Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi and welcome... Have you gone to the Pecanbread.com website? There is a lot of beginner information there about doing SCD for kids on the spectrum. LOTS of the kids begin this diet as " picky eaters " .... in fact, the website has an entire section devoted to that topic! Happy reading! Patti, mom to Katera Getting ready to start SCD My son's DAN doctor recomended that I join this group because we are going to be starting the SCD very soon. We are just getting all his supplements in order first. I just wanted to know if anyone can tell me the best way to start this. I have read Elaine's book and have done some research on line. I was just wondering if any of you can give me a little more info since you are all involved as we speak. We are on the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I feel as though he will not be able to eat anything and his diet is so limited now and he is very, very, very, picky eater. I call him my " CARB. BOY " . Any suggestions? For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Dear , My daughter is also on the spectrum. She was diagnosed with malabsorption and celiac. Before we had joined Pecan Bread we had opted to do the diet by the book. When we arrived she too had many sensitivities. We chose to believe Elaine's book and if it didn't cause anaphylaxis reaction we didn't worry so much about these sensitivities. According to BTVC they vanish once the gut heals. And she does not believe that they are " true " allergies. This is exactly what happened with us. If you are like us, the foods that cause the most problems you truly need to avoid. But realize that you will more than likely be able to introduce them 3 to 6 months into this way of eating if it is not a deadly reaction. We are three months out and many foods that she was " allergic " to are now well tolerated. I personally have discovered that the yogurt is a GOD SEND. It caused such a good die off that once that initial die off was over my daughter began to try to talk, had imaginative play and smiled socially for the first time. It also a much needed way to introduce the probiotics in numbers that are extremely high and beneficial. We too, came to this with the mind set of GFCFSF and even had attempted other plans that did not work. I was terrified about the casein in diary. I discovered that the yogurt if fermented the way the BTVC book says to is rendered harmless. Some say go slow at introducing it. We didn't know to do this, and in a way I am glad, because the die off caused by ingesting large amounts brought about a change in my daughter that was profound. We continue to eat bowl fulls. It is our hope that our daughter may loose her diagnosis. She is truly a different child now. Not all may want to do it this " fast " , but this is what Elaine says to do in her book so we did it and are reaping the benefits. Are DAN! doctor is now truly an observer of success. We have not needed much of his help anymore. We do not use enzymes, and at this point in her healing her digestion has returned to normal. Hope this helps, feel free to contact me off list for advice to how to handle the die off or other concerns you may have. Antoinette (mother to KiKi-2 and healing by " just " using the book and following the suggestion of " fanatical adherence " pg. 68 chapter 9 from BTVC and the SCDiet in the same way that has been implemented for 60 years, with success.) Getting ready to start SCD My son's DAN doctor recomended that I join this group because we are going to be starting the SCD very soon. We are just getting all his supplements in order first. I just wanted to know if anyone can tell me the best way to start this. I have read Elaine's book and have done some research on line. I was just wondering if any of you can give me a little more info since you are all involved as we speak. We are on the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I feel as though he will not be able to eat anything and his diet is so limited now and he is very, very, very, picky eater. I call him my " CARB. BOY " . Any suggestions? For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.com<http://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Oh I forgot to tell you that our son started SCDiet as a " carbohydrate junky " too! lol He didn't think it was all that funny though. Once the initial die off was over his cravings changed to wanting SCD foods. It was difficult during this transition. He had to live through humongous cravings. During this transition, he was irritable and threatened to never eat again. Would throw tantrums and have rage attacks at the table. We use the neighbor to act as his doctor that we would call by phone to speak to him. I don't know what age your son is. This helped, threatening to call the " doctor " . Once his gut got back into balance like magic....our " carb boy " vanished....and so did his ADHD behavior and rage attacks. THANK GOD. Antoinette (SCD 2/06; mother to /CD/ADHD-4 years, Kiki CD/autistic-2 years and Bubbles/hyperekplexia-1 years entire family of five SCD and healing when no other way worked.) Getting ready to start SCD My son's DAN doctor recomended that I join this group because we are going to be starting the SCD very soon. We are just getting all his supplements in order first. I just wanted to know if anyone can tell me the best way to start this. I have read Elaine's book and have done some research on line. I was just wondering if any of you can give me a little more info since you are all involved as we speak. We are on the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I feel as though he will not be able to eat anything and his diet is so limited now and he is very, very, very, picky eater. I call him my " CARB. BOY " . Any suggestions? For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.com<http://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Get the GAPS Book!! Agape, denisedhillon wrote: My son's DAN doctor recomended that I join this group because we are going to be starting the SCD very soon. We are just getting all his supplements in order first. I just wanted to know if anyone can tell me the best way to start this. I have read Elaine's book and have done some research on line. I was just wondering if any of you can give me a little more info since you are all involved as we speak. We are on the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I feel as though he will not be able to eat anything and his diet is so limited now and he is very, very, very, picky eater. I call him my " CARB. BOY " . Any suggestions? For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 While a bit of your postings seems a bit off the wall for my taste, I must agree with one statement in particular at 100%... the yogurt (fermented 24 hours) is a God send... The healthy die off reaction and as I see it... " push through " of the nasty funk in Joe's intestines is a great effect... Please don't take this the wrong way, you're just a bit too " excitable " about SCD for me, who's been following SCD since last October with results, but nothing " miraculous " in nature. My son is autistic... I don't deny that... and it's a long hard road for my son. There is no quick fix... -Carol > > Dear , > > My daughter is also on the spectrum. She was diagnosed with malabsorption and celiac. Before we had joined Pecan Bread we had opted to do the diet by the book. When we arrived she too had many sensitivities. We chose to believe Elaine's book and if it didn't cause anaphylaxis reaction we didn't worry so much about these sensitivities. > > According to BTVC they vanish once the gut heals. And she does not believe that they are " true " allergies. This is exactly what happened with us. If you are like us, the foods that cause the most problems you truly need to avoid. But realize that you will more than likely be able to introduce them 3 to 6 months into this way of eating if it is not a deadly reaction. We are three months out and many foods that she was " allergic " to are now well tolerated. > > I personally have discovered that the yogurt is a GOD SEND. It caused such a good die off that once that initial die off was over my daughter began to try to talk, had imaginative play and smiled socially for the first time. It also a much needed way to introduce the probiotics in numbers that are extremely high and beneficial. > > We too, came to this with the mind set of GFCFSF and even had attempted other plans that did not work. I was terrified about the casein in diary. I discovered that the yogurt if fermented the way the BTVC book says to is rendered harmless. Some say go slow at introducing it. We didn't know to do this, and in a way I am glad, because the die off caused by ingesting large amounts brought about a change in my daughter that was profound. We continue to eat bowl fulls. It is our hope that our daughter may loose her diagnosis. She is truly a different child now. > > Not all may want to do it this " fast " , but this is what Elaine says to do in her book so we did it and are reaping the benefits. > > Are DAN! doctor is now truly an observer of success. We have not needed much of his help anymore. We do not use enzymes, and at this point in her healing her digestion has returned to normal. > > Hope this helps, feel free to contact me off list for advice to how to handle the die off or other concerns you may have. > > Antoinette > > (mother to KiKi-2 and healing by " just " using the book and following the suggestion of " fanatical adherence " pg. 68 chapter 9 from BTVC and the SCDiet in the same way that has been implemented for 60 years, with success.) > Getting ready to start SCD > > > My son's DAN doctor recomended that I join this group because we are > going to be starting the SCD very soon. We are just getting all his > supplements in order first. I just wanted to know if anyone can tell > me the best way to start this. I have read Elaine's book and have done > some research on line. I was just wondering if any of you can give me > a little more info since you are all involved as we speak. We are on > the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I > feel as though he will not be able to eat anything and his diet is so > limited now and he is very, very, very, picky eater. I call him > my " CARB. BOY " . Any suggestions? > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info<http://www.breakingthevicious cycle.info/> > and > http://www.pecanbread.com<http://www.pecanbread.com/> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Wow Carol! That was a bit of a nasty e-mail you just sent. It makes me a little nervous to send posts! SCD 11+ months -- Re: Getting ready to start SCD While a bit of your postings seems a bit off the wall for my taste, I must agree with one statement in particular at 100%... the yogurt (fermented 24 hours) is a God send... The healthy die off reaction and as I see it... " push through " of the nasty funk in Joe's intestines is a great effect... Please don't take this the wrong way, you're just a bit too " excitable " about SCD for me, who's been following SCD since last October with results, but nothing " miraculous " in nature. My son is autistic... I don't deny that... and it's a long hard road for my son. There is no quick fix... -Carol > > Dear , > > My daughter is also on the spectrum. She was diagnosed with malabsorption and celiac. Before we had joined Pecan Bread we had opted to do the diet by the book. When we arrived she too had many sensitivities. We chose to believe Elaine's book and if it didn't cause anaphylaxis reaction we didn't worry so much about these sensitivities. > > According to BTVC they vanish once the gut heals. And she does not believe that they are " true " allergies. This is exactly what happened with us. If you are like us, the foods that cause the most problems you truly need to avoid. But realize that you will more than likely be able to introduce them 3 to 6 months into this way of eating if it is not a deadly reaction. We are three months out and many foods that she was " allergic " to are now well tolerated. > > I personally have discovered that the yogurt is a GOD SEND. It caused such a good die off that once that initial die off was over my daughter began to try to talk, had imaginative play and smiled socially for the first time. It also a much needed way to introduce the probiotics in numbers that are extremely high and beneficial. > > We too, came to this with the mind set of GFCFSF and even had attempted other plans that did not work. I was terrified about the casein in diary. I discovered that the yogurt if fermented the way the BTVC book says to is rendered harmless. Some say go slow at introducing it. We didn't know to do this, and in a way I am glad, because the die off caused by ingesting large amounts brought about a change in my daughter that was profound. We continue to eat bowl fulls. It is our hope that our daughter may loose her diagnosis. She is truly a different child now. > > Not all may want to do it this " fast " , but this is what Elaine says to do in her book so we did it and are reaping the benefits. > > Are DAN! doctor is now truly an observer of success. We have not needed much of his help anymore. We do not use enzymes, and at this point in her healing her digestion has returned to normal. > > Hope this helps, feel free to contact me off list for advice to how to handle the die off or other concerns you may have. > > Antoinette > > (mother to KiKi-2 and healing by " just " using the book and following the suggestion of " fanatical adherence " pg. 68 chapter 9 from BTVC and the SCDiet in the same way that has been implemented for 60 years, with success.) > Getting ready to start SCD > > > My son's DAN doctor recomended that I join this group because we are > going to be starting the SCD very soon. We are just getting all his > supplements in order first. I just wanted to know if anyone can tell > me the best way to start this. I have read Elaine's book and have done > some research on line. I was just wondering if any of you can give me > a little more info since you are all involved as we speak. We are on > the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I > feel as though he will not be able to eat anything and his diet is so > limited now and he is very, very, very, picky eater. I call him > my " CARB. BOY " . Any suggestions? > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info<http://www.breakingthevicious cycle.info/> > and > http://www.pecanbread.com<http://www.pecanbread.com/> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Dear Carol, and to all that my " excited-ness " bothers. I am truly sorry that you have not had the success that we are witnessing. But please do not take it out on me. It is truly hard to not get excited when one witnessed their baby coming back to them. I want to give hope to the new comer just like those gave me hope when we where new. Mimi thinks that it is because she is young and a girl...that we are having success implementing this strict SCDiet. She had a similar experience with her daughter. I truly feel for you, but please realize that what you said was hurtful. Like said: Wow Carol! That was a bit of a nasty e-mail you just sent. It makes me a little nervous to send posts! SCD 11+ months It makes all of us Please don't do this any more. We all need to be relaxed here, and feel safe here. And not attacked any more. God Bless all, Antoinette (mother of 2 year old KiKi (celiac, autistic, healing when no other way worked) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Wow - I read the post this replies to and it is very logical - not off the wall at all. SCD saved my son's colon. I can't help but be excited about that! We did a couple other interventions but without SCD none of it would have worked. It was not over night success, but success none the less and with the most amazing outcome I could have imagined - complete remission! And we learned the hard way that without 100% compliance it just isn't as effective and in fact, in the end would have made SCD a waste of time. Robbie Getting ready to start SCD > > > My son's DAN doctor recomended that I join this group because we are > going to be starting the SCD very soon. We are just getting all his > supplements in order first. I just wanted to know if anyone can tell > me the best way to start this. I have read Elaine's book and have done > some research on line. I was just wondering if any of you can give me > a little more info since you are all involved as we speak. We are on > the GF/CF DIET ALONG WITH OTHER ALLERGIES: peanut, soy, and egg. I > feel as though he will not be able to eat anything and his diet is so > limited now and he is very, very, very, picky eater. I call him > my " CARB. BOY " . Any suggestions? > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info<http://www.breakingthevicious cycle.info/> > and > http://www.pecanbread.com<http://www.pecanbread.com/> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 I could think of several things I would love to post, but as another pointed out, as a mother of 4 children, ages 14, 5-1/2, 4, and 2 years old, my 4 year old having autism, and all the cooking that goes along with this... I simply don't have the time to post such lengthy diaries. I have nothing against you personally, as I don't know you, and as everyone knows, everyone is unique in their personality, not everyone is made to " get along " or even agree. The point in my post is this... The Yogurt is a point of agreeance... it has helped my son, especially w/ bowel regularity. Nuts... are hard to digest in certain formats and we use them sparingly (for treats and special meals like pizza). Bananas... cause black flecks and a bit of irritability (for some, not all) Enzymes... I love my son taking his enzymes due to again, his bowel movements. We gradually reduce the amount until we have a " flare up " and then we increase as needed, periodically in accordance with a flare up of some kind. Epsom salt baths... great for calming. I am not an advocate for claiming anything is a " cure all " for autism. It gives a sense of false hope and what parents need most is to know that while they may not see a cure overnight, there is a gradual healing and long process. Your posts... are a bit lengthy, but I don't gripe... I simply expressed my opinion that while I don't normally agree with everything you post, I felt compelled to agree about the yogurt. I don't post often... I won't judge, I simply expressed an opinion, that is part of a message board. And I do have a soapbox against those who feel the " sole " reason for not seeing " miracles " is due to lack of true devotion, but I'll let that one sleep, because it wastes everyone's time to argue about a moot point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 I could think of several things I would love to post, but as another pointed out, as a mother of 4 children, ages 14, 5-1/2, 4, and 2 years old, my 4 year old having autism, and all the cooking that goes along with this... I simply don't have the time to post such lengthy diaries. I have nothing against you personally, as I don't know you, and as everyone knows, everyone is unique in their personality, not everyone is made to " get along " or even agree. The point in my post is this... The Yogurt is a point of agreeance... it has helped my son, especially w/ bowel regularity. Nuts... are hard to digest in certain formats and we use them sparingly (for treats and special meals like pizza). Bananas... cause black flecks and a bit of irritability (for some, not all) Enzymes... I love my son taking his enzymes due to again, his bowel movements. We gradually reduce the amount until we have a " flare up " and then we increase as needed, periodically in accordance with a flare up of some kind. Epsom salt baths... great for calming. I am not an advocate for claiming anything is a " cure all " for autism. It gives a sense of false hope and what parents need most is to know that while they may not see a cure overnight, there is a gradual healing and long process. Your posts... are a bit lengthy, but I don't gripe... I simply expressed my opinion that while I don't normally agree with everything you post, I felt compelled to agree about the yogurt. I don't post often... I won't judge, I simply expressed an opinion, that is part of a message board. And I do have a soapbox against those who feel the " sole " reason for not seeing " miracles " is due to lack of true devotion, but I'll let that one sleep, because it wastes everyone's time to argue about a moot point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Carol, Well said. Agape, Carol wrote: I could think of several things I would love to post, but as another pointed out, as a mother of 4 children, ages 14, 5-1/2, 4, and 2 years old, my 4 year old having autism, and all the cooking that goes along with this... I simply don't have the time to post such lengthy diaries. I have nothing against you personally, as I don't know you, and as everyone knows, everyone is unique in their personality, not everyone is made to " get along " or even agree. The point in my post is this... The Yogurt is a point of agreeance... it has helped my son, especially w/ bowel regularity. Nuts... are hard to digest in certain formats and we use them sparingly (for treats and special meals like pizza). Bananas... cause black flecks and a bit of irritability (for some, not all) Enzymes... I love my son taking his enzymes due to again, his bowel movements. We gradually reduce the amount until we have a " flare up " and then we increase as needed, periodically in accordance with a flare up of some kind. Epsom salt baths... great for calming. I am not an advocate for claiming anything is a " cure all " for autism. It gives a sense of false hope and what parents need most is to know that while they may not see a cure overnight, there is a gradual healing and long process. Your posts... are a bit lengthy, but I don't gripe... I simply expressed my opinion that while I don't normally agree with everything you post, I felt compelled to agree about the yogurt. I don't post often... I won't judge, I simply expressed an opinion, that is part of a message board. And I do have a soapbox against those who feel the " sole " reason for not seeing " miracles " is due to lack of true devotion, but I'll let that one sleep, because it wastes everyone's time to argue about a moot point. For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
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