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Re: Hello/ for Bob

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In a message dated 8/9/2003 1:38:06 AM Eastern Daylight Time,

jandcsmomma@... writes:

>

>

> >I can see I am not alone. I where a pain patch and have

> >pain pills which sometimes help, most times not really.

> >Frustration is too mild a term for what I feel> Family thinks I

> avoid them because I often stay at home because of

> >the way I am feeling. My oldest daughter is starting to ignore me

> >because if I am not working I am lying down.

> >This is no way to live. It's getting harder to stay positive.

>

>

Hang in Bob. There is a cure. I had my pancreas removed Dec. 8, 2000 by Dr.

Sutherland in MN. I don't have pain anymore and it is wonderful. Are you

diabetic? If not you could have the Pancreatectomy and Auto islet cell

transplant. If you need anymore information just ask. I will give you a site

to read

all about the surgery. Be sure to look for AUTO islet cell transplant. This

surgery is for non diabetics.

Dr. Sutherland web site is <A

HREF= " www.DiabetesInstitute.org " >www.DiabetesInstitute.org</A>

His e-mail address is DSuther@...

His secretary's e-mail address is papas001@...

Dr. Sutherland's telephone number is (612)625-7600

You could describe your condition to Dr. Sutherland and he will tell you if

he can help you. He is very kind and down to earth. He will be happy to help

you. Take care, Shirley

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> I can see I am not alone. I where a pain patch and have

> pain pills which sometimes help, most times not really.

> Frustration is too mild a term for what I feel> Family thinks I

avoid them because I often stay at home because of

> the way I am feeling. My oldest daughter is starting to ignore me

> because if I am not working I am lying down.

> This is no way to live. It's getting harder to stay positive.

Bob, Please don't lose hope. It only makes things feel more

desperate. It is hard to avoid, and we all deserve to temorarily

reach our limits. I sometimes go to my basement bury my head in a

pillow and scream and cry. I yell it " it isn't fair " , and " out of all

the people in the world, why me " , and sometimes some things I am

ashamed to admit. Believe it or not it helps me. My therapist

suggested that I am allowed 5 minutes every day to be generally

P*SS*D off about my condition; because it really isn't fair to any of

us. It helped me stop feeling guilty. I always told myself that it

was so easy to find someone worse off that I wasn't allowed to be mad

or feel sorry for myself. While it is true there are others so much

worse off, it doesn't make our situations any easier, does it? We

still have the same pain and other stuff that goes along with it. I

give myself my 5 minutes when I need it and somehow it makes it

easier for me to go on with the stuff that I have to try and ignore

the pain and do.

I am currently reffered to doctor Sutherland in Minnesota for a TP-

ICT. There is a lot of info on the site about this, if you can't find

it just ask. Everyone on the site is ready and willing to help. If

you aren't diabetic, this surgery may offer a solution for you too.

and even if you are there are other surgeries available. You deserve

a solution that will make your life acceptable. That is what I am

chasing; right now I refuse to accept my life as is. I CANT live this

way. I hope you can find the solution that is right for you. I hope

we can help at the least by being there when you need it.

Believe in the power of prayer, it works. (Not always on OUR time

schedules, but it does work.)

Much love to you and your family,

Keri Beck RN

Mattoon IL

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