RE: Is it my turn?

[Guest guest]

Good morning to all

Heide and Cheryl thank you so much for your borthday wishes to Cassie. I

really wish you could have seen her face. She was so happy. It really did

make a difference in her day.

Now my questions. I knw I have mentioned on several occassions that I have

more day to day symptoms of CP than Cassie, I have also mentioned the SPINK!.

So ..Since last Sunday I've had off and on pain in the upper center and left

side of my abdoman and mildly in my back, pain levels have been from still

able to function, a tums calms it enough to increase resparations verge of

tears, put me in a ball (6). Pain is always including belching the most

horrible tatsing and smelly burps (rotten eggs) And the burps hurt! Last

Night Ii had 4 bouts of vomiting. Oh my god!! I was puking the stuff I've

been burping and get this It was large, bulky foul smelling and it floated..

So is it time To seek care? Would I be a hypochondriac if I went to dr and

said ok its time to check out my pancreas.

Ok you all know alot about Cassie but know more about me. I have had at

least 8 er visists or hospitilizations beteewn 25 and 28. All were for

vomiting related dehydration. Cause for vomiting unknown. I think I know

now. I can recall many of the events prior to getting sick and yes food was

involved. I also developed this problem with eggs which still lasts today.

Balls me up and makes me sick like I described so I don't eat them. I have

never been much of a meat eater that I can remember, I have always been a

fruit, vegie and Carb person. Yet I always tried to eat a little. I'm 40, 5'

6 1/2 and currently weigh 119 lbs. But wieghed 134 in early February. I have

not enjoyed eating for many years, After 2 or 3 bites of most foods I feel

like vomiting. So I eat almost constantly. Some foods, if they are not the

right texture they do the same thing if it's soggy it won't go down. Except,

when I was pregnant with my kids keeping weight on was an issue. I had no

problem then. I did have borderline gestation diabeties with Cassie. Only

problem I had with -Michiel was I broke my ankle during the 6th month of

pregancy, hurt my back at the same time, Dr's though it was gall bladder,

ultrasound was normal. I don't drink and haven't in years. Only thing that

has to do with is responsibility to my kids. Can't take care of my kids if

I'm under the influnce. Even when I did drink it was tame so that is not an

issue I don't think. I have also had problems with low bloodsugar for years.

Had 8 hr testing done in 1975. That's part of the reason I nibble all the

time. Lows seem to be coming more often and more intensely.

I've had pain bouts for years like I've described. It just seems to be

coming more frequently instead of every few months it was almost all week 2

really bad days. Not to sure yet about this morning, though I do feel weak.

My PCP is fairly young, has no idea about SPINK1, Has not researched it at

all. Has not seemed interested in my comments like, I have mor CP symptoms

on a daily basis than Cassie does. I don't want to go I there and be told I

haven't a clue on what i'm talking about. I also don't want to be

patronized. You know we' re only doing this cuase you say so, there is no

need for this to be done crap. I also don't want to be told that its

heartburn. Or I'm imagining it. That's what my parents say? I also don't

what them ignoring the possiblity of my pancreas if this is what it is. what

do you think?

Patty Hurst

Bangor, ME

Maine State Rep

PAI