Re: OT - re: therapy - kiki THANK YOU ALL

[Guest guest]

Thank you all for such valuable informaiton and suggestion. Yes,

they need to see her at her worst or she will not get the help she

needs. I am certain with the eight people that will be evaluating

her that she will be.

It is me that doesnt want to see it, but this is my problem that

needs to be addressed. It is not KiKI's fault...I just am having

problems letting go and accepting who she is. She can not embarass

me if I " grow " up and ralize that their is nothing to be embarassed

about. Just being honest here.

I personalize her behavior and I should not do this. It is nobodies

fault, not bad parenting that is. So manytimes before I knew Celiac

Disease/injured intestines ran in the family and my son would act up

those with good intentions blamed his parents. No I know better.

And pray that they do to, and if they don't I will gently educate

them.

Thanks to all who helped, Antoinette

>

> It makes me so sad to hear the difficult therapy situations some

of

> you have dealt with. I had a whole case load of sensory kiddos

> (spectrum and otherwise) and I know I made mistakes when I

practiced

> (not big ones, but you can't be perfect - chose the wrong approach

> for a while, chose the wrong activity, etc.) but, I had wonderful

> mentors who really pushed the idea that the family is the best

> advocate and know the child the best. And I really loved my kids

and

> love does cover a lot - even when they are your clients/patients.

> I'm so sorry that every one of your children can't have a

wonderful

> therapist who loves them (I know the therapy board might not

approve

> of " loving " a child, but I don't think you can spend 2 hours a

week

> with a child and their family without getting attached.) Believe

me

> I remember when God gave me my own very special boy, thinking that

I

> needed to apologize to some of my families for wondering why they

> weren't following through, etc. And we've had our own problems

with

> therapists and I've had to change one and start with another. But

> again, I do wish everyone could have competent caring therapists.

> We've had to search a bit to find ours and we are thankful for all

4

> of them. Good luck with the therapy eval Antionnette. I agree

with

> what others have said - let them see the worst. Its far easier to

> back off therapy once its not needed than try to get the state to

add

> more. Also remember that you are her best advocate. The

therapists

> are there to help you with ideas and direction in some instances,

but

> you know her the best. Also, here in Missouri we have the right

to

> choose the early intervention therapist. Ask if you have that

> ability, then you can call and interview them. Find out what

their

> background is, specialty is, etc. Good luck.

>

>

>

> Colby

> celiac

> SCD 2 months

>