question PLEASE HELP

[Guest guest]

Hi all

Well its me again, I am having so much truble with Liam at night he is waking

3-5 times a night, crying or hungery or got a burp, normally its once a night

for a feed. I have had 3 weeks of this and I am at my ends wits, I cannot cope

anymore, I even phoned a help line becuase i was scared that I might hurt Liam.

I feel like a vulcano about to explode. I am going to a sleep and eating clinic

with Liam on monday for a week, they are really into routines and structure. He

is basically demand breast feed and eats little amounts of solids maybe 1/4 cup

per day. He snacks all the time. Anyway the only way he will go to sleep is if

I feed him to sleep, I am so had it.

Questions

For the last 2 days I have feed him then he played and when he got grumpy I put

him to bed with his dummy and he screamed and screamed for about 2 hours off and

on. I go in and check him and then leave again.

IS THIS OK TO LEAVE A CF BABY TO SCREAM, IS IT OK FOR THE LUNGS??

At the sleep clinic they will make Liam only have 3-4 breastfeeds a day and 3

solids. Is this OK, arnt CF kids meant to have many snacks in the day? or is

this for older children? I feed him about 7-8 times a day currently this

includes night and to sleep feeds.

I am so worn out, he wont take a bottle from anyone even me, I cannot go out and

leave him with anyone because he needs my breasts to much, typical boy!! HAHAH,

at least I can still laugh. I nned to get some life back, My husband and I

havent even been out anywhere since he was born and we desperatly need to get

out together, we would love to go to the movies or out for coffee.

I just had a plucket nurse come and see me today, she is also my old CF nurse

which is great. She told me to give him his solids before a breast feed now, I

didnt know that and so I did that today, she also gave me a routine to help me

till I got to the sleep clinic, hopefully it goes OK.

I am just so sleep deprived and cannot cope anymore I am scared of myself and

what is happening.

mother of Liam 8 months CF and Lily desceased with CF at 8 days old, 2

and 1/2 years ago. And a wonderful husband who gets up with me in the night

when I feed him for moral support and to help with Liam.