SCD RECOVERIES ON A FANATICAL LIST/Re: OT Advice for a family of beginners

[Guest guest]

I am in a hurry but wanted to repost something that was on another

list.(With permission).

I want to again give my gratitude to Turet for her efforts in

making a " fanatical " list that helped so many.

Mimi

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You asked where I got the information about the recovery rates

for children who do SCD. I got this information from the archives of

the

two lists that first reported the use of SCD for autism.

RecoveredKids

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was the founder of RecoveredKids,a yahoo list. She reports

a

100% recovery rate for the two children that she knew who were doing

SCD. This sample is too small to generalyze but it is very

encouraging.

http://groups.yahoo.com/group/RecoveredKids/message/5261

The dairy-free version of the SCD diet was a miracle for both my

kids.

It recovered my daughter and saved my NT son from wasting away.

http://groups.yahoo.com/group/RecoveredKids/message/5451 I don't

know if

you will hear of many more success stories with this diet because

hardly

anyone is doing it. I only know of one other Mom, besides myself, and

her son is recovered. Between the two of us, we've told hundreds of

parents about this diet. It took a giant leap of faith to do this. I

doubted myself big time.

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The longisland listserve: The archives of the longisland listserve

can

be searched by subscribing to it:SCD-list-subscribe@...

(long island list)

At the beginning there were only 2 parents of children with autism on

the longisland listserve:Dawn and Jen Young. Dawn's story:

http://www.scdiet.org/6research/autism.html

[responding to Elaine's question about how Allie came to feel so much

better] I had written in about this before. She has been on SCD for 4

months now and has been declassified from her autism diagnosis. She

is

still a very spirited little girl, but all her autistic behaviors

have

disappeared. I am using the yogurt and cheeses with her. Her favorite

treat is the orange juice/yogurt creamscicles! She has a couple of

those

a day. She also loves the half & half yogurt mixed with apple butter.

Dawn UC 11 yrs, SCD 7 months - no meds

Allie cured autistic, SCD 4 months

Jen Young's story:

http://www.redflagsweekly.com/features/2002_sept23.html

Luster also joined the longisland listserve for a brief time.

Her

son also recovered from SCD. It is not clear if SCD was responsible

for

her son's recovery because he was on it for only several months. I am

not including him in the data.

A little while later,more mothers joined the list. The following

mothers had very young children:JK and Tamaro. B

had a

6 year old.

JK reported that SCD was healing her child ;her child did not remain

on SCD because the parents' religion forbade meat and he was

allergic to eggs.

Tamaro's son recovered and is in a regular private school.

He

has mild ADD. was so grateful to SCD that she funded the

SCD

table at the DAN Portland conference. Tamaro has written

several posts about his recovery on pecanbread.

A B's child was over 5 when he started SCD. He made dramatic

progress with the diet. He was able to be mainstreamed in schools

but he

is still on the spectrum. His mother recently wrote post #42096 on

abmd I am not including him because he was over 5

when

he started the diet. There were also some mothers with older

children on that list. I am too tired right now to write about them

right now.

What is the success rate for the young SCD pioneers who remained on

SCD

for several years? There were 5 kids who were 5 years old or younger

when they started SCD. All of them recovered. That is 100% success

rate.

Again,I want to repeat that these numbers are too small to make

general

conclusions.

How can we explain such a miracle? Can it be attributed to the fact

that

the only beginners list at that time was the longisland listserve,a

list

that is unusually strict list,even by the standards of other SCD

lists?

Both Tamaro and Jen young have revealed that 100%

compliance

with SCD was the secret of their success so that might explain this

astonishing success rate.

Today,things are different and we cannot expect to replicate these

amazing success rates. Every Tom,Dick,and Harry has come up with a

new

way to improve SCD. Parents are constantly bombarded with advice to

modify SCD. Even the company that provides the probiotics for SCD is

giving advise that is not in agreement with SCD.

There are also some children who have severe ASD and need a lot of

other interventions besides SCD in order to recover.

>

> Recently a mom posted a request to parents of kids who have been

able to

> recover from SCD alone.