To denise hillion Re: Harvard researchers confirm Gl/autism link

[Guest guest]

DENISE

We went to krigsman a couple of months ago. We're loaded with ldn. Gut

is our problem Very disappointed in krigsman's follow up. Cant even

get him to answer questions at his expensive hourly rate. Could you

please email me off list? I would like to ask you about your GI's

recommendations. Finally I called dr. K's nurse and said could you just

go ask him if we should do scd. Nurse came back and said sure. I

think scd is helping but we need more help. I still don't know what ldn

really means. Please email me off list. haleplay@... thank you

Re: Harvard researchers confirm Gl/autism link

-My son sees Dr. Buie and just recently did a colonoscopy and

endoscopy. He found lymphoid nodular hyperplasia and inflammation

throughout my sons GI track. He is on enzymes, singular, gluten-

casien free diet, but now we are starting the SCD, advice from our

DAN doctor Dr. Hardy. You probably didn't need to know all

that ,but the reason I am writing is just that I wanted to say what

an amazing Doctor Tim Buie is. If anyone is in the need for a

GI/autism doctor he is terrific. Dr.Hardy and Peggy Chapman at

Hardy Healthcare are also amazing DAN doctors. They are all doing

whatever they can to help these kids and there is not much support

from most doctors.

Thanks for reading,

Son/ASD/4 years old -Daughter/ chronic loose stools/2 years old

In pecanbread , " Carolyn Weissberg "

wrote:

>

> This REALLY points to SCD being a good idea, even though they

don't say it!

>

> http://adventuresinautism.blogspot.com/2006/05/harvard-researchers-

> confirm-giautism.html

>

> Harvard researchers confirm Gl/autism link

> AUTISM RESEARCH REVIEW INTERNATIONAL

> Vol. 20, No.1, 2006

> Page 4

> Biomedical Update:

> Harvard physician Buie recently reported that biopsies

performed by

> him revealed the presence of chronic inflammation of the

gastrointestinal

> tract, as well as the presence oflymphoid nodular hyperplasia, in

15 of 89

> autistic children. The findings parallel those of

Wakefield, the

> researcher who first identified the presence of a unique type of

> gastrointestinal disorder in children with autism spectrum

disorders. Buie

> told

> a conference in December, " These children are ill, in distress and

pain, and

>

> not just mentally, neurologically dysfunctional. "

> Buie, Rafail Kushak, and colleagues also have measured the

activity of

> dissaccharidases (enzymes that break down carbohydrates in the

intestine) in

>

> tissues obtained from duodenal biopsies from 308 autistic

individuals,

> comparing them to samples from 206 non-autistic controls. All of

the

> subjects

> underwent endoscopy for suspected gastrointestinal problems. The

> researchers report, " Autistic individuals with diarrhea [206

individuals]

> demonstrated significantly lower maltase activity than non-autistic

> individuals

> with diarrhea. Frequency of lactase deficiency in autistic

individuals with

> failure to thrive [five individuals] was significantly higher (80%

vs. 25%)

> than

> in non-autistic individuals with failure to thrive, and frequency

of

> palatinase

> deficiency in autistic individuals with diarrhea was significantly

higher

> than in

> nonautistic individuals with the same gastrointestinal problem. "

Autistic

> and

> non-autistic individuals with other gastrointestinal problems

exhibited

> similar

> frequencies of disaccharidase deficiencies.

> These findings further support the link between autism and a novel

form of

> gastrointestinal disease, and are consistent with clinical

evidence that

> many

> autistic children improve physically and behaviorally when they

are placed

> on

> gluten- and casein-free diets and receive supplements of

disaccharidase

> enzymes.

> - - -

> " Gastrointestinal symptoms and intestinal disaccharidase

activities in

> children

> with autism, " Rafail Kushak, Harland Winter, Farber, and

> Buie, Abstract of presentation to the North American Society of

Pediatric

> Gastroenterology, Hepatology, and Nutrition, Annual Meeting,

October 20-22,

> 2005, Salt Lake City, Utah.

> " Gastrointestinal symptoms and intestinal disaccharidase

activities in

> children

> with autism, " Rafail Kushak, Harland Winter, Farber, and

> Buie, Journal of Pediatric Gastroenterology and Nutrition, Vol.

41, No.4,

> October 2005.

> " Harvard Clinic scientist finds gut/autism link, like Wakefield

findings, "

> FEAT

> Newsletter, December 2005. Address: Rafail I. Kushak, Pediatric

GI/Nu-

> trition, Massachusetts General Hospital, Boston, MA02l14

>

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