list/mail usage question -to All

[Guest guest]

First of all, Yahoogroups are acting weird. This one seems mostly

ok, larger groups I am in are having lots of problems of blank

messages and lost posts, etc.

Anyhow...

My reply message should NOT have gone out to the group. The message

that kinda seemed rude was sent directly to me. I mistakenly thought

(meaning I didn't pay attention to details) it was sent through the

list. I am a Network Admin. but I failed to view the headers, shame

on me.

But my response lets you all know that your loyal Lion will fight

for fairness and compassion even missing a pancreas and a spleen. =)

heheheh

The message sent straight to me denegrated me for not elevating Dr.

Southerland more and said that I had no right offering my

experiences on the total pancreatectomy since I had it " done by a

lesser surgeon at a lesser school of medicine. "

I don't care to point this person out to the group as it is not

worth it and it will only mess things up -besides this person is in

a lot of torment and sickness. Drugs and worries really impair

people and their thoughts and maybe I have been coming off as an

arrogant for having survived the surgery. I do have pride at how

well I have beat the odds on things and I do think it is important

for people to know that other surgeons and hospitals can now do the

surgery. But IO haven't meant to drive it into the ground.

To anyone I have insulted I apologize. We are all facing a

complicated and harsh disease and we are all better and stronger

together despire our differences. These includes our differences in

religion too. It bothered this person that I am a Pagan (Witch). I

believe the Supreme Being loves all creations. I want to help serve

people, especially people that are going through pancreatitis

because I know I really need the words and writings of the people of

this group.

Blessings to you all,

Bert

[Guest guest]

> The message sent straight to me denegrated me for not

elevating Dr. Southerland more and said that I had no right

offering my experiences on the total pancreatectomy since I had

it " done by a lesser surgeon at a lesser school of medicine. "

I do have pride at how well I have beat the odds on things and I

do think it is important for people to know that other surgeons

and hospitals can now do the surgery.

Blessings to you all,

Bert

Bert,

Your personal experiences, and your success with this surgery

done by another surgeon, are very valuable contributions to this

message board, and I hope that this disturbance does not

hinder you from telling others about it in this forum whenever you

have the opportunity. It's really sad that you were singled out for

speaking positively about something that could affect the lives of

so many others.

It IS important for us to know of other hospitals in the country that

offer the pancreatectomy, and the surgeons who do the

procedure. Knowing of your success, I was happy to know that

another patient I met in another pancreatitis support group was

going to your surgeon and having the procedure done at the

same hospital in Cinncinnati as you did. While Dr. Sutherland

has been doing this operation longer than any other, it is very

encouraging to know of other's that do it, also.

It's my understanding that it can be very difficult for many people

to get approval from their insurance companies to go to Dr.

Sutherland, since he has not yet complied by sharing his files

and records with governing agencies that monitor these medical

procedures. And since it is such a costly procedure, having

insurance coverage for it is the only way some people could ever

hope to have it done.

Please keep sharing your experience, and your successes with

this group. It is so good to know that there are other choices for

those who need it.

With hope and prayers,

Heidi

Heidi H. Griffeth

hhessgriffeth@...

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.