for others. That is why we have other solutions, other

> books, DAN! protocol and all sorts of info out there, that often

> confuses the new comer. But for SCD to work the integrety of this

> diet plan can not be altered with other ways....I urge you to give

> it a chance before trying other ways and see if it works for you

and

> your child.

>

> Sincerely Antoinette

>

[Guest guest]

Sam,

Unfortunately,I have no news. No,you never missed any posts. You

just inspired me....

Let all of us make some kind of internet greeting card for

and thank her because her list was what inspired pecanbread. She is

responsible for spreading the word about SCD in the IBD community.

Anyone here,have any ideas how to cheer her?

Mimi

Thank you for the appreciation!!

>

> Mimi, my apologies if I have missed some applicable email, but is

there some

> recent information concerning Turet health? I fully agree

that

> is a true heroine and I will always be thankful to her for

the long

> Island email list. I would also like to add a special thanks to

you for all

> of your dedication and efforts for this email list. Best wishes,

Sam.

>