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I will be doing respite today for a 6 year old girl diagnosed ASD, yet

talking with her foster mom last night, it sounds more like Rett

Syndrome. One of the social workers had called me earlier in the week

about a little ASD girl who wouldn't sleep, and I suggested taking her

off all milk and giving her melatonin, and giving the foster mother my

number so we could talk. She said the suggestions worked, and that

after 3 days she was more alert to her surroundings.

I was just wondering if anyone has tried this diet with a child like

this.

Sue B, celiac, BJ fragile X, SCD 11 months

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We have celiac disease in our family also (the gluten free casein free

diet...DID NOT WORK as well). My husband and I (gold standard confirmed with

biopsy) and my two children all have Celiac Disease. Not so surprisingly in our

family, we also have many autism spectrum related problems such as ADD, ADHD, my

daughter has many asbergers traits, plus depression and anxiety related

problems..... all I now know related to a damaged gut and the imbalances that

occur in the gut causing neurological problems of ANY KIND. All the ones that

Eliane G talks about in her book. The thing is the celiac panel...did not catch

this type of problem because it is not a problem with the IgG or IgA immune

system....our truest validation has came from changing our diet...not the

validation of tests and doctors. Breaking The Vicious Cycle book has helped

many children with autism related problems!...Countless, not just ours. Got to

www.amazon.com<http://www.amazon.com/> and read book reviews.

I truly in my heart now know that just taking Gluten or even Casein was not

going to be enough...we tried this last year.... getting some relief but nothing

like we are now. I wish I had been ready for this was of eating sooner.....but

it's strict adherence at the time turned me off and overwhelmed me. Yet, now we

are finally truly healing from our problems.....what a waste a time it was last

year.....but I guess needed to learn " the hard way " so that we would be

motivated to even feel better.

My suggestion would be to try a strict SCDiet for a minimum of thirty days

(being mindful of all hidden " illegals " )....and see if it helps...if she is like

our family....it will be amazing. Many of us here do not do the dairy due to

problems with it...it truly causes behavior and neurological problems for some

of us. You will not be alone.

Warm Regards, Antoinette

(day 52 entire family SCDiet, family list of problems, Celiac and the

neurological, psychological problems related to a damaged, leaky and sick

gut.....making the entire problems truly biomedical and not psychological in

origin, therefore this diet works!).

Rett Syndrome

I will be doing respite today for a 6 year old girl diagnosed ASD, yet

talking with her foster mom last night, it sounds more like Rett

Syndrome. One of the social workers had called me earlier in the week

about a little ASD girl who wouldn't sleep, and I suggested taking her

off all milk and giving her melatonin, and giving the foster mother my

number so we could talk. She said the suggestions worked, and that

after 3 days she was more alert to her surroundings.

I was just wondering if anyone has tried this diet with a child like

this.

Sue B, celiac, BJ fragile X, SCD 11 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>

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My son has a chromosome syndrome that can 'look' very much like Autism

as well. He has Magenis Syndrome. Until we had a definite

diagnosis at about 15 months we were going with the knowledge that if

nothing else he was autistic - seriously so. We put him on GFCF at about

13 months and had an amazing response. He came out of a deep 'fog' and

began to realize there was a world around him. Major difference. We

moved him to SCD in early 2004 and have been very pleased with his

progress - much moreso than GFCF. He still qualifies for an ASD

diagnosis but does not carry it because his syndrome over-rules it but

each day he is less and less austistic-like. I can't speak to the sleep

issue because with Magenis the circadian rythmn of melatonin is

genetically altered and surges during the day instead of at night. This

causes a major sleep issue in SMS kids which has been unaffected by

diet. Some have had success with the use of melatonin - we have not.

However, SMS also has really nasty behavior issues. My little guy has

none of these and I attribute that fact to SCD. I truly believe without

SCD ph would be a totally different child. SCD has been almost

'miraculous' for him.

I'm happy to answer any other questions - feel free to e-mail me off

list if I can help.

Hubby (GI issues) and son (4 yrs - chromosome syndrome) SCD since mid '04

>

> I was just wondering if anyone has tried this diet with a child like

> this.

>

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