Re: staph question/we go to Memphis/grandmomBev

[Guest guest]

sorry, I did not make it clear his nurse has a child that is 13 years

old with CF, I just read it again and realized that I did not make it

clear. She also has taught me a lot on how to take care of a,

Palazola mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf

> > Let me guess, was it Tutor? Just wondering. We also go to the CF

> Clinic in

> > Memphis, TN. As of right now, I am seriously considering taking

> to

> > UAB CF Center in Birmingham, Alabama. It is one and half hours

> further away

> > but....

> > just got out of the hospital. Dr. Bob put her in before

he

> had to go

> > on a vacation with his family. I understand that. I have

> absolutely no

> > problem with that. Tutor released her from the hospital, per Dr.

> Bob's

> > orders. I asked Dr. Tutor at the time was he aware that

> was being

> > sent home before the culture results were in. I wanted to be sure

> we were on

> > the right meds. Well, guess what. We were on the right meds for

> pseudomonis

> > (sp) but not MRSA. I did not even know had grown MRSA

> before she was

> > admitted to the hospital. The resident told me. They said Dr.

Bob

> wanted to

> > give her vancomycin. I had a fit. I had heard so many negative

> things about

> > that drug I was scared to death. I wanted to try ANYTHING else

> first. Dr.

> > Bob called, we talked, and he agreed that we should do another

> culture since

> > the other culture was 3 months old. (or so we thought, we found

> out later it

> > was a year old, the dates were confused by whoever gave the

results

> to Dr.

> > Bob). Anyway, to make a long story short, went back after

> being home

> > on home ivs 8 days or so, and Tutor had the picc line removed. I

> told him

> > she was not well. He said sometimes it takes a few days after

> taking the

> > meds. I told him she had to have an oral antibiotic after ivs.

> She always

> > has. She will get very sick if she doesn't. He told me he

doesn't

> give oral

> > meds to pts. after ivs but he would call Dr. Bob. Dr. Bob was not

> in clinic

> > that day and was unavailable for any near appointments. That is

> another

> > problem I have with that clinic. They only do CF Clinic visits on

> certain

> > days. They only have two doctors, and they both rotate. We will

> not see

> > Tutor in clinic anymore because of the way he talked to a

> year or so

> > ago. She was 8 or 9 at the time and when we left clinic she was

> scared to

> > death. She thought she was fixing to die that day. We had agreed

> to see him

> > in the hospital this time and for the follow-up visit only because

> we had no

> > choice. I really like Dr. Bob and I don't think he is aware of

how

> > frustrating it is to get to talk to him. I called the office last

> Friday and

> > left a message ( is never at her desk when I call except

maybe

> one time

> > out of 10 and I don't call more than 4 times a year.) I wanted

> either Dr. to

> > call me back. I left my cell phone number and have had it with me

> ever

> > since. I have yet to receive a call back. I left the message

that

>

> > is very sick, she is worse than she was before the hospital stay

> last month.

> > You would think they would call me back. I don't believe it is

Dr.

> Bob. I

> > don't think he ever got the message. I finally called a local

> pediatrician

> > and explained what was going on and read him the culture results

> from our

> > last culture. I told him which antibiotic we wanted and he sent

> it. Dr.

> > Tutor was not concerned about the fact that we were treating

> with an

> > antibiotic she was resistant to for what she was growing. He just

> said we

> > could talk to Dr. Bob when we saw him. Well, Tutor told us to

> schedule an

> > appointment in a month. Well, of course we couldn't get in to see

> Dr. Bob

> > then. He is too booked up. The appointment we have is May 21.

> School gets

> > out May 22, and I am a teacher. I realize my child's health is

> very

> > important, that is one reason I have kept that appointment date

for

> now. I

> > also know though, that if they weren't so booked up we would have

> been able

> > to be seen when we were supposed to and by the Doctor we choose.

> is

> > going to wait a month and a half after when she is supposed to see

> the

> > doctor.

> > So, am I right? Is it Tutor?

> > Just wondering....where are you taking your child now?

> >

> > Sue Pettit

> > mom to (16 wocf), (12 wocf), and (11 wcf)

> diagnosed at

> > 8 days of age at LeBonheur Childrens Medical Center in Memphis,

> Tennessee

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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