Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 HEY HEY HEY.... Well I m home everyone.....I am doing IV's for another week. I am still feverish but breathing better. I was supposed to run the support group tonight but they wouldn't let me leave...LOL SO we just moved the meeting until the 6th of May..... I did a full set of PFT's in the hospital and they were horrid. My TLC ( Total Lung Capacity ) is only 27% and my Diffusion test showed only 40% of my aveoli are diffusing...not good. I am still puffing away on 4-6L of 02. My FEV1 is up a little at 30 something %.....but this is about 15 mins after CPT, Albuterol and Atrovent nebs.....we are still waiting on the culture results....I guess I'll just go by the hospital later and see what they are. I need to have it to Jeff for Cap Funshine soon...=) I want to also thank everyone who called me, Yvette, Lynn, Shana, , Aunt B, Tricia and Shana thanks a million times over for the awsome goodies....Girl it made my day ! ! ! ! Also, I got on the docs about sending my stuff to Alabama for an eval.....they better do it ASAP ! ! ! Brad and I will be leaving for a much needed and anticipated vacation in FLorida on Sunday...We cannot wait. He's never been before so we have a jam packed week of stuff to do..... Anyways.... I will write more later....gotta hook up. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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