Re: Re: Antoinette/Summer and to all, Yeastie Beastie ALERT!

[Guest guest]

Don't ask for help if you don't want it you obviously have everything

figured out so I have no idea why you previously asked for assistance. Best

of luck to you and your family

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Re: Antoinette/Summer and to all, Yeastie Beastie

>ALERT!

>Date: Tue, 09 May 2006 12:53:15 -0000

>

>Dear Summer and to all it concerns, Your reply concerns me. Just

>because we have been confirmed as having damaged intestines, you

>fear the enzymes and all these treatments. I guess we will Continue

>to trust int he process of healing. Her thrush spots are gone with

>going back to the intro for four days anyways. Sometimes even I

>want a QUICK FIX!

>

>How many Autistic kids do we think have UNDIAGNOSED damaged

>intestines according to what all the books are saying. Maybe this

>is one HUGE REASON to why the SCDIET is not working for some of you

>on this SERVE?????

>

>THE TREATMENTS and ENzymes are keeping the gut RAW, and ARE KEEPING

>THE VICIOUS CYCLE GOING. I don't know for sure but this makes me

>wonder. At the end of one year...if we do this diet correctly the

>child could be in complete remision.

>

>Dr. Haasa and Elaine never promoted antifungals or enzyems ALL HIS

>KIDS or close to it recovered. MOST HAD SYMPTOMS OF ASD, or other

>emotional disturbances that disappeared with strict SCDiet.

>

>Antoinette

>

>

> > Dear Summer, Can you give us advice on what to do too. KiKi is

> > improving with her yeast situation tremendously. BUT, We went back

>to

> > the intro, she had develped thrush because I was stupid and used

>the

> > wrong kind of unpasturized apple cider on her spinach that she can

>now

> > digest well. She loves the stuff.

> >

> > Her little body can not tolerate prescription anti-fungals,since

>she

> > is so young. The doctors are hesitant to prescribe anything but

> > Nystatin..thanks to her age, size and liver functions. Nystatin

> > doesn't work anyway anymore. Nystatin did not work because, she

> > vomits it up! It was SCD safe too.

> >

> > Just the intro again has helped. But what should we do. Does

>Cilatro

> > help? Have added garlic to everything she eats. I don't want to

>hurt

> > her she only ways 23 pounds.

> >

> > Please also tell me where I buy this stuff that you will be

>mentioning?

> >

> > Other than that she is doing remarkably good! She is talking

>more,

> > playing, imaginary play for the first time and so many firsts it

>just

> > makes my head spin. Even her stimming has disappeared...knock on

> > wood! Me and my husaband are so happy that this SCD is worrking

>for

> > us.

> >

> > Antoinette (mother of 23 month old KiKi/celiac malabsorption

>syndrome

> > and autism)

> >

> >

> >

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read the

>book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

>following websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

> >

> >

> >

[Guest guest]

Jeni Lynn,

Thank you for your calm, eloquent post.

I believe it speaks for many of us on this list.

We can always choose to not be offended by s.t. that is erroneous and/or

amiss.

Agape,

furryhalfpint wrote:

Antionette,

" kikijabunce " wrote:

>

> AS for you , your tone is rude and bully and not very nice,

> considering that I am only a mother trying to heal my sick

> children.

> I strongly suggest that you calm down please, and go get the book

> written from Dr. Haas to see what you may be doing wrong. Since it

> is clear that you do not trust Elaine, and her message.

I find myself somewhat irritated at your response to . Quite

often your posts smack of rudeness and bullying to those of us who

incorporate other biomedical aspects into the healing process (which

is probably most of us). We, too, are only mothers trying to heal our

sick children.

's response to you was the first time that I have ever noted such

a " tone " from her, and I am certain that it was done out of sheer

frustration with you. You continue to dominate this board with your

narrow-minded approach to ASD. If SCD were the ONLY way to recover

than we wouldn't see children recovering through other means.

We all believe in Elaine's message or we wouldn't be here, but she did

not know all the facets of ASD (and she didn't pretend to know all the

facets of ASD). There are other ways to supplement the healing

process of SCD, and it is bothersome that you harrass people that

choose these supplements.

You claim to be Elaine's messanger and that you know Elaine's way

because of her writings and speaking to those that spoke with her

personally. Yet, we have seen here on this very board that people who

spoke with Elaine disagree with you and even resent that you have

exaggerated their conversations with you.

It would be helpful for you to understand that the knowledge of ASD is

evolving. We are learning more about it everyday, and new helpful

treatments/supplements are being discovered. Elaine is now dead, but

the research and discoveries for help will continue to be made. SCD

is a big part of this dilemna, but it is not the COMPLETE answer for

the majority of us. What is absolutely frustrating is that she knew

this and readily acknowledged it to those that she personally spoke

with, but you (who never personally spoke to her) deny this.

I think she would resent you drawing these absolutes for her which she

never intended to make. And I think she would not be pleased that you

have self-proclaimed yourself to be her messanger when you do not

thoroughly know her message.

I imagine you think that you know everything about Elaine because of

her writings. But her writings did not speak to individual cases.

When you talk with those who spoke with her about their individual

children (as did my close friend who is also no longer active on this

list), Elaine would tell them things like, " Well, these children need

so much help that sometimes you have to break a minor SCD principle in

order for them to receive the benefit of another treatment they need. "

In closing, I will say that I resent that you are now driving away

people from this list serve that are so helpful and resourceful. My

family and others that have already protested their exit, will suffer

in their absence. And it is not right that we should be deprived of

their insight and experience simply because you cannot control

yourself.

I agree that this list has taken a wrong turn here with all the

drama. And I would appreciate if you could stop antagonizing list

members here with your bullying so that we can all get back to

learning and helping one another.

Jeni Lynn

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

A profuse " Thank-You " Jeni Lynn, I was all ready to leave the list, but

your post made me change my mind. I agree with every word.

We all have different opinions on what is helpful and not helpful based

on our experiences with our own kids and what we hear from other

parents. Unless a parent on this list is making a suggestion to use

something that is SCD ILLEGAL, I think the bullying ought to stop. I

don't recall for example, digestive enzymes or chelation, being on the

ILLEGAL list, so what's with the contstant harassment of people who use

it. Likewise, SCD yogurt is not a REQUIREMENT of the diet last I

checked.

The drama is getting to be too much, and I am afraid there are several

of us who will hesitate to offer a different opinion to avoid the

bullying, then others will not benefit from hearing multiple opinions.

There seems to be a need for a separate list for those choosing strict

SCD as the ONLY intervention and those using strict SCD in ADDITION to

other interventions. Which list is Pecanbread? I'm not sure. In my mind,

this seems to be the only solution. I for one am tired of the domination

on the list all in Elaine's name. I've never met her, but saw her at the

Boston DAN conference. I would NEVER profess to know her intentions

other than what I've read in the book and have from my conference notes.

Becky

mom to Noah (6, HFA) and (3, NT)

SCD 2 months

>

> Antionette,

>

> " kikijabunce " wrote:

> >

> > AS for you , your tone is rude and bully and not very nice,

> > considering that I am only a mother trying to heal my sick

> > children.

>

> > I strongly suggest that you calm down please, and go get the book

> > written from Dr. Haas to see what you may be doing wrong. Since it

> > is clear that you do not trust Elaine, and her message.

>

> I find myself somewhat irritated at your response to . Quite

> often your posts smack of rudeness and bullying to those of us who

> incorporate other biomedical aspects into the healing process (which

> is probably most of us). We, too, are only mothers trying to heal our

> sick children.

>

> 's response to you was the first time that I have ever noted such

> a " tone " from her, and I am certain that it was done out of sheer

> frustration with you. You continue to dominate this board with your

> narrow-minded approach to ASD. If SCD were the ONLY way to recover

> than we wouldn't see children recovering through other means.

>

> We all believe in Elaine's message or we wouldn't be here, but she did

> not know all the facets of ASD (and she didn't pretend to know all the

> facets of ASD). There are other ways to supplement the healing

> process of SCD, and it is bothersome that you harrass people that

> choose these supplements.

>

> You claim to be Elaine's messanger and that you know Elaine's way

> because of her writings and speaking to those that spoke with her

> personally. Yet, we have seen here on this very board that people who

> spoke with Elaine disagree with you and even resent that you have

> exaggerated their conversations with you.

>

> It would be helpful for you to understand that the knowledge of ASD is

> evolving. We are learning more about it everyday, and new helpful

> treatments/supplements are being discovered. Elaine is now dead, but

> the research and discoveries for help will continue to be made. SCD

> is a big part of this dilemna, but it is not the COMPLETE answer for

> the majority of us. What is absolutely frustrating is that she knew

> this and readily acknowledged it to those that she personally spoke

> with, but you (who never personally spoke to her) deny this.

>

> I think she would resent you drawing these absolutes for her which she

> never intended to make. And I think she would not be pleased that you

> have self-proclaimed yourself to be her messanger when you do not

> thoroughly know her message.

>

> I imagine you think that you know everything about Elaine because of

> her writings. But her writings did not speak to individual cases.

> When you talk with those who spoke with her about their individual

> children (as did my close friend who is also no longer active on this

> list), Elaine would tell them things like, " Well, these children need

> so much help that sometimes you have to break a minor SCD principle in

> order for them to receive the benefit of another treatment they need. "

>

> In closing, I will say that I resent that you are now driving away

> people from this list serve that are so helpful and resourceful. My

> family and others that have already protested their exit, will suffer

> in their absence. And it is not right that we should be deprived of

> their insight and experience simply because you cannot control

> yourself.

>

> I agree that this list has taken a wrong turn here with all the

> drama. And I would appreciate if you could stop antagonizing list

> members here with your bullying so that we can all get back to

> learning and helping one another.

>

> Jeni Lynn

>

>

>

>

>

>

[Guest guest]

yes, Jody, I am willing to start and moderate another list if you feel that

these ideas can not be part of this list

>

>Reply-To: pecanbread

>To: <pecanbread >

>Subject: RE: Re: Antoinette/Summer and to all, Yeastie Beastie

>ALERT!

>Date: Tue, 9 May 2006 18:41:16 -0400

>

>A profuse " Thank-You " Jeni Lynn, I was all ready to leave the list, but

>your post made me change my mind. I agree with every word.

>

>We all have different opinions on what is helpful and not helpful based

>on our experiences with our own kids and what we hear from other

>parents. Unless a parent on this list is making a suggestion to use

>something that is SCD ILLEGAL, I think the bullying ought to stop. I

>don't recall for example, digestive enzymes or chelation, being on the

>ILLEGAL list, so what's with the contstant harassment of people who use

>it. Likewise, SCD yogurt is not a REQUIREMENT of the diet last I

>checked.

>

>The drama is getting to be too much, and I am afraid there are several

>of us who will hesitate to offer a different opinion to avoid the

>bullying, then others will not benefit from hearing multiple opinions.

>

>There seems to be a need for a separate list for those choosing strict

>SCD as the ONLY intervention and those using strict SCD in ADDITION to

>other interventions. Which list is Pecanbread? I'm not sure. In my mind,

>this seems to be the only solution. I for one am tired of the domination

>on the list all in Elaine's name. I've never met her, but saw her at the

>Boston DAN conference. I would NEVER profess to know her intentions

>other than what I've read in the book and have from my conference notes.

>

>Becky

>mom to Noah (6, HFA) and (3, NT)

>SCD 2 months

>

>

> >

> > Antionette,

> >

> > " kikijabunce " wrote:

> > >

> > > AS for you , your tone is rude and bully and not very nice,

> > > considering that I am only a mother trying to heal my sick

> > > children.

> >

> > > I strongly suggest that you calm down please, and go get the book

> > > written from Dr. Haas to see what you may be doing wrong. Since it

> > > is clear that you do not trust Elaine, and her message.

> >

> > I find myself somewhat irritated at your response to . Quite

> > often your posts smack of rudeness and bullying to those of us who

> > incorporate other biomedical aspects into the healing process (which

> > is probably most of us). We, too, are only mothers trying to heal our

> > sick children.

> >

> > 's response to you was the first time that I have ever noted such

> > a " tone " from her, and I am certain that it was done out of sheer

> > frustration with you. You continue to dominate this board with your

> > narrow-minded approach to ASD. If SCD were the ONLY way to recover

> > than we wouldn't see children recovering through other means.

> >

> > We all believe in Elaine's message or we wouldn't be here, but she did

> > not know all the facets of ASD (and she didn't pretend to know all the

> > facets of ASD). There are other ways to supplement the healing

> > process of SCD, and it is bothersome that you harrass people that

> > choose these supplements.

> >

> > You claim to be Elaine's messanger and that you know Elaine's way

> > because of her writings and speaking to those that spoke with her

> > personally. Yet, we have seen here on this very board that people who

> > spoke with Elaine disagree with you and even resent that you have

> > exaggerated their conversations with you.

> >

> > It would be helpful for you to understand that the knowledge of ASD is

> > evolving. We are learning more about it everyday, and new helpful

> > treatments/supplements are being discovered. Elaine is now dead, but

> > the research and discoveries for help will continue to be made. SCD

> > is a big part of this dilemna, but it is not the COMPLETE answer for

> > the majority of us. What is absolutely frustrating is that she knew

> > this and readily acknowledged it to those that she personally spoke

> > with, but you (who never personally spoke to her) deny this.

> >

> > I think she would resent you drawing these absolutes for her which she

> > never intended to make. And I think she would not be pleased that you

> > have self-proclaimed yourself to be her messanger when you do not

> > thoroughly know her message.

> >

> > I imagine you think that you know everything about Elaine because of

> > her writings. But her writings did not speak to individual cases.

> > When you talk with those who spoke with her about their individual

> > children (as did my close friend who is also no longer active on this

> > list), Elaine would tell them things like, " Well, these children need

> > so much help that sometimes you have to break a minor SCD principle in

> > order for them to receive the benefit of another treatment they need. "

> >

> > In closing, I will say that I resent that you are now driving away

> > people from this list serve that are so helpful and resourceful. My

> > family and others that have already protested their exit, will suffer

> > in their absence. And it is not right that we should be deprived of

> > their insight and experience simply because you cannot control

> > yourself.

> >

> > I agree that this list has taken a wrong turn here with all the

> > drama. And I would appreciate if you could stop antagonizing list

> > members here with your bullying so that we can all get back to

> > learning and helping one another.

> >

> > Jeni Lynn

> >

> >

> >

> >

> >

> >