Re: 2.5 month update

[Guest guest]

the trouble is that since scd was developed things have got much worse

with kids with vaccines really mucking up the gut innate immune system

and this affects the kids ability to ever control yeast adequately,

please read my other post just before this one? for what i find helps

with yeast.

scd is important but its not the whole story.

> along with alternating loose and firm stools. That's where we are

> still. Certainly seems like yeast, but we are hoping that this is the

> regression that Elaine spoke of in BTVC as a possibility at around

the

> 2-month mark. It's disappointing, because his IEP evaluation was this

> past week and Lord knows that didn't go well. If it is yeast then I'm

> confused, since I understand that SCD foods shouldn't be feeding

> yeast. But we're keeping the faith for now as Elaine suggested.

>

>

[Guest guest]

-Bill,

Could it be that your son got a hold of SCD illegal foods? It is

very easy to get toxic foods.

I personally have heard school teachers say: " Let the kid have cake

since his classmate is having a birthday,it is OK to eat cakes for

special occasions " . School bus drivers can also be guilty of giving

treats. My daughter used to pick M & M from the floor when I took

her to fun activities.

Mimi

> Just a brief update for anyone interested: We're 2.5 months into

> strict SCD with my 6 y.o. son, and while we're convinced it's

helping

> on some level, the jury is still out for us.

>

> At about a month we saw 2 days of die-off symptoms, then normal

stools

> for the first time in ages. We were on a good roll until about a

week

> ago, then we saw a notable behavioral regression--increased

stimming,

> defiance, decrease in focus and distractibility, at home and

school--

> along with alternating loose and firm stools. That's where we are

> still. Certainly seems like yeast, but we are hoping that this is

the

> regression that Elaine spoke of in BTVC as a possibility at around

the

> 2-month mark. It's disappointing, because his IEP evaluation was

this

> past week and Lord knows that didn't go well. If it is yeast then

I'm

> confused, since I understand that SCD foods shouldn't be feeding

> yeast. But we're keeping the faith for now as Elaine suggested.

>

> We're planning to make our first batch of yogurt as soon as the

> diarrhea subsides. Maybe that will help.

>

> As I mentioned, I don't have a lot of strong opinions about SCD

now

> with less than 3 months of experience, but hopefully my occasional

> updates will be of some interest. The informational posts on this

> board are helpful.

>

> Good luck,

>

> Bill

>

[Guest guest]

Hi Bill,

I would say that your son is pretty on. We have had a couple of

regressions with our son. He is not ASD but possibly bipolar. One

of the things I have had to look at is phenol issues with him also.

I try to avoid high phenol foods. I tried the NoPhenol enz. but saw

nor real help with it.

In one of the past posts someone,possibly ?, talked about

yeast dying off in layers. This made so much sence to me. It would

be the reason why there is die off and then good results followed

with more die off.

We follow SCD very strictly and have seen great results with our

son. We still have a ways to go to declare no emotional symptoms

but it is truely like living with a different child than we had back

in Dec.

Be blessed

Sandy M.

>

> Hi all,

> Just a brief update for anyone interested: We're 2.5 months into

> strict SCD with my 6 y.o. son, and while we're convinced it's

helping

> on some level, the jury is still out for us.

>

> At about a month we saw 2 days of die-off symptoms, then normal

stools

> for the first time in ages. We were on a good roll until about a

week

> ago, then we saw a notable behavioral regression--increased

stimming,

> defiance, decrease in focus and distractibility, at home and

school--

> along with alternating loose and firm stools. That's where we are

> still. Certainly seems like yeast, but we are hoping that this is

the

> regression that Elaine spoke of in BTVC as a possibility at around

the

> 2-month mark. It's disappointing, because his IEP evaluation was

this

> past week and Lord knows that didn't go well. If it is yeast then

I'm

> confused, since I understand that SCD foods shouldn't be feeding

> yeast. But we're keeping the faith for now as Elaine suggested.

>

> We're planning to make our first batch of yogurt as soon as the

> diarrhea subsides. Maybe that will help.

>

> As I mentioned, I don't have a lot of strong opinions about SCD

now

> with less than 3 months of experience, but hopefully my occasional

> updates will be of some interest. The informational posts on this

> board are helpful.

>

> Good luck,

>

> Bill

>

[Guest guest]

I also agree with this. My son got an M & M, ONE M & M, and we had a

major reactive day. I made candy for Easter using almond and about

2 1/2 hrs after he had some he went ballistic. It really is finding

out what things our individual child reacts to or tolerates well.

Some times I feel a bit psychotic. <SMILE>

Sandy M.

>

> -Bill,

>

> Could it be that your son got a hold of SCD illegal foods? It is

> very easy to get toxic foods.

> I personally have heard school teachers say: " Let the kid have cake

> since his classmate is having a birthday,it is OK to eat cakes for

> special occasions " . School bus drivers can also be guilty of

giving

> treats. My daughter used to pick M & M from the floor when I took

> her to fun activities.

>

> Mimi

> > Just a brief update for anyone interested: We're 2.5 months

into

> > strict SCD with my 6 y.o. son, and while we're convinced it's

> helping

> > on some level, the jury is still out for us.

> >

> > At about a month we saw 2 days of die-off symptoms, then normal

> stools

> > for the first time in ages. We were on a good roll until about a

> week

> > ago, then we saw a notable behavioral regression--increased

> stimming,

> > defiance, decrease in focus and distractibility, at home and

> school--

> > along with alternating loose and firm stools. That's where we

are

> > still. Certainly seems like yeast, but we are hoping that this

is

> the

> > regression that Elaine spoke of in BTVC as a possibility at

around

> the

> > 2-month mark. It's disappointing, because his IEP evaluation was

> this

> > past week and Lord knows that didn't go well. If it is yeast

then

> I'm

> > confused, since I understand that SCD foods shouldn't be

feeding

> > yeast. But we're keeping the faith for now as Elaine suggested.

> >

> > We're planning to make our first batch of yogurt as soon as the

> > diarrhea subsides. Maybe that will help.

> >

> > As I mentioned, I don't have a lot of strong opinions about SCD

> now

> > with less than 3 months of experience, but hopefully my

occasional

> > updates will be of some interest. The informational posts on

this

> > board are helpful.

> >

> > Good luck,

> >

> > Bill

> >

>

[Guest guest]

Sincerest thanks for all the responses. I don't suspect that my son is

getting illegal foods. He is very tuned-in to eating only foods we

give him. When he's offered something, he simply tells people, " that's

not good for me. " The school is very compliant too; they give us a

head's up when food will be in the classroom and we pack him his own

snack. It's interesting that his friends/classmates are fully aware of

his diet and also supportive in their own way. In fact, I've had a few

outside requests for the SCD muffins that I decorate to look like

baseballs.

I'm curious as to how long the regressions have lasted for those who

have seen them. If I may ask, were they behavioral and also digestive

regressions? Should I hold off on starting the yogurt for a while?

[Guest guest]

Hi Bill

My son, Clay, is 4 and we started SCD in 8/05. He has experienced these

regressions pretty much every other month, which is kind of creepy and

unexplainable, yet if others are experiencing the same, maybe that's oddly

reassuring? Anyway, for Clay, I'd say they are always behavioral--sometimes a

worsening of behaviors and other times just an oddness about him/more

stimmy/just " off " .

While he is greatly improved on SCD, it'd be hard to say whether the

regressions are digestive in nature--he has had some infections/viruses,etc.

which have affected his digestion, presumably due to antibiotics. Since we

haven't achieved the " perfect " digestive balance yet for long, I wouldn't say

there is a regression pattern for Clay.

I'd be interested to see what others have to report.

Tracey, mom of Clay, 4, ASD, scd 8/05

bill wrote:

Sincerest thanks for all the responses. I don't suspect that my son is

getting illegal foods. He is very tuned-in to eating only foods we

give him. When he's offered something, he simply tells people, " that's

not good for me. " The school is very compliant too; they give us a

head's up when food will be in the classroom and we pack him his own

snack. It's interesting that his friends/classmates are fully aware of

his diet and also supportive in their own way. In fact, I've had a few

outside requests for the SCD muffins that I decorate to look like

baseballs.

I'm curious as to how long the regressions have lasted for those who

have seen them. If I may ask, were they behavioral and also digestive

regressions? Should I hold off on starting the yogurt for a while?

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Hi Bill

Just wanted to try to cheer you up re: the IEP evaluation. I live in NY

and since Clay is only just recently 4, you probably have had more IEP evals

than we have, but assuming that things work the same in your area as I've seen

here, the poorer the evaluation and lower scores, the greater the amount of

support and services the school district will provide. At Clay's age, we still

want all the services we can get, but maybe that is different at 6?

As much as I too want to see improvement on those test scores, we all know

that to at least some extent the score is only a reflection of how good or bad a

day our child is having on the day of the evaluation. If they " ace " the test,

you could very well see some home services taken away. If they don't perform

well on the test day, you may get additional services.

IMO, its generally better to be given more services than you may really

need (and which you can later have reduced) than to have your child have an

unusually " on " day for the evaluation and get services taken away that you'll

likely never get restored.

Admittedly, I don't have the experience with a 6 year old's evaluation

yet. Is he in or contemplating inclusion in kindergarten? Does he get home

services? I'd review the eval results when you get them with your son's

therapists or teachers prior to going to meet with the school district as they

should have a better understanding of how the report may impact his IEP for the

year.

If the report truly doesn't paint an accurate picture, you could always

have an independent second evaluation done (different but similar tests) by a

developmental pediatrician or other recognized agency(likely at your expense),

to take with you to the school district meeting. Note you may have to provide

copies of the report to the district in advance of your meeting.

Again, I just wanted to try to cheer you up. I certainly don't have all

the answers. Good luck.

Tracey, momof Clay, 4, ASD scd 8/05

Bill wrote:

Hi all,

Just a brief update for anyone interested: We're 2.5 months into

strict SCD with my 6 y.o. son, and while we're convinced it's helping

on some level, the jury is still out for us.

At about a month we saw 2 days of die-off symptoms, then normal stools

for the first time in ages. We were on a good roll until about a week

ago, then we saw a notable behavioral regression--increased stimming,

defiance, decrease in focus and distractibility, at home and school--

along with alternating loose and firm stools. That's where we are

still. Certainly seems like yeast, but we are hoping that this is the

regression that Elaine spoke of in BTVC as a possibility at around the

2-month mark. It's disappointing, because his IEP evaluation was this

past week and Lord knows that didn't go well.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com