Re: Question for those of you with Ocular cea

June 20, 2002

Hi,

My derm is the one who suggested I see an eye doctor. I had dry, gritty eyes

and my eyelids (right along the lash line) were very itchy, red and swollen.

Turns out I have blepharitis and Dry Eye Syndrome. If you're eyes are dry,

try using some eye drops to help them - I like Thera Tears because they

become preservative free upon contact. Also, I do hot compresses - I have

problems with my mem. glands not secreting any oil which is why I have dry

eyes - these compresses help losen the oil so that it will secrete. But I'm

not sure if that is what you're problem is and I wouldn't want you to

aggrevate your rosacea with hot compresses unless you knew for sure. Anyway,

first and foremost make an appointment with an eye doctor and make sure you

tell him you have rosacea. Until then, use the eye drops and i know for me,

personally, it helps if before I go to bed I use Refresh PM gel - its an

ointment that you put in your eye - in the morning they usually feel better

if i do this but be sure to do it before you go to sleep because its thick

and will blur your vision a little. This way you won't have to deal with it.

I was on steroid drops once when my eyes got really bad. But you can only be

on them short term. And yes, I do the eye lid scrubs to help with the

itching of my eyelids - I think that may losen up the oil a little too - I

use a couple of drops of J & J baby shampoo and some cool water. Seems to

help.

Good Luck,

Donna

June 20, 2002

I was diagnosed with cea 6 days ago. I am still

very confused. I asked the Dr about my eyes that are very gritty and look

red. She did not suggest seeing an

Eye Dr. Reading the archives, I made an appointment

with an eye Dr for tomorrow. I am concerned. It could

be nothing, or Ocular or Sjogren. Does anyone have a problem with Autoimmune

disease? I am learning from this group. Thanks for that.

> I was diagnosed with cea 4 months ago. I believe that I may have ocular

> rosaea. Have had the dry gritty feeling for about two years. But always

> thought that was from allergies...that is, until I joined this group. How

> come my derm never suggested I get this checked out? Anybody have a derm

> that suggested they see an eye doctor?

> What is the treatment? I heard that if it is bad (which mine most likely

> is

> not), they prescribe eye drops with steroids in them. HMMMMMMMM...what the

> heck?

> What do you all do when you have the dry, gritty eye feeling? Are you all

> on

> antibiotic eye drops? I also hear that keeping the eye lids and lashes

> clean

> will help (duh)!

> Any suggestions until I can get in to see an eye doctor?

>

June 20, 2002

My case of ocular rosacea was immensely evident at the time of my

derm's diagnosis, but she said nothing about seeing an ophthamologist.

In doing my own research, I discovered how dangerous ocular rosacea

can be and I've today got a referral from my gp to an eye doctor.

Unfortunately, it's a bit of a wait.

If you are having trouble with you eyes, screw what the derm says or

better, does not say, and get a referral to an ophthamologist.

Deryk

June 21, 2002

An eyelid scrub is an easy and economical way to help our eyes. I use

Eye-Scrub by Ciba Vision, you can get it without a prescription. I use it

at night to make sure I have removed all my eye make-up. I hope this helps.

Re: Question for those of you with Ocular cea

> I was diagnosed with cea 6 days ago. I am still

> very confused. I asked the Dr about my eyes that are very gritty and look

> red. She did not suggest seeing an

> Eye Dr. Reading the archives, I made an appointment

> with an eye Dr for tomorrow. I am concerned. It could

> be nothing, or Ocular or Sjogren. Does anyone have a problem with

Autoimmune

> disease? I am learning from this group. Thanks for that.

>

> > I was diagnosed with cea 4 months ago. I believe that I may have

ocular

> > rosaea. Have had the dry gritty feeling for about two years. But

always

> > thought that was from allergies...that is, until I joined this group.

How

> > come my derm never suggested I get this checked out? Anybody have a

derm

> > that suggested they see an eye doctor?

> > What is the treatment? I heard that if it is bad (which mine most

likely

> > is

> > not), they prescribe eye drops with steroids in them. HMMMMMMMM...what

the

> > heck?

> > What do you all do when you have the dry, gritty eye feeling? Are you

all

> > on

> > antibiotic eye drops? I also hear that keeping the eye lids and lashes

> > clean

> > will help (duh)!

> > Any suggestions until I can get in to see an eye doctor?

> >

>

June 21, 2002

I totally agree with you - My eye doctor knows 100 times more about rosacea

than my derm. If anyone has " gritty " eyes see a good eye doctor your eyes

are too important to take chances with.

Re: Question for those of you with Ocular cea

>

> My case of ocular rosacea was immensely evident at the time of my

> derm's diagnosis, but she said nothing about seeing an ophthamologist.

> In doing my own research, I discovered how dangerous ocular rosacea

> can be and I've today got a referral from my gp to an eye doctor.

> Unfortunately, it's a bit of a wait.

> If you are having trouble with you eyes, screw what the derm says or

> better, does not say, and get a referral to an ophthamologist.

> Deryk

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't

give a meaningful subject or trim your reply text. You must change the

subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

June 21, 2002

Thanks for everybody's support. Saw an eye doc today who is very familiar

with rosacea. As it turns out his daughter has rosacea and he said that my

eyes looked perfect. Gave me some eye lubricant and what the heck, had him

do the glaucoma test and dilated my eyes. Everything looks fantastic. As a

matter of fact, my vision has improved. 20/15.

June 21, 2002

Thanks for everybody's support. Saw an eye doc today who is very familiar

with rosacea. As it turns out his daughter has rosacea and he said that my

eyes looked perfect. Gave me some eye lubricant and what the heck, had him

do the glaucoma test and dilated my eyes. Everything looks fantastic. As a

matter of fact, my vision has improved. 20/15.

June 21, 2002

Yes, go see your eye doctor. It's best not to start out on the

steroid drops (that's usually a last ditch effort for most

opthamologists) because they have side effects of their own when used

long term. My doctor gave me drops that are more for allergic eyes

called PATANOL. You put in one drop in each eye twice a day. It

took a few weeks, but after sticking with this system and washing my

eyes in the AM & PM w/warm (not hot) water I have noticed a definite

improvement. You'll probably find your eyes tend to get worse when

you have a flushing episode also so it's important to try and get as

much control as you can over those. A product like REFRESH TEARS is

good to use as much as you like to help with the dry, gritty feeling.

> I totally agree with you - My eye doctor knows 100 times more about

rosacea

> than my derm. If anyone has " gritty " eyes see a good eye doctor

your eyes

> are too important to take chances with.

>

> Re: Question for those of you with Ocular cea

>

> >

> > My case of ocular rosacea was immensely evident at the time of my

> > derm's diagnosis, but she said nothing about seeing an

ophthamologist.

> > In doing my own research, I discovered how dangerous ocular

rosacea

> > can be and I've today got a referral from my gp to an eye doctor.

> > Unfortunately, it's a bit of a wait.

> > If you are having trouble with you eyes, screw what the derm says

or

> > better, does not say, and get a referral to an ophthamologist.

> > Deryk

> >

> > --

> > Please read the list highlights before posting to the whole group

> (http://rosacea.ii.net/toc.html). Your post will be delayed if you

don't

> give a meaningful subject or trim your reply text. You must change

the

> subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently published book.

> >

> > To leave the list send an email to

> rosacea-support-unsubscribe@y...

> >

June 21, 2002