Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 I will be doing respite today for a 6 year old girl diagnosed ASD, yet talking with her foster mom last night, it sounds more like Rett Syndrome. One of the social workers had called me earlier in the week about a little ASD girl who wouldn't sleep, and I suggested taking her off all milk and giving her melatonin, and giving the foster mother my number so we could talk. She said the suggestions worked, and that after 3 days she was more alert to her surroundings. I was just wondering if anyone has tried this diet with a child like this. Sue B, celiac, BJ fragile X, SCD 11 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 We have celiac disease in our family also (the gluten free casein free diet...DID NOT WORK as well). My husband and I (gold standard confirmed with biopsy) and my two children all have Celiac Disease. Not so surprisingly in our family, we also have many autism spectrum related problems such as ADD, ADHD, my daughter has many asbergers traits, plus depression and anxiety related problems..... all I now know related to a damaged gut and the imbalances that occur in the gut causing neurological problems of ANY KIND. All the ones that Eliane G talks about in her book. The thing is the celiac panel...did not catch this type of problem because it is not a problem with the IgG or IgA immune system....our truest validation has came from changing our diet...not the validation of tests and doctors. Breaking The Vicious Cycle book has helped many children with autism related problems!...Countless, not just ours. Got to www.amazon.com<http://www.amazon.com/> and read book reviews. I truly in my heart now know that just taking Gluten or even Casein was not going to be enough...we tried this last year.... getting some relief but nothing like we are now. I wish I had been ready for this was of eating sooner.....but it's strict adherence at the time turned me off and overwhelmed me. Yet, now we are finally truly healing from our problems.....what a waste a time it was last year.....but I guess needed to learn " the hard way " so that we would be motivated to even feel better. My suggestion would be to try a strict SCDiet for a minimum of thirty days (being mindful of all hidden " illegals " )....and see if it helps...if she is like our family....it will be amazing. Many of us here do not do the dairy due to problems with it...it truly causes behavior and neurological problems for some of us. You will not be alone. Warm Regards, Antoinette (day 52 entire family SCDiet, family list of problems, Celiac and the neurological, psychological problems related to a damaged, leaky and sick gut.....making the entire problems truly biomedical and not psychological in origin, therefore this diet works!). Rett Syndrome I will be doing respite today for a 6 year old girl diagnosed ASD, yet talking with her foster mom last night, it sounds more like Rett Syndrome. One of the social workers had called me earlier in the week about a little ASD girl who wouldn't sleep, and I suggested taking her off all milk and giving her melatonin, and giving the foster mother my number so we could talk. She said the suggestions worked, and that after 3 days she was more alert to her surroundings. I was just wondering if anyone has tried this diet with a child like this. Sue B, celiac, BJ fragile X, SCD 11 months For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.com<http://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 My son has a chromosome syndrome that can 'look' very much like Autism as well. He has Magenis Syndrome. Until we had a definite diagnosis at about 15 months we were going with the knowledge that if nothing else he was autistic - seriously so. We put him on GFCF at about 13 months and had an amazing response. He came out of a deep 'fog' and began to realize there was a world around him. Major difference. We moved him to SCD in early 2004 and have been very pleased with his progress - much moreso than GFCF. He still qualifies for an ASD diagnosis but does not carry it because his syndrome over-rules it but each day he is less and less austistic-like. I can't speak to the sleep issue because with Magenis the circadian rythmn of melatonin is genetically altered and surges during the day instead of at night. This causes a major sleep issue in SMS kids which has been unaffected by diet. Some have had success with the use of melatonin - we have not. However, SMS also has really nasty behavior issues. My little guy has none of these and I attribute that fact to SCD. I truly believe without SCD ph would be a totally different child. SCD has been almost 'miraculous' for him. I'm happy to answer any other questions - feel free to e-mail me off list if I can help. Hubby (GI issues) and son (4 yrs - chromosome syndrome) SCD since mid '04 > > I was just wondering if anyone has tried this diet with a child like > this. > Quote Link to comment Share on other sites More sharing options...
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