Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Anybody new or old to SCD should get the SCD book 'Gut and Psychology Syndrome' > by Natasha -McBride, MD. > It's a must read written by an MD mother who used SCD with customiztion to recover her son. > You can get it at the Body Ecology website. > Agape, Dear , The GAPS diet may have similarities to SCD, but personally (and I and I am not a moderator) I don't advocate it as a reading recommendation to everyone. Others who advocate their own choice of diet like Dr. McCandless (GFCF), Karyn Serousssi (GFCF, BED and other diets)), Owens (LOD), Dr. Natasha -McBride (GAPs), Sally Fallon, (Weston-Price) Jordan Rubin (The Makers Diet) may mention SCD or look like SCD or support " customizing " SCD or praise Elaine and her work. A prominent autism doctor ( I think it was Wakefield) did this at an Autism Canada mini DAN conference inToronto . He then proceeded to recommend the GF diet instead of SCD. So they like the medium (Elaine) but not always the message (SCD) Because food falls into limited categories (dairy, veggies, fruits, nuts, animal protein, eggs etc.) it is easy to find similarities amomg diets. Some of these diets restrict some carbs, not always the same as what we eliminate. ( This is like the analogy, " Adam is a man, Adam has a beard. " False conclusion, " all men have beards. " Attention to the other diets often means adding or permitting non compliant foods. In other cases it removes so many SCD foods that there is little left to eat. This was my experience with LOD. I was told it was needed when a kidney stone was suspected I denied myself all sorts of things like dark green vegetables only to find I T I had no stones was misdiagnosed. and furthermore I have further restrictions because of Latex Allergy. Meanwhile I developed a false psychological aversion to the LOD list of things I really need for SCD balanced nutrition, things I've been having for six years. Elaine has given us a rare gift, a healing diet where the pieces fit together. It may not work for all of the people all of the time, and this was never promised, However 80% (in terms of improvement or cure) is a significant ratio of success. Some may needt some legal enhancements (which I did not require). Yet, we will continue to try to attach bells and whistles in the name of " customization. " I do find it valid to ask " if SCD is not working for you have you made sure you are doing it correctly? " If not you have options: 1.Start again with the intro 2. Try adding foods again and monitor very carefully 3. Give it up with the thought of coming back and trying again if things don't work out. 4. Do the other diet you are investing your preference towards and if that doesn't work, come back. But do not think if you resume the Standard American diet you will do anything but harm or the " other diet " may disagree with you or your child.. One more thing. When I " customized " a few of my Granny's recipes they weren't like Granny's anymore! BTW: you are determined to tinker with SCD you better find a new name for it because SCD is trademarked. Kirstie Ally doesn't bring Weight Watchers' dinners to her Craig counselor. LOL! Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Carol, I agree with your clarification between diets. It absolutely can be difficult for beginners to weed out when first beginning. I do want to ask where the below statistic comes from: > Elaine has given us a rare gift, a healing diet where the pieces fit > together. It may not work for all of the people all of the time, and > this was never promised, However 80% (in terms of improvement or cure) > is a significant ratio of success. I suspect that this 80% figure is from those who had GI issues such as celiac, UC, and IBS. Most but not all of the people on this list are doing SCD for their ASD children. I highly doubt this statistic applies to ASD children on SCD, unless the majority of the 80% are in the 'showing improvement' category. Which, to be fair, there are several ASD biomedical interventions that that have a similar ratio of success based on those terms. Recently a mom posted a request to parents of kids who have been able to recover from SCD alone. I was very disappointed that we still have not heard from anyone yet. While I have faith and belief in the value of the SCD (otherwise I would not be going to all this hassle to prepare these foods), I think we are doing a disservice by making false promises to beginners to this diet for ASD issues. Your Adam analogy would apply to this as well. Becky Mom to Noah (6, HFA) and (3, NT) SCD 3 months > > > Some may needt some legal enhancements (which I did not require). > > Yet, we will continue to try to attach bells and whistles in the name > of " customization. " > > I do find it valid to ask " if SCD is not working for you have you made > sure you are doing it correctly? " If not you have options: > > 1.Start again with the intro > 2. Try adding foods again and monitor very carefully > 3. Give it up with the thought of coming back and trying again if > things don't work out. > 4. Do the other diet you are investing your preference towards and if > that doesn't work, come back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Carol, I agree with your clarification between diets. It absolutely can > be difficult for beginners to weed out when first beginning. I do want > to ask where the below statistic comes from: > > > Elaine has given us a rare gift, a healing diet where the pieces fit > > together. It may not work for all of the people all of the time, and > > this was never promised, However 80% (in terms of improvement or cure) > > is a significant ratio of success. > > I suspect that this 80% figure is from those who had GI issues such as > celiac, UC, and IBS. Most but not all of the people on this list are > doing SCD for their ASD children. I highly doubt this statistic applies > to ASD children on SCD, unless the majority of the 80% are in the > 'showing improvement' category. Which, to be fair, there are several ASD > biomedical interventions that that have a similar ratio of success based > on those terms. > > Recently a mom posted a request to parents of kids who have been able to > recover from SCD alone. I was very disappointed that we still have not > heard from anyone yet. > > While I have faith and belief in the value of the SCD (otherwise I would > not be going to all this hassle to prepare these foods), I think we are > doing a disservice by making false promises to beginners to this diet > for ASD issues. Your Adam analogy would apply to this as well. > > Becky > Mom to Noah (6, HFA) and (3, NT) > SCD 3 months > > > > > > > > Some may needt some legal enhancements (which I did not require). > > > > Yet, we will continue to try to attach bells and whistles in the name > > of " customization. " > > > > I do find it valid to ask " if SCD is not working for you have you made > > sure you are doing it correctly? " If not you have options: > > > > 1.Start again with the intro > > 2. Try adding foods again and monitor very carefully > > 3. Give it up with the thought of coming back and trying again if > > things don't work out. > > 4. Do the other diet you are investing your preference towards and if > > that doesn't work, come back. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Carol, >>> > I suspect that this 80% figure is from those who had GI issues such as > celiac, UC, and IBS. Most but not all of the people on this list are > doing SCD for their ASD children. >I highly doubt this statistic applies > to ASD children on SCD, unless the majority of the 80% are in the > 'showing improvement' category. Which, to be fair, there are several ASD > biomedical interventions that that have a similar ratio of success based > on those terms. > > Recently a mom posted a request to parents of kids who have been able to > recover from SCD alone. I was very disappointed that we still have not > heard from anyone yet. > > While I have faith and belief in the value of the SCD (otherwise I would > not be going to all this hassle to prepare these foods), I think we are > doing a disservice by making false promises to beginners to this diet > for ASD issues. Your Adam analogy would apply to this as well. > > Becky > Mom to Noah (6, HFA) and (3, NT) > SCD 3 months > The majority on the list are here because of ASD. Two years ago, Mimi and I thought it would be good to post a progress questionairre on the list, but no one can complicate such a draft like I can so we dropped the idea. I based my 80% success proclamation on numerous messages posted on Pecanbread, testimonials on Amazon.com under the BTVC book review and i took special notice that almost every child had previously tried GFCF. There are nearly 2500 on this list currently, but some lurk or no longer need support so just maintain their ability to connect to the list when needed. I did not have access to the other lists for adults with gastric issues in fact I was kicked off or left most of them for supporting compliance too much which is puzzling. Elaine said it was about the same ratio viz a viz improvement.. Whether SCD is effective alone or with what is now OT here makes little difference as long as we find THE WAY. Do you think we ever demeaned someone who was cured by other methods? Elaine certainly didn't when she spoke at conferences and was questioned by GF advocates. But if something else worked, what are those people doing here who don't need SCD? They can be watching " The DaVinci Code " or " American Idol " finales.( Or they probably love the SCD food like I do!) Just before I stopped posting recently, I had almost one new testimonial every day ( and even some from the same family every day, which was really inspiring) The main reason I stopped posting was what you NEED to know is all contained on pages 61-83 in BTVC. What you WANT to know is in the rest of the book and on the two websites recommended. When I kept quoting chapter and verse, page number and paragraph from BTVC, I began to feel like a combo of Miss Larabee my crusty spinster elementary school teacher, and Detective Sargeant Cam Wooley, the media spokesperson for our Provincial Police. It wasn't pretty but I'll probably continue citing page numbers until people read trhose pages a number of times and consequently will have many of their questions answered right away.. Regarding food preparation, being an adult on the diet, I operate in two modes. There are days when I use basic allowed SCD foods , just baked and broiled and then stretches at a time when I prepare the more elaborate SCD recipes ( always followed by not being able to zip up the sized smaller jeans). The person confronted with fussy eaters, really is on call all the time to do all the muffins, cookies, popsicles etc. in order to tempt the picky. It can take 3/4 of the day and cost a lot. Still, I'd rather eat SCD at home than have mediocre restaurant food even when it complies. Given time to practice and learn, SCD although not always either simple or easy, becomes second nature. Now when my ex DH wanted me to keep " Kosher, " that was a toughie! I refused! Too much work. Carol F. SCD 6 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Becky, I too was disappointed that no one posted about the ability of SCD to recover autism alone. Autism has no cure, and is a complex situation. Not that other illness is not complex, but autism is a puzzle. Putting the pieces of the puzzle is what has to be done for most people with autism to recover. It includes measures that the " norm " would never, ever have to use. Even between us parents, there is a wide difference in treatment. Since I am one of the pecanbread members bringing up customization of SCD if is not enough alone, I think it is important to explain why. If, like many parents, following SCD to the letter with no extra supplements or strategies is not working effectively enough on its own, there is room to improve. Bone marrow broths, looking to see if there is phenol intolerance and reducing those foods, possibly adding in enzymes, finding reactions to food with sprays as opposed to organic, why wouldn't someone want to maximize SCD to help their child heal? Or themselves? Fundamentally, what is wrong with customization. If someone is doing the Feingold Program, they can adapt that into SCD legal foods, and if that means their child does not need to take Ritalin or Risperidol over that diet modification, both of which are terribly hard on the kidneys and liver in metal toxic children, how is that not a step forward? I understand others on the list may not be suffering with autism, but if your child is not speaking, if your child is uncontrollable, or the many other issues surrounding autism, it should be understood, there are a variety of tools available to help progress along. Some members here have made very detailed vitamin/mineral supplement protocols, some use enzyme therapy, some opt for natural anti-fungal therapy instead of meds which can be much harder on the system for some. Some have many true allergies to work around and organ problems. Systematic yeast is another story, when the yeast mutates from the biofilms into a rhizoid form. So, looking a person individually, and tailoring their health needs is not about philosophy or opinion, it is about healing that person. I see that a clarification between diets is needed for new pecanbread members, but it is not a competition. Plenty of members having success with SCD still have problems, still need to come post and gather new ideas to study. I absolutely agree, Elaine has given us a rare gift. Elaine was a genius in my book. I have read her writings and conversations over and over again. I am constantly learning something new. My family uses SCD. My youngest Ben, ASD and leaky gut and fungal rectal infection, well, using SCD and enzymes and a few other things, we have completely put leaky gut and fungal cysts into dormancy. He is moving out of ASD to normal child status. Hunter is classical autistic, adhd and metal poisoned with gut issues. He has moved from more severe autism to the ASD diagnosis, his adhd has lessened, although still and issue. He will always be on SCD, if he leaves SCD there is regression, so it is a lifetime strategy. No one can tell another absolutely what food they can or cannot tolerate, only the individual will be able to find this out themselves. I have faith in the value of SCD, based on experience with it, the science behind it, the whole she bang. But autism spectrum issues have new uncharted territory of complications and factors. They can be figured out to a great extent though, its working a puzzle. No one knows exactly what the puzzle will look like for each person on spectrum. That's the best I can say from a fellow pecanbreader that utilizes some customization of SCD. Summer > Elaine has given us a rare gift, a healing diet where the pieces fit > together. It may not work for all of the people all of the time, and > this was never promised, However 80% (in terms of improvement or cure) > is a significant ratio of success. I suspect that this 80% figure is from those who had GI issues such as celiac, UC, and IBS. Most but not all of the people on this list are doing SCD for their ASD children. I highly doubt this statistic applies to ASD children on SCD, unless the majority of the 80% are in the 'showing improvement' category. Which, to be fair, there are several ASD biomedical interventions that that have a similar ratio of success based on those terms. Recently a mom posted a request to parents of kids who have been able to recover from SCD alone. I was very disappointed that we still have not heard from anyone yet. Becky Mom to Noah (6, HFA) and (3, NT) SCD 3 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Becky, > > > Since I am one of the pecanbread members bringing up customization of SCD if is not enough alone, I think it is important to explain why. Summer If SCD were the sole cure for autism it would be in three inch newspaper headlines world wide, Oprah would invite us to appear and the Drs.Haas would be up for a posthumous Nobel prize. Do we all accept that Dietary Intervention plays a significant role on todays's autism treatment scene? The point is this list was formed to MAINLY to support and address questions and helpful approaches to implementation of the SCD diet. Consider us a specialty list devoted to one important aspect of treatment and one that cannot undertake the rest of the parts of a thousand piece jigsaw puzzle in one location.. There are many many autism lists on Yahoo and elsewhere and some have a partcular focus or aspect to address. This one is about SCD, which is why you started Open Blooms, I believe. I remind you of the trademark issue which prohibits continuing to use the term SCD if any unsanctioned additions are made to the proscribed protocols in particular the legal food list. If there is something unclear about this I will be glad to elaborate but I understood this discussion was over when Jody proposed her excellent solution to satisfying factions that wanted to digress on to related topics. They can be labeled " OT " or dicussed on your list. Please accept that I am stating this in a non confrontaional manner upon which we also agreed. before Jody's departure for the weekend. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Becky, > > I too was disappointed that no one posted about the ability of SCD to recover autism alone. > > Autism has no cure, and is a complex situation. Not that other illness is not complex, but autism is a puzzle. The first thing one reads on our home page is: This is a discussion group for those implementing the Specific Carbohydrate Diet â„¢ But I am due to have my prescription checked this year and hope I make it to line 3 on the eye chart LOL :-) Carol F.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 I don't think anyone is arguing that SCD is the only topic of conversation on this list. I think the others are trying to express concern when list members tell newbies that SCD is all that is needed. Many times this is not the case, and one can waste precious time with their child by refusing other biomedical interventions that may be needed in their particular situationd. Does anyone need to discuss the other interventions here? No. I agree that this is not the place. However, there are individuals on this list that seem to have an agenda of promoting a version of SCD that excludes approved SCD helps such as enzymes, etc (and Elaine did approve some of these as the legal/illegal list of supplements is a testament of). I think this is the where the discord lies. As far as I can tell, no one has violated Jody's guidelines. The topic is still SCD here. The concern lies with encouraging others not to avail themselves of SCD approved helps or scaring people when they are interested in investigating additional biomedical treatments even when they do this outside of Pecanbread. Jeni Lynn > > The first thing one reads on our home page is: > > This is a discussion group for those implementing the Specific Carbohydrate Diet â„¢ > > But I am due to have my prescription checked this year and hope I make it to line 3 on the > eye chart LOL :-) > > Carol F.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 (My computer crashed as I wrote this originally. Sorry if it appears twice.) I became active on this board 3 mos. to gain a better understanding of the theory of healing mechanisms of SCD and to benefit from the experience of those who have been following the diet a while, for themselves and/or their ASD children. What I relate to as a newbie is any article of information that helps me make a more confident decision for my son about SCD. I think the strength of this board, particularly for newbies, is its consistency in adhering to SCXD as presented in BTVC and its wealth of reasoning via Elaine or those close to her about various nuances of the diet. Only 3 months into the diet, it's more important for me to read of Elaine's thought processes, and what others have experienced-- the " tried-and-true " recipes, mindsets, etc.--than any direct advice. I do like reading of others' successes periodically, but frankly, it's going to take first-person results in my own home to win me over. So I simply want to get this thing right, then I can then decide on my own if it's right for us. For me, on this board, discussions of modification of this diet, adding enzymes, and other interventions are distracting and only fragment the real information I'm trying to find. I am fully aware of how beneficial some complementary interventions can be, just as I am aware of how varying perspectives (GAPs, et. al) foster broader knowledge. But I came here to this board to learn about SCD. That's what the sign said on the door. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Carol, My post was expressing how I feel cutomization of SCD has worked for us. Jody posted in the guidelines conversations like this, which I only added some thoughts to, be labeled OT. I only added to this pre-existing conversation, I felt staying on topic for it. The above threat is labeled OT Advice for a family of beginners. I did not say SCD was the sole cure for autism. I did not say the cure for autism lies outside of SCD. This is a speciality list, and I understood the list guidelines to say these posts labeled OT about autism and treatments would be allowed. I felt sharing Hunt's and Ben's progress here was warranted, and helpful. Many autism lists, yes. We follow SCD, and with some adjustments, had smashing success. We started OpenBlooms for fun, a place to blow off steam, share research, most of us are SCDers, we have a few members following other diets, its a community. Immediately after starting OpenBlooms, you did send up an email we could not use SCD tm in the title, and out of respect, immediately removed it. However, I do follow SCD, we I talk of our experience with it, or others speak of it, we can't call it but what it is, we call it SCD. I am awaiting my first glimpse into my GAPS book on order this week. I have been on pecanbread for over a year and a half, and spent much time helping anyone and everyone. I suddenly feel myself on the defense. My apologies if my response was not labeled OT. Summer If SCD were the sole cure for autism it would be in three inch newspaper headlines world wide, Oprah would invite us to appear and the Drs.Haas would be up for a posthumous Nobel prize. Do we all accept that Dietary Intervention plays a significant role on todays's autism treatment scene? The point is this list was formed to MAINLY to support and address questions and helpful approaches to implementation of the SCD diet. Consider us a specialty list devoted to one important aspect of treatment and one that cannot undertake the rest of the parts of a thousand piece jigsaw puzzle in one location.. There are many many autism lists on Yahoo and elsewhere and some have a partcular focus or aspect to address. This one is about SCD, which is why you started Open Blooms, I believe. I remind you of the trademark issue which prohibits continuing to use the term SCD if any unsanctioned additions are made to the proscribed protocols in particular the legal food list. If there is something unclear about this I will be glad to elaborate but I understood this discussion was over when Jody proposed her excellent solution to satisfying factions that wanted to digress on to related topics. They can be labeled " OT " or dicussed on your list. Please accept that I am stating this in a non confrontaional manner upon which we also agreed. before Jody's departure for the weekend. Carol F. Summer's Family, SCD 08/04 http://health.groups.yahoo.com/group/openblooms/ --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 i used to do this long angst laden posting and perhaps still do but have evolved some simple rules for posting the number one rule is the post needs to help me and i don't give a fig about the degree of help to anyone else i don't read guidelines and if i get banned from posting then the moderators are only doing me a favour cause i post too much anyway some people are way much more work than others with very little reward and shoudl be avoided i think i just take a pragamtic view now, posts are a dime a dozen and sink into the archives to be lost forever and who cares, you know, like the only thing i take is a better understanding of something or having thought a bit more about something by replying message boards are very counter intuitive and don't fit the usual human exchanging favours system at all, though sometimes they do a bit. seen all the games people play and been through a fair few of them myself and its interesting how as i get less toxic i see more clearly though its a slow process. > > Carol, > > My post was expressing how I feel cutomization of SCD has worked for us. Jody posted in the guidelines conversations like this, which I only added some thoughts to, be labeled OT. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 , You are right. My own thought processing, posts can bring some clarity, but my focus is scrambled and I don't always see. Thanks! I needed to hear this. Summer Summer's Family, SCD 08/04 http://health.groups.yahoo.com/group/openblooms/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > > > Carol, > > > > My post was expressing how I feel cutomization of SCD has worked > for us. Jody posted in the guidelines conversations like this, which > I only added some thoughts to, be labeled OT. > > , Sinatra said it all. " That's Life. " Gertrude, I think Jody wanted us to hold off on some of these topics OT or not until she returns which I will do right now. ICarol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 , I don't agree with you at all. I stick around to help and be helped. Pearl andrew wrote: the number one rule is the post needs to help me and i don't give a fig about the degree of help to anyone else i don't read guidelines and if i get banned from posting then the moderators are only doing me a favour cause i post too much anyway some people are way much more work than others with very little reward and shoudl be avoided i think i just take a pragamtic view now, posts are a dime a dozen and sink into the archives to be lost forever and who cares, you know, like the only thing i take is a better understanding of something or having thought a bit more about something by replying message boards are very counter intuitive and don't fit the usual human exchanging favours system at all, though sometimes they do a bit. seen all the games people play and been through a fair few of them myself and its interesting how as i get less toxic i see more clearly though its a slow process. > > Carol, > > My post was expressing how I feel cutomization of SCD has worked for us. Jody posted in the guidelines conversations like this, which I only added some thoughts to, be labeled OT. > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Bill, you wrote: <<For me, on this board, discussions of modification of this diet, adding enzymes, and other interventions are distracting and only fragment the real information I'm trying to find. I am fully aware of how beneficial some complementary interventions can be, just as I am aware of how varying perspectives (GAPs, et. al) foster broader knowledge. But I came here to this board to learn about SCD. That's what the sign said on the door. >> I agree, Bill.... well put. I don't think there is a problem with having some of these other subjects come into the discussion. The reality is that some parents ARE doing other things along with SCD and it's not realistic to expect they won't ever mention anything else. The fine line we must be careful not to cross is in responding to new parents by essentially saying " You should ALSO be doing this, that and the other... " . It's overwhelming for the parents who are trying to digest (no pun intended) the BTVC book and figure out how to do this diet. I think they can suddenly be left feeling like they must have purchased an out-dated version of the book, because their copy doesn't mention these other modifications. Many of the " modifications " or additional things that Summer mentioned in her earlier post, for example, are not SCD illegal.... which is great. Nothing wrong with that. It's good to be clear, though, that some of these extras are not part of " SCD Proper " , as trademarked or whatever... but that they *might* be helpful to some, and don't require bending the protocol to include illegals. I appreciate that (and I look forward to learning how to make the bone broths!). In a way, with a list this big, it's just essential to stick to the topic because of the sheer size of it.... otherwise everything gets too muddled and confusing. I see the need for streamlining the SCD discussion here, because there very much DOES need to be one list that sticks to strictly SCD. If not here, then where? That was the original intention of this list. Patti, interim moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > I don't think anyone is arguing that SCD is the only topic of > conversation on this list. > > I think the others are trying to express concern when list members > tell newbies that SCD is all that is needed. Many times this is not > the case, and one can waste precious time with their child by > refusing other biomedical interventions that may be needed in their > particular situationd. > > Does anyone need to discuss the other interventions here? No. I > agree that this is not the place. However, there are individuals on > this list that seem to have an agenda of promoting a version of SCD > that excludes approved SCD helps such as enzymes, etc (and Elaine did > approve some of these as the legal/illegal list of supplements is a > testament of). I think this is the where the discord lies. > > As far as I can tell, no one has violated Jody's guidelines. The > topic is still SCD here. The concern lies with encouraging others > not to avail themselves of SCD approved helps or scaring people when > they are interested in investigating additional biomedical treatments > even when they do this outside of Pecanbread. > > Jeni Lynn > > > > The first thing one reads on our home page is: > > > > This is a discussion group for those implementing the Specific > Carbohydrate Diet â„¢ > > > > But I am due to have my prescription checked this year and hope I > make it to line 3 on the > > eye chart LOL :-) > > > > Carol F.. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > I don't think anyone is arguing that SCD is the only topic of > conversation on this list. > > I think the others are trying to express concern when list members > tell newbies that SCD is all that is needed. Many times this is not > the case, and one can waste precious time with their child by > refusing other biomedical interventions that may be needed in their > particular situationd. > Agreed, and that's why it is resourceful of Jody to have separated the other interventions from helping newcomers get started o SCD. After all, ou practice your scales before booking a performance at Carnegie Hall! I must say that before when a related topic came up I tried to research it and finally gave up being on the list altogether because I felt i couldn't contribute in the other areas and was sounding like a broken record by constantly citing the basics. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Carol, > > My post was expressing how I feel cutomization of SCD has worked for us. Jody posted in the guidelines conversations like this, which I only added some thoughts to, be labeled OT. > > I only added to this pre-existing conversation, I felt staying on topic for it. > > The above threat is labeled OT Advice for a family of beginners. > Is that a " threat " or a promise :-)? Carol, chuckling. Sometimes typos can really be fun. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Carol, Please keep constantly citing the basics. You do it in a very kind manner and I for one need to 'hear' it often. I think I need to unmuddy my brain from some of what went on. Sandy M. > > > > I don't think anyone is arguing that SCD is the only topic of > > conversation on this list. > > > > I think the others are trying to express concern when list members > > tell newbies that SCD is all that is needed. Many times this is not > > the case, and one can waste precious time with their child by > > refusing other biomedical interventions that may be needed in their > > particular situationd. > > > Agreed, and that's why it is resourceful of Jody to have separated the other interventions > from helping newcomers get started o SCD. After all, ou practice your scales before > booking a performance at Carnegie Hall! > > I must say that before when a related topic came up I tried to research it and finally gave > up being on the list altogether because I felt i couldn't contribute in the other areas and > was sounding like a broken record by constantly citing the basics. > > Carol F. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 lol. Thread! I am too little to be threatening to anyone. heehee Summer carolfrilegh wrote: > > Carol, > > My post was expressing how I feel cutomization of SCD has worked for us. Jody posted in the guidelines conversations like this, which I only added some thoughts to, be labeled OT. > > I only added to this pre-existing conversation, I felt staying on topic for it. > > The above threat is labeled OT Advice for a family of beginners. > Is that a " threat " or a promise :-)? Carol, chuckling. Sometimes typos can really be fun. For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > > Carol, > Please keep constantly citing the basics. You do it in a very kind > manner and I for one need to 'hear' it often. I think I need to > unmuddy my brain from some of what went on. > Sandy M. Sandy, Groucho Marx once said he wouldn't want to belong to any club that would have him. I take the cake for being turfed out of some of SCD's best support groups because people seem to think compliance equals inflexibility. I just wiish I had raised my kids and trained my older dog as strictly as I defend SCD. Being unpopular is not the end of the world either. .Plato had his annoying little gadfly who tried to keep the great philospher on track. I am bigger but do the same buzz. Carol F.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 > Being unpopular is not the end of the world either. > Carol F.. > I agree, Carol. I have had to learn that everyone doesn't have to understand, agree or even like what I do concerning my kids and most don't. The main thing is I am doing to the best of my ability what is right for them and my family. This is a very hard part of doing something like SCD though. As a society in general being popular is the thing to do. Sandy M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Carol said: ......I take the cake for being turfed out of some of SCD's best support groups because people seem to think compliance equals inflexibility. I just wish I had raised my kids and trained my older dog as strictly as I defend SCD........Being unpopular is not the end of the world either. .Plato had his annoying little gadfly who tried to keep the great philosopher on track. I am bigger but do the same buzz. CAROL I WANT TO THANK YOU Immensely for KEEPING US ON TRACT WHEN WE ARRIVED HERE WITH AN ATTITUDE THAT WE KNEW ALL. If it hadn't been for you and a few others I am sure that I would not have known to adhere to this thing like our life depended on it. I am certain that we would still be avoiding the goat yogurt, and thinking that just a tiny amount of starch in a supplement won't hurt and drinking JUICE that is not safe. YOU ARE A GOD SEND AND AN ANGEL to keep the integrity of SCD alive for us! Some day, KiKI will thank you too, because I am writing down everything, and will tell her about those who helped save her from autism. You needed to be tough with me in the beginning...(I almost left...lol!) but swallowed my pride!........I LOVE YOU NOW FOR IT!........and to know that it is about keeping it simple....this is how it works....with 100% compliance. Now I become unpopular with some...but have already been thanks myself by many! ELAINE would be so proud of us all, who take care of the integrity of SCD TM! HUGS and GOD BLESS! Antoinette Quote Link to comment Share on other sites More sharing options...
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