Re: Antoinette/Summer and to all, Yeastie Beastie ALERT!

[Guest guest]

Dear Summer and to all it concerns, Your reply concerns me. Just

because we have been confirmed as having damaged intestines, you

fear the enzymes and all these treatments. I guess we will Continue

to trust int he process of healing. Her thrush spots are gone with

going back to the intro for four days anyways. Sometimes even I

want a QUICK FIX!

How many Autistic kids do we think have UNDIAGNOSED damaged

intestines according to what all the books are saying. Maybe this

is one HUGE REASON to why the SCDIET is not working for some of you

on this SERVE?????

THE TREATMENTS and ENzymes are keeping the gut RAW, and ARE KEEPING

THE VICIOUS CYCLE GOING. I don't know for sure but this makes me

wonder. At the end of one year...if we do this diet correctly the

child could be in complete remision.

Dr. Haasa and Elaine never promoted antifungals or enzyems ALL HIS

KIDS or close to it recovered. MOST HAD SYMPTOMS OF ASD, or other

emotional disturbances that disappeared with strict SCDiet.

Antoinette

> Dear Summer, Can you give us advice on what to do too. KiKi is

> improving with her yeast situation tremendously. BUT, We went back

to

> the intro, she had develped thrush because I was stupid and used

the

> wrong kind of unpasturized apple cider on her spinach that she can

now

> digest well. She loves the stuff.

>

> Her little body can not tolerate prescription anti-fungals,since

she

> is so young. The doctors are hesitant to prescribe anything but

> Nystatin..thanks to her age, size and liver functions. Nystatin

> doesn't work anyway anymore. Nystatin did not work because, she

> vomits it up! It was SCD safe too.

>

> Just the intro again has helped. But what should we do. Does

Cilatro

> help? Have added garlic to everything she eats. I don't want to

hurt

> her she only ways 23 pounds.

>

> Please also tell me where I buy this stuff that you will be

mentioning?

>

> Other than that she is doing remarkably good! She is talking

more,

> playing, imaginary play for the first time and so many firsts it

just

> makes my head spin. Even her stimming has disappeared...knock on

> wood! Me and my husaband are so happy that this SCD is worrking

for

> us.

>

> Antoinette (mother of 23 month old KiKi/celiac malabsorption

syndrome

> and autism)

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Dear Summer and ,

I asked for assistance because I thougth their might be a

homeopathic boost to the SCDiet...even Summer thinks it wise knowing

our situation to not go there. I agreed with her. I in no way sent

Summer on a wild goose chase with my asking for help.

I too want a Quick fix. I have to remember that Elaine said one

year sometimes two depending on how damaged the gut was at the start.

Thank you Summer for your input, you have given me suggestion that

reminds me to trust in the SCD solution.

AS for you , your tone is rude and bully and not very nice,

considering that I am only a mother trying to heal my sick

children...you are out of focus!

I strongly suggest that you calm down please, and go get the book

written from Dr. Haas to see what you may be doing wrong. Since it

is clear that you do not trust Elaine, and her message.

Sincerly, Antinette

> > > Dear Summer, Can you give us advice on what to do too. KiKi

is

> > > improving with her yeast situation tremendously. BUT, We went

back

> >to

> > > the intro, she had develped thrush because I was stupid and

used

> >the

> > > wrong kind of unpasturized apple cider on her spinach that she

can

> >now

> > > digest well. She loves the stuff.

> > >

> > > Her little body can not tolerate prescription anti-

fungals,since

> >she

> > > is so young. The doctors are hesitant to prescribe anything but

> > > Nystatin..thanks to her age, size and liver functions.

Nystatin

> > > doesn't work anyway anymore. Nystatin did not work because,

she

> > > vomits it up! It was SCD safe too.

> > >

> > > Just the intro again has helped. But what should we do. Does

> >Cilatro

> > > help? Have added garlic to everything she eats. I don't want

to

> >hurt

> > > her she only ways 23 pounds.

> > >

> > > Please also tell me where I buy this stuff that you will be

> >mentioning?

> > >

> > > Other than that she is doing remarkably good! She is talking

> >more,

> > > playing, imaginary play for the first time and so many firsts

it

> >just

> > > makes my head spin. Even her stimming has disappeared...knock

on

> > > wood! Me and my husaband are so happy that this SCD is

worrking

> >for

> > > us.

> > >

> > > Antoinette (mother of 23 month old KiKi/celiac malabsorption

> >syndrome

> > > and autism)

> > >

> > >

> > >

> > >

> > >

> > >

> > > For information on the Specific Carbohydrate Diet, please read

the

> >book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the

> >following websites:

> > > http://www.breakingtheviciouscycle.info

> > > and

> > > http://www.pecanbread.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Antionette,

" kikijabunce " wrote:

>

> AS for you , your tone is rude and bully and not very nice,

> considering that I am only a mother trying to heal my sick

> children.

> I strongly suggest that you calm down please, and go get the book

> written from Dr. Haas to see what you may be doing wrong. Since it

> is clear that you do not trust Elaine, and her message.

I find myself somewhat irritated at your response to . Quite

often your posts smack of rudeness and bullying to those of us who

incorporate other biomedical aspects into the healing process (which

is probably most of us). We, too, are only mothers trying to heal our

sick children.

's response to you was the first time that I have ever noted such

a " tone " from her, and I am certain that it was done out of sheer

frustration with you. You continue to dominate this board with your

narrow-minded approach to ASD. If SCD were the ONLY way to recover

than we wouldn't see children recovering through other means.

We all believe in Elaine's message or we wouldn't be here, but she did

not know all the facets of ASD (and she didn't pretend to know all the

facets of ASD). There are other ways to supplement the healing

process of SCD, and it is bothersome that you harrass people that

choose these supplements.

You claim to be Elaine's messanger and that you know Elaine's way

because of her writings and speaking to those that spoke with her

personally. Yet, we have seen here on this very board that people who

spoke with Elaine disagree with you and even resent that you have

exaggerated their conversations with you.

It would be helpful for you to understand that the knowledge of ASD is

evolving. We are learning more about it everyday, and new helpful

treatments/supplements are being discovered. Elaine is now dead, but

the research and discoveries for help will continue to be made. SCD

is a big part of this dilemna, but it is not the COMPLETE answer for

the majority of us. What is absolutely frustrating is that she knew

this and readily acknowledged it to those that she personally spoke

with, but you (who never personally spoke to her) deny this.

I think she would resent you drawing these absolutes for her which she

never intended to make. And I think she would not be pleased that you

have self-proclaimed yourself to be her messanger when you do not

thoroughly know her message.

I imagine you think that you know everything about Elaine because of

her writings. But her writings did not speak to individual cases.

When you talk with those who spoke with her about their individual

children (as did my close friend who is also no longer active on this

list), Elaine would tell them things like, " Well, these children need

so much help that sometimes you have to break a minor SCD principle in

order for them to receive the benefit of another treatment they need. "

In closing, I will say that I resent that you are now driving away

people from this list serve that are so helpful and resourceful. My

family and others that have already protested their exit, will suffer

in their absence. And it is not right that we should be deprived of

their insight and experience simply because you cannot control

yourself.

I agree that this list has taken a wrong turn here with all the

drama. And I would appreciate if you could stop antagonizing list

members here with your bullying so that we can all get back to

learning and helping one another.

Jeni Lynn

[Guest guest]

Jeni Lynn,I am a retaliative newbie to SCD and to this board. I

know that I do not deal with much of the issues that many of you

wonderful ladies deal with. Although different the issues are very

real and debilitating. We have struggled with Tobias' uncontrolable

personality with so many wrong methods. That said we have found a

couple of things, SCD being one, that have really helped. You have

to work with the child and what works for him/her. Someone else

that does not know nor see your child can really do that. They can

give input and then you as the parent take it from there.

I agree with you that we can not be narrow-minded when we deal with

our childs issues. Just like adults they are physical, spiritual

and emotional beings and all needs to be addressed. One treatment

may be the main key for one person and another treatment for another.

It comes down to what works for you and your family.

When we first stared our two on their Neurodevelopemental program I

felt that it was going to be the thing that healed them. I thought

that everyone who had a child should have that child on this

program. After a few weeks/months I realized that it was not the

whole cheese and that everyone was not going to go that way. The

next revelation was that there are other things that also work. Now

a year latter we are weighing as to whether we should continue with

evaluations in this area. I will continue with many of the

exercises but the revals are expensive and feel that our moneys may

need to go to the food issue at this time.

I guess I said all that to say that there are so many ways of

dealing with different issues and we all need to be open to the

possibility of what they can do for us or not.

I hope that this can be resolved without the well seasoned list

mates throwing up their hands and walking away.

Be blessed

Sandy M.

[Guest guest]

Sandy,

I am in complete agreement with you. My hope is that the list

members who have decided to leave will overlook the offenses made for

the sake of the rest of us.

Jeni Lynn

>

> Jeni Lynn,I am a retaliative newbie to SCD and to this board. I

> know that I do not deal with much of the issues that many of you

> wonderful ladies deal with. Although different the issues are very

> real and debilitating. We have struggled with Tobias'

uncontrolable

> personality with so many wrong methods. That said we have found a

> couple of things, SCD being one, that have really helped. You have

> to work with the child and what works for him/her. Someone else

> that does not know nor see your child can really do that. They can

> give input and then you as the parent take it from there.

> I agree with you that we can not be narrow-minded when we deal with

> our childs issues. Just like adults they are physical, spiritual

> and emotional beings and all needs to be addressed. One treatment

> may be the main key for one person and another treatment for

another.

> It comes down to what works for you and your family.

> When we first stared our two on their Neurodevelopemental program I

> felt that it was going to be the thing that healed them. I thought

> that everyone who had a child should have that child on this

> program. After a few weeks/months I realized that it was not the

> whole cheese and that everyone was not going to go that way. The

> next revelation was that there are other things that also work.

Now

> a year latter we are weighing as to whether we should continue with

> evaluations in this area. I will continue with many of the

> exercises but the revals are expensive and feel that our moneys may

> need to go to the food issue at this time.

>

> I guess I said all that to say that there are so many ways of

> dealing with different issues and we all need to be open to the

> possibility of what they can do for us or not.

>

> I hope that this can be resolved without the well seasoned list

> mates throwing up their hands and walking away.

>

> Be blessed

> Sandy M.

>